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  1. I noticed something recently at the in-person support group I facilitate. Caregivers in my group didn't speak up about issues or feelings unless the facilitator or group leader mentioned them first. "Like Jan said, I have feelings of ____ too." After the third time, it occured to me that caregivers are either waiting to have their feelings validated by someone else or didn't realize they had been feeling those feelings. I remember being a caregiver for my father and how all-encompassing that was. Nothing else mattered to me at the time. Everything was about my dad's cancer, his feelings, his happiness, his peace and comfort. I don't think I got more than 2-3 hours of sleep a night during those 11 months- there was just so much to do! I completely lost myself and any sense of "me" during my caregiving. I would never consider taking time for myself, taking a break or openly expressing my frustrations and concerns- that would be selfish- afterall, I wasn't the one in treatment with cancer. I wasn't the one fighting for my life, right? If given the opportunity then, would I have taken advantage of caregiver resources or support groups? Would I even know what I was feeling or how to describe it? Until we are able to have caregiver-only support groups in every community, how can we give caregivers the encouragement or "permission" to put a voice to what they are feeling? How do we as caregivers divorce ourselves from the guilt that accompanies self-care? Thoughts?
  2. Join Cancer Legal Resource Center tomorrow at 12:00 PM PT for the second webinar in our 2017 series. In this webinar, we will give an overview of the laws that provide protection in the workplace for those who are coping with a cancer diagnosis, including the Americans with Disabilities Act, state fair employment laws, the Family and Medical Leave Act, and other resources. Click here for more information, and to register online. This post was approved by LUNGevity.
  3. Allison Doan has been on a long journey of self discovery, from a life of elite privilege to a brief time in federal prison, and then a battle with stage IV lung cancer. Through years of ups and downs, and finding forgiveness and strength she didn’t even realize that she possessed, Allison has remained determined to share a message of hope. Allison’s broken road has led her to a place of peace. She’s written an inspiring memoir, Bruised and Beautiful, which will be published later this month. By sharing her story, Allison hopes to inspire people that it’s possible to get through life’s hardships with love, faith, and trust. “I wanted to write the book when I was facing prison because I knew that I was going to take something horrible and scary and turn it into something good. I wanted to convey a message of hope that you can face anything with God on your side. When I started writing, I thought I’m going to end it here, and then the cancer struck,” says Allison. She describes her cancer diagnosis on her Caring Bridge site: “In early November 2014, I noticed a large lymph node on the right side of my neck. I was also having some pain with breathing and a dry cough. After some time had passed and no progress from antibiotics, my primary doctor ordered an ultrasound and several CT's which would reveal some concerns. The CT had shown 3 large lymph nodes in my chest (mediastinum area), 3 nodules in my lungs and 2 nodules in my thyroid gland. I was referred to an oncologist who ordered a biopsy on December 29. I was preparing myself for the news of possible lymphoma or squamous cell carcinoma according to what the doctor said. My doctor informed me that I have what looked to be medullary thyroid cancer a very rare form of thyroid cancer. A blood test was ordered to confirm this and a PET scan to see where the cancer might have spread. I began the arduous task of research to find those doctors that might have a specialty in this area. We decided to head to MD Anderson in Houston for a second opinion. After more testing and another biopsy it was confirmed that the cancer was actually coming from the lung. They diagnosed me with Stage IV neuroendocrine lung cancer which is incurable. After the shock and fear subsided I began to cling to my strong faith in our loving heavenly Father who holds me and this situation in His loving hands. Jeremiah 29:11 'For I know the plans I have for you sayeth the Lord, plans to prosper you and not to harm you, to give you a hope and a future.'” Realizing that her story wasn’t complete, Allison continued to write while undergoing treatment, hitting some roadblocks along the way. Allison says she “learned to navigate through the world of a cancer patient: days of normal, days of doctor visits, days of feeling great, and days of feeling crummy. Lung cancer is an up and down journey of new treatments. Then they stop working and you try something else.” Allison’s husband and care partner, Keith, has been by her side since the moment of her diagnosis. The two were married while she was undergoing treatment and planned their honeymoon in St. John in between clinical trials. Allison shared her story with country music artists Dave Fenley and Ray Johnston, who penned a song in her honor. The song, called Bruised and Beautiful (Alli’s Song), is full of grace and gratitude. It carries Allison’s powerful message of living each day to the fullest and trusting God. Part of proceeds from book and song will go to LUNGevity Foundation. LUNGevity was the first organization that Allison found when she started looking for online support after her diagnosis. The song Bruised and Beautiful is available for download on iTunes. Allison’s memoir of the same title, will be published in June 2017. In May, Allison entered hospice care to help with symptom relief and quality of life. She tells her family and friends that she’s staying “Allistrong” and that she’s humbled by the love, support, and encouragement she’s received. “Above all,” Allison says, “life is worth living.” Allison and her husband Keith, with their children Daniel, Peter, Megan, and Grant.
