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Don

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Don last won the day on February 15

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  1. Don

    Ammmm Backkkkk.

    Hello All, I received my PET scan yesterday. Now if you remember I turn down any chemo treatments and have went my own direction. Well my oncologist called me today and can't believe what she sees. My tumor has already started shrinking. No I did not eat shark heads for those that get confused but I am detoxing my body. I have not started the vitamin stuff yet. I will continue detoxing until the end of Jan 14 and then will start daily vitamin stuff. My next scan will be in May 2014 at which time my doctor demands a face to face meeting. She is so curious as to what I am doing. Katie told me of the Jan/Feb Lungivity conference in Dallas and I plan on being there. I hope I finally get to meet YOU so plan on attending. God Bless Don
  2. Hello All, I am trying to gather information from people who have had Whole Brain Radiation. As you know I also have had SCLC and now NSCLC. I have had gamma knife myself. I talk with many people about SCLC and treatments and I am trying to gather information on side effects and how long since your treatment. I hope you respond but please only those that have had WBR. Thanks so much. God Bless Don
  3. Don

    Ammmm Backkkkk.

    Hello All. Well my status is still the same. I will be receiving a PET scan on 3 Dec so will try and post update 7-10 days later if I remember to talk with oncologist. I have been looking at several different options about doing crazy things like eating shark heads and crap and I have decided to do the following: 1. Eat anything that I feel like eating. 2. I have purchased a 60 day supply of a detox stuff that has volcanic ash or something like that in it. It says that it flushes the body of metals or something like that. I really hate to get technical and fill my head with too much info. 3. Between now and whenever I get to GNC I will be starting a daily multi vitamin that I took in the past that seemed to have a effect on me. No not pot either. Altho I wouldnt mind (not smoke) cooked in brownies. Now that is all I am going to do between now and Mar/Apr 2014. I won't mention name brands until after I see what effects it has on me. Now I have a bone to pick with some of you people. I keep reading about how you can't eat, I am losing weight and I am tired because I have cancer. STOP THAT NOW. You must be positive in your health and keeping weight on. I told all of you eat ICE CREAM. What do you have to lose but your life. I would rather die being fat and sassy than a bag of bones. Now if you need more clarification on what I just said then you have 2 choices. Get busy enjoying ice cream and such or go lay on the sofa and die. It is your choice. I have been there, done it, survive it and still breaking horses. Don't let this offend you take warning and eat. God Bless Don
  4. Don

    Ammmm Backkkkk.

    Hello All. Today is 3 Sep and my appt is in the history books. I know some of you might frown on my decision but after a long discussion here is the jest of it. 1. No surgury. COPD says no way. 2. Radiation. Lungs have seen to much already. Maybe some pinpoint rads if and when but lets not push it. 3. Designer chemo. Nope. The makeup of my non small cell does not have a current blueprint. Just basic in the veins chemo and if it don't work switch to another kind. Those options are not much to choose from so I changed the rules. I am opting NOT to have any treatment and continue my quality of life until such time that the cancer has to be treated. This cancer is a so growing type that I might just luck out and die of some natural causes before it can strike. I have been scheduled for a PET scan every 5 months so it will be monitored by my oncologist but I have all say so in my life. Now here is te funny part: My oncologist asked me today how much a month I charge to train or retrain a customers horse. She is interested in me retraining her jumping horse so I guess she must have faith in me hanging around. I am a firm believer in having quality of life over quanity. I hope that this letter finds it way to the person that is looking for answers and in some way helps. Take care and God Bless. Don I always check this site so if someone has a question please feel free to ask.
  5. Don

    Ammmm Backkkkk.

    Heelo all. Thanks for the well wishes. I have several answers from tests and from the tumor board. 1. No I am not a canidate for lung removal since tumor actually crosses between upper and lower right lobe. COPD plays a major factor also. 2. No radiation. During my treatment for SCLC I received the max radiation allowed. 3. They are/have sent my biopsy off to a lab to design a designer chemo for my type NSCLC. I thought that was pretty cool stuff. Also it looks like I ill be able to take it by mouth and not have to spend so many hours at hospital. My next appointment is 3 Sep 13 with oncologist to discuss when wheres and hows. I was told to keep riding horses and doing my ranching. That I could and would die of natural causes long before this type cancer can get me. So that's what I will do. Just keep doing what I do and not worry about it. Today I went to Golden Corral and had a ribeeye steak, nice prime rib stead, several buttterfly fried shimp along with many regular fried shrimp and a whole bunch of catfish. Topped it off with Peach Cobbler and then a bowl of ice cream when I got home. Remember my fat cow therory. Well I do enjoy my way of doing things. Also got 3 young horses to start breaking this week. Life is good, depending if your looking up or if your looking at the ground. That is your decision to make. Hope this finds all of you well and if your not then get well. Open a tub of ice cream and smile. Don
  6. Don

    Ammmm Backkkkk.

