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  2. Captn seaglass

    Ahoy thare new matey here

    My long time childhood friend has stage 4 lung n not given a very good outcome they cannot give him straight answers so how can they give him such short life?
  3. Today
  4. HI Swapon. Welcome here. I'm sorry to hear about your health concerns and that you haven't been able to get a diagnosis. It sounds very frustrating. I have the same question that LexieCat has about what kind of doctors you've been seeing. If you haven't seen a pulmonologist, my first suggetion would be that you see one. My pulmonologist was able to tell me a lot from looking at my CT scan. She told me that one lung nodule was very suspicious for cancer due to its shape.She thought it was probably a primary lung cancer and not a metastasis from a different cancer I had previously. This turned out to be correct. She also told me that scarring in my lungs was likely from valley fever, an illness I was never aware that I had. This illness occurs where I grew up, but not where I have lived as an adult. So I thought she was very knowledgeable. This is why I recommend a pulmonologist.. If you have one and he or she can't answer your questions in a way you think is reasonable, you might want to get a second opinion. I'd also suggest seeing a neurologist, if you haven't already. Best of luck getting some answers! Please keep us informed about what you find out. Bridget O
  5. Hi, Swapon, and welcome. We aren't medical professionals here, so none of us can really be of much help in figuring out what might be going on. I'm not sure what kinds of doctors you've been consulting with--pulmonologist, neurologist, etc. What are the doctors saying about your test results? There are lots of causes of lung nodules, and most of them are not cancer. It could be that you've had infections in your lungs, for instance, which could also cause the chest pain and coughing up blood. I guess I'd talk to a pulmonologist about whether there should be continued monitoring of the lung nodules. There is some radiation-exposure risk associated with testing more often than is necessary. Right now you've been following these nodules for over two years with no significant changes, it sounds like. There may be absolutely nothing to worry about. Sorry not to be of more help.
  6. My Disease History Name : Swapon Kumar Age : 29 Years Marital Status : Married I Share my health conditions. At Mar 2016 , I experienced some burning and localized type chest pain in left chest area .After taking several investigation like Ecocaridography and Nuclear stress test it was confirm that it was not from Heart .Doctor told me to GERD ,musculoskeletal or something like that .Also perform upper gastro endoscopy in May which came back normal. But in Jun 2016 I found my left Supra Clavicle region slightly higher than right .After that one doctor recommend me to perform MRI. Findings of MRI Shows no Lymph node .Only 3 mm thickness in transverse process muscle body in Brachial Plexus region Higher than Right area. After that because of chest pain I take another opinion who recommend me to perform CT and after performing that with 5mm thickness pre and post contrast IV findings are multinodular densities shows in both lung field at October 13,2016.One Subcentrimetric Sizable nodule in left lower lobe at Lateral Basal Segment .(Not mentioned Size ) In November 2016 I have some cough with blood sputum in morning . So Perform Skin tuberculin test which come back +8 mm and Two Consecutive acid first Bacillii (AFB ) Test show negative result .Then perform another IV contrast CT with 2.5 mm MPR Images Result Shows : (21 st November 2016 CT Date ) : CT-1 (Findings ) Right Lung : -small round 3.6 mm nodule seen in the peripheral part ,anterior segment of the right upper lobe with smooth well defined margin with surrounding lung parenchyma. -4 small irregular shaped nodules ranging from 3-4 mm seen in posterior basal segment ,located adjacent to each other surrounding lung parenchyma . Left Lung : -solitary, round 9.4mm sub pleural nodule is seen at the lateral basal segment of the left lower lobe ,well defined margin surrounding lung parenchyma. (12th February 2017 CT Date ) : CT-2 (Findings ) No appreciable interval changes as compared to the previous study, the previously seen nodules shows no change in size nor in number or location. After another six month follow up I take appointment in another ct. In the mean time I experience several symptoms like Bad headache, serious Back pain , some swelling in LUQ area but Performing ultrasound ,no organomegaly or abnormal pathology seen. (24th July 2017 CT Date ) : CT-3 (Findings ) Scan through the chest shows a well defined nodule in the anterior segment of the right upper lobe.No intraregional calcification or cavitations noted. It measures about 6mm.Another pleural based nodule noted in the left lower lobe along the postero lateral chest wall. It contain foci of calcification and measures about 9mm in size. Bilateral lung nodule, one in the right upper lobe and another one in the left lower lobe as described. Further workup advised. In comparison with the last CT dated 12/02/17,the size of the right upper lobe nodule shows increase in size. However, the nodules noted in the right lower lobe as mentioned in the previous report are not visualized in the current study. 21st Jan 2018 pet CT Date :)18 F -FDG PET/CT SCAN Findings : Chest: There is a basal left lung nodule 9.7 mmx9.4 mm with no significant FDG uptake. Another smaller sub centimeter lung nodule with no FDG uptake noted at the right middle lobe(4.3mm). The heart is within normal limits and there is no pericardial thickening or effusion. There are small multiple paratracheal lymph nodes with no FDG uptake. Impression: Non- hyper metabolic pulmonary nodules in the lower lobe of the left and right middle lobe of the left lung. Further correlation is needed. Blood Profile Count History : All other parameter of total biochemistry remain normal except uric acid shows high maximum time. I also perform RF Factor which came back normal.My lymphocyte count maximum time in near the top and some times higher than range .But RBC ,WBC ,Haemoglobulin within normal range . This is my disease history. Some pain in right upper rib cage sternum area when bent and experience 1)Titubation ( With severe Dizziness when close Eye) 2) Pain in Middle of Backbone 3) Occasional neck Stiffness 4) Feeling Ataxia when carry little weight in Hand I have also Perform Brain CT scan due to this problem on 26 th April 2018 which was unremarkable findings and only spasm on neck muscle .Also Perform Basic Ear and Eye Test which reveal no abnormality .Also Perform a Brain MRI (contrast ) which came back unremarkable. I also perform crp test more than 3 times in last year and two times in current year which come within limit and result within 2.0. What should be the next point now this stage what should I do from my view point ????`
  7. Yesterday
  8. Candi

