Jump to content

Tom Galli

  • Content count

  • Joined

  • Last visited

  • Days Won


Tom Galli last won the day on March 16

Tom Galli had the most liked content!

About Tom Galli

  • Rank
  • Birthday 09/23/1950

Profile Information

  • US State
  • Gender
  • Status
    Lung cancer patient/survivor
  • Interests
    Author of Scanziety, an ebook published on Amazon. Treatment history https://sites.google.com/a/redtoenail.org/chronicles-demo/home/tom-galli

Recent Profile Visitors

4,942 profile views
  1. KDeason, Indeed I went through the same treatment that is proposed for your mother. Thirty days of conventional radiation with weekly infusions of Taxol (Paclitaxel) and Carboplatin is the first-line standard of care for non-small cell lung cancer when surgery is not possible. A standard of care is a therapy routine that has been shown clinically to have generated the best outcome for the majority of patients. In this treatment protocol, the radiation is the principal agent while the chemotherapy is a secondary component. Radiation will be focused and shaped to zap the 3.5" mass and lymph node while a weak concentration of chemotherapy is designed to remove cancer cells from the blood and lymphatic systems. I didn't even lose my hair from this weak concentration of chemo but I was only 53 years old. I wouldn't know if your mom can stand the rigors of first-line therapy at 82. This is indeed a tough call. What to expect from the treatment? Here is a blog I wrote some time ago telling of my experience with Taxol and Carboplatin infusion. My experience with 30 days of conventional radiation (M-F) suggest no side-effects from treatment for the first two and a half weeks but a loss of energy, sore throat and non-productive cough for the last two and a half weeks. The last week of conventional radiation was very disabling. I hardly had enough energy to leave the bed to receive treatment. But my first line therapy was a success. My large tumor 3" long tumor blocking the main stem of my right bronchus was completely eliminated and it allowed surgery which was our treatment objective. Again, be mindful I experienced my first line treatment as a healthy in shape 53 year old. I've known about folks in their eighties undergoing first line treatment and some can tolerate the rigor. I'm not trying to push my book but I have a very detailed description of my first line treatment in Scanziety available on the Amazon e-book site. You might want to read it to help you make the treatment decision. Here is another resource that may be helpful in making your treatment decision. Stay the course. Tom
  2. Heidi, I am very sorry to learn of your husband's experience. I'm a fourteen-year survivor of lung cancer having experienced surgery, radiation, chemotherapy, targeted therapy and precision radiation to achieve my state of no evidence of disease. Yet, I still see my oncologist 2 times per year. This is my first year where the number of CT scans was reduced to one per year but my oncologist wouldn't hesitate to order a scan if I or more likely my wife announced a concern. I can't begin to explain your husband's doctor's reluctance to move up a scheduled scan. In my profession, civil engineering, I've known individuals who rested on their laurels or retired early while on the job. I'm sure the medical profession is no different. Sometimes we reach a pinnacle where we convince ourself we know it all. We don't and often the consequences of this attitude harm the people we serve. I'd find another "top notch" oncologist who has not retired in place. Unfortunately, we do not recommend individual practitioners by name or institution in this forum. But we do fund research projects conducted by worthy practitioners and scientists who have been vetted by our organization. You can scan through the list of funded research to perhaps start your search of a new oncologist to treat your husband. Many of the listed practitioners practice in the Boston area. I hope this answer helps. Stay the course. Tom
  3. David Ramsey Metastatic Lung Cancer

    David, I endorse the ladies' views of alternative medicine. If it is supplemental to conventional oncology, and coordinated with the oncology provider, it can do no harm. Our community of lung cancer survivors is very ripe target for scams and the like and these, unfortunately, often suggest sure-cure alternative therapy in place of conventional medicine. I have fourteen years of surviving a late stage diagnosis and eleven years of participating in on-line forums involving lung cancer. I've seen so many attempts by scammers to steer lung cancer sufferers away from conventional treatment and I am angered by that tactic. Neither alternative nor convention medicine can provide a "sure cure" of lung cancer. Indeed there is no cure for our disease. I still see my oncologist 2 times a year because the probability of another outbreak for my type and stage is about 66%. I have two essays (blogs) that address alternate medicine as curative treatment -- here and here. These convey my personal views. The LUNGevity foundation (sponsor of this forum) is the largest non-profit underwriting research into science-based methods to diagnose and treat lung cancer. The important distinction between alternative therapy and science based therapy is the latter is repeatable. Conventional lung cancer treatment is an arduous slog with an uncertain outcome. Many of us here have been down that path and have achieve a decent outcome. I don't know of one individual who has a scientifically validated alternative medicine curative outcome. I do know of people who've experience extensive life after diagnosis with no treatment. Indeed, for some very small percentage of those diagnosed, their cancer stops growing and metastasizing without any treatment. I know of one person who fit this category and his recovery was so dramatic that he was discharged from hospice care. But he passed away a year or so after hospice discharge from recurrence. While there are no miracle cures, there is effective treatment. Both alternative medicine and conventional medicine will cost money. I personally choose to invest in treatment that has a scientifically validated probability of success. I did and it worked for me. Stay the course. Tom