Jeffrey N

  • Content count

  • Joined

  • Last visited

About Jeffrey N

  • Rank

Profile Information

  • Gender
  • City
    Tampa Bay
  • US State
  • Country
  • Status
  1. Tom I found out this morning that if you're 55 or older the chances of the VA changing your benefits are slim to none. I think I have that covered by at least 10 years hahaha. I woke up again to my chest and my back on the right side under my arm where they did incision swelled up quite nicely as it has been. I am wondering how long the swelling will take to go down now. I am just anxious to get this over with I know it's only been a week. To anyone who may be following or contemplating doing this it is hard but you can beat it I will
  2. The pain from coughing is still quite severe and my voice is high pitched and funny sounding because I guess the nurse said they pinched my trachea closed some. I think if I had stayed in the hospital until Monday the recovery would have been quicker. I have read that if the VA feels they got all the cancer out through surgery and you go through the chemo chemo and now they don't find cancer you lose your VA compensation benefits is this true. That would be a real slap in the face.
  3. Well I got home late Friday about 4 p.m. after a two-hour ride in one of those little Mini Coopers horrible car. I went right to bed and fell asleep. I woke up about 4 in the morning and had to go into the bathroom the pain was so great or the blood pressure changed either way I slumped down out of the walker onto the floor. I stayed on the floor until about 7:30 a.m. when my friend that brought me home came to check on me and got me up and put me back in bed gave me two oxycodone and I went back to sleep. The next time I do this I will pay closer attention to Tom as I should have stayed in the hospital at least until Monday. But I am a pushover. So it's Sunday night no nurse no help no phone call from the VA up until this point they have been absolutely wonderful after they got started. Dr. Hong said he is confident I will have to do chemo therapy but I can do that up in Albany New York or Burlington Vermont
  4. All though slow to get started after they got going they are like ball a of wind everything is just perfect I have no complaints up to this point
  5. They are having a home nurse and a home assistant come twice A-day to prepare food only .The nurse world handle the medicine and change the dressing every day as it is going to need to be changed at-least until Monday
  6. Had a bit of a snag they want me out of here tomorrow and I'm not ready i have no one home.Trying for home health care
  7. They removed the lung tube last night And it felt wonderful for a while a breathing treatment came and I made a caugh and now I'm back-to ground 0 with pain Today I will just do what I can it's just too painful I was getting up I will try again .As far as the VA once we got going the care has been totally outstanding I could not ask for anything better the surgeon is outstanding the nurses are very friendly and understanding I am glad I am here if I have to be in the hospital
  8. It's over he only had to remove the top 1/3 of my lung and he was able to get the tumor out of my Trachea you so it's a little narrow now.chest tube Hurts terrible
  9. Well leaving at 3AM to have surgery at 5AM , first of the day. Rather go back to Nam than do this. Hell of a deal , 65 and scared of a little surgery.
  10. And now the VA has moved me to %100 disabled service connected. Sent in paperwork in 3/13 and approved 5/30. Now that was fast!
  11. So finally! NO BRAIN CANCER , WOOT! Surgery is scheduled for the 12th same plan , remove right lung. VA physiatrist (yep) says headaches are stress related . Still looking for a home for Amy , my room mate.
  12. *** SURGERY TELEPHONE CONTACT Has ADDENDA *** Called veteran to discussed his appointment to see the thoracic surgeon. Explained to him that Dr. Hong can see him at Bay Pines for consultation. I have contacted Bay Pines and I am trying to get appointment set for 05/09. He has a MRI on 05/23 which would be the next available clinic time. He is okay with seeing Dr. Hong at Bay Pines and will make arrangements to get there. He has my number for any other questions or to notify me of his appointment times. He thinks it is silly that we don't have a thoracic surgeon of our own in Tampa. Explained to him that we are actively looking for a surgeon but it takes time to find a good one that we want. He informed me that he wrote letters to his congressman: Bilirakis and president Trump. He hopes it helps us to get the resources we need.
  13. Might be some good news I think , hope. 64 y/o male with right upper lobe mass that is highly concerning for malignancy. case reviewed with Dr. Walsh, who feels that tissue diagnosis is not necessary given the appearance of the lesion, which is overwhelmingly likely to represent NSCLC. Dr. Hong present and reviewed imaging with patient. Risks of surgery discussed with patient at length including but not limited to: death, respiratory insuff, prolonged ventilation, irregular heart rhythm, need for blood transfusion (with associated risks for HIV/Hep C), prolonged Chest tube placement, and possible need for home o2 on discharge. Pt. agrees to proceed with surgical intervention. Right VATS, possible thoracotomy with right upper lobectomy, possible bilobectomy planned for 06/12/17. Plan: 1. MRI of the brain 05/23/17 at Tampa VA 2. will plan on R VATS, possible thoracotomy R upper lobectomy, possible bilobectomy 3. pt. instructed to resume aspirin therapy again and continue until day of surgery. 4. labs today and again on 06/09/17 5. EKG today 6. asu and lab appt on 06/09/17 7. update of h+p on 06/09/17 with Dr. Hong (overwhelmingly likely to represent NSCLC. ) I think this may be good right ?
  14. On veterans choice , it doesn't work well everywhere= VA Hospitals Still Struggling With Adding Staff Despite Billions From Choice Act
  15. Today met with Dr Hong in bay pines , he is in fact a top surgeon in his field. Surgery is set for the 12th , IF the brain mri is clear on the 23. If not no surgery and it will be considered inoperable. I am hoping for the best but headaches persist and it is not a good sign. Any way here is me ! Jeffrey Noyes (face book)