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Found 27 results

  1. Hi all, I'm reaching out in the hope to get some hope. My family and I are in the doom and gloom stage of a recurrent cancer diagnosis. My mom just received her 1 year "all clear" in April, but continued to have trouble breathing and had a terrible cough within the year after her treatment. She had her upper, right lobe removed and went through chemo and radiation for 12 weeks because the surgeon was unable to remove an all of the cancerous cells in her lymph node (which he wasn't expecting). She just had a biopsy Friday of a tumor on her right bronchial tube. Her pulmonary doctor was 90% sure it is cancer and the same type she had before, but we are still awaiting final word that it is cancer and what kind. We are so deflated. This is worse than the first diagnosis. It all seems so final now, that there is no hope. I am a planner, so I am obsessively searching the internet to see if it's possible to have the tumor surgically removed (her pulmonary doctor says no) and if you can have radiation in a similar area as before. We are old school thinking so we think we always need to cut the cancer out of us and are so afraid to hear that surgery isn't an option and possibly not even radiation. So them I'm left with the question of whether or not to trust immunotherapy (something that goes against my old school thinking). I am so desperate to hear that it's all going to be okay, but am scared that it isn't going to be. I hear a lot about 1st time cancer survivors, but not a lot about 2nd time survivors, something that scares me even more. I know that at the end of the day I will pull myself together and help my mom get through this, but my biggest fear of losing her too soon seems to be coming true. Anyway, that's my current situation and my very sad introduction. I am looking forward to reading hopeful and helpful posts to help me get my mom through this trying time. Steff
  2. I noticed something recently at the in-person support group I facilitate. Caregivers in my group didn't speak up about issues or feelings unless the facilitator or group leader mentioned them first. "Like Jan said, I have feelings of ____ too." After the third time, it occured to me that caregivers are either waiting to have their feelings validated by someone else or didn't realize they had been feeling those feelings. I remember being a caregiver for my father and how all-encompassing that was. Nothing else mattered to me at the time. Everything was about my dad's cancer, his feelings, his happiness, his peace and comfort. I don't think I got more than 2-3 hours of sleep a night during those 11 months- there was just so much to do! I completely lost myself and any sense of "me" during my caregiving. I would never consider taking time for myself, taking a break or openly expressing my frustrations and concerns- that would be selfish- afterall, I wasn't the one in treatment with cancer. I wasn't the one fighting for my life, right? If given the opportunity then, would I have taken advantage of caregiver resources or support groups? Would I even know what I was feeling or how to describe it? Until we are able to have caregiver-only support groups in every community, how can we give caregivers the encouragement or "permission" to put a voice to what they are feeling? How do we as caregivers divorce ourselves from the guilt that accompanies self-care? Thoughts?
  3. Did you know 41 percent of Americans have never viewed their health data? As a member of LUNGevity online patient groups you may be many steps ahead of the average American patient or caregiver! Telling us about your experience accessing your own or a loved one's health data will help shape a new project being led by FasterCures, a nonprofit organization that works across diseases to smooth speed bumps that slow down the process of getting promising therapies to patients. We invite you to learn more about our new Health Data Basics project and to respond to a short anonymous survey. Your input will help us develop a new tool to inform people about health data access, sharing and use. Click here to learn more and take the survey! The link of the survey is: https://www.surveymonkey.com/r/PK29LR5 And contact information for the project is: https://www.healthdatabasics.org/contact/
  4. Hello All, It's been a while since I've been on this site. In all honesty, I have been racked with anxiety for months now and really just need a place to get it off my chest. My dad is in the late stages of NSCLC, we moved him to hospice last week. It has been an emotional roller coaster to say the least. My dad has fluid in his lungs that gets drained every other day or so. He is finally not in a lot of pain. He's on a myriad of medicines and he is getting better sleep, but he is also becoming increasingly confused. He stares off for minutes at a time. He forgets what he is doing or saying in a very short period of time and he doesn't know where he is when he wakes up. On top of all of this, I am an anxiety sufferer, specifically healthy anxiety. I have had an irrational fear of dying young since I was like 8 years old and watched a documentary on kids with leukemia. About three or four years ago I was crippled by the thought that I had lymphoma. I lost weight, got night sweats, even thought I found a lump in my neck. I went to the doctor all the time until I was finally too afraid to go. Now my fixation is on ovarian cancer. As I watch my dad deteriorate physically and mentally, I become increasingly convinced that I will get cancer too. My anxiety causes very real symptoms, and can be incredibly distracting. I am just so overwhelmed. I wish cancer didn't incite such fear in me, but I've watched too many people die from it. Does anyone have similar problems? I'm scared that every time I talk to my dad it will be the last time, but I'm also terrified to suffer the same fate. The things I can control, I do right. I don't smoke or drink excessively. I eat a vegetarian, non-processed diet. I make as much of my own products as possible, but there are plenty of people who have done all the right things and still get cancer. Thank you all for letting me use this space as a place to vent my fears and worries.