    Newbie

    Thank you for the link Lexicat, I believe I will take this evening and watch all that all of you have shared with me. I promise not to focus on the negative, I’ve actually been called nauseatingly positive lol. Working as a pharmacy technician for 22 years, we have had more than 1 doctor call in an ex and admit, “I know this medication won’t do any good but for the sake of the patient I have to try something.” And that was kind of my test for him to find out just how negative he was looking at this and if his heart was going to be in the treatments to actually try to help me beat this, otherwise I was gonna find someone else. He seems very optimistic though considering.
  9. LexieCat

    Newbie

    OK, then that's great! I'd suggest YOU not focus on worst-case scenarios, then. I think it's good to know what they are, but more helpful to assume you aren't on the dire end of the scale, you know? Right now there is no reason to think you won't respond beautifully to treatment and become one of the long-term folks. Here's a fairly recent article about treatment options for brain mets. I don't pretend to understand all of it, but it might suggest some questions for your oncologist. https://esmoopen.bmj.com/content/3/1/e000262
  10. Candi

    Newbie

    The news of outlasting expiration dates sounds good to me My oncologist was actually very positive, I was the one that began the conversation with him by asking if he felt there was any hope so he went over his thoughts regarding that very thoroughly, but then went on to share the positives and everything he was willing and planning to do to get this under control so I could get on with life. I actually really liked him.
  11. LexieCat

    Newbie

    I second what Bridget said. There are plenty of people on this forum 10-plus years past their "expiration date." It sounds a bit like your doc is one of those prone to giving the "worst-case scenario." Some people want that. Personally, I prefer a doctor who will be honest but also hopeful in terms of laying out the treatment plan, letting me know what would be Plan B if Plan A doesn't work, and assuring me that s/he is up to the challenge of helping me beat cancer. I'm not suggesting you don't have a great oncologist. Just pointing out that different doctors have different personal styles, and when you have options it's best to try to find someone who makes you feel like a survivor. Second opinions are always an option, and common when dealing with something like lung cancer.
  12. Candi

