Mythreegirls Posted February 9, 2017 Share Posted February 9, 2017 My mom was diagnosed with stage 4 lung cancer. She has BRAF V600E mutation. I was wondering if anyone has been on these two medications? What were the side effects? I am trying were hard to be optimistic but it is very hard. She has only been on the medication for 5 days now. We are taking it day by day or should I say hour by hour. This is a journey that I will take with my mom but it is hard. Thanks Quote Link to comment Share on other sites More sharing options...
Bigdnsm Posted April 13, 2017 Share Posted April 13, 2017 Hi Mythreegirls - I'm so sorry to hear about your mom. This journey is hard. In Nov. 2016 my mom was diagnosed with Stage 4 NSCLC (adenocarcinoma) and also has the BRAF V600E mutation. She was started on Taf/Mek in mid-December 2016 and took it for about 2 months. She seemed to be doing great on the meds - no obvious side effects - but suddenly her cough seemed worse and she was wheezing. When she went in for her 8 week check-up (early March) it was discovered that the Mekinist had given her a potentially fatal side effect - pleural effusion - so she had to permanently discontinue the drugs. Her cancer also spread during that time from the right lung to the left lung. She had to take 3 weeks of high-dose steroids to get rid of the pleural effusion (no cancer treatment during that time - aargh!) and then she started traditional IV chemo (Carboplatin and Pemetrexid) about 5 weeks ago, and is doing great so far. How is your mom doing on the Taf/Mek?? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.