rose larose Posted January 20, 2015 Share Posted January 20, 2015 Hello All, Nov. 2011 Follicular Lymphoma, Feb. 2013 Remission. Dec.2014 NSCLC ,Adenocarcinoma . Was 10 days before we were moving from NC to northern NY. Had to leave behind my oncologist in NC , whom was amazing, and to find one to treat the LC. Wow what a fog I was in. Pet scan showed no cancer other then the 1 1/2 cementer on the upper right lobe, Had a MRI of the brain , nothing , had another cat scan and nothing new showed. This week I will be starting chemo which will be Carboplation and Alimta. Once every 3 weeks for 12 weeks.I just finished the maintance chemo for the lymphoma . I know that all chemo is different and everyone reacts to it different. So I don't know what to expect, I don't know what questions to ask. I found this group and really enjoyed reading a lot of the post . I read some great and positive ones. So if any one can get me some information on any of this , I would sure appreciate any input. Thank you and god bless Quote Link to comment Share on other sites More sharing options...
Kberns Posted January 21, 2015 Share Posted January 21, 2015 Hi Rose, I too am a newbie and found this site so very helpful. I to have nsclc adenocarcinoma with mets to the vertebra and possibly 2 ribs. I started Carbo/Alimta Jan. 6th. I have had 2 blood test since then and so far perfect. I was exhausted day 3 &4 and felt like a fog was surrounding me but I am fairly sure it was because they have me taking a steroid the day before and the day after treatment. These steroids make me feel like super women and I cannot sleep. So I will see what happens at my next treatment! I too go every 3 weeks and have a CAT scan scheduled after 3 treatments. Hope this helps knowing I am on the same journey with you. Moving from NC to upper NY I can see how you were in a fog! I moved from South Florida to North Florida and I am still in culture shock!!!! Karen Quote Link to comment Share on other sites More sharing options...
eric byrne Posted January 21, 2015 Share Posted January 21, 2015 Hi Rose, Welcome to LCSC,sorry to hear of your dx,I have to go back down memory lane to Oct 2008 facing my upcoming treatments for the tumour found in my upper right lung.Apprehesive is certainly a fitting word to say the least,I was to have neo-adjutant chemotherapy which was designed to shrink the tumour,which if successful would allow my tumour to be surgically removed.As you say all chemo regimes are different,mine was four cycles of cisplatin and vinorelbine,I have such a vivid imagination,my brain could conjure up all sorts of negative thoughts about what was to come and follow on from my treatments eg, my hair will all fall out and I would be violently nausous with the chemo,the surgery if possible,would be excruitatingly painful and leave me a breathless invalid,these thoughts and others no doubt LOL,had their grip on me. Well what do you know?, I sailed through the chemo,no nausea,no hair falling out,no fatique,it all went so well.I did follow all the instruction provided by the medical team supporting my ie using the mouthwash to prevent mouth ulcers etc,I did have one bout of constipation though which was blooming uncomfortable,however that was entirely my own fault,since I was'nt drinking enough fiuids as recommended. The surgery went so well too,post surgery my wound site did ache a wee bit,(Iam a Scot,but certainly not a Braveheart),to say my wound was painful would be stretching it a bit,although I did use it as an excuse to avoid housework when I got home for a while. Finally,I have to say I am still here,still causing mayhem with all my family and friends,my dark thoughts of a premature exit have dissipated,I am having so much fun with my life,looking forward to each new day.This is outcome is what I sincerely wish for you. Best Wishes. Eric. Kberns 1 Quote Link to comment Share on other sites More sharing options...
rose larose Posted January 22, 2015 Author Share Posted January 22, 2015 Thank you all so much, I am anxious to get the first round done ,Hoping I sail thru it with minor side affects. If my hair happens to fall out, it's ok, it's just hair, If I get sick and puke a few times,thats ok too. I will take the bad to get to the good any time. I know that god will walk me thru this journey as he did when I was da with the lymphoma, 2 years on feb.11 for remission. Knowing that there is no cure for this LC but it is treatable. I wish you all the very best and so glad to know that I am not alone on this journey. Thank you all for listening. HUGS to all Kberns 1 Quote Link to comment Share on other sites More sharing options...
Kberns Posted January 27, 2015 Share Posted January 27, 2015 Hi Rose, How did the treatment go last week? My 2nd treatment is tomorrow so I am now buzzing around on those steroids they make you take the day before. Hope I sleep tonight! Please update so we can go through this together!! Karen Quote Link to comment Share on other sites More sharing options...
RandyW Posted January 30, 2015 Share Posted January 30, 2015 how are you doing and holding up??? did the storm affect you??? Hope for great news!! Quote Link to comment Share on other sites More sharing options...
joycealim Posted June 13, 2015 Share Posted June 13, 2015 Stage 3 a nsclc. diag 3/14 chemo and radio. Did not clear up the malignancy. They said you have a recurrence in Dec after 6 mo. I thought that to have a recurrence you hav=de to go into remission or at least have ned. Starting on Gemstar and Carbo. Quote Link to comment Share on other sites More sharing options...
cards7up Posted June 13, 2015 Share Posted June 13, 2015 Joyce, you're correct in that a recurrence happens when you've been NED. Could they have said progressing and not recurrence? What type of NSC do you have? Wishing you the best on your new treatment! Take care, Judy Quote Link to comment Share on other sites More sharing options...
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