  4. Did you know 41 percent of Americans have never viewed their health data? As a member of LUNGevity online patient groups you may be many steps ahead of the average American patient or caregiver! Telling us about your experience accessing your own or a loved one's health data will help shape a new project being led by FasterCures, a nonprofit organization that works across diseases to smooth speed bumps that slow down the process of getting promising therapies to patients. We invite you to learn more about our new Health Data Basics project and to respond to a short anonymous survey. Your input will help us develop a new tool to inform people about health data access, sharing and use. Click here to learn more and take the survey! The link of the survey is: https://www.surveymonkey.com/r/PK29LR5 And contact information for the project is: https://www.healthdatabasics.org/contact/
  5. MONDAY, JUNE 5 Reuters “Roche's Alecensa bests Pfizer's Xalkori in lung cancer trial” https://www.reuters.com/article/us-health-cancer-roche-pfizer-idUSKBN18W1HH Forbes “A New Cancer Drug Helped Almost Everyone Who Took It. Almost. Here's What It Teaches Us” https://www.forbes.com/sites/matthewherper/2017/06/03/a-new-cancer-drug-helped-almost-everyone-who-took-it-almost-heres-what-it-teaches-us/#677ea9e6b25f The Telegraph (UK) “Cancer Patients Who Enter Their Symptoms into an App Live Longer than Expected, Study Suggests” http://www.telegraph.co.uk/science/2017/06/04/cancer-patients-enter-symptoms-app-live-longer-expected-study/ Patient Daily “FDA OKs Novartis’ Zykadia for Metastatic Lung Cancer Affecting the Brain”http://patientdaily.com/stories/511122036-fda-oks-novartis-zykadia-for-metastatic-lung-cancer-affecting-the-brain TUESDAY, JUNE 6 Drug Discovery & Development “ASCO 2017: Investigational Agent Improves Survival Outcomes for EGFR-Positive Lung Cancer” https://www.dddmag.com/article/2017/06/asco-2017-investigational-agent-improves-survival-outcomes-egfr-positive-lung-cancer The Washington Post “8 Things Doctors are Buzzing about at the Biggest Cancer Meeting” https://www.washingtonpost.com/news/to-your-health/wp/2017/06/06/7-attention-grabbing-topics-at-the-nations-biggest-cancer-meeting/?utm_term=.39f88e8f0ae0 WEDNESDAY, JUNE 7 Fannin Sentinel “Lungevity: Shining Light on the Invisible Disease” http://fanninsentinel.news/?p=7581 PR Newswire “Julie R. Brahmer, MD., MSc, is recognized by Continental Who's Who” http://www.prnewswire.com/news-releases/julie-r-brahmer-md-msc-is-recognized-by-continental-whos-who-300469906.html Healio “Pembrolizumab Reduces Need for Second-Line Therapy in Advanced NSCLC” http://www.healio.com/hematology-oncology/lung-cancer/news/online/{7d9e7f9c-c66a-4f06-9ab3-e95da959cad5}/pembrolizumab-reduces-need-for-second-line-therapy-in-advanced-nsclc ASCO Daily News “Studies Explore Targeted Therapies in Lung Cancer” https://am.asco.org/studies-explore-targeted-therapies-lung-cancer THURSDAY, JUNE 8 The New York Times “Cancer Drug Proves to Be Effective Against Multiple Tumors” https://www.nytimes.com/2017/06/08/health/cancer-drug-keytruda-tumors.html?_r=0 The New York Times “When Your Personal War on Cancer Is Exhausting” https://www.nytimes.com/2017/06/08/well/live/when-your-personal-war-on-cancer-is-exhausting.html?_r=0 EurekAlert “Scientific Advances in Thoracic Oncology in 2016 Highlighted by the IASLC” https://www.eurekalert.org/pub_releases/2017-06/iaft-sai060817.php FRIDAY, JUNE 9 Healio “Primary NSCLC May Be Underdiagnosed Among Patients with Metastatic Renal Cell Carcinoma” http://www.healio.com/hematology-oncology/genitourinary-cancer/news/online/{97a56d74-d2e8-44d3-942a-7e8f636341b7}/primary-nsclc-may-be-underdiagnosed-among-patients-with-metastatic-renal-cell-carcinoma Cure Today “Expert Discusses the Future of EGFR+ and ALK+ Lung Cancer” http://www.curetoday.com/articles/expert-discusses-the-future-of-egfr-and-alk-lung-cancer USA Today “’How Long Have I Got?’: Why Many Cancer Patients Don’t Have Answers ” https://www.usatoday.com/story/news/2017/06/09/kaiser-how-long-have-got-doc-why-many-cancer-patients-dont-have-answers/102518488/
  6. Here is the weekly clip report: TUESDAY, MAY 30 Miami Herald “Using Your Immune System to Fight Cancer is Showing Significant Promise” http://www.miamiherald.com/living/health-fitness/article152969614.html Cancer Network “Certinib Gets First-Line FDA Approval ALK-Positive Lung Cancer” http://www.cancernetwork.com/lung-cancer/ceritinib-gets-first-line-fda-approval-alk-positive-lung-cancer WEDNESDAY, MAY 31 CHEST (American College of Chest Physicians) “What You Need to Know About Biopsies for Lung Cancer” http://www.chestnet.org/News/Blogs/CHEST-Thought-Leaders/2017/05/What-you-need-to-know-about-biopsies OncLive “Modern Biopsy Techniques Changing the Scope of Lung Cancer Diagnosis” http://www.onclive.com/web-exclusives/modern-biopsy-techniques-changing-the-scope-of-lung-cancer-diagnoses Reuters “Cancer Meeting to Provide Clues on Future Immunotherapy Combos” https://www.reuters.com/article/us-health-cancer-immunotherapy-idUSKBN18R1EA Genome Web “Vanderbilt Team Using Mass Spec to Research Cancer Immunotherapy” https://www.genomeweb.com/proteomics-protein-research/vanderbilt-team-using-mass-spec-research-cancer-immunotherapy THURSDAY, JUNE 1 Lung Cancer News Today “Trilaciclib Improves Chemo’s Effectiveness Against Small Cell Lung Cancer, Study Finds” https://lungcancernewstoday.com/2017/06/01/study-shows-combination-of-triliciclib-and-chemo-benefits-lung-cancer-patients/ PR Newswire “Roche Announces FDA Approval of Companion Diagnostic to Identify ALK-Positive Non-Small Cell Lung Cancer Patients” http://www.prnewswire.com/news-releases/roche-announces-fda-approval-of-companion-diagnostic-to-identify-alk-positive-non-small-cell-lung-cancer-patients-300466815.html Business Wire “Atreca, Inc., and Dana-Farber Cancer Institute Establish Broad Cancer Immunotherapy R&D Collaboration” http://www.businesswire.com/news/home/20170531005968/en/Atreca-Dana-Farber-Cancer-Institute-Establish-Broad-Cancer NBC News “More New Cancer Drugs Mean Higher Costs But Also Longer Lives” http://www.nbcnews.com/health/health-news/more-new-cancer-drugs-mean-higher-costs-also-longer-lives-n767156 FRIDAY, JUNE 2 Bloomberg “A Hot-Cancer Drug Race Keeps Getting More Crowded” https://www.bloomberg.com/news/articles/2017-06-02/immune-oncology-drug-trials-are-getting-crowded Business Insider “The FDA and a $1.2 Billion Startup Are Analyzing How Drugs Are Used After Approval – and It Could One Day Change How we Treat Cancer” http://www.businessinsider.com/flatiron-health-collaboration-with-fda-data-at-asco-2017-6 U.S. News & World Report “As Scientists Train the Immune System to Fight Cancer, Others Look to Combat Costs” https://www.usnews.com/news/healthcare-of-tomorrow/articles/2017-06-02/as-scientists-train-the-immune-system-to-fight-cancer-others-look-to-combat-costs
