Jump to content

Jeffrey N

Members
  • Posts

    35
  • Joined

  • Last visited

Posts posted by Jeffrey N

  1. Squamous cell carcinoma

    tumer ssociated atelectasis or obstructive pneumonitis

    extranodal extension :present

    lymph vascular invasion:present

    had a ct scan last thursday , va called , cancer has spread and tomorrow another pet scan to see where.

  2. so the oncologist was very specific about what cancer I have finally , stage 3 type a t3 with lymph nodes involved. I will have 4 chemo , 1 per week and 6 daily radiation treatments. I will stay in hospital for 6-8 weeks.

  3. I am jeff noyes , nam vet and agent orange poisoned. All you need is boots on the ground to qualify . I have lung cancer kinda bad. 

    Find who is your congressman and call-explain your situation. Include you need the funds for something important (moveing was mine) it then took 30 days for me. mine was Billarackus.

    Florida has county and state american legion offices , look in google your area. They are great.

    https://www.publichealth.va.gov/exposures/agentorange/conditions/        They did ask me several times WHEN I quit smokeing 10 years ago for me. If he does stop NOW!

  4. The move was a little hectic seeing how I could do very little because of the surgery. But my brother was with me to help with the moving van and get my truck shipped up here to Ticonderoga New York. I finally got to the Albany VA and they are going to do a new pet scan as soon as possible. And then they're going to put a port in and start me on something called cisplatin and gemzar. The doctor said because I already have neuropathy I will wind up in a wheelchair but we will see about that. I have made it this far I am confident that I will walk again. Getting the internet turned on took a week and I'm still working on getting phone service. Things really go slow up here in the mountains.

  5. Home again on the 7th , mostly sleep. Had some nasty steroids ans such , feeling better but chest hurts. Va is on the ball with chemo , lining me up with Albany and Glens falls up north asap.

    Moving 1st of month .

  6. More news it turns out that they cannot remove more of that lung due to who knows what. I was supposed to go home maybe late today but the doctor said the cultures came back and I have some kind of a fungus or something growing in that lung. Those doctors will be around late today and explain how they will deal with what is called and infectious disease. It just keeps getting better. I'm beginning to think I am in hotel California you can check in but you can never check out. If God would just give me a little help with this one once again I will be in his debt as I am forever and ever as it is now anyway. Really getting discouraged.

  7. Tom I found out this morning that if you're 55 or older the chances of the VA changing your benefits are slim to none. I think I have that covered by at least 10 years hahaha. I woke up again to my chest and my back on the right side under my arm where they did incision swelled up quite nicely as it has been. I am wondering how long the swelling will take to go down now. I am just anxious to get this over with I know it's only been a week. To anyone who may be following or contemplating doing this it is hard but you can beat it I will

  8. The pain from coughing is still quite severe and my voice is high pitched and funny sounding because I guess the nurse said they pinched my trachea closed some. I think if I had stayed in the hospital until Monday the recovery would have been quicker.  I have read that if the VA feels they got all the cancer out through surgery and you go through the chemo chemo and now they don't find cancer you lose your VA compensation benefits is this true. That would be a real slap in the face.

  9. Well I got home late Friday about 4 p.m. after a two-hour ride in one of those little Mini Coopers horrible car. I went right to bed and fell asleep. I woke up about 4 in the morning and had to go into the bathroom the pain was so great or the blood pressure changed either way I slumped down out of the walker onto the floor. I stayed on the floor until about 7:30 a.m. when my friend that brought me home came to check on me and got me up and put me back in bed gave me two oxycodone and I went back to sleep. The next time I do this I will pay closer attention to Tom as I should have stayed in the hospital at least until Monday. But I am a pushover. So it's Sunday night no nurse no help no phone call from the VA up until this point they have been absolutely wonderful after they got started. Dr. Hong said he is confident I will have to do chemo therapy but I can do that up in Albany New York or Burlington Vermont

  10. They are having a home nurse and a home assistant come twice A-day to prepare food only .The nurse world handle the medicine and change the dressing every day as it is going to need to be changed at-least until Monday 

