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LaurenH

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Everything posted by LaurenH

  1. Hi, JustMe, How is your husband doing? Post an update when you can! And feel free to keep asking questions! Lauren -- Digital Community Manager LUNGevity Foundation
  2. LaurenH

    update

    Hi, Raymond, How are you doing? I hope your symptoms are getting better. Post an update when you can! Lauren -- Digital Community Manager LUNGevity Foundation
  3. Hi, Nicole, How did the appointment with the pulmonologist go? Lauren -- Digital Community Manager LUNGevity Foundation
  4. Hi, Charlotte, Welcome to LCSC. This is a great community to connect with other lung cancer patients and survivors as well as caregivers and advocates. Everyone on this site has been affected by lung cancer in some way, and this is a good place to ask questions and share stories. I'm glad you've already connected with Michelle and Susan. If you can share a bit more information about your diagnosis and treatment plan, we can connect you with resources and other members who can help. We are here for you! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  5. Hi, Carol, Welcome to LCSC. I am glad to see that you've already connected with so many of our members. This is a great community to ask questions and share your experience with other caregivers, patients/survivors, and advocates. Please let me know if you'd like to learn more about LUNGevity's programs and resources for caregivers and I will be happy to connect with you. We are here for you! With gratidue, Lauren -- Digital Community Manager LUNGevity Foundation
  6. Hi, Laura, I am very sorry that you and your husband are going through this, but we are glad that you've joined this community. Please continue to post updates and feel free to ask questions. The more information you can share, the easier it will be for us to connect you to resources and people who may be able to help you navigate his diagnosis. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  7. That's good to hear, Julie! Please keep us posted! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  8. Great news, Vicky! I'm so happy to hear positive results. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  9. Hi, Steff, I am sorry that you and your family are going through this again. Tom is a great example of a long term survivor who has lived through recurrences. Please keep us posted on your mom's surgery and biopsy. Once we have more information, we can connect you to others with a similar diagnosis. We have many resources for patients/survivors and caregivers, so please let me know if you'd like to learn more about our support program. We are here for you. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  10. Join Cancer Legal Resource Center tomorrow at 12:00 PM PT for the second webinar in our 2017 series. In this webinar, we will give an overview of the laws that provide protection in the workplace for those who are coping with a cancer diagnosis, including the Americans with Disabilities Act, state fair employment laws, the Family and Medical Leave Act, and other resources. Click here for more information, and to register online. This post was approved by LUNGevity.
  11. Trialbee is recruiting for a clinical study to evaluate an investigative treatment for Lung Neuroendocrine Tumors (Lung NETs). You may have heard of this condition being called Lung Carcinoid Tumors, Bronchial NETs, or Pulmonary NETs. A total of 216 patients will be a part of this global study, which has been approved by the FDA and relevant ethics committees. We are looking for both males and females, aged 18 years or older, who are diagnosed with a neuroendocrine tumor of the lung (Lung NET). To find out if the study may be suitable for you, please visit this website. This post has been approved by LUNGevity Foundation.
  12. Mally, I am so happy for you!! Congratulations! We are glad that you're such an active member of the community and we are grateful to be able to celebrate with you! Lauren -- Digital Community Manager LUNGevity Foundation
  13. Hi, Dave, Thanks for posting an update. Sounds like you've been handling everything like a...Dragon King! Stay positive. We are here for you. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  14. LaurenH