  7. MONDAY, MAY 22 USA Today “Hope Summit is Just that for Lung Cancer Survivors” https://www.usatoday.com/story/life/2017/05/22/hope-summit-just-lung-cancer-survivors/101710746/ Patient Daily “AstraZeneca Reports Positive Results in Trial Using Imfinzi in Stage III Non-Small Cell Lung Cancer Cases” http://patientdaily.com/stories/511116688-astrazeneca-reports-positive-results-in-trial-using-imfinzi-in-stage-iii-non-small-cell-lung-cancer-cases TUESDAY, MAY 23 Business Insider “The FDA just Took an Entirely New Approach Approving a Cancer Drug” http://www.businessinsider.com/fda-approves-cancer-drug-based-on-genetic-markers-2017-5 Clinical Oncology News “ASCO Report: Gefitinib beats Chemo After Surgery in NSCLC” http://www.clinicaloncology.com/Lung-Cancer/Article/05-17/ASCO-Report-Gefitinib-Beats-Chemo-After-Surgery-in-NSCLC-/41434 U.S. News & World Report “Advice for Lung Cancer Caregivers” http://health.usnews.com/health-care/patient-advice/articles/2017-05-23/advice-for-lung-cancer-caregivers WEDNESDAY, MAY 24 Medical Xpress “Using a Genetic Signature to Overcome Chemotherapy-Resistant Lung Cancer” https://medicalxpress.com/news/2017-05-genetic-signature-chemotherapy-resistant-lung-cancer.html Reuters “Brief – Onocyte Presents Positive Lung Cancer Blood Test Data at American Thoracic Society” https://www.reuters.com/article/brief-oncocyte-presents-positive-lung-ca-idUSFWN1IO0IS THURSDAY, MAY 25 Genome Web “OncoCyte Lung Cancer Test Validation Data Bodes Well for Launch This Year” https://www.genomeweb.com/molecular-diagnostics/oncocyte-lung-cancer-test-validation-data-bodes-well-launch-year PR Newswire “NCCN Awards Grants to Investigators at Member Institutions to Study Osimertinib in Lung Cancer” http://www.prnewswire.com/news-releases/nccn-awards-grants-to-investigators-at-member-institutions-to-study-osimertinib-in-lung-cancer-300463998.html FRIDAY, MAY 26 Cancer Therapy Advisor “Lung Cancer Radiotherapy Might Improve Immune Checkpoint Blockade-Associated Survival” http://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-radiotherapy-might-improve-immune-checkpoint-blockade-survival/article/664708/ Cure Today “FDA Approves Zykadia for Metastatic Non-Small Cell Lung Cancer” http://www.curetoday.com/articles/fda-approves-zykadia-for-metastatic-nonsmall-cell-lung-cancer Patient Daily “Gefitinib Shown to Delay Recurrence of Lung Cancer Following Surgery” http://patientdaily.com/stories/511119431-gefitinib-shown-to-delay-recurrence-of-lung-cancer-following-surgery The ASCO Post “The Ongoing Challenges of Lung Cancer Screening” http://www.ascopost.com/issues/may-25-2017/the-ongoing-challenges-of-lung-cancer-screening/ ASCO Daily News “Targeting RET Rearrangements in Non–Small Cell Lung Cancer” https://am.asco.org/targeting-ret-rearrangements-non-small-cell-lung-cancer
  8. MONDAY, MAY 15 Medscape “What’s New for Lung Cancer? Stay Tuned for ASCO 2017” http://www.medscape.com/viewarticle/879994 TUESDAY, MAY 16 Healio “Survivors of Hodgkin Lymphoma Have Increased Risk for Second Cancer” http://www.healio.com/hematology-oncology/lymphoma/news/in-the-journals/{099e0b29-8044-4d8c-8215-f0691027f7d8}/survivors-of-hodgkin-lymphoma--increased-risk-for-second-cancer Forbes “How AI and Deep Learning is now Used to Diagnose Cancer” https://www.forbes.com/sites/bernardmarr/2017/05/16/how-ai-and-deep-learning-is-now-used-to-diagnose-cancer/#45695214c783 WEDNESDAY, MAY 17 Medical Xpress “Brigatinib First to Offer Over 1-Year Control of ALK-Positive Lung Cancer Post-Crizotinib” https://medicalxpress.com/news/2017-05-brigatinib-year-alk-positive-lung-cancer.html U.S. News & World Report “Cancer Fatigue: So Tired by Treatment” http://health.usnews.com/health-care/patient-advice/articles/2017-05-17/cancer-fatigue-so-tired-by-treatment Boston Globe “Two MGH Doctors Offer Step-by-Step Advice for Living with Cancer” https://www.bostonglobe.com/magazine/2017/05/17/two-mgh-doctors-offer-step-step-advice-for-living-with-cancer/rC0eryFm4VbgffHQfsNLLJ/story.html THURSDAY, MAY 18 Reuters “Merck, Incyte Immunotherapy Combination Effective in Lung Cancer Study” http://www.reuters.com/article/health-cancer-merck-incyte-idUSL2N1IJ1QC Medical Xpress “Targeted Therapy Can Delay Recurrence of Intermediate-Stage Lung Cancer” https://medicalxpress.com/news/2017-05-therapy-recurrence-intermediate-stage-lung-cancer.html FRIDAY, MAY 19 Reuters “CHMP Backs Novartis's Zykadia for First-Line Use in Lung Cancer” http://www.reuters.com/article/us-novartis-zykadia-idUSKCN18F1FK News-Medical “Researchers Discover Novel Mechanism That Causes Malignant Pleural Effusion in Lung Cancer Patients” http://www.news-medical.net/news/20170519/Researchers-discover-novel-mechanism-that-causes-malignant-pleural-effusion-in-lung-cancer-patients.aspx
  9. I was diagnosed in April 2017 with lung cancer (stage 4 adenocarcinoma with malignant pleural effusion). I celebrated my 47th birthday in May. My husband and I will celebrate our 22nd wedding anniversary in July. We have a 12 year old daughter. This is my second stage 4 cancer diagnosis. The first was shortly after my husband asked me to marry him. I was 23 years old and had stage 4 Hodgkins. I was treated with a combination MOPP ABVD regimen. My life was placed on pause while I took 24 treatments and tried to make a new normal. After 15 months of chemotherapy, I was given a clean bill of health. The original plan included pinpoint radiation but after consulting the tumor board, my oncologist told me the group decision was to stop with chemo. Now I could plan my wedding and get on with my life. My oncologist and nurse even attended my wedding. Years later at a follow up, my oncologist told me that we dodged a bullet by not doing the radiation as many patients were now being diagnosed with leukemia or breast cancer. I remember feeling a cold shiver at the thought that I could have been in that position. We were blessed with a daughter even though I had been told I most likely would be sterile. Fast forward to 2017, I had a cold early in the year but could not shake the cough. I was given a couple of rounds of antibiotics, then was referred to the pulmonologist. I had a thoracentisis. The pulmonologist told me not to Google, but I did, not about pleural effusions but about long term effects of MOPP ABVD. The following week, he gave me the diagnosis and I admitted my transgression. Maybe the lung cancer is just the hand that I was dealt, but I can't help but tie it back to the treatment for Hodgkins. I have been very fortunate to have wonderful support from my family, friends, and co-workers. I have also had incredible medical care from physicians, nurses, and support staff. If any Hodgkins survivors who only had chemo and have also been diagnosed with lung cancer reach out to me, I would love to correspond and discuss histories. Thanks for reading my story.
