Heyygirl Posted May 17, 2016 Share Posted May 17, 2016 So I just get a call from a company in Kentucky wanting my birthdate because he is sending this drug to my oncologist. What is going on? Link to comment Share on other sites More sharing options...
Heyygirl Posted May 20, 2016 Author Share Posted May 20, 2016 My oncologist started me on Keytruda today. This is the "Jimmy Carter" drug. I'll post as things go along. Link to comment Share on other sites More sharing options...
Tom Galli Posted May 20, 2016 Share Posted May 20, 2016 Good luck. Hope it works as well for you as it did for Carter. Link to comment Share on other sites More sharing options...
Heyygirl Posted May 20, 2016 Author Share Posted May 20, 2016 So harsh. So harsh. Benadryl helps a little. He said 90 of people have no side effects. So harsh. Thank you for the well wishes. Link to comment Share on other sites More sharing options...
Heyygirl Posted May 21, 2016 Author Share Posted May 21, 2016 So the doc says it wasn't the Keytruda that was harsh....it was the bone hardener.....forget what that is called. Good a Claritin and pain has improved. Link to comment Share on other sites More sharing options...
Tom Galli Posted May 21, 2016 Share Posted May 21, 2016 Stay the course Heyygirl. I've read good things about Keytruda. Am betting it is hammering your tumors. When is your next scan? Tom Heyygirl and DaniellePardue 2 Link to comment Share on other sites More sharing options...
DaniellePardue Posted May 25, 2016 Share Posted May 25, 2016 Keep us posted. My mom has had phenomenal results on a sister drug to Keytruda. She is on a clinical trial for Avelumab. One thing I will suggest right at the outset: make sure your Onc is monitoring your adrenal and thyroid functions. The two are interrelated. Technically, the drug can "rarely" cause impairment of the adrenal or thyroid glands. While this was classified as rare during earlier clinical trials, I am seeing and hearing it more and more often in stories from patients. Adrenal insufficiency and hyperthyroidism and hypothyroidism are all treatable and correctible with medication, not really a big deal, but it must be monitored so it can be caught. My mom's adrenal impairment went unnoticed until her energy level and appetite dropped dangerously low. Now, it has all been corrected by steroids. Again: rare, not a big deal, but could become a big deal if not caught. Let us know how Keytruda works for you! Sending all best wishes! <3 AprilK, lrice and Heyygirl 3 Link to comment Share on other sites More sharing options...
Heyygirl Posted May 27, 2016 Author Share Posted May 27, 2016 Thank you for the info. and suggestions. I've had a life of thyroid and adrenal issues so will keep my eye on that. Had most of my thyroid removed years ago and spent several years on steroids for adrenal insufficiency. It's been one week. No notable changes. In fact, new pain in a different rib. Next infusion is in 2 weeks. Thank you both for your support. DaniellePardue 1 Link to comment Share on other sites More sharing options...
Guest Diana Posted January 27, 2017 Share Posted January 27, 2017 Keytruda any difference in being better absorbed 1. from IV to 2. injection ?? My daughter has had both adrenals removed due to Cushings Link to comment Share on other sites More sharing options...
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