  5. Hi everyone, I'm Jessica Meeks and, in December 2012, my mother died due to lung cancer. I've recently (about a year and a half ago) started volunteering for LUNGevity and am interested to know if anyone in the Atlanta, GA area would like to form a support group for caregivers and family members, particularly those who have lost someone to lung cancer. If anyone is interested, please let me know as I would love to get a group together to help us all get through some rough times! Thanks for reading!
  6. What is the role of a care partner? Katie Brown, Certified Patient Navigator, and Sarah Rosenbloom, licensed clinical psychologist, give credit to these unsung heros by explaining the extent to which they go to support their loved one diagnosed with lung cancer. Tune in to find out more. https://www.patientpower.info/video/why-we-need-to-celebrate-lung-cancer-care-partners
  7. surviveSTRONG and uniteSTRONG Community Conference Saturday, May 20th | YMCA of the Inland Northwest surviveSTRONG and uniteSTRONG is a community conference for cancer survivors and their support persons. More than a dozen workshops, classes and presentations offered to strengthen and nurture participants in spirit, mind and body. Classes will provide knowledge on exercise, nutrition, stress management, self expression and support for caregivers. Click here for more information, including the conference schedule and how to register. Livestrong Confrence Poster 8.5x11-3.pdf
  8. A clinical trial is a type of research study that tests how well medical approaches—screening, prevention, diagnosis, or treatment—work in people. Clinical trials can provide access to new approaches to lung cancer patients. However, most lung cancer patients do not participate in clinical trials. Please complete this survey about clinical trials by answering from your personal experience. The survey is 100% anonymous. THANK YOU for your time! Survey for Survivors: https://www.surveymonkey.com/r/Survivor_Clinical_Trial_2017 Survey for Caregivers: https://www.surveymonkey.com/r/Caregiver_Clinical_Trial_2017
  9. Time is supposed to heal our wounds, that’s what people say; but when you lose your best friend you realize that no amount of time will heal that void that is left. My mother was diagnosed with non small cell lung carcinoma three months after I turned eighteen, only weeks after what would turn out to be our last family portrait. The day the test results came back the only words I heard during the meeting were “cancer” which meant someday I’d be burying her. I don’t recall anything else; but she heard something very different she heard “cancer” and thought how do I fight this and win. She had an amazing oncology team that outfitted her with an aggressive and varied game plan and a thing called a port; but the most important thing they both shared was an optimistic attitude. When they gave her the port in her chest where she would get her chemotherapy , she was not upset that she had to get a port or that she was having chemicals placed in her body and hoping they would work; nope she was upset she was not the first person to get the port , she was number two. When they decided on radiation she got her long beautiful brown hair cut off into a short cute style and donated it for other people to get a wig; after all hers would grow back when she was in remission. She had an amazing belief that God would not have given her this to battle if she were not capable. She believed it was given to her because she was supposed to teach someone, somewhere, something and it may not be during her battle or during her remission it may be long after her death ; but if one person was saved or one person learned something than the fight was worth it. We took the time we were given and made amazing memories going to see our favorite places like Red Rocks or the buffalo herd, we also made memories and new traditions when we spent time in the hospital. If we were there during football season we ordered pizza and had it delivered to her room and then invited her nurses to come have a snack and catch up on the score. We enjoyed watching animated movies and we even got her a Gameboy to play the mind teaser games while she sat for hours getting chemo. In January, we received word our dad had suddenly passed, my parents had divorced when I was two. Her concern while she was in a hospital bed was not herself, but was us , her kids. Several months later we got a phone call that her father had unexpectedly passed away. She was a daddy’s girl and was unable to travel to his funeral so we filmed it