  10. Here is the weekly clip report: MONDAY, MAY 8 Medical Xpress “Study Identifies New Target to Fight Prostate, Lung Cancer” https://medicalxpress.com/news/2017-05-prostate-lung-cancer.html WTIU-FM (Indiana Public Media) “New Study To Examine Why Patients Choose Lung Cancer Screenings” http://indianapublicmedia.org/news/study-examine-patients-choose-lung-cancer-screenings-119528/ Cancer Network “Checkpoint Inhibitors Improve Response to Salvage Chemotherapy in NSCLC” http://www.cancernetwork.com/lung-cancer/checkpoint-inhibitors-improve-response-salvage-chemotherapy-nsclc TUESDAY, MAY 9 US News & World Report “Here’s How to Manage Lung Cancer Side Effects” http://health.usnews.com/health-care/patient-advice/articles/2017-05-09/heres-how-to-manage-lung-cancer-side-effects New York Post “How Assembling the Right Cancer Team May Save Your Life” http://nypost.com/2017/05/09/how-assembling-the-right-cancer-team-may-save-your-life/ WEDNESDAY, MAY 10 WETA-TV (PBS—Washington, DC) “This Cuban Lung Cancer Drug Is Giving Some U.S. Patients Hope” http://www.pbs.org/newshour/bb/cuban-lung-cancer-drug-giving-u-s-patients-hope/ Cure “Will Immunotherapy Move into All Lung Cancer Patient Populations?” http://www.curetoday.com/articles/will-immunotherapy-move-into-all-lung-cancer-patient-populations THURSDAY, MAY 11 Lung Cancer News Today “Clinical Trial to Test Biocept’s Target Selector Platform as Diagnosis, Monitoring Tool for Lung Cancer” https://lungcancernewstoday.com/2017/05/11/lung-cancer-platform-target-selector-developed-biocept-undergo-clinical-trial/ Reuters “U.S. FDA Approves Merck Immunotherapy/Chemo Combo for Lung Cancer” http://www.reuters.com/article/us-merck-co-lungcancer-idUSKBN1862Y2 FRIDAY, MAY 12 Fortune “Why Merck’s Keytruda Just Became a Lung Cancer Game Changer” http://fortune.com/2017/05/11/fda-lung-cancer-merck-keytruda/ Cancer Therapy Advisor “Alectinib Beats Crizotinib in ALK-positive Non-small Cell Lung Cancer” http://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-nsclc-alectinib-crizotinib-compare-treatment/article/661354/ Eurek Alert “Invasive Lung Cancer Cells Display Symbiosis -- Key to metastasis” https://www.eurekalert.org/pub_releases/2017-05/ehs-ilc050917.php Reuters “AstraZeneca’s Durvalumab Shown in Trial to Reduce Risk of Death from Lung Cancer” http://www.reuters.com/article/astrazeneca-cancer-idUSFWN1IE06Z
  11. Advocates are courageous and brave as they raise awareness or work tirelessly to change injustices and create a better world. Most people become advocates because they were personally affected by the cause they are fighting for. While they have smiles on their faces and work to inspire...there's a part of their hearts that are always grieving for the love they lost or the life that once was. At least thats true for me- even after 15 years. While our personal experience fuels us during advocacy events and awareness days we are also acutely aware of the absence of those who were lost to the disease and reminded that a part of our life is forever changed. Advocacy is a way to turn a terrible life experience into education, awareness, and support for soneone facing similar challenges. Advocacy events and activities can be personally rewarding and advocacy efforts can assist others and even change their lives. Being an advocate is amazing and meaningful. While I celebrate the progress I've been a part of and the lives I've helped to change, a part of me is alwaying grieving a little bit. I've learned that grief is most definitely one emotion that fuels advocacy. As long as I advocate for people with lung cancer, I will never stop grieving for my dad. Everything I advocate for reminds me that he's no longer here. Part of me finds comfort that he is still "with" me after all these years while other relatives have long stopped saying his name. While I'm on a mission to provide all these things to improve a patients survivorship, I'm reminded that my dad never had these things and he did not have a fair shot at survival. It's really bittersweet. Even though there is a an undercurrent of sadness-- turning tragedy into purpose and a mission honors my dad. Its also the most rewarding feeling to serve others and help to change their lives
  12. Lung Cancer Navigator App Aims to Help Patients Understand Disease Oncology Nurse Advisor: LUNGevity, a lung cancer-focused nonprofit organization, has launched a new mobile application designed to help patients with lung cancer better understand their disease and make living with lung cancer less daunting.1 The mobile app, called Lung Cancer Navigator, is a customizable app that provides the latest medical and treatment information related to patients' specific lung cancer diagnosis. In addition, it offers tools for organizing customized care, managing multiple medications, and describing and tracking symptoms. Patients may use the app to input reminders and keep a list of questions for their next doctor visit. http://www.oncologynurseadvisor.com/navigator-notes/mobile-app-provides-assistance-to-lung-cancer-patients/article/631136/
  13. When diagnosed with lung cancer, there are often more questions than answers. How do you get information you need to make the best decisions about your care? When exactly does survivorship begin? Katie Brown, Vice President of Support and Survivorship Programs at LUNGevity Foundation, shares her personal connection to lung cancer and why she is so passionate about helping patients find the best resources at the time they need them the most. https://www.patientpower.info/video/empowering-lung-cancer-patients-through-advocacy
