pixter

Hi Kay, I am happy to hear from another confused soul, and sorry to hear about your scan. When will your surgery be and will they give you chemo afterwards? My surgery is on the 30th of April. No idea what to expect really but I did finally tell my kids about it. I think they are taking it well. Pixie

H Donna, The GI dr. found it during a Hida scan looking at the GI system it showed just the bottom part of the lung as well. I was having esophageal spasms without a stricture so he sent me to an imaging center and as luck would have it they had an old CT scan from 2003 that showed a scar but smaller, and the roller coaster began. I am really glad to hear that a lobe gone is okay, that was shocking to me. I am glad to hear that you have made it 17 years without a lobe and it is alright. I don't meet with the surgeon until the 7th of April. I am told that UT Southwestern is the best place to be so, that helps, I think. I really appreciate having this place to ask questions and research, because this is so scary, and I am kind of afraid to talk to my husband much because I don't want to scare him anymore.

Rose, d Thank you for responding and for your kind words of encouragement. I am one of those strange people who still believes knowledge is power, so waiting for tests and not understanding or knowing is the part that is making me crazy. I didn't even realize they could take part or all of a lung and be okay. The dr. told me it would be 4 to 6 weeks for the surgery and then rushed me through a ton of tests. I will have my last test a PET scan on Monday, so 7 days from telling me to completion of all test and then 4 to 6 weeks is confusing. Then it will be another week before I see the dr. again. I am lost, I admit it. Somehow this is the only thing I can even think about and waiting 4 to 6 weeks? ugh I want to talk to my kids about it but, I don't know anything.

Hi, My name is Pixie, I live outside of Fort Worth, Texas with the love of my life. I am not new to surviving but I am new to lung cancer. Dr. told me Monday that I have lung cancer (wow) still trying to digest it. They said no biopsy, just remove the lower right lobe (wow) again. Not knowing seems so far, to be the hardest point. Maybe if I could understand all the numbers and strange words it would help. The next hard part is how to talk honestly with my family. This seems fast and slow at the same time, ugh. No shock, fear, and frustration here hahaha. I just wish I knew where to start with any of it.