for her. When we were in another state, our “sister from another mister”, her friend from work who was like a daughter to her, stayed with her while we buried our dad. It was on this trip we almost lost her, her blood pressure was so low they said they didn’t know how she was awake and talking. She persevered. As she grew weaker we made final plans, it was an enormously painful task asking her to decide where she wanted to be buried, what songs she wanted played and writing her will and her making the decision to not be resuscitated. Her wish was to die at home and we wanted to give her that. She had sacrificed her life for us, given us everything we could have ever wanted. She fought incredibly hard, she was my superman and I was watching her die and there was nothing I could do about it. She said that her goal was just to make it to January, so that her kids didn’t lose both their parents in the same year, but she would not make it. I remember begging God to either heal her or take her but I was not fair to make her stay just for us. It was not fair to make her suffer when she gave us such a wonderful life, after all we had each other to lean on. She deserved to be at peace. Fifteen days after her fifty-fifth birthday we made the calls to have everyone say their goodbyes. She was aware of where she was so we brought photographs and blankets and loved on her, the nurses said she knew we were there but she couldn’t respond or open her eyes or anything. I gave her a kiss and told her it was okay to go, that she didn’t have to stay here in pain for us, she deserved to be happy and at peace with the family in heaven. I stayed with her and she passed on October 18, 2007. This year marks ten years since she has been gone, she has missed so much. I enlisted in the military, my brother is dating a wonderful woman, my sister got married and her and her wife have an adorable son. I got married and have a now five year old step son, bought a house and will complete my college degree this year. She gave us life and taught us about everything from friendship to how to do laundry but most importantly she taught us to never give up because even cancer can be beaten. It was not a physical victory, but victory for the soul. No matter what happened through her illness she never let it define her as a person. She was able to complete one last thing on her bucket list when she earned her wings: she was able to be an organ donor and donate her eyes to someone who needed them. Even in her death she was able to put someone else before herself ! Please if you are fighting this illness know that there is hope, it may not end up being a physical victory but if you keep your sense of humor and your love of life than cancer can never truly be victorious. God bless you on your trip down the yellow-brick road! In loving memory: Patricia Fay Hartlep (October 3, 1952- October 18, 2007) Thank you to all those who care for those fighting! Bless those who love those struggling and rejoice for those who have earned their wings!
  10. Study Announcement: Lung Cancer Caregiver Study If you are over the age of 18 and a romantic partner and the caregiver of someone who has been diagnosed with lung cancer in the past two years, please consider contributing to this important study on the quality of life of caregivers of lung cancer patients and survivors. This study consists of completing a brief online survey at 2 different time points over the course of six months (initial time point and 6 months later). Some find the surveys helpful for reflecting on their caregiving experience, and you would be contributing to our understanding of the important but understudied topic of the challenges faced by caregivers. The survey questions will ask you about your feelings about caregiving, your quality of life, your physical health, and the physical health of the lung cancer survivor for whom you are a caregiver. The survey will take approximately 30 minutes at each of the two time points. This research is being conducted by Trisha Raque-Bogdan, Ph.D. of the University of Denver and Amanda Ginter, Ph.D., of Towson University. If you would like to participate in this research, please either go to https://udenver.qualtrics.com/SE/?SID=SV_etkPpCNDT9HwkKN or contact Trisha Raque-Bogdan at trisha.raque-bogdan@du.edu. Thank you for your consideration! Trisha Raque-Bogdan, Ph.D. Assistant Professor, Counseling Psychology University of Denver Amanda Ginter, Ph.D. Assistant Professor, Family Studies Towson University This study has been approved for posting by LUNGevity Foundation.
