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  2. LexieCat

    Your thoughts...

    Oh, and just a reminder--talk to your doc about participating in lung cancer screenings. We remain at risk even after quitting smoking, and I'm convinced that the screening (which detected the nodule to begin with and showed it had grown and was suspicious for cancer) saved my life. Most people don't get symptoms of lung cancer till it's well advanced.
  3. LexieCat

    Your thoughts...

    So HAPPY for you!! I sometimes wonder about reminding new people that things might not be as grim as they think--and that, in some cases, it might even turn out to be completely benign. But cases like yours remind me that it's not just throwing around false hope. And for us (former) smokers, getting a good scare is sometimes what we need. I quit smoking a year before my diagnosis--as soon as they spotted my nodules I decided this was a bit too real for my taste. And by quitting when I did, I have no doubt that I was in much better shape for the surgery I needed after the one nodule grew. You made my day!
  4. Helpingmom

    Keytruda

    Thanks so much, Lauren. So far so good. My mom goes in for another scan on 5/31. Praying the keytruda is still working. She has very tired days and some nausea but other than that, she feels good most days now and still works full time. So thankful for keytruda! It's been a year and no progression and we have seen reduction in several of her tumors. I am doing my best to be positive with her and concentrate on my work and my husband and take things one day at a time. :-)
  5. Today
  6. KatieB

    2018 Cancer Survivor Day Celebrations

    It's a WORD doc. I've attached the .doc and a pdf. can you open either of these? 2018Cancer Survivorship Celebrations.docx 2018Cancer Survivorship Celebrations.pdf
  7. Kim Y

    Your thoughts...

    Thank you Judy - I will! Kim
  8. Judy M.

    Your thoughts...

    Kim I'm very happy for you. You have given up smoking plus had a non-cancer report. A win-win for sure. Enjoy your life. Judy M
  9. BridgetO

    2018 Cancer Survivor Day Celebrations

    Katie, I can't open the Survivorship Celebrations.docx. All I get is a blank page!
  10. Kim Y

    Your thoughts...

    Thank you Bridget and the best to you and your health moving ahead! From the first X-ray to today - it's been a month - allowing me plenty of time to learn enough about lung cancer to know each and everyone of you are my heroes. Kim
  11. BridgetO

    Your thoughts...

    Yay, Kim! It seems weird to say I'm happy to hear you're not part of the club, but I am. Lung cancer is the club nobody wants to join. Best wishes for a cancer-free future. Bridget O
  12. "So far, so good" after 6 rounds is great!
  13. Is there a CSD celebration happening in your area? Post information about it below. Are you looking for a CSD celebration? Check the attached document for a listing of events we found for you. If you are attending an event and would like wristbands and brochures- please visit https://lungevity.org/for-patients-caregivers/get-educational-materials to order free materials today!! 2018Cancer Survivorship Celebrations.docx
  14. Kim Y

    Your thoughts...

    Thank you for the time it took to write such a thoughtful response Tom. I appreciate all of the advice and resources. I got the call this morning and I am relieved to report - the nodule is NOT malignant. It's been diagnosed as necrotizing granulomatous inflammation. The interventional radiologist who did my biopsy - said there was a 20 percent chance it wasn't malignant - I guess I'm part of the 20 percent. Thank you to all of you for your support during the last month - it was trying - to say the least. Kim
  15. Just heading out for my chemo this morning this will be number seven with two doses three weeks apart with scan scheduled for June after the last in that cycle.Seen the doctor on tTuesday and she warned they have upped the dosage and gave me some new medication to combat. No problems in the last six treatments but we will see. Que Sera Sera.
  16. Tom Galli

    Your thoughts...

