Xingxing Posted August 23, 2015 Share Posted August 23, 2015 Hello guys.... My mum was diagnosis with non small cell lung cancer.. She is just 42yesrs old.. Now the biopsy so that my mum is alk positive with stage 4... M so worry about her... I know that there is no cure.. But is there anything that can prolong life as much as possible.. I am just 18 years old... Now we are trying to enter clinical trail because the medicine cause alot.... Is there anything i can help her as a son? I am so scared.... Quote Link to comment Share on other sites More sharing options...
RandyW Posted August 23, 2015 Share Posted August 23, 2015 Spam???!!!!! Susp[icious background!!!! Quote Link to comment Share on other sites More sharing options...
Xingxing Posted August 24, 2015 Author Share Posted August 24, 2015 Not spam... My country is Cambodia but form wont allow me to type all in Quote Link to comment Share on other sites More sharing options...
CindyA Posted August 24, 2015 Share Posted August 24, 2015 Xingxing, Welcome to the group. I'm sorry to read about your mom. Here is a link from our website that talks more about the alk gene. http://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/targeted-therapy I personally have met several people who also have experienced alk and are doing well. There is HOPE! Please keep posting and letting us know how you are both doing. Cindy Quote Link to comment Share on other sites More sharing options...
Xingxing Posted August 25, 2015 Author Share Posted August 25, 2015 Now we are waiting for the clinical trail result... Because the medicine cost so high... My mum cough more than last week.. M so worry... Thanks.. They said maybe result will be out on 1st sep... Is there anything i can help my mum?? Quote Link to comment Share on other sites More sharing options...
RandyW Posted August 30, 2015 Share Posted August 30, 2015 my most sincere apologies... not used to seeing that area of the world in the forums here! once the treatments start up the effects of cancer should lessen and improve her condition... will have to se about the coughing...I think that wil go away with treatment also.... hoping for the best with the trials !! Not sure also if you cang et asistance with medical treatment costs or not over there!! some compnies offer financial assistance to the patients... let us know what treatment and what kind of costs and we can see what links and info we can find for you!!! found a couple of suggestions to try .. keep water on hand to lubricate the throat when whe feels a couging spell coming on... also halls LEmon cough drops or any kind of lemon cough rops might help.. the cough will go away when the treatment starts. if you can, also a mister to sleep near helps keep dry air out of the system at night. these are pain med free options for now so you do not have to deal with meds and prescriptions.. CindyA 1 Quote Link to comment Share on other sites More sharing options...
Xingxing Posted September 3, 2015 Author Share Posted September 3, 2015 Thanks for your suggestion... Right now we are waiting for the result... The trail that we are applying will pay all th cost for her of she pass the test... It is Ceritinib which cost 10000$SGD... We hoping to pass... Because we are not rich... So i hope we can make it... The doctor said that the result is around this week.... M praying for good news... Thanks RandyW and Ami1066 2 Quote Link to comment Share on other sites More sharing options...
Cheryncp123 Posted September 4, 2015 Share Posted September 4, 2015 I was diagnosed with Stage 4 metastatic non small cell adenocarcinoma of the lung this past April. I tested positive for the ALK gene and am taking a chemo pill Xalkori, which is very expensive however, it seems to be working. I do not have much knowledge of your country or places you can get help with the cost of the drug. I know Pfzier puts out this med in America and they offer financial assistance to those in need of it. Check out their website. Praying for you and your mom. CindyA 1 Quote Link to comment Share on other sites More sharing options...
Xingxing Posted September 4, 2015 Author Share Posted September 4, 2015 Dear Cheryncp123 Thanks u for your suggestion... I live in a poor country which not much developing in cancer medical.... So they have no medicine for it here.. That mean we have to go to Singapore for the treatment.... There is no financial assistant here... But in Singapore there is a clinical trail which pay all the money if my mum pass it... We are still waiting for result.. It 2 weeks already... And God Bless U... i hope in a year they will find a cure for it... Keep on praying... Good luck Quote Link to comment Share on other sites More sharing options...
RandyW Posted September 7, 2015 Share Posted September 7, 2015 keep us posted and we can see if we can help out somehow for ya!!! tell mom good luck on getting into the trial... the trick is to stay alive until the cure is found... we have lots who have beat their doctors your going to live predictions so do not buy into that too much if you can.. no one knows how long we have!!! but please keep us posted and we can se what we can come up with to help out some how for ya!!! CindyA 1 Quote Link to comment Share on other sites More sharing options...
Xingxing Posted September 8, 2015 Author Share Posted September 8, 2015 Dear Moderator My mum has failed the trail because her alk rearragement is 4% while they need more than 15%... Right now we are going to thailand for treatment because Singapore is so expensive for us... Thanks guys Quote Link to comment Share on other sites More sharing options...
Tom Galli Posted September 8, 2015 Share Posted September 8, 2015 Xingxing, Here is an idea to help with the expense for ALK targeted treatments. Try a direct appeal for financial support to the companies that make the drug. Tell them you are from Cambodia and cannot afford the treatments. Here is where you can send your email request: Xalkori is made by Pfizer. Email Pfizer with your request for financial assistance here: http://www.pfizer.com/contact/contact_us_support Zykadia is made by Novartis. They have a global patient assistance program called Novartis Oncology Access (Shared Contribution). Novartis uses the Max Foundation for charitable dispensing of its cancer drugs. I found the Max Foundation network partners for both Cambodia and Thailand here: http://www.themaxfoundation.org/maxglobalnetwork/networkpartners.aspx# You would need to compose a request that explained your mom's diagnosis (provide information on type and stage) and your financial information (income). You might also need to identify a charitable partner in Cambodia or Thailand that would provide medical support while the drug is administered. I do not have any experience in international requests for support but I hope this information assists you and your mom. Stay the course. Tom CindyA and joanntotten 2 Quote Link to comment Share on other sites More sharing options...
Cheryncp123 Posted October 24, 2015 Share Posted October 24, 2015 Thank you God for the beautiful people on this site who are always so willing to help each other. God be with you Xing Xing as you move forward. Tom had some excellent advice for you. joanntotten, bjacksontex and CindyA 3 Quote Link to comment Share on other sites More sharing options...
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