  11. What Not to Say to a Cancer Patient By: Jane E. Brody What do you think is the most commonly asked question of a person who has, or has had, cancer? If you guessed, “How are you?” you got it right. But as caring as those words may seem, they are often not helpful and may even be harmful. At a celebratory family gathering a year after my own cancer treatment, a distant relative asked me just that. I answered, “I’m fine.” She then pressed, “How are you really?” “Really” I was fine, I told her. But what if I hadn’t been? Would I have wanted to launch into a description of bad medical news at what was supposed to be a fun event? Would I have wanted even to be reminded of a bout with cancer? Although my relative undoubtedly meant well, the way her concern was expressed struck me as intrusive. A diagnosis of cancer can tie the tongues of friends and family members or prompt them to utter inappropriate, albeit well-meaning, comments. Some who don’t know what to say simply avoid the cancer patient altogether, an act that can be more painful than if they said or did the wrong thing. A new book, “Loving, Supporting, and Caring for the Cancer Patient,” by a man who has been treated for a potentially life-threatening cancer and who has counseled dozens of others dealing with this disease, got me thinking about the best ways to talk with someone facing cancer — its diagnosis, treatment and aftermath. The book’s author, Stan Goldberg, happens to be a communications specialist, a professor emeritus of communicative disorders at San Francisco State University. Dr. Goldberg learned at age 57 that he had an aggressive form of prostate cancer. He said in an interview that cancer patients too often encounter people who assume the role of cheerleader, saying things like “Don’t worry about it,” “You’ll be fine,” “We’ll battle this together,” “They’ll find a cure.” However, he observed, “Words of optimism may work in the short run, but in the long run they can induce guilt if the cancer is more virulent and defeats a person’s best effort. “I was dealing with the possibility that my life would end shortly, or if it didn’t, it would be changed dramatically. False optimism devalued what was going on in my body. People were insensitive not from a lack of compassion but from not knowing what is really helpful.” What he and those he’s counseled have found to be most helpful were not words but actions, not “Let me know what I can do to help,” which places the burden on the patient, but “I’ll be bringing dinner for your family this week. What day is best for you?” As a self-described “independent cuss” reluctant to ask anyone for help, Dr. Goldberg said his son taught him this important lesson. “He came to my house during my recovery from surgery and said ‘Stop lifting those boxes, Dad. I’ll do it for you.’” Another author of very helpful books on living with cancer is Dr. Wendy Schlessel Harpham, who has had a recurring cancer for more than two decades. She suggests that people offer specific ways they can help. For example, they may say they can shop for groceries, care for children, take the dog for a run, or accompany the patient to the doctor, and then be sure to follow through with the offer. Many people now use online sites like caringbridge.org to keep people up to date on their health and needs or organizing platforms such as mealtrain.com or lotsahelpinghands.com to ask for specific help. Dr. Harpham said she came to dread the query “How are you?” because “no matter how it was intended, being asked ‘How are you?’ rattled my heightened sense of vulnerability. I found myself consoling those who asked and then fighting the contagion of grief and fear. Even when the news was good, I didn’t have the energy to include all the people who wanted updates.” Dr. Goldberg suggests that when visiting a cancer patient, people talk less and listen more. ”Often the greatest support comes from silently witnessing what a person with cancer is experiencing,” he wrote. “Sometimes only a calm presence and compassionate listening are necessary. Silence becomes the breathing space in which people living with cancer can begin difficult conversations.” In an article in Prevention magazine, Melissa Fiorenza offered this helpful suggestion for what to say to someone you deeply care for: “Feel free to cry with me, to talk, or not to talk. I’ll take my lead from you.” When talking, Dr. Goldberg suggested, “engage more in conversations and less in question-and-answer interactions.” But if questions are asked, they should be open-ended ones like “Do you want to tell me about your cancer and what you’re going through? Maybe I can find ways to be helpful.” Among the many suggested “don’ts” are these: • Don’t make light of a patient’s