    Kim, Family and friends are well intended but, in my diagnostic phase, not well informed. I spent hours chasing down one miracle cure after another from the very concerned and well meaning who were most concerned about my diagnosis. My mother was especially challenging and was broadcasting everything she heard from her family and friends. After about 3 weeks of mayhem, I finally had to tell everyone I'd had enough medical advice. That didn't stop everyone; my mother was especially persistent. About midway into my third line treatment, I discovered an on-line cancer website and gave those close to me the link so they could read about my treatment experience. More important, they could read about other cancer survivors treatment experience and that combination of information and insight turned down the volume on the miracle cure or "tell your doc to try this" advice. You can use this site as a source of information if you think that would help. Alternatively, you could refer folks to Lung Cancer 101 at the LUNGevity website so they could read into our disease and perhaps understand what you are experiencing. Diagnostic delay is hard to tolerate. I endured about 3 weeks of coughing up blood that made going out in public embarrassing. But in those 3 weeks, diagnostics determined my type and stage and set the course for my treatment. Once a treatment plan was established, things moved quickly but there were still delays. While in first line pre-surgical treatment, the radiation machine experienced a technical fault that took about 3 days to correct, and I worried that each day of missed radiation would allow my tumor to spread like wildfire. They just added 3 additional treatment days to the end of my scheduled plan, and the radiation oncologist said treatment plans were designed to accommodate interruptions. Lung cancer to the newly diagnosed is a very difficult concept to understand. It is a serious, life threatening disease and for most, it is the first such encounter. There is a new vocabulary to master with baffling drug names and strange acronyms. And, there is unsettling uncertainty to deal with. The only comfort I can offer is most here have been down your path and are still hanging around the forum. Your doctor is giving good counsel. Lung cancer affects individuals and each of us is different. That difference means the best possible schedule expectation is always a rough order of magnitude estimate. A projection of 3 weeks of diagnostics could easily turn into 6 weeks, especially with the new biomarker biopsy testing. But this testing is essential because targeted therapies and immunotherapy are very effective treatment methods. So.... Stay the course. Tom
  17. Judy M.

    Understanding cancer

    Susan Thanks for the article. I've been blessed by the fact that my Medical Oncologist's APN and his RN are cancer survivors. And the APN had a very aggressive form. She's the hardest working medical professional I've ever met and a great go-between between patient and doctor. Plus, my pre-op nurse that I had twice was battling cancer. I'd see her at infusion sometimes. I believe having these women has been a great help. Judy M
  18. Kim Y

    Your thoughts...

    Hi everyone - I’m still waiting on my results - they said 72 hours but it’s been one week. I’m preoccupied by what’s going on but not overly anxious - my feeling is I’d rather them take the time they need to do a thorough, accurate analysis. Given the biopsy results are so key to charting the course ahead. But my friends and family are hounding me to call and find out what’s going on. Also given the holiday weekend is upon us. I know they are worried for me - I’m worried for me - but they are getting on my nerves and are making me more anxious than I frankly need to be. One friend was implying my family doctor isn’t doing enough - he should be calling the lab and getting a status (?). I was like - uh - he’s on the receiving end. That pissed me off. I just feel like when they know - they will know. There’s no part of me that wants to call and hound them - I’m not sure what good that would do. My friends/family mean well but they are making it worse for me right now. My family doctor yesterday said it can take longer sometimes. That’s good enough for me - my gut says not to call again. I read online it can take 7 to 10 days for complicated cases - maybe that’s my deal. Kim
  19. Susan Cornett

    Understanding cancer

    I've read this before, but it was posted on LoveWhatMatters.com again today - an oncology nurse becomes the cancer patient. I think it's a good way for friends and family to gain an understanding of our situation. I hope you enjoy the article.
  20. Yesterday
  21. DanniDe

    Extensive small cell - looking for survivors

    Hello Tom, Thanks for your reply. They did do a biopsy which confirmed his case is not genetic, they are also going to test for markers (PDL1) - at our last appointment the professor discussed the possibility of Keytruda post chemo. We also got the results from his first scan post two rounds of chemo - it came back as no change to the primary tumor in the colon, so currently stable. Lymph nodes and some liver lesions are 20-30% reduced, but some liver lesions appear larger. However He explained that the inside of those cells are dead, and it looks to be inflamed. He told us that they will shrink and they are doing a follow up CT next week out of pre caution.
  22. Hi, Lisa, I'm very sorry but unfortunately, that program has ended. It was through CancerCare, not through LUNGevity Foundation. If we find out new information, we will share it here! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  23. LaurenH

    Scanxiety

    Isunique, We'll be thinking of you and hoping for good results! Please continue to keep us posted! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  24. LaurenH

    Mally

    Mally and Judy, I'm very happy for you both!! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  25. LaurenH

    Cisplatin & Taxotere /

    Hi, Mark, Thanks for the update! This site is a great place to ask questions. I'm also happy to help you find additional information and support resources. We are here for you! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  26. LaurenH

    Help! Had chemotherapy today..

    Hi, Ann, Just wanted to check in and see how you've been feeling? We're thinking of you! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  27. LaurenH

    Keytruda

    Hi, Helpingmom, Just wanted to check in and see how you're doing. We're thinking of you! Please post an update when you can. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
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