    Hello All, OK I think I have the spelling correctley now. adenocarcinoma but I am not sure at right at this minute don't care LOL. I had the breathing test yesterday and passed BUT I was so boderline it was like sitting on a barbed wire fence. Doc said if the upper right lobe with the cance turns out to be a bad lobe (meaning full of COPD) then surgury is very possible. If its a good lobe no can do. Then on to chemo and maybe some forms of radiation. So as it stands to date on Monday(12 Aug)(oh shi_, thats the date my ex-wife and I got married)LOL I will have the PET scan to see if it's located in more than one place. Following that I will have a oxygen test that reveals how much function each lobe has. Those answers will tell us where to go. I had a very enjoyable ride this morning on one of my customer horses. Quote. Winston Churchill. “There is something about the outside of a horse that is good for the inside of a man. I believe this to be true. As a horse trainer I see things that need to be fixed how that horse does their job but I realize it can only be done over a period of time to be done correctly. If that fits waiting out cancer so be it. I hope things are going right wherever and whoever you are. Don
  7. Hello everyone, It seems that the sclc I had just wasnt enough so I had to have a biopsy of my right lung last Thursday. Results came Monday (POSITIVE). Something called adrenal carcinoma. Since I have COPD and Asthma tomorrow I go in to pulmanary clinic to have lungs tested to see if the can withstand surgury. Then next Monday I get a PET Scan to see if it has moved anywhere else. Hoping that it has not moved anywhere then I am a surgical canidate. If it has I get the chemo crappola drink. At least this time they didnt start the conversation you might have 2 weeks to 2 months to live. It hard getting in touch or control of my feelings about this because it could mean I have to sell my ranch and really retire. That seems like a death sentence. Well that is about all I know for now but will keep you posted. Good luck and God bless. Don
  8. Thanks to all of you. Another Update: Went to Ortho wednesday to have my hips that were replaced xrayed. Doc asked "how many times you been bucked off since we replaced them" and I said 15-20 times at least. We both laughed. He said xray shows I got another 75 years warranty on them. Next week Brain MRI. The worst thing about going to doctor or store now is I can't remember where I parked or if I drove the truck or the car. Looked in pocket see what keys I got then look for that vehicle. Maybe try riding a horse to the store and tie him up out front. Then just look for the crowd. Or I could drive the tractor. Don
  9. Well I finally made it to the 10 year mark. My scans couple weeks ago is still clear. I have alzhemiers now but I am on medication for it. Forget things, get mad at things, and have lost what little patience ever had. Last spring dislocated my shoulder tearing rotater cup in three places. Doc said you will never lift your arm again. Surprise I can reach in the highest cabinet in the house and still saddle my horses. My brain is messing up now from the radiation but thats ok. My breathing is still good taking Alieve and Sprivia. Sorry if I cant spell but I dont really care anymore. Too lazy to look it up. I am sorry for all the people who have lost their battle here with cancer. It doesnt mean God wasnt with you or chose you to go home sooner. Sometimes I look back and wonder if it would have been better to have lost. The effects seem to remind you almost daily that you had cancer. Now I have go go to dentist since most of my teeth have fallen out. Think I will ask if I can just rent some for awhile. The only real advise I will leave you with is remember it is the quality of life that you desire. God Bless and have faith in Christ that he will come after you someday. Don Still Cowboying.
  10. Hello Everyone, I just passed my 9th year and didn't realize it. I wish you all the best in 2012. Am sorry that I can't say more at this time but I will be back. Don
  11. Hello goldenck54, I just saw your post and wanted to let you know that I am doing fine and still kicking. It has been over 8 years for me now and I plan on being here another 8 years if the Lord wants me to. I hope that you and all others the best. It's a tough thing to fight just stay as strong as you can both physically and mentally. God Bless Donb
  12. Don

    8 Years Now

    I forgot to add my colesteral is now 156, BP, pulse, and all blood test are perfect. I am now in better shape than my doctor who is getting fat, lazy, and losing his hair.
  13. Don

    8 Years Now

    As of this week it has been 8 years since dx with sclc w/superiod vena cava syndrome. My new titanium hips that have seem to be working well considering that am still breaking and training cutting horses. My short term memory is pretty well in the tank from radiation. They put me on Aricept for the memory thing. I have not been in for scans for over a year now. Not sure I want to either. Doctors still use that excuse when they don't know whats wrong, must be the chemo, radiation, or the cancer. Just give me a pain pill, sleeping pill, ativan, and am sure it will go away. If it's a cough due to cold then big bottles codine. And as for the hard of hearing I got hearing aids but what a pain. In and out and clean. So I invested in Bose sound system for TV, larger speakers in my car and truck and now I hear great. Again such a simple solution. I still think the infection causing cellulitis (Coleys Toxin) is what released all the T Cells and it ate my cancer at the same time. No one believes me not even the doctors but am still here and from the looks of it will be bugging doctors for some time to come. I wish I had answers for all of you that come to this board. I pray about a common cure for all of us and to end the suffering and sorry. I ask myself everyday why me and not someone else. And please dont tell me that am meant to do something. I hear that all the time. Yes I want to say am blessed but until all others are cured then I am not. I guess the only advise I can give is what I would always try and say. Lord if am here tomorrow I will try my best and if not I will be there in heaven with you and I got lots of questions. God Bless you all, Don The newest thing is Immunotherapy studies which is the release of t cells in the body caused by an infection but remember am the crazy one.
  14. Don

    brain mets

    Judy, Depending on the doctor is always the final answer. PCI is way less severe than WBR. WBR is as tough as nails and does leave a patient with many side effects and can cause lots of damage. Any nuero doctor will tell you that when you radiate the brain no one knows for sure what the outcome will be. Now that I have said that I would look for a doctor that would consider Gamma Knife in order to fast kill the current turmors. Then he will decide if PCI or WBR would be the best. Problem is time. It is not on her side at this point. If I was her knowing what I do today and at this late point quality of life would be a issue with me also. Tell her that I am very sorry for what has happened and if you email me I will give you my phone number to pass on to her. Just remember to tell her act quick with her decision for or against treatment.
  15. Hi Judy in MI and hello to Daisy also. Daisy I have sent you an email back. Please feel free to keep in touch wiith me. I hope everyone is having some level of success with their treatment plan. I have been very blessed and cancer free for almost 8 years now. If I can be of any help please contact me at Laughery@gvtc.com Don
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