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  1. Tom, sad to say, afatinib does not seem to work for my mum Update : After taking 2 weeks of afatinib, the numbness on my mum's legs are not showing any improvement. So she started a 10-day radiation therapy for two weeks to address the tumors on her spinal cord (stopped taking afatinib for the time being). Side effects during radiation therapy were loss of appetite and nauseous. She resumed taking afatinib after completing radiation therapy last Friday. But she started to have diarrhea -- last Sunday for 5 times and last night for 13 times. In her haste to go to the toilet due to diarrhea, she fell from the bed twice *GOSH*. Now my family are very worried about her going to toilet in the night... This morning, we met with her radiation oncologist to review her conditions -- he increased dosage for anti-diarrhea medication to double and 3x a day. Hope she will feel better soon. Anyone can share the side effects of radiation therapy? How long will the side effects last? Next week, we have to discuss with her regular oncologist to decide her next course of treatment... Anyone tried the combination of afatinib with cetuximab?
  2. Tom, it warmed my heart when you said " thousands of folks are wishing her well" Thanks! Update : My mum's MRI results showed that the cancer has spread -- there is a small tumor in her brain and many tumors on her spinal cord which is causing the numbness in her legs. Her oncologist proposed to start her on afatinib 40mg to see if the numbness will go away. If not, the next option is radiation therapy. We are bracing ourselves for the worst but my mum is taking the news with positive attitude. After she started taking afatinib, her nausea/vomiting is gone - now she has good appetite (craving for her favorite food). We will meet with her oncologist next Thursday to review her condition -- hope to see some improvement! Wising all a Happy Mid Week!
  3. Lauren, I hope to share inspirational stories from here with my mum - so that she will fight on. Tom, we still have so much to learn - how to manage our fear/anxiety when tumor stopped responding to oral chemo drug. We are in for a long roller coaster ride! BridgetO, the oncologist has been prescribing medicine to counter possible side effects. I will check with him on palliative care when we discuss the treatment plan. Update : We met with the oncologist today - we always ensure at least two of us accompany my mum. He said molecular test didn't find mutation - still EGFR. However, he was concerned about the numbness in my mum's legs and ordered an immediate MRI - suspect something pressing on her spine. My mum is currently warded in the hospital. We will discuss the treatment plan after receiving MRI report.
  4. Good day. I just joined this forum today. My mum (non-smoker) was diagnosed with Stage VI NSCLC in Sep 2014 -- cancer had spread to her liver and bone. She took Tarceva for 9 months and INC280+EGF816 (clinical trial) for 15 months till tumors stopped responding to oral chemo drug. My mum is 71 years old and recently started to experience numbness in her legs, constipation and nausea/vomitting. She is feeling frustrated with her lost in mobility - unable to lift up her legs and need help/support to walk. My siblings and I are trying our best to make her comfortable. Numbness in legs is not a known side effect of the clinical trial drug. Anyone can share experience with symptoms like numbness in legs,constipation and nausea/vomitting? Can't bear to see my mum in such low spirit... Thanks in advance!
  5. Good day! I am glad to find this forum -- so many inspirational survivors and helpful people! My mum was diagnosed with Stage VI NSCLC in Sep 2014 -- cancer had spread to her liver and bone. She took Tarceva for 9 months and INC280+EGF816 (clinical trial) for 15 months till tumors stopoed responding to oral chemo drug. My mum is 71 years old and recently started to experience numbness in her legs, constipation and nausea/vomitting. She is feeling frustrated with her lost in mobility - unable to lift up her legs and need help/support to walk. My siblings and I are trying our best to make her comfortable. We are meeting her oncologist this Thursday to review her biopsy/molecular test results and discuss her next course of treatment -- likely chemotherapy. We are fearful that chemotherapy may further weaken her...
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