physical changes by saying things like “At least you finally lost those extra pounds.” • Don’t talk about other patients with similar cancers, even if they fared well — no two cancers are alike. It’s fine, though, to ask if the patient would like to talk with someone else who’s been through it. • Don’t say the patient is lucky to have one kind of cancer rather than another, which downplays what the person is going through. There’s nothing lucky about having cancer even if it’s a “good” cancer. • Don’t say “I know how you feel” because you can’t possibly know. Better to ask, “Do you want to talk about how you feel, how having cancer is affecting you?” • Don’t offer information about unproven treatments or referrals to doctors with questionable credentials. • Don’t suggest that the person’s lifestyle is to blame for the disease, even if it may have been a contributing cause. Blame is not helpful. Many factors influence cancer risk; even for lifelong smokers, getting cancer is often just bad luck. • Don’t preach to the patient about staying positive, which can induce feelings of guilt in the patient if things don’t go well. Better to say, “I’m here for you no matter what happens,” and mean it. • Don’t ask about prognosis. If the patient volunteers that information, it’s O.K. to talk further about its implications. Otherwise, it’s better to stifle your curiosity. • Don’t burden the patient with your own feelings of distress, although it’s fine to say, “I’m so sorry this happened to you.” If you feel overwhelmed by the prospect of interacting with a person with cancer, it’s better to say, “I don’t know what to say” than to say nothing at all or to avoid the person entirely, who may then feel abandoned and think you don’t care. This story was published on nytimes.com on 11/28/16. Link: http://www.nytimes.com/2016/11/28/well/live/what-not-to-say-to-a-cancer-patient.html?smid=fb-share&_r=0
  12. Are you a lung cancer caregiver? Please participate in this 5-10 minute anonymous survey and tell us about your preferences for getting information about lung cancer. Your input is extremely important. It will help us better serve the lung cancer community. https://www.surveymonkey.com/r/R23F5XN
  13. DETROIT HOPE SUMMIT A survivorship conference for anyone impacted by lung cancer Saturday, October 8, 2016 Register LOCATION Detroit Marriott at the Renaissance Center 400 Renaissance Drive, Detroit, MI 48243 Parking at the Detroit Marriott Renaissance Center will be provided at no cost only for those who are registered by September 30. FEATURED EXPERT SPEAKERS TBA ABOUT DETROIT HOPE SUMMIT LUNGevity HOPE Summits are unique national and regional survivorship conferences that educate, empower, and create a community of support for lung cancer survivors. At HOPE Summits, LUNGevity serves as a bridge between patients, their families, and the medical and support communities. While lung cancer survivors are encouraged and invited to attend, caregivers and medical professionals wanting to learn more about lung cancer survivorship are also welcome. All conference sessions will be geared toward those living with a lung cancer diagnosis. The summit is free to attend, but registration is required. SESSION TOPICS Topics may include: Targeted Therapy Personalized Medicine Immunotherapy Living with Lung Cancer Survivorship Issues Survivors' Stories Advocacy Caregiving *A complimentary one hour networking reception will be provided after the meeting. For more information, or to register online, click here.
  14. COLUMBUS HOPE SUMMIT A survivorship conference for anyone impacted by lung cancer Saturday, October 29, 2016 LOCATION The Boat House at Confluence Park 679 W. Spring Street, Columbus, OH 43215 FEATURED EXPERT SPEAKER David P. Carbone, MD, PhD The Ohio State University Barbara J. Bonner Chair in Lung Cancer Research Director, James Thoracic Center Professor of Medicine ABOUT COLUMBUS HOPE SUMMIT LUNGevity HOPE Summits are unique national and regional survivorship conferences that educate, empower, and create a community of support for lung cancer survivors. At HOPE Summits, LUNGevity serves as a bridge between patients, their families, and the medical and support communities. While lung cancer survivors are encouraged and invited to attend, caregivers and medical professionals wanting to learn more about lung cancer survivorship are also welcome. All conference sessions will be geared toward those living with a lung cancer diagnosis. The summit is free to attend, but registration is required. SESSION TOPICS Topics may include: Targeted Therapy Personalized Medicine Immunotherapy Living with Lung Cancer Survivorship Issues Survivors' Stories Advocacy Caregiving For more information, or to register online, click here.