  14. What is the role of a care partner? Katie Brown, Certified Patient Navigator, and Sarah Rosenbloom, licensed clinical psychologist, give credit to these unsung heros by explaining the extent to which they go to support their loved one diagnosed with lung cancer. Tune in to find out more. https://www.patientpower.info/video/why-we-need-to-celebrate-lung-cancer-care-partners
  15. Receiving a diagnosis of cancer leaves most patients numb, afraid, confused and full of questions. Why did this happen? Where do I go for help? What’s next? Katie Brown, VP of Support and Survivorship Programs at LUNGevity, is a cancer survivor and Certified Patient Navigator. https://www.patientpower.info/video/how-a-patient-navigator-can-help-you
  16. Here is the weekly clip report: TUESDAY, MAY 2 US News “The Link Between Air Pollution and Lung Cancer” http://health.usnews.com/health-care/patient-advice/articles/2017-05-02/the-link-between-air-pollution-and-lung-cancer Cure “Adding Mindfulness: Innovation for an Optimal Preoperative Rehabilitation Before Lung Cancer Resection” http://www.curetoday.com/publications/cure/2017/spring-lung-2017/adding-mindfulness-innovation-for-an-optimal-preoperative-rehabilitation-before-lung-cancer-resection WEDNESDAY, MAY 3 Cure “Speaking the Language of Lung Cancer” http://www.curetoday.com/publications/cure/2017/spring-lung-2017/speaking-the-language-of-lung-cancer NPR “Urgent Care Services for Cancer Patients Offer a Gentler ER Alternative” http://www.npr.org/sections/health-shots/2017/05/03/526594004/urgent-care-services-for-cancer-patients-offer-a-gentler-er-alternative Medscape “The Evolving Landscape for EGFR Mutation-Positive Advanced NSCLC: Clarifying a New Standard of Care” http://www.medscape.com/viewarticle/879482 Fortune Magazine “This Is What’s Missing in the Data-Centric Approach to Cancer” http://fortune.com/2017/05/03/brainstorm-health-cancer-data/ Forbes “Joe Biden on His New Cancer Initiative, Drug Prices and Donald Trump” http://fortune.com/2017/05/03/joe-biden-trump-cancer-drug-prices/ THURSDAY, MAY 4 Vanderbilt News “Lovly Elected to American Society for Clinical Investigation” https://news.vanderbilt.edu/2017/05/04/lovly-elected-to-american-society-for-clinical-investigation/ Targeted Oncology “Expert Highlights Benefits of Next-Generation Sequencing for NSCLC” http://www.targetedonc.com/news/expert-highlights-benefits-of-nextgeneration-sequencing-for-nsclc FRIDAY, MAY 5 Huffington Post “Using AI to Spot Lung Cancer” http://www.huffingtonpost.com/entry/using-ai-to-spot-lung-cancer_us_590c8e92e4b056aa2363d424 The Science Times “Air Pollution Induces Lung Cancer Too: Here’s What You Should Know” http://www.sciencetimes.com/articles/14333/20170505/air-pollution-induces-lung-cancer-here-what-know.htm
  17. I was diagnosed with lung cancer in August of 2011 out of the blue, totally unexpected. I went for a regular checkup after experiencing some gastric reflux and abdominal pain. The doctor suggested an abdominal CT scan. He called me back into his office and told me that, although the scan was of my abdomen, a part of my lung had been included. A little shadow had shown up there that concerned him. He asked me to undergo a second CT scan, this time of my lungs. That scan revealed a prominent area of masslike consolidation in my left lower lobe. The next day I saw my pulmonologist, who scheduled me for a needle biopsy. At the time, he didn’t think that the scan findings really indicated a lung cancer. I was not concerned either, as I had never smoked and had little history of cancer in my family. I was traveling home from a visit with some friends when I got the call from the hospital. The emotional voice on the other end was cracking. I didn’t even realize that it was my pulmonologist. He said, “We got the results from your biopsy. You have a very large tumor taking up most of the left lower lobe of your lung. We have to get this right away. We’ll get through this honey.” It was surreal. I thought it was a mistake. I was diagnosed with non-small cell adenocarcinoma. They scheduled surgery right away to remove a lobe of my left lung. That was followed by chemotherapy. It was a very tough time. After I recovered from that surgery and the chemo, I just wanted to go back to my life. I’d been very happy with my life. I was a volunteer chaplain. I didn’t know any other survivors and I didn’t want to think about lung cancer anymore. They said I only had 15% chance of the cancer coming back so I wasn’t going to worry about it. A year later, the cancer came back. Looking at the scan, I felt like I was in a nightmare. The second surgery to remove the rest of my left lung was easier, because I knew what to expect. But after that surgery and treatment, I knew I needed to get plugged in and started searching online for an organization that could help. I liked that LUNGevity Foundation was constantly posting helpful information and seemed focused on survivors. Before I was diagnosed with cancer, I had enjoyed the experience of mentoring, so I applied to be a LifeLine support partner. Nikole from LUNGevity reached out and invited me to attend the HOPE Summit survivorship conference. One of my friends went with me and we had such a wonderful time. HOPE Summit changed my life. Before that time, I had been pretty isolated as a survivor. When I walked in and saw that many survivors, I was amazed and overwhelmed. Hearing others share their experiences changed my whole attitude. The main thing I came away with after HOPE Summit is “be your own advocate.” My amazing friends that I met through LUNGevity connected me with my current doctors at UT Southwest. Any time that you need support from LUNGevity, it is available. I am a LifeLine mentor to other survivors, but I also have LifeLine mentors who have helped me through two recurrences of cancer. They’ve really inspired me and kept me looking forward. Mentoring is a two-way relationship. If they’re feeling down, I can help them and if I’m feeling down, they can help me. It is so rewarding. I’m also a LUNGevity Social Media Ambassador. I’m a big believer in the power of connection. If we isolate ourselves, we focus more on the negatives and everything that’s wrong. But if you’re out there connecting with other survivors, you’re sharing the ups and the downs, you’re not alone. It really helps. The advice I like to share with other people who have lung cancer is if you don’t like what one doctor says, it’s very important to be your own advocate. It’s your life!
