pixter Posted March 26, 2015 Share Posted March 26, 2015 Hi, My name is Pixie, I live outside of Fort Worth, Texas with the love of my life. I am not new to surviving but I am new to lung cancer. Dr. told me Monday that I have lung cancer (wow) still trying to digest it. They said no biopsy, just remove the lower right lobe (wow) again. Not knowing seems so far, to be the hardest point. Maybe if I could understand all the numbers and strange words it would help. The next hard part is how to talk honestly with my family. This seems fast and slow at the same time, ugh. No shock, fear, and frustration here hahaha. I just wish I knew where to start with any of it. Quote Link to comment Share on other sites More sharing options...
rose.vining Posted March 26, 2015 Share Posted March 26, 2015 Hi Pixie Very sorry to hear of this new cancer challenge you are facing. I agree, not knowing was one of the hardest parts for me as well. You have come to a great place to learn more about lung cancer. Lungevity offers some good resources and links to other sites that are helpful. I have been through two lung surgeries. The second one was much easier for me even though I thought it was not going to be! One thing that helped me the last time that I did not do the first time was start home PT as soon as I was able...I recovered much faster the second time. TX has some great hospitals! My husband and I lived there many years ago. I worked at Children's Medical Center and he worked next door at Parkland. Do you have a date set for your surgery yet? Glad to connect with you here, Rose Rose Sent from my iPad using Tapatalk pixter 1 Quote Link to comment Share on other sites More sharing options...
pixter Posted March 26, 2015 Author Share Posted March 26, 2015 Rose, d Thank you for responding and for your kind words of encouragement. I am one of those strange people who still believes knowledge is power, so waiting for tests and not understanding or knowing is the part that is making me crazy. I didn't even realize they could take part or all of a lung and be okay. The dr. told me it would be 4 to 6 weeks for the surgery and then rushed me through a ton of tests. I will have my last test a PET scan on Monday, so 7 days from telling me to completion of all test and then 4 to 6 weeks is confusing. Then it will be another week before I see the dr. again. I am lost, I admit it. Somehow this is the only thing I can even think about and waiting 4 to 6 weeks? ugh I want to talk to my kids about it but, I don't know anything. Quote Link to comment Share on other sites More sharing options...
Donna G Posted March 26, 2015 Share Posted March 26, 2015 Hi Pixie. Glad you found us. How did the doctor find that tumor? Were you having symptoms? When they remove a lobe on the right chest the other two lobes just expand out and fill the space. I had a lobe on the right taken out in 1998 , no problems since then as far as breathing goes. Keep us posted on how things are going. Waiting to hear. Donna G pixter 1 Quote Link to comment Share on other sites More sharing options...
CindyA Posted March 26, 2015 Share Posted March 26, 2015 Hi Pixie, Welcome to the LCSC board! I grew up in Fort Worth and most of my family still lives there. I live about 30 miles away in the mid-cities area. You are right knowledge is power. LUNGevity has a lot of information to help you during this journey. Here is a good starting point. http://lungevity.org/support-survivorship/survivor-resource-center Please don't hesitate to email me if you have any questions. calmendarez@lungevity.org Wishing you strength & healing! pixter 1 Quote Link to comment Share on other sites More sharing options...
pixter Posted March 26, 2015 Author Share Posted March 26, 2015 H Donna, The GI dr. found it during a Hida scan looking at the GI system it showed just the bottom part of the lung as well. I was having esophageal spasms without a stricture so he sent me to an imaging center and as luck would have it they had an old CT scan from 2003 that showed a scar but smaller, and the roller coaster began. I am really glad to hear that a lobe gone is okay, that was shocking to me. I am glad to hear that you have made it 17 years without a lobe and it is alright. I don't meet with the surgeon until the 7th of April. I am told that UT Southwestern is the best place to be so, that helps, I think. I really appreciate having this place to ask questions and research, because this is so scary, and I am kind of afraid to talk to my husband much because I don't want to scare him anymore. Quote Link to comment Share on other sites More sharing options...
kayb Posted March 31, 2015 Share Posted March 31, 2015 Hi, Pixie, I am new here, too. Had VAT surgery June2014, just had followup CT scan that shows what may (or may not) be a new tumor. I will have a PET scan next week. Like you, I am an "information junkie" and tried to find out as much as I possibly could after the diagnosis. The most important and helpful thing, though, was having my daughter with me for every appointment/test/procedure from start to finish. I honestly don't know how I would have gotten through it all without her support and love. Stay strong! Kay pixter 1 Quote Link to comment Share on other sites More sharing options...
pixter Posted April 12, 2015 Author Share Posted April 12, 2015 Hi Kay, I am happy to hear from another confused soul, and sorry to hear about your scan. When will your surgery be and will they give you chemo afterwards? My surgery is on the 30th of April. No idea what to expect really but I did finally tell my kids about it. I think they are taking it well. Pixie Quote Link to comment Share on other sites More sharing options...
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