  11. They removed the lung tube last night And it felt wonderful for a while a breathing treatment came and I made a caugh and now I'm back-to ground 0 with pain Today I will just do what I can it's just too painful I was getting up I will try again .As far as the VA once we got going the care has been totally outstanding I could not ask for anything better the surgeon is outstanding the nurses are very friendly and understanding I am glad I am here if I have to be in the hospital 

  12. *** SURGERY TELEPHONE CONTACT Has ADDENDA ***
    Called veteran to discussed his appointment to see the thoracic surgeon.
    Explained to him that Dr. Hong can see him at Bay Pines for consultation. I have
    contacted Bay Pines and I am trying to get appointment set for 05/09. He has a
    MRI on 05/23 which would be the next available clinic time.
    He is okay with seeing Dr. Hong at Bay Pines and will make arrangements to get
    there.
    He has my number for any other questions or to notify me of his appointment
    times.
    He thinks it is silly that we don't have a thoracic surgeon of our own in
    Tampa.
    Explained to him that we are actively looking for a surgeon but it takes time to
    find a good one that we want. He informed me that he wrote letters to his
    congressman: Bilirakis and president Trump. He hopes it helps us to get the
    resources we need.

  13. Might be some good news I think , hope.

    64 y/o male with right upper lobe mass that is highly concerning for malignancy.
    case reviewed with Dr. Walsh, who feels that tissue diagnosis is not necessary
    given the appearance of the lesion, which is overwhelmingly likely to represent
    NSCLC. Dr. Hong present and reviewed imaging with patient. Risks of surgery
    discussed with patient at length including but not limited to: death,
    respiratory insuff, prolonged ventilation, irregular heart rhythm, need for
    blood transfusion (with associated risks for HIV/Hep C), prolonged Chest tube
    placement, and possible need for home o2 on discharge.
    Pt. agrees to proceed with surgical intervention. Right VATS, possible
    thoracotomy with right upper lobectomy, possible bilobectomy planned for
    06/12/17.
    Plan:
    1. MRI of the brain 05/23/17 at Tampa VA
    2. will plan on R VATS, possible thoracotomy R upper lobectomy, possible
    bilobectomy
    3. pt. instructed to resume aspirin therapy again and continue until day of
    surgery.
    4. labs today and again on 06/09/17
    5. EKG today
    6. asu and lab appt on 06/09/17
    7. update of h+p on 06/09/17 with Dr. Hong

    (overwhelmingly likely to represent
    NSCLC.  )  I think this may be good right ?

  14. Thank you for the post. The VA here offered Veterans Choice but it seems that will take up to 60 days for the paper work. I am up to = May 9th bay pines with Dr Hong , consul , May 23 for MRI of brain. No date for surgery as he goes on vacation. DAMM. I wrote to my congressman AND pres Trump.

    [ President Trump you have a problem with the V.A.
         March 9 I have x ray shows lump and Cat scan is requested same day. April 22  get Cat Scan and I have a real problem. April 24 I have consult with thoracic Dr. and decide it needs removed but need a pet scan and MRI.  May 1 have PET scan still have cancer. MRI is scheduled for May 23. A consult is scheduled for JUNE 1 , No surgery date yet.
      If you could see the cardiology report for surgery it says MAY 8 for  surgery and make arangments for my brother to come and stay. Its canceled.
       SO I get asking whats up and am told there is ONE , 1 , thoracic surgeon for all of James A Haley AND Bay Pines.
      Nurse says they have been waiting for over a year for the VA to hire one.
    In the mean time myself and I am sure others are dying waiting for surgery.
    When my stepmother was diagnosed with lung cancer she dyed 3 months later.
    Get us a doctor , please. ]

    I posted it on face book and it is getting reposted lots. Maby it will help someone.

    Jeff  And it does hurt to take a deep breath.

  15. So , PET scan shows 1  2x3 cm right posterior perihilar mass = two parenchymal densities measuring 4cm and 2.7cm. and 2 lymph glands suspicious. 

    Brain MRI is scheduled for 5/23 , consul with surgeon for June 1 Surgery sometime towards the end of June.

    so lump found 3/9 , some 4 months later surgery. I am now upset.  TURNS out there is 1  ONE  surgeon for all of Tampa VA and Bay Pines. You are talking BIG hospitals.

    I have now changed my tune to V.A. = not good.

     

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.