  18. MONDAY, APRIL 17 Onc Live “Immunotherapy Agents, Combinations to Compete for Frontline NSCLC” http://www.onclive.com/web-exclusives/immunotherapy-agents-combinations-to-compete-for-frontline-nsclc Reuters “OncoMed's lung cancer drug fails mid-stage study, shares tumble” http://www.reuters.com/article/us-oncomed-pharms-study-idUSKBN17J0ZK Cure Today “All in the Family: Discussing Screenings and Preventative Surgery for Inherited Cancers” http://www.curetoday.com/publications/cure/2017/spring-2017/all-in-the-family-discussing-screenings-and-preventative-surgery-for-inherited-cancers?p=1 TUESDAY, APRIL 18 Chicago Tribune “Breathe Deep North Shore Aimes to Focus Attention on Lung Cancer” http://www.chicagotribune.com/suburbs/highland-park/news/ct-dfr-breathe-deep-north-shore-preview-tl-0420-20170417-story.html US News – Health “New Treatments for Lung Cancer” http://health.usnews.com/health-care/patient-advice/articles/2017-04-18/new-treatments-for-lung-cancer Lung Cancer News Today “Opdivo More Than Tripled 5-Year Survival Rates in NSCLC Patients in Phase 1 Study” https://lungcancernewstoday.com/2017/04/18/opdivo-tripled-five-year-survival-rates-in-nsclc-patients-in-phase-1-study/ WEDNESDAY, APRIL 19 Media News Today “Lung Cancer: Blood Test May Lead to Earlier, Personalized Treatment” http://www.medicalnewstoday.com/articles/317010.php The Huffington Post “’State of the Air 2017’ – Who’s Best and Worst?” http://www.huffingtonpost.com/entry/state-of-the-air-2017-whos-best-and-worst_us_58f76453e4b071c2617f014b THURSDAY, APRIL 20 Medical Xpress “New Test for Early Detection of Lung Cancer Measures Tiny Charges in the Composition of Breath” https://medicalxpress.com/news/2017-04-early-lung-cancer-tiny-composition.html FRIDAY, APRIL 21 Cancer Therapy Advisor “In Focus: Atezolizumab for Non-small Cell Lung Cancer” http://www.cancertherapyadvisor.com/lung-cancer/lung-cancer-nsclc-atezolizumab-focus-treatment/article/652028/
  19. MONDAY, APRIL 10 Fox Sports “This Week’s Bow Tie Represents … LUNGevity” http://www.foxsports.com/mlb/story/this-weeks-bow-tie-represents-lungevity-040817 The Huffington Post “Getting Screened: Taking Charge Of Your Own Health May Save Your Life” http://www.huffingtonpost.com/entry/getting-screened-taking-charge-of-your-own-health_us_58eb6776e4b0acd784ca5a15 TUESDAY, APRIL 11 Lohud (USA Today) “Pulmonary Rehabilitation Proves Effective for Some Lung Cancer Patients” http://www.lohud.com/story/sponsor-story/newyork-presbyterian-hospital/2017/04/11/pulmonary-rehabilition-lung-cancer-patients/100115990/ Lung Cancer News Today “Genentech’s Alecensa Superior to Xalkori in Newly Diagnosed ALK+ Advanced NSCLC Patients” https://lungcancernewstoday.com/2017/04/11/alk-positive-advanced-nsclc-therapy-alecensa-superior-xalkori/ WEDNESDAY, APRIL 12 PR Newswire “Alice Shaw of Massachusetts General Hospital and Harvard University Joins the LUNGevity Foundation Scientific Advisory Board” http://www.prnewswire.com/news-releases/alice-shaw-of-massachusetts-general-hospital-and-harvard-university-joins-the-lungevity-foundation-scientific-advisory-board-300438369.html Forbes “Which Cancer Patients Will be Helped by Powerful Immune Drugs” https://www.forbes.com/sites/elaineschattner/2017/04/12/which-cancer-patients-will-be-helped-by-powerful-immune-drugs-this-test-may-tell/#48bf4853689c THURSDAY, APRIL 13 Onc Live “Liquid Biopsy Testing Detects Recurrence in High-Risk NSCLC” http://www.onclive.com/publications/oncology-live/2017/vol-18-no-07/liquid-biopsy-testing-detects-recurrence-in-highrisk-nsclc FRIDAY, APRIL 14 Washington Life Magazine “LUNGevity Musical Celebration of Hope Gala” http://washingtonlife.com/calendar/
  20. Here is the weekly clip report: MONDAY, APRIL 3 PR Newswire “LUNGevity Launches Groundbreaking Platform for Patient Voices” http://www.prnewswire.com/news-releases/lungevity-launches-groundbreaking-platform-for-patient-voices-300433478.html ABC News “U.S. Cancer Deaths are Decreasing, Study Finds” http://abcnews.go.com/Health/us-cancer-deaths-decreasing-study-finds/story?id=46490447 The Blade “UT Researchers Map Genetic Code to Determine Cancer Risk” http://www.toledoblade.com/Medical/2017/04/03/UT-researchers-map-genetic-code-to-determine-cancer-risk.html TUESDAY, APRIL 4 WWTV-TV (CBS—Traverse City, MI) “LUNGevity Launches Groundbreaking Platform for Patient Voices” http://www.9and10news.com/story/35057597/lungevity-launches-groundbreaking-platform-for-patient-voices Lung Cancer News Today “Screening Initiative in Georgia Finds Twice the Lung Cancer Rate of Previous Efforts” https://lungcancernewstoday.com/2017/04/04/lung-cancer-screening-initiative-twice-rate/ WEDNESDAY, APRIL 5 OncLive “Frontline Setting for ALK+ NSCLC Set to Undergo Shift” http://www.onclive.com/web-exclusives/frontline-setting-for-alk-nsclc-set-to-undergo-shift Oncology Nursing News “Nivolumab 5-Year Survival Rate Exceeds Expectations in NSCLC” http://nursing.onclive.com/web-exclusives/nivolumab-5year-survival-rate-exceeds-expectations-in-nsclc THURSDAY, APRIL 6 CNBC “The Land of Vikings May Hold the Cure for Cancer” http://www.cnbc.com/2017/04/06/the-land-of-the-vikings-may-hold-the-cure-for-cancer.html MIT News “Study Helps Explain Varying Outcomes for Cancer, Down Syndrome” http://news.mit.edu/2017/chromosome-number-varying-outcomes-cancer-down-syndrome-0406 Lung Cancer News Today “Alecensa Improves Progression-Free Survival in Certain Lung Cancer Patients” https://lungcancernewstoday.com/2017/04/06/lung-cancer-therapy-alecensa-inhibits-progression-of-disease/ FRIDAY, APRIL 7 “When Health Advocates Can’t Save Themselves” http://health.usnews.com/health-care/patient-advice/articles/2017-04-07/when-health-advocates-cant-save-themselves