    Hi

    Hi, Shell, Welcome to LCSC. I am sorry to hear about your friend's diagnosis. There are many caregivers on this site. I will reach out to them and encourage them to connect with you in this thread. You can find several helpful resources in the online Caregiver Resource Center. LUNGevity also offers peer-to-peer support for caregivers through the LifeLine Support Mentor Program. Please let me know if you would like more information! We are here for you! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  15. Hi, Missy, Welcome to LCSC. That is a beautiful post. My mom is adopted, and she too felt like she was "picked" by the parents who were meant to have her. I am sorry that you and your family are going through a difficult time. It is wonderful that you have each other and that your mom has so much support. I will reach out to some LCSC members to see if anyone can answer your specific questions about neulasta. You mentioned that people defeat the odds every day, and many members of this site are living proof of that! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  16. We'll be thinking of you on June 20! And for your upcoming half:
  17. Hi, Dawn, Welcome to LCSC. Tom already shared a great resource, Lung Cancer 101. Please let us know if you need information about a particular topic. This is a great place to ask questions and get answers from people who are also navigating a lc diagnosis. We also have mentorship programs for patients/survivors and for caregivers if you'd like to connect with someone on a personal level. I hope your dad's appointment on Monday gave you some answers. Please post an update when you can. We are here for you! With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation
  18. Allison Doan has been on a long journey of self discovery, from a life of elite privilege to a brief time in federal prison, and then a battle with stage IV lung cancer. Through years of ups and downs, and finding forgiveness and strength she didn’t even realize that she possessed, Allison has remained determined to share a message of hope. Allison’s broken road has led her to a place of peace. She’s written an inspiring memoir, Bruised and Beautiful, which will be published later this month. By sharing her story, Allison hopes to inspire people that it’s possible to get through life’s hardships with love, faith, and trust. “I wanted to write the book when I was facing prison because I knew that I was going to take something horrible and scary and turn it into something good. I wanted to convey a message of hope that you can face anything with God on your side. When I started writing, I thought I’m going to end it here, and then the cancer struck,” says Allison. She describes her cancer diagnosis on her Caring Bridge site: “In early November 2014, I noticed a large lymph node on the right side of my neck. I was also having some pain with breathing and a dry cough. After some time had passed and no progress from antibiotics, my primary doctor ordered an ultrasound and several CT's which would reveal some concerns. The CT had shown 3 large lymph nodes in my chest (mediastinum area), 3 nodules in my lungs and 2 nodules in my thyroid gland. I was referred to an oncologist who ordered a biopsy on December 29. I was preparing myself for the news of possible lymphoma or squamous cell carcinoma according to what the doctor said. My doctor informed me that I have what looked to be medullary thyroid cancer a very rare form of thyroid cancer. A blood test was ordered to confirm this and a PET scan to see where the cancer might have spread. I began the arduous task of research to find those doctors that might have a specialty in this area. We decided to head to MD Anderson in Houston for a second opinion. After more testing and another biopsy it was confirmed that the cancer was actually coming from the lung. They diagnosed me with Stage IV neuroendocrine lung cancer which is incurable. After the shock and fear subsided I began to cling to my strong faith in our loving heavenly Father who holds me and this situation in His loving hands. Jeremiah 29:11 'For I know the plans I have for you sayeth the Lord, plans to prosper you and not to harm you, to give you a hope and a future.'” Realizing that her story wasn’t complete, Allison continued to write while undergoing treatment, hitting some roadblocks along the way. Allison says she “learned to navigate through the world of a cancer patient: days of normal, days of doctor visits, days of feeling great, and days of feeling crummy. Lung cancer is an up and down journey of new treatments. Then they stop working and you try something else.” Allison’s husband and care partner, Keith, has been by her side since the moment of her diagnosis. The two were married while she was undergoing treatment and planned their honeymoon in St. John in between clinical trials. Allison shared her story with country music artists Dave Fenley and Ray Johnston, who penned a song in her honor. The song, called Bruised and Beautiful (Alli’s Song), is full of grace and gratitude. It carries Allison’s powerful message of living each day to the fullest and trusting God. Part of proceeds from book and song will go to LUNGevity Foundation. LUNGevity was the first organization that Allison found when she started looking for online support after her diagnosis. The song Bruised and Beautiful is available for download on iTunes. Allison’s memoir of the same title, will be published in June 2017. In May, Allison entered hospice care to help with symptom relief and quality of life. She tells her family and friends that she’s staying “Allistrong” and that she’s humbled by the love, support, and encouragement she’s received. “Above all,” Allison says, “life is worth living.” Allison and her husband Keith, with their children Daniel, Peter, Megan, and Grant.
  19. Hi, Laney, I'm glad you and Tom have connected--he seems like exactly the person you needed to talk to! We'll be thinking of you and your mom on Monday. Please keep us posted on the results! Lauren -- Digital Community Manager
  20. LaurenH

    Confirmed

    Hi, Carl, How are you doing? As Tom mentioned, we have a LifeLine partner program where we can try to connect you with someone with a similar diagnosis and experience. If you'd like to get more information about the program, here is the link to the website: https://www.lungevity.org/for-patients-caregivers/support-services/lungevity-lifeline Please post an update when you're up to it. We are here for you. Lauren -- Digital Community Manager LUNGevity Foundation
  21. Hi, Jan, How are you and your mom doing? Please post an update when you can. We are here for you! Lauren -- Digital Community Manager LUNGevity Foundation
  22. Hi, Katekat, Just wanted to check in and see how you and your mom are doing. Please post an update when you can. We are thinking about you! Lauren -- Digital Community Manager LUNGevity Foundation
  23. Hi, Isaut, Just wanted to check in and see how you're doing. Please post an update when you can. We are here for you! Lauren -- Digital Community Manager LUNGevity Foundation
  24. 50% of the proceeds from this soccer camp in Columbia, MD, will be donated to LUNGevity Foundation! Soccer Camp.pdf
  25. Hi, Jeffery, I'm happy to read your great news! We'll be thinking of you on the 12th and hoping for even more good news after your surgery. Please keep us posted! Lauren -- Digital Community Manager LUNGevity Foundation
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