    Newbie

    Goodmorning Bridget, Radiation is my understanding however he did not specify a time, just soon. Thank you so much for the video, I can wait to watch it! Now more than ever do I want to learn and become involved wherever I can. Mr. Gould’s story sounds inspirational, I am eager to learn more about that also. Today is a good day and I am feeling a greater measure of confidence. Thank you for sharing Bridget❤️
  13. BridgetO

    Newbie

    Hi Candi. It sounds like you have a plan, which is good. Are you having radiation to the brain and if so, when do you start? Here's a video of something written by Steven Jay Gould about statistics and predictions of life expectancy. https://www.youtube.com/watch?v=cH6XuiOBbkcHe lived 20 years longer than predicted. His scientific perspective comes to the same conclusion as your religious one. No one knows how long they will live and doctors don't know either. (If somebody has already sent you this article or video, I apologize for the repetition). Hang in there. Bridget O
  14. I read this article with great interest. I'm a big fan of lung cancer screening, since it was what caught mine and led to early diagnosis and surgery (hopefully curing the cancer). The thing about screening, though, is that you have to meet the age/smoking history criteria to get it. I do get why screening isn't appropriate for everyone, and it makes sense to limit it to people at risk, but it would be great to have a way to identify more people at risk. This is about a study that looked at blood tests to identify markers indicating an elevated risk of lung cancer, and screening those who tested positive. As a result, the screening identified TWICE as many lung cancers as screening based on duration of smoking history alone. https://www.curetoday.com/articles/blood-test-may-identify-candidates-for-early-lung-cancer-screening Apparently it requires further study, but it sure sounds promising to me!
  15. Candi

    Newbie

    Good morning Everyone, Had my first appointment with my oncologist yesterday, wasn’t great but wasn’t horrible. His first concern is the spots now on my brain, he says we go after those first and try to get them under control. He concerned also at how quickly the cancer has spread, but kinda said there is only so much that can be done and we will just have to try and get ahead of it. He said at this moment, he may give me a year, mainly because once metastasized to the brain, it can be hard to beat it. He has to biopsy the mass once more to determine the genetic’s of the cancer which will tell him what form of treatment may work on the remaining cancer, this will take about 2 & 1/2 weeks, I expressed that I hope I have that long given how quickly the cancer has spread. I shared all of this info with my one and only son, we cried. I’m not afraid to die but I know that feeling of losing a parent, my mom died when she was 53 also and it just seemed so soon for me, I still had so much that I wanted to share and experience with her. One thing I do believe and I think Judy shared it also, cancer will not determine when I leave this earth, God’s Word says that is His decision so if at the end this is it, that is what was intended by God anyway, not cancer. I hope everyone has a great day....thank you for all of your support and guidance.....stay strong!!
  16. Last week
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  18. Candi

    Newbie

    Goodmorning All!! Boy, I never thought I’d see the day that I would be on a site such as this posting as a patient, but here I am. June 29, 2018 found me at the ER with pneumonia and low oxygen saturation level. (I really am one of those who NEVER gets sick??!!) The last time I was hospitalized was 26 years ago giving birth to my son. Long story short, my chest X-ray revealed pneumonia, a blood clot and a small mass. Suspicion led the dr to biopsy the mass that returned positive for cancer. I have a PET scan on Wednesday and a follow up with an oncologist on Friday. I feel great outside of a dry cough. I cannot even wrap my head around this? I’m 53, have never been ill with anything and now I am a cancer patient?? Part of me wishes to get this going and over with and the other part wishes to just walk away and deal with it myself. (I’m not Wonder Woman by any stretch, but you will never find me laying around because I don’t “feel good,” I just seem to heal better that way). 2 years ago I had a chest X-ray for an upper respiratory infection and my X-ray was clear of having anything wrong, including the infection.....how optimistic do I dare to be with these new findings? I don’t even know where to begin with questions.
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