  21. We have several possible media opportunities for individuals who are using the Lung Cancer Navigator App to help manage their/their loved one's lung cancer diagnosis. If you are interested in sharing your story and helping to raise awareness for this resource, please respond to this thread and we will be in touch with more information. If you would like to learn more about the Lung Cancer Navigator App and how to download it for free from the Apple or Google Play stores, please visit LUNGevity's website. Thank you! Lauren -- Digital Community Manager LUNGevity Foundation
  22. Good evening, LCSC! Here is the weekly clip report: MONDAY, MARCH 27 OncLive “Expert Provides Perspective on Immunotherapy Advances in Lung Cancer” http://www.onclive.com/web-exclusives/expert-provides-perspective-on-immunotherapy-advances-in-lung-cancer R&D Magazine “Cancer Linked to DNA Copying Mistakes” https://www.rdmag.com/article/2017/03/cancer-linked-dna-copying-mistakes United Press International “New Color Change Test May Advance Cancer Research” http://www.upi.com/Health_News/2017/03/27/New-color-change-test-may-advance-cancer-research/5711490632251/ TUESDAY, MARCH 28 Oncology Nurse Advisor “Free Lung Cancer Screening Findings Support Continual Screenings in High-Risk Populations” http://www.oncologynurseadvisor.com/lung-cancer/free-lung-cancer-screening-program-increases-screening-rate/article/646988/ OncLive “Efforts Continue to Introduce Immunotherapy into Earlier NSCLC Settings” http://www.onclive.com/web-exclusives/efforts-continue-to-introduce-immunotherapy-into-earlier-nsclc-settings BioAnalysis Zone “Lung Cancer Recurrence Detected Earlier Circulating Tumor Cell Test” https://www.bioanalysis-zone.com/2017/03/28/lung-cancer-recurrence-detected-earlier-circulating-tumor-cell-test/ WEDNESDAY, MARCH 29 All Events “Join Team LUNGevity for the Bank of America Chicago Marathon” https://allevents.in/chicago/join-team-lungevity-for-the-bank-of-america-chicago-marathon/707354932772272 Oncology Nurse Advisor “CTCs Promising as Biomarker to Identify Lung Cancer Recurrence” http://www.oncologynurseadvisor.com/lung-cancer/circulating-tumor-cells-an-accurate-biomarker-for-lung-cancer-recurrence/article/647280/ THURSDAY, MARCH 30 Medical Xpress “Studies Find Promise for Innovations in Liquid Biopsies” https://medicalxpress.com/news/2017-03-liquid-biopsies.html Madison.com “How AbbVie is Attacking Tumors at their Roots” http://host.madison.com/business/investment/markets-and-stocks/how-abbvie-is-attacking-tumors-at-their-roots/article_4b031b45-927a-5d8e-9690-b0dd1533c800.html FRIDAY, MARCH 31 Cure Today “Tagrisso gets Full Approval in Lung Cancer” http://www.curetoday.com/articles/tagrisso-gets-full-approval-in-lung-cancer Healio “Annual report: Overall cancer death rates continue to decline, but problem areas persist” http://www.healio.com/hematology-oncology/practice-management/news/in-the-journals/{01baf9ad-ff7a-4166-afd5-ceeaf73717ba}/annual-report-overall-cancer-death-rates-continue-to-decline-but-problem-areas-persist
  23. Thriving With Cancer A year ago, I was the healthiest 60-something year-old person I knew. Worked out every day; ate well; kept my weight down. My blood work-ups from my annual physicals were suitable for framing. Then, the bomb hit. In October 2016, I was diagnosed with Stage IV Lung Cancer. I had thoracic surgery, and due to the recovery from that plus the pain from the disease itself, I was on a hefty dose of opiate medications. For the rest of that year, I was pretty much a pain-ridden, groggy-headed vegetable. Lung Cancer Death Sentence? But, fortunately for me, that is not the end of my story, just the beginning. For anyone who knows about this disease, my diagnosis used to be a death sentence, and frankly still is for many, many people. I, however, had the good fortune to have tested positive for a genetic mutation that could be treated with an oral medication called Tarceva; more effective than chemo and with fewer and less severe side effects. I started on this medication on November 1, 2016. Before updating you on my status, let me digress just a bit. My Unwanted Intimacy with Lung Cancer It is my great un-fortune to have considerable history with lung cancer. I held my mother’s hand 8 years ago when she took her last breath after her bout with this disease. More recently, just 3 years ago, I held my little sister’s hand when she too succumbed to this miserable malady. And so, now it’s my turn. I am now 5 months into my treatment, and pretty much back into my normal life. At the same point in time for them, my mother was dead, and my sister was desperately trying a variety of chemotherapy cocktails, to no avail. So, what is different today? The Foundations for a New Approach to Treatment The difference today can be traced back to Richard