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Susan Cornett last won the day on June 9 2023
Susan Cornett had the most liked content!
About Susan Cornett
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City
NORTH RICHLAND HILLS
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US State (if applicable)
TEXAS
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Country
United States
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Status
Lung cancer patient/survivor
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7,118 profile views
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Tom Galli reacted to a comment on a blog entry: A New Chapter
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Tom - I hope that you can find some relief. Chronic pain is not for the faint of heart. We're all here for you.
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wendybird reacted to a post in a topic: Newly diagnosed a few days ago
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Hi - Glad you found us. You'll likely hear from a couple of other people who will provide links to great information. I don't have answers to your question, but I offer hope. I was diagnosed with stage IV 7 years ago. I'm still here. 😁
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Hi Melinda - Sorry for the reason you're back but we're glad to have you. A lot has changed in the last few years - lots of new information out here. Please let us know how we can support you.
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Susan Cornett reacted to a post in a topic: Husband diagnosed yesterday
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Susan Cornett reacted to a post in a topic: Brain MRI
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Kristin - Glad to hear there is a diagnostic plan in place. The waiting and worrying is the worst. If you haven't already, get a notebook to write down the questions that pop up between now and then, and those you will undoubtedly have going forward. I always took a notebook to see Super Doc - that was the only way I could remember my questions each visit. Now...step away from Google! Those survival statistics are not reliable for so many reasons, mostly because they are out of date. We've had so many new treatment options in the last few years. My 5 year prognosis at time of diagnosis was 18%. That was nearly 7 years ago. Keep us posted.
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Welcome to the club no one ever wanted to join. You'll soon hear from several others on the forum who have a lot of great advice to offer. I'm so happy that you have a great support system - it really does make a difference. We have a lot of long term survivors on here. Their stories got me through this and will help you, too. Keep us posted on your progress.
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Susan Cornett reacted to a post in a topic: I'm also still stable!
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Susan Cornett reacted to a post in a topic: I'm also still stable!
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Step away from Google. While there is some good information, most of what you'll find is scary and confusing and overwhelming. Please keep us posted.
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NSCLC stage lv - first line treatment didn’t work
Susan Cornett replied to Strongmamaof3's topic in INTRODUCE YOURSELF!
Hi - The last treatment I had was in 2018 and was SBRT. I've been cancer free (as stage iv) for 4 years. That said, I'm going to respectfully disagree with the physician's wait approach for radiation. An old high school friend was diagnosed with stage IV after doctors found a spot on her hip. The radiation eliminated the spot and the pain she was having. Radiation can knock back/knock out the spot on your hip, perhaps even inhibit a return. Keep asking questions and pushing for answers. Also, definitely keep Michelle's insurance advice in mind. I'm a 31 year veteran of the industry; the squeaky wheel gets the grease. Always! Please keep us posted and feel free to ask anything.- 7 replies
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Hi Rosie - I'm sorry about your diagnosis but glad you are here. This forum was the first place I turned after I was diagnosed. So much has changed over the last few years - so many new treatment options now. I was diagnosed with stage iv in February 2016 and had 2 recurrences. Treatment was rough but it worked. I've been cancer-free for 4 years now. I don't have kids so I can't truthfully say that I understand what you are feeling, but I am only child of an only child. My first thought in all of this was wondering who would take care of my parents. I cried, cursed, and had a few breakdowns along the way but I also leaned on others. That's why we're here for you - we've walked your path. Ask us anything. We're here for you.
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When I was diagnosed with cancer, my friends/family were by my side every step of the way. They offered help, went with me to chemo, listened when I cried, brought us meals. In short, they were awesome. I had so much on my mind that I didn't think too much about what they were thinking. I wasn't tuned in to their fear for me. Two weeks ago, my oldest friend called to tell me she has stage 3 kidney cancer. We discussed her treatment and I asked the practical questions that cancer survivors think to ask. But once we got off the phone, my jaw hit the floor. I just sat there dumbfounded, not knowing what to do. It was odd being on that side of the diagnosis. I'm still in shock but know that she'll be okay. She has a treatment plan and a great support system. I'm tired of this cancer nonsense.
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introduce myself Hello to the community from Samantha
Susan Cornett replied to SamanthaThompson's topic in INTRODUCE YOURSELF!
Hi Samantha - My feelings brought me to Lungevity six years ago and it was an excellent choice for me. I can come here to ask questions, vent, worry, etc. It's not that my support system wouldn't listen - they would. But they don't understand all that I've gone through. I was diagnosed 6.5 years ago (stage IV) and have been cancer free for almost 4 years. This diagnosis isn't the death sentence it once was. If you haven't already seen it, there is a forum just for caregivers. Your family might find it useful for their questions. -
Kamoto - there was a tumor on my thyroid per the PET scan. I was told it was rare for lung cancer to metastasize to the thyroid. Ha! I had metastatic lung cancer in my thyroid AND thyroid cancer. Fortunately surgery addressed the thyroid issue. It's never boring, is it?
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Hi - just wanted to say I'm glad you found us. I know it's hard at this point but try to stay positive. So much has changed in lung cancer over the years and it's not the death sentence it once was. I was diagnosed with stage IV adenocarcinoma in February 2016, and I've been NED (no evidence of disease) since October 2018. Treatment was tough - not going to pull your leg on that - but I'm here to talk about it. That's what matters. Keep us posted on your progress.
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Hi Miriam and welcome. Sorry you have to be here but glad you found us. Tom and Lou have provided you with wonderful information - they always do. 😉 The statistics? They're crap. I looked at them once and had a panic attack. I haven't looked at them since. I was diagnosed 6 years ago with stage IV NSCLC. I've had a lobectomy, chemo, and radiation. I took a wonderful trip to Hawaii just as I finished radiation. Except for 2020, I've taken my annual beach trip with my friends. This is not to say I didn't have dark days because I did. I ended up on anti-depressants that helped me get back move forward. I've been cancer free for 3.5 years. I leaned on this forum and found great advice and information. Ask us anything - we've all been there.
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Today marks 6 years since my diagnosis. In 6 years, I've had surgery, chemo, more surgery, thyroid cancer, more chemo, radiation and SBRT. But I have survived and (mostly) thrived. The path hasn't been easy and I have a number of side effects that are trying, but I'm here. At the end of the day, that's all that matters. Looking forward to next year's cancerversary!