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Carol4745

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Carol4745 last won the day on June 25 2017

Carol4745 had the most liked content!

Profile Information

  • City
    Fair Oaks
  • US State (if applicable)
    CALIFORNIA
  • Country
    U.S.
  • Status
    Not a patient
  • Interests
    Lung cancer, BRAFV600 mutation

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146 profile views
  1. Hi Everyone - Thanks so much for the good advice and the encouragement. We don't eat much meat, but we're tying to eliminate it with veggie soups and tofu (he hates tofu:)). Cindy - I'm not sure if your docs and ours are using the same scale. For us, his creatinine needs to be below 1.6 in order to continue with his Alimta (but above 1.27 is considered high). It was high last cycle, but with IV hydration it got below 1.6 so he could have an infusion in early June. Now, though, it's spiked up to 2.6, and has come down with hydration to 2.1. He's going to continue with IV hydration this week, and we're seeing our oncologist next week. They did ultra sound of his kidneys and bladder and a urinalysis and that was all normal. I know that people have taken a break from Alimta, which is scary, but that may be the best choice. He was on carboplatin/alimta for four cycles and now has been on Alimta every four weeks since January with no progression. How long was your treatment break? Hi Vivian - Yes, he took that Dexamethasone the day before his last infusion, but we've stopped the Decadron after. He had a lot more nausea, though, this time. Thanks, Tom, for the good advice. It sounds like a nephrologist is our next step. Thanks everyone for all the encouragement :)) It means a lot. Carol
  2. Thanks, Big Heart! I feel the prayers. And thanks, Vivian, for the good advice. It does seem like the more he drinks the higher his creatinine, and now the infusions of fluid are not doing very much to bring it down. We're being treated at a comprehensive cancer center, and our oncologist is very good about referring us to other docs. Will ask about endocrinologist and/or nephrologist. I'm concerned that too much fluid will deplete his system of vitamins and minerals he needs. And thanks for the prayers. Carol
  3. Hi Bridget - Thanks for your encouraging words. I'm sure I'll find lots of helpful information here, as well as lots of helpful, encouraging people like you. Thanks. Carol
  4. Thanks so much, Suzanne. You stay positive as well. I can't believe a doctor would presume to give you a limit to how long you're going to live. I'm sure with your attitude you will prove him wrong. I'm on another site, Inspire, and there are many people there who had the same diagnosis and are living well past a year ... some 10 years so far. And with all the new drugs, I expect you and my husband to be here a long time. Our biggest concern right now are his kidneys... He will be unable to continue with the Alimta if we can't get his creatinine level down. He's drinking as much water as he can and is also getting infusions of water, but it still stays stubbornly high. I'm looking for diet suggestions now to see if maybe that will help him. Thanks for your reply! Carol
  5. I'm joining this forum because my husband was diagnosed in September 2016 with stage 4 lung cancer. He is currently on Alimta maintenance. He has been doing well but is developing kidney issues, it seems no matter how much water he drinks. I'm looking for all the information I can about this terrible disease to help us manage it better, and hopefully, find some encouragement. Carol
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