NikoleV

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NikoleV last won the day on January 14 2015

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  1. www.lungevity.org/dallashope A survivorship conference for anyone who has ever been diagnosed with lung cancer Saturday, June 17, 2017 LOCATION UT Southwestern William P. Clements Jr. University Hospital 6201 Harry Hines Blvd. Dallas, TX 75390 Room: William T. and Gay F Solomon Education Center, UH Lecture Hall 2.138 SCHEDULE 8:30 am - 9:00 am Check In 9:00 am - 12:00 pm Conference Sessions 12:00 pm - 1:00 pm Complimentary Lunch 1:00 pm - 5:00 pm Conference Sessions 5:00 pm - 6:00 pm Complimentary Networking Reception The $20 meeting registration fee includes meals, materials and networking reception. Registration fee assistance is available for those with a financial need. Healthcare providers and patients may email hope@LUNGevity.org for more information. ABOUT DALLAS HOPE SUMMIT LUNGevity HOPE Summits are unique national and regional survivorship conferences that educate, empower, and create a community of support for lung cancer survivors. At HOPE Summits, LUNGevity serves as a bridge between patients, their families, and the medical and support communities. While lung cancer survivors are encouraged and invited to attend, caregivers and medical professionals wanting to learn more about lung cancer survivorship are also welcome. All conference sessions will be geared toward those who have been diagnosed with lung cancer.
  2. Hi all, We have a 77 year old female looking for someone to talk to who has been diagnosed with SCLC. She does not mind if the support mentor is male or female. She just needs some support and encouragement from someone with the same diagnosis. Please let me know if you are willing to offer her an ear to listen. Thank you in advance. Best Regards, Nikole Support and Advocacy Coordinator nventrca@lungevity.org
  3. Texas and surrounding area LC Survivors! You're invited to attend the 2015 Dallas HOPE Summit! Register to reserve your spot today, registration is FREE. http://events.lungevity.org/site/Calendar?id=100821&view=Detail Dallas HOPE Summit 2015 Embassy Suites DFW South 4650 West Airport Freeway Irving, TX 75062 Friday, February 6, 2015 - Saturday, February 7, 2015 The LUNGevity HOPE Summit is a conference for lung cancer survivors. A survivor is anyone who has ever been diagnosed with lunch cancer of any stage, or in or out of active treatment. All conference sessions, speakers, and meals during the conference will be provided to all participants. The Welcome Reception and Regional HOPE Summit are free for lung cancer survivors, however space is limited and registration is required for all those who attend. This will be our second regional HOPE Summit in the Dallas area. Participants can attend this regional summit to connect with cancer experts, survivors and caregivers in the community to become inspired and informed about lung cancer and local resources.
  4. We have been asked to recruit for two advocacy opportunities (documentaries) for lung cancer survivors. Here is the criteria for each opportunity- if you are interested please email kbrown@lungevity.org for more information. #1 • White • Male • 50-70 yrs. • Squamous • Currently being treated, or post-progression (i.e. “after the cancer got worse”); Relevant experiences to discuss. #2 • Has recently progressed to 2nd line. • Is active (i.e. a PS 0-1) • Does not have any oncogenic drivers (i.e. EGFR or ALK mutations). • Is extremely motivated to live as long as possible. • Is either within Indianapolis or the surrounding states if possible. • Is willing to travel. • Is willing to share their story and speak in front of a large audience. • Is willing to allow a camera crew to videotape parts of their life once or twice a week for six weeks beginning in October or November. • Is willing to use a handheld camcorder and direct their family members to use a handheld camcorder to videotape personal and family events during their journey. • Believes that more time is valuable to them even if it is six weeks of extra time.
  5. 2014 LUNGevity HOPE Summit - Don't miss it, register today!! Friday, May 2, 2014 - Sunday, May 4, 2014 Keybridge Marriott Arlington, VA www.lungevity.org/dchope HOPE Summit is a conference for lung cancer survivors. All conference sessions, speakers, access to exhibits, and meals during the conference will be provided to all participants at NO COST beyond the $50 application fee. Welcome Reception: Friday, May 2, 2014, 7:30 pm, Keybridge Marriott Conference: Saturday, May 3, 2014, 8:00 am - 5:00 pm, Keybridge Marriott (Optional Dinner/Offsite Activity TBA) Sunday, May 4, 2014, 8:00 am - 2:00 pm Application Fee: There is a $50 application fee per person to hold your place at Hope Summit. This includes the sessions, materials, and meals. Email confirmation will be sent from hope@lungevity.org. Be sure to add this email address to your safe senders list. If you are not accepted to attend the 2014 Summit your application fee will be REFUNDED and you will be invited to add your name to the 2015 waitlist. Cancellation Policy: After April 1, refunds will only be available to those who were not accepted to attend the 2014 Summit. AGENDA TOPICS: Understanding the Science Immunology Clinical Trials Pulmonary Rehabilitation Managing Your Care and Medical Team Life After Lung Cancer Passages in Caregiving Keeping Cancer at Bay - Author Lynne Eldridge, MD Write for Life - Author David Tabatsky Finalized agenda will be posted once all experts/speakers are confirmed. Conference Hotel Information: The conference will be held at the Keybridge Marriott in Arlington, VA. Discounted hotel rooms are $131 per night for single/double occupancy (http://www.marriott.com/hotels/travel/w ... e-marriott). Instructions on how to book your room at these discounted rates will be provided on your email confirmation. The Metro can take you from the airport to within walking distance of the hotel. Travel Grants: First-time registrants for HOPE Summit are encouraged to apply for a travel grant. Travel grants are available based on need and availability. There are a very LIMITED number of travel grants available. If you are in need of partial or full travel assistance to attend the 2014 HOPE Summit, we encourage you to fill out the travel grant application AFTER you’ve registered. Travel grants are for travel transportation to Washington, DC and 2-night hotel accommodations for May 2-4, 2014. The application for a travel grant can be found here. First consideration of travel grants will be given to first-time participants; however, we encourage all survivors to apply for a travel grant. For those making/paying for their own travel arrangements, we will have a discounted block of rooms at the Keybridge Marriott that we can reserve for you. Please let us know ASAP if you need us to book your room. Survivors’ Challenge: You can join the Survivors' Challenge by creating a fundraising page and collecting donations to support LUNGevity. You can even send emails out directly from your page, asking your friends and family to help you with the Challenge. And we'll provide fundraising tips to help you along. Raise $1,000 or more, and we'll reward you with an all-expenses-paid trip to the HOPE Summit including airfare, a two-night hotel stay, and ground transportation. Find more details on the Challenge here. If you have already registered and want to apply for a travel grant, click “TRAVEL GRANT” to begin.