Nixon (off all people), who declared a war on cancer way back in 1971 and funded significant research efforts to fight this war. I never thought I’d be thanking Nixon for anything, but he has my gratitude. The difference is also due to Craig Venter and Francis Collins, who sequenced the human genome in the early 2000s. And, the difference is due to thousands of researchers since then who’ve utilized the foundational research that resulted from these efforts and designed whole new approaches to treatment for cancer. When my mother was diagnosed 8 years ago, she had one option for treatment: chemo. When my sister was diagnosed 4 years ago, she had two options: chemo, or targeted therapy for a couple of gene mutation. When I was diagnosed, lung cancer treatment was already in the midst of a revolution. Chemotherapy, the go-to approach for all advanced lung cancer not that long ago, is the choice only half of the time today. The other half of lung cancer cases are being treated by either targeted treatment (like my own), or immunotherapy, both of which are far, far superior. So, I am the beneficiary of research. Pure and simple. The team of people who are caring for me at Lurie are fabulous, but it is the research that led to targeted treatments that is the key to my life. Where to Next? With a need and desire to do something with my gratitude, I spent time with Dr. Platanias, who heads up The Lurie Comprehensive Cancer Center, and he told me about OncoSET. This, my friends, is research that will lead to the next revolution in cancer treatment: PERSONALIZATION. If you haven’t already read the summary of this effort on this page, please do. Treatment of many diseases, cancer included, will become one-to-one. Each of us treated for exactly our unique profile. I believe it, but more importantly, so do those who truly know what they are talking about. I’m in the process of sending over a hefty donation of money to jump-start the lung cancer part of this program, and am participating in the research with my own data. I will update you on what I learn about myself through this process. Thriving with Cancer? Really?! When I started this note, I told you that a year ago, I was the healthiest person I knew. A year later, I am the healthiest person I know, who happens to have cancer. It’s not SURVIVING, it’s THRIVING. And, I have research to thank. I can think of no better place to invest your support, so please join me in giving to this worthy effort. Our children and their children with thank us, even if we’re not Nixon or Venter.
  24. A market research company has asked us to share a survey opportunity for patients within the US with Stage IV lung cancer. Those who qualify and complete the 60-minute telephone survey will be compensated if you complete the screener and telephone interview. To see if you qualify for this survey, click here www.alphadetail.com/lcpatientstudy Please note: you will only be compensated for completing this in its entirety once. If you need any additional information please contact Elizabeth Lawson (ELawson@us.imshealth.com)
  25. Good evening! Here is the weekly clip report: MONDAY, MARCH 6 Reuters “OncoCyte says study confirms accuracy of lung cancer blood test” http://www.reuters.com/article/us-oncocyte-lungcancer-idUSKBN16D14W Oncology Live “Ongoing Research of Immunotherapy in HNSCC” http://www.onclive.com/insights/hnscc-immunotherapy/ongoing-research-of-immunotherapy-in-hnscc TUESDAY, MARCH 7 Oncology Live “Dr. Levine on Palliative Care for NSCLC” http://www.onclive.com/onclive-tv/dr-levine-on-palliative-care-for-nsclc PR Newswire “Trovera™ EGFR Urine Liquid Biopsy Test Predictive of Clinical Response to Therapy: Case Series in Patients with Non-Small Cell Lung Cancer” http://www.prnewswire.com/news-releases/trovera-egfr-urine-liquid-biopsy-test-predictive-of-clinical-response-to-therapy-case-series-in-patients-with-non-small-cell-lung-cancer-300418751.html WEDNESDAY, MARCH 8 Technology Networks “Towards Noninvasive Detection of Lung Cancer” https://www.technologynetworks.com/cancer-research/news/towards-noninvasive-detection-of-lung-cancer-285862 CURE: Cancer Updates, Research & Education “SBRT Is Promising in Early-Stage Lung Cancer, Though Not Widely Used” http://www.curetoday.com/articles/sbrt-is-promising-in-earlystage-lung-cancer-though-not-widely-used#sthash.5OaaLbgI.dpuf THURSDAY, MARCH 9 Lung Cancer News Today “New Pathway Controlling Spread of Lung Cancer Could Be Targeted for Therapy” https://lungcancernewstoday.com/2017/03/02/new-pathway-controlling-spread-lung-cancer-targeted/ Bel Marra Health “Nasal swab may be useful for confirming lung cancer diagnosis” http://www.belmarrahealth.com/nasal-swab-useful-confirming-lung-cancer-diagnosis/ FRIDAY, MARCH 10 Drug Discovery & Development “OncoCyte Reports Successful Results of Lung Cancer Diagnostic Test Study” http://www.dddmag.com/news/2017/03/oncocyte-reports-successful-results-lung-cancer-diagnostic-test-study Medical Xpress “Cancer immunotherapy: Revived T cells still need fuel” https://medicalxpress.com/news/2017-03-cancer-immunotherapy-revived-cells-fuel.html WKBT-TV (CBS – La Crosse, WI) “Lung cancer screenings can save lives” http://www.news8000.com/health/lung-cancer-screenings-can-save-lives/385939168