  15. Are you a lung cancer survivor or caregiver? We invite you to join us Monday, September 12, 2016 for our first Living with Lung Cancer Support Network program. We created this program to provide a community of support, education, and hope to lung cancer survivors who reside in Northeast Florida. Group meetings are hosted the second Monday of each month at Ackerman Cancer Center and are free of cost to attendees. Caregivers are also welcome and encouraged to attend. For further information, please contact Eden Mock, MSW at 904-880-5522 eden@ackermancancer.com Living with Lung Cancer Network Flier 2.pdf
  16. I recently read a quote from a cancer survivor about online support. "When I stumble, there are so many virtual hands to catch me.” This is the same sentiment that has been expressed about LUNGevity’s Lung Cancer Support Community and the many support groups on Facebook. People impacted by lung cancer can come online and be embraced by others who have walked the same journey and who understand what they may be going thru. There is power in the written word and from receiving support from a group of people. Building a community of support can help you feel less alone in the cancer journey. But there are times when people need more. For example, newly diagnosed patients and their families often feel overwhelmed with the medical process, uncertainties and fears and they need additional support. Some people are not active social media users. Some people need more than virtual hands to catch them. What they need is a strong hand to hold onto. Those are the people who benefit from the personalized support of LUNGevity’s LifeLine Support Mentor Program. The program, originating from the Lung Cancer Support Community “Support Buddy Program”, is in its 14th year of helping people. Based on individual needs, LifeLine has supported people online, through email and by telephone. A personalized match is made between a survivor mentor and a patient and they begin their supportive relationship based on commonalities whenever possible, like age range, gender and stage and type of lung cancer. LifeLine also matches caregivers and family members to other more seasoned caregivers and family members. Oftentimes caregivers and families bear the brunt of the responsibility of caring for their loved ones physical, emotional and financial needs and neglect caring for themselves. Those caring individuals we call co-survivors need support too. We’ve matched survivors, patients and caregivers from across the country. We’ve matched people at our annual HOPE Summits and we are a resources for many hospitals, clinics and social workers. Here’s what one support seeker said. “It’s amazing. I never knew anyone with a lung cancer diagnosis, now I’m matched with someone like me who has survived these same treatments. She gives me so much hope.” If you or someone you know has been impacted by lung cancer and would like to request a LifeLine Support Mentor or if you would like to volunteer to become a LifeLine Mentor, please visit www.lungevity.org/lifeline Visit our website here if you would like to request materials.
  17. My hubby of 19 years, Jeff was diagnosed with stage 4 NSCLC on July 31, 2015. He has the EFGR mutation and is responding well to Tarceva. He is 49, never smoker. He has three tumors in his lungs and a page and a half of mets in his bones! Lots of tumors. He lost 35lbs and he was already a lean bean. I tell you all this, so you know there is hope. He was in bed for two and a half months. Two days ago he was climbing a ladder and swinging a hammer. He was on 75mcg of Fentanyl and now is is NO pain medication. We are LIVING and fighting. We are hopeful of long term disease management. We know the Tarceva is critical but we also know LOVE, fresh air, positive thoughts and respect for the cancer has given him extra strength to fight harder. Our wish to all who battle this awful disease: is that you all find the good in your situation. Look for it; it is there. This is life changing and you can change for the best. Thanks for reading! I am: a loved one of someone with lung cancer
  18. Now, long after the commotion of active treatment, my wife and I often share recollections. Martha is my caregiver and for more than 3 years of near constant therapy she held the long thin line. In doing so, she had to confront my anxiety, discomfort and fear. These were variable; the constant foe was my general irascibility towards medical treatment. Now a 12-year survivor, we both laugh at some of my antics. But during treatment, there was high drama to deal with. It is not easy to watch someone you love encumbered by all manner of tubes and wires in intensive care. Nor is it pleasant to attend to the full-throttle roar of chemo-induced side effects. Moreover, there is recognition that the side effect bedlam will occur with the same progression and intensity a short time in the future. Add to that the burden of failed treatments and the inability to influence outcomes. These are the plight of the caregiver. While in the throes of treatment, most appreciated were the little things Martha did for me. Discharged from hospital with a chest tube in my lower back, scratching my back was a godsend. I was beset with “taxol toes” and rubbing my feet with Aspercreme provided immense temporary relief. But most appreciated was her homemade chocolate mint chip ice cream. This was an effective counter to a waning appetite, enormous attitude boost, and a relished wonderful concoction. There is a fundamental reality about treatment recollection: the patient and caregiver have vastly different memories of the same event. I find it useful to accept Martha’s version as a higher order truth for two reasons. She was an observer and not under duress, and I was normally at wits end totally undone by the experience. This difference in perspective points to the essential role of the lung cancer caregiver—a steady hand in a sea of turmoil. Stay the course.
