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Susan Cornett

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Susan Cornett last won the day on August 12

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About Susan Cornett

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    Over 100 Posts!

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    Female
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    DFW
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    TEXAS
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  1. Allyn Drew

    You will find many long term (10+ year) survivors here; I'm in awe of them. They have shared so much information, wisdom, and inspiration. They keep me moving forward, and I hope they can help you and your mom.
  2. Bless you. Sounds like your mom has had a tough time, but she is fortunate to have you as an advocate. I hope her providers can give you some answers.
  3. So much so fast...

    Isn't the shirt great? Got lots of smiles from my fellow baldies at the oncology center.
  4. So much so fast...

    Hi, Sherry. It's hard not to get overwhelmed by all of the new information, appointments, treatments, etc. For me, it was a total lack of control of my schedule and my life that drove me crazy. But it sounds like you have a great support system and that really helps. I shaved my head a few weeks back and had a couple of guy friends shave theirs in solidarity. I went to my oncology appointment today wearing a t-shirt that says "My oncologist does my hair." Keep us posted on your progress. We're here for you.
  5. New

    Hi, Kimi. As the other ladies have mentioned, this site is a wonderful place to get information and talk with others who know exactly what you're going through. If you'd like to share details about your diagnosis or treatment, we might have some insight we can share. But, we also understand if you don't want to go into that much detail. We're here for you; just let us know how we can help.
  6. Allyn Drew

    Hi, Allyn. I am a stage IV survivor for almost 18 months; just finished beating a recurrence. We understand how you and your wife feel right now. Everything about this stinks, but this forum has a wealth of information and long-term survivors. How can we help you? We're here for both of you.
  7. New here

    Welcome. I hope that you'll find information and hope in this forum. It has been a life saver for me. There are many wonderful people on this site who have walked a mile in your shoes. Let us know how we can help you.
  8. New to this

    Just checking in on you to see how your PET scan went this week.
  9. Introducing myself

    Hi, ViviAnn. We're practically neighbors - I live in NRH. I didn't have any same-day or immediate side effects due to the steroids provided pre-treatment and the days after. But I found after my first full dose of taxol that my side effects kicked in as soon as the steroids were out of my system. As for hair loss, I didn't lose it last year but have lost it this year. It started slowly with my 6 "light" doses of taxol, but within 14 days of my first full dose, my hair was falling out in huge clumps. I gave in and shaved it. The docs can give us their best estimate on side effects but we all tolerate the treatments differently. I have a friend who took cisplatin and it caused him to lose his hair, but when I took it, it didn't affect my hair at all. Hope your husband feels better soon.
  10. Chemo question

    Judy, Sorry I missed your post. I had four rounds of cisplatin/alimta last year and had some side effects but did not have edema. But...I just finished 8 rounds of taxol/carboplatin and I have watched my weight tick up and my body swell like crazy. The oncology nurse told me that between the steroids used during and after treatment, and the side effects of the treatment, it was not unusual to see weight gain and swelling. My oncologist doesn't even bat an eye at my weight. I'm almost 3 weeks out from my last chemo but had steroids much longer than expected so I'm hopeful that my swelling will diminish and I can see the scale start going the other direction.
  11. Surgery 3/27/17 for stage IIb nsclc

    Good morning, Karen. I'm sorry you've had such a tough time. I was diagnosed with stage IV early last year and just finished a round of chemo for a recurrence. The side effects have been brutal. They were bad enough to help me see why people opt out of treatment. But there is light at the end of the chemo tunnel and it is that we're all living longer with this diagnosis hanging over our heads. We're also seeing new treatment options for lung cancer which is what allows us to keep going. My hope is that I can continue to treat this as a chronic illness with the occasional flare-up. Please don't lose hope. We understand where you are and we're here for you.
  12. New to this

    Hi, Sandra. We will cross our fingers for a good outcome. The waiting is the crummiest part. Congrats on being an 11 year breast cancer survivor!
  13. Taxol - ugh!

    I do believe that Taxol was formulated by the devil's pharmacist! I had six "light" rounds of Taxol and Carboplatin during radiation in April and May, and I've had two additional full-strength doses of chemo since mid-June. I'm not giving up, but after these last two rounds of chemo, I certainly understand why people suspend or quit treatment. Super Doc warned me that it would be bad, but he said it wouldn't be as bad as last year's cisplatin/alimta combo. I love Super Doc but he lies! Taxol brought some of the usual side effects (fatigue, neuropathy, tinnitus) but it also brought total hair loss, insomnia, GI issues, steroid bloat, weight gain (!!) and a couple of others. It has just about wiped me out mentally and physically, and that's tough for me to admit. I know that there are others who have fared so much worse and I try to always keep that in mind. That said, I'm finished with chemo and will scan again in a couple of weeks. Ready for another reprieve from treatment and resuming life 90 days at a time between scans.
  14. Rash with Carbo + Pem

    Julie, Don't know if you know about chemocare.com but it's hosted by the Cleveland Clinic. I've found it to be very useful. Here's a link to their page on rashes: http://www.chemocare.com/chemotherapy/side-effects/skin-reactions.aspx Glad that the onc RN says not to worry. I'm currently dealing with a rash on my scalp following chemo and a shaved head. What a mess....
  15. Introduction and no news yet

    Hi, Sherry. Sorry for the circumstances that brought you but glad you found us. Most of us are diagnosed with lung cancer at its later stages; symptoms mimic other conditions (i.e., asthma, pulled muscles) and we just don't have good proactive screening. That said, it sounds like your team has a plan to get started with a bronchoscopy and biopsy to confirm that's what it is. I had a mass in my upper left lung that was biopsied through a bronchoscopy but results came back negative. I'm still not sure how that happened. But....it's been 17 months since my stage IV diagnosis and I'm going strong. You will find so many long term survivors on this forum. We all understand the concerns, fear, angst, and everything that goes with it. As you move through this process, please keep us updated and let us know how we can help you navigate.
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