  6. Hi Dana, Welcome to LCSC! We are sorry you had to find us, but we are so glad you did! Please keep us updated on your mom. Best Regards, Nikole
  7. Hello LCSC members. I am currently seeking a SCLC survivor to support a recently diagnosed 55 year old female with SCLC. If you can help, please message me as soon as possible. It can simply be email support to offer encouragement and hope. Please consider being a LifeLine to someone in need. Thank you so much! Thank you, Nikole
  8. Celebrating 16 years - That's great news Donna!
  9. Hi Cindy! I hope your husband is doing well with his recovery and I hope you are doing ok. Positive thoughts coming your way! Please update us when you get a chance. Take care! Best Regards, Nikole
  10. Hi Stockster! Congratulations on your one year anniversary! Positive thoughts on good news this week. Please keep us updated. We are so glad you found LUNGevity! Best Regards, Nikole
  11. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support they need. If you are in a place in your journey where you are ready to mentor others--volunteer to BE a lifeline to someone else today! Looking for one on one support? We can match you with someone that can offer you support, who's walked the same path and understands what you're going through. Find out more at the following link or email me (Nikole) with any questions at nventrca@lungevity.org http://events.lungevity.org/site/PageNa ... eLine.html
  12. We are currently looking for volunteers who want to support others impacted by lung cancer. Survivors, caregivers and families can volunteer to be a support partner and offer 1 on 1 support. Our LifeLine Support Partners volunteer to mentor and offer encouragement, advice, experience and hope to those newly diagnosed and anyone needing additional support through a one-on-one personal connection by email or telephone. LUNGevity’s LifeLine Support Partner program is utilized by dozens of hospitals and many support organizations to ensure that people impacted by lung cancer get the support they need. If you are in a place in your journey where you are ready to mentor others--volunteer to BE a lifeline to someone else today! Looking for one on one support? We can match you with someone that can offer you support, who's walked the same path and understands what you're going through. Find out more at the following link or email me (Nikole) with any questions at nventrca@lungevity.org http://events.lungevity.org/site/PageNa ... eLine.html
  13. The 2014 Lilly Oncology On Canvas Art Competition is now underway! Individuals diagnosed with any type of cancer, as well as their families, friends, and caregivers, are invited to express, through art and narrative, the life-affirming changes that give their cancer journeys meaning. Registration and Submission Deadline: June 30, 2014 http://www.lillyoncologyoncanvas.com/Pa ... tails.aspx Remember you don’t have to be a professional artist or writer. It’s the sharing of the story that counts. Presented by Lilly Oncology and the National Coalition for Cancer Survivorship (NCCS), the Lilly Oncology On Canvas Art Competition and Exhibition honors the journeys people face when confronted with a cancer diagnosis. Individuals diagnosed with any type of cancer, as well as their families, friends, and caregivers, are invited to express, through art and narrative, the life-affirming changes that give their cancer journeys meaning. The 2014 competition marks the 10-year anniversary of Lilly Oncology On Canvas. In honor of this milestone, Lilly Oncology will be launching the Hope Murals Project, bringing 10 inspirational pieces of art to 10 cities, in the form of 10 murals. Information on the Hope Murals Project and other anniversary activities coming soon! Download the complete 2014 Competition Rules, Registration, and Submission forms here (click link above). We look forward to receiving your entry and wish you good luck! Learn More For further information about Lilly Oncology On Canvas, please view responses to frequently asked questions; call 1-866-991-LOOC (5662) or email artdirector@mylooc.com.
  14. Novartis is having their national oncology meeting in New Orleans January 12 through January 14 and they are looking for a survivor who's had a positive experience on their LDK378 trial to come and share their story. If you've had a positive experience with LDK378 and you're interested please get back to us with your contact info as soon as possible thank you! Please send your email to nventrca@lungevity.org Thanks, Nikole
  15. Reposting - please help if you can! Qualitative Research survey for those diagnosed with NSCLC and ALK+ gene Find A Cure Panel specializes in patient research for serious and rare diseases and conditions including lung cancer. And they are looking for U.S. patients to participate in an anonymous and confidential qualitative research for people who have the ALK+ gene. This research will be one telephone call with one moderator that will take about 45 - 60 minutes of your time. To qualify, you must: 1) Have been diagnosed with NSCLC. 2) Have been diagnosed with ALK+ gene If you participate in this research, FACP will donate $100 to Lungevity. If you are interested in participating, please email FACP at: info@findacurepanel.com and reference ALK/Lungevity.