  19. The demands of lung cancer caregiving can be overwhelming, especially if you feel you have little control over the situation or you have little or no help. Let's chat about it! Have you ever felt helpless and powerless in your role as caregiver? It's important to watch for warning signs and take action right away to lighten your load and avoid serious burnout. TOPIC: Lung Cancer Caregiver Stress, Burnout, and Depression We will chat about signs and symptoms of caregiver stress and burnout. How can you recognize the signs of caregiver stress and burnout? What resources are available to help ease the burdens on lung cancer caregivers? Ways that families and friends can help their loved ones and share experiences and tips that may help others. DETAILS: Date: Wednesday, August 3, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. TWITTER CHAT TIPS: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCChat. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies!
  20. Join us for the next Caregiver Twitter Chat: Topic: How Can Lung Cancer Caregivers Communicate with the Healthcare Team? Date: Wednesday July 6, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. Twitter Chat tips: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCChat. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies!
  21. Let's talk about Long Distance Caregiving! Topic: Long Distance Lung Cancer Caregiving/Sharing Responsibilities More information: What is Long Distance Caregiving? Can you participate in your loved ones care when you don't live with them? We will discuss ways that families and friends can help from a distance and hear from others who have experience being long-distance caregivers. Date: Wednesday June 1, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. Twitter Chat tips: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCCaregiver. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies!
  22. http://www.lungevity.org/sites/default/files/file-uploads/04-asking-family-and-friends-for-help.pdf http://ow.ly/WOd0I
  23. Good Day Everyone, I am caring for my 49 year old never smoking husband Jeff. He was diagnosed July 31, 2015 with stage 4 NSCLC with EFGR mutation. He is responding well to Tarceva. He has three tumors in his lungs, lymph node activity and many, many metastasis to his bones. (A whole page worth.) He had very few symptoms which is why it was caught so late. Ultimately a back ache is how they found it. However, once diagnosed, he became very sick very fast. He lost 35 pounds and because very weak. It was a very dark place for us both. I am happy to report we have seen the Tarceva light and his quality of life and overall condition have improved significantly. We are now to the place where we can see outside our bubble and we want to help the LC community. Thanks for reading my post. I look forward to getting to know everyone and their stores better. Katie (& Jeff) PS we are in Fredericksburg, VA. We are looking for other LC Community members in this area to collaborate with.
  24. Don't miss this Tweetchat! December 2nd, 7pm CT/8pm ET We will discuss the caregiver role, things you wish you had known and tips for new caregivers.
  25. Hi everyone, Since I last was active in the forum my mom (Stage IV Adenocarcinoma, diagnosed 9/14) has had a severe decline in her mobility and regularly needs to use a wheelchair. She has been experiencing a host of digestive side effects from her pain medication which have left her pretty frequently unable to eat. The weakness this causes is the main contribution to her overall mobility problems. Mom is no longer able to navigate the stairs safely, so to take her to appointments and treatment we have to carry her down the stairs to the driveway to get her to the car. I am trying to find a way to have a wheelchair ramp installed at the house so that she can come in and out safely, especially as winter fast approaches. Right now the lowest quote is $4000... and can't be covered by insurance. Does anyone have a recommendation of where to find resources to help with the cost?