Jump to content

Tom Galli

Moderators
  • Content count

    1,436
  • Joined

  • Last visited

  • Days Won

    299

Tom Galli last won the day on May 23

Tom Galli had the most liked content!

About Tom Galli

  • Rank
    MODERATOR
  • Birthday 09/23/1950

Profile Information

  • US State
    TEXAS
  • Gender
    Male
  • Status
    Lung cancer patient/survivor
  • Interests
    Author of Scanziety, an ebook published on Amazon. Treatment history https://sites.google.com/a/redtoenail.org/chronicles-demo/home/tom-galli

Recent Profile Visitors

5,323 profile views
  1. Tom Galli

    Your thoughts...

    Kim, Family and friends are well intended but, in my diagnostic phase, not well informed. I spent hours chasing down one miracle cure after another from the very concerned and well meaning who were most concerned about my diagnosis. My mother was especially challenging and was broadcasting everything she heard from her family and friends. After about 3 weeks of mayhem, I finally had to tell everyone I'd had enough medical advice. That didn't stop everyone; my mother was especially persistent. About midway into my third line treatment, I discovered an on-line cancer website and gave those close to me the link so they could read about my treatment experience. More important, they could read about other cancer survivors treatment experience and that combination of information and insight turned down the volume on the miracle cure or "tell your doc to try this" advice. You can use this site as a source of information if you think that would help. Alternatively, you could refer folks to Lung Cancer 101 at the LUNGevity website so they could read into our disease and perhaps understand what you are experiencing. Diagnostic delay is hard to tolerate. I endured about 3 weeks of coughing up blood that made going out in public embarrassing. But in those 3 weeks, diagnostics determined my type and stage and set the course for my treatment. Once a treatment plan was established, things moved quickly but there were still delays. While in first line pre-surgical treatment, the radiation machine experienced a technical fault that took about 3 days to correct, and I worried that each day of missed radiation would allow my tumor to spread like wildfire. They just added 3 additional treatment days to the end of my scheduled plan, and the radiation oncologist said treatment plans were designed to accommodate interruptions. Lung cancer to the newly diagnosed is a very difficult concept to understand. It is a serious, life threatening disease and for most, it is the first such encounter. There is a new vocabulary to master with baffling drug names and strange acronyms. And, there is unsettling uncertainty to deal with. The only comfort I can offer is most here have been down your path and are still hanging around the forum. Your doctor is giving good counsel. Lung cancer affects individuals and each of us is different. That difference means the best possible schedule expectation is always a rough order of magnitude estimate. A projection of 3 weeks of diagnostics could easily turn into 6 weeks, especially with the new biomarker biopsy testing. But this testing is essential because targeted therapies and immunotherapy are very effective treatment methods. So.... Stay the course. Tom
  2. Tom Galli

    Cisplatin & Taxotere /

    Mark, Welcome here. Great to learn you are up and about after your pneumonectomy. I had both adjuvant chemo as a combination therapy with radiation, then the real-deal concentration after a metastasis. Comparatively, the adjuvant chemo (under strength dose) was a walk in the park. I didn't even lose my hair. Of course, everyone reacts differently to chemotherapy but I'm hoping your experience is similar to mine. Stay the course. Tom
  3. Tom Galli

    Scanxiety

    Isunique, I'd like to say you are unique in terms of cancer recurrence but unfortunately, as concerns lung cancer you align with the norm. Lung cancer is a recurrent beast! Like Bridget says, scanziety is common and like lung cancer, there is no cure. I'd like to say I had the strength and depth of character to say I toughed it out but that would be a lie. After 14 years of survival and 11 NED, I still experience scanziety after my bi-annual diagnostic scans. 10 mm is pretty small and small nodules come in many flavors. Here is my go to source explaining pulmonary nodules. You've been through the drill. Stand up, check equipment, lock and load, and proceed deliberately to annihilate your lung cancer. Stay the course. Tom
×