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Showing results for tags 'cisplatin'.
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Hi I’m a 35 year old female, non smoker diagnosed with NSCLC in May. I was pregnant when I was diagnosed and so it was based off an MRI which found a mass in my right lung and swollen lymph nodes. During pregnancy my only treatment option was taxol and carboplatin. I was allergic to the taxol and so we decided to wait until I delivered a few weeks later to do treatment after a ct and pet were done. After the scans they also found a spot on my hip and some nodules in my left lung and that classified me as stage lv. I just finished 4 rounds of cisplatin, pemetrexed, and keytruda done every 3 weeks. My scans after round two showed stability and even decreases. My scans now after round 4 shows increases as well as a few more spots on my hip. My doctor is looking for a clinical trial that might match one of the mutations I have before we have another regimen. I am currently being treated at MSK in NJ but this week while we are on a break from treatment we have decided to get second opinions from jersey shore and UPENN. Just wondering if anyone has had any experience with this regimen of chemo not working or any other types of chemo not working and what they did after it. I have read one story on here that was been truly inspiring. Any help, insight, or advice is greatly appreciated.- 7 replies
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Is anyone struggling with the concept of Chemo? And the tremendous toxins they want to inject in my body....verses possibly changing lifestyle and going the nutrition route? Of course every family member and friend wants me to go Chemo/Rad. I had 2 nodules removed from my left lung and a lymph node that it apparently spread to... The lymph node resting so close to my vocal cord nerve that I developed a "laryngitis" that caused the need to determine cause when standard measures proved to fail to solve. I felt great, short of the noticeable voice impact, and still do after surgery, short of obvious surgical pain. And to the best of my knowledge... Cancer free... I guess that's not true for quite a while... But I am not interested in the horrible odds of "5 year survival" and to endure all that Chemo and radiation subject you to... for that?? I have been reading up a lot on nutrition and juicing and Organics and GMO and of course I asked my Oncologist if nutrition mattered... "Of course not"... I am meeting with my Thoracic surgeon this coming Friday, Oct 20...I have preliminarily/generically been diagnosed with Adenocarcinoma NSCLC. The mutation not yet determined, awaiting results. The surgery was a secondary change of mind, initially they were considering Chemo/Rad first then surgery, but changed direction when they... and They being the Cleveland Clinic in OHIO...didn't feel they had enough of a sample to determine Chemo route... The surgery was basically a wedge biopsy of the lungs having done a biopsy of the lymph node 2 weeks prior. And even though it's in the Lymph node, they are not referring to it as metastatic....yet I suppose... I'm sorry this may be all over the board...but the surgery has bought me time to look over solutions and I'm on info overload. Initially, the Oncologist was suggesting Cisplatin and ALIMTA, but this may possibly change with further diagnosis.... Heard Cisplatin is more worse than C I am scared that I'm adding insult to injury with Chemo. There are sooooo many side affects that all I see is misery before death. Has ANYONE found anything else ... that does not have such a barbaric approach to finding a cure or reversal of our dianosis'. I do not mean to offend anyone who is choosing Chemo/Radiation... -
Hello, I have been reading through discussions and posts on here for the last week and it has been a fantastic resource - so much caring and first hand experience and knowledge... it's really a great place. I am here because my father was diagnosed with Stage iv NSCLC with mets to the brain, back on October 25th. He is 67 years old and the diagnosis came quite by accident. He had fallen off of an unstable ladder while changing a light fixture and both his chest and head were impacted from the fall so an X-ray and CT scan were done to rule out breaks. Turned out that they found a lesion on the lung and a spot on his brain. We were all surprised as he had not been experiencing any symptoms. Please bear with me and excuse the lengthy write up - so much has happened in the 9 weeks ... He had a lung biopsy done week of October 24th and in the meantime, we started consultations for Stereotactic Radiation for the small brain tumour (as this needed to be treated right away). Nov. 4th - we met with his general oncologist to review the biopsy results only to be met with the news that they had not been able to gather a good enough sample in order to get the information required to put together a treatment plan. Since we were going to treat the brain first, the biopsy result was not so urgent (as he would not start any chemo until after the brain radiation. Nov. 16th - he underwent the stereotactic radiation treatment. He will go back for a follow up MRI on January 16th to see how the tumour was affected. Dec. 2nd - another meeting with his oncologist to review biopsy results and also review a recent chest scan that had been done earlier in the week. Biopsy confirmed NSCLC Adenocarcinoma (assumed to be wild type, but hey were still awaiting genetic testing results). The review of the scan showed very little change in the size of the tumour. Due to the imaging, the fact that my dad was still not experiencing symptoms and the fact that we were still waiting on some of the biopsy results, the decision was made to not proceed with any treatment, but to wait another two weeks until we had all results in. Dec.16th - Latest testing confirms that there is no presence of EGFR mutation but shows that the tumour does have a PDL-1 expression of greater than 50%, which meant that aside from standard chemotherapy, Ketruda was also an option for treatment. Although, not available under healthcare until a 2nd line setting. Again, seeing as Dad was not experiencing symptoms and it being so close to the holidays, we decided to wait until the new year to decide on the best approach to treatment. (Note: we were considering the private route for first line treatment with Keytruda). We were not due to see the doctor again until January 10th Dec. 20th - My Dad coughed up blood for the first time since being diagnosed. Dec. 22nd - Back to see the doctor to let him know that we felt it necessary to start a treatment right away and based on details from the previous appt., (treatment being more tolerable, outcomes a little more favourable) felt that Keytruda was the right approach and planned to access it via a private infusion clinic. The doctor recommended Cisplatin/ Alimta as a first attempt at treatment based on having the resources of the hospital team available to him and also knowing that Keytruda would be an option for 2nd line. Note: This is the only dr. appointment that I was not able to attend so I did not have the opportunity to ask all of the questions that I wish I could have. To Come- My Dad will have a first round chemotherapy treatment (of Cisplatin and Alimta) on January 6th. Based on my reading, I see that Cisplatin is of the more aggressive/ harsher/ less tolerated treatments. I would be interested in hearing of anyones experience with it. Has anyone here had Keytruda as a first line treatment and what was your experience with that? Also - it's been a long time since the lung cancer diagnosis ... without treatment - Has anyone else had a similar experience where treatment has been delayed due to other circumstances and what was your outcome? I wish you all a happy and healthy 2017. Thank you for your time and input. Stephanie
