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FLgirl

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FLgirl last won the day on May 28 2016

FLgirl had the most liked content!

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  • City
    Orlando
  • US State (if applicable)
    FLORIDA
  • Country
    USA
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    Not a patient
  1. Monica7, There are prayer lines out there. Unity Village will pray for you for 30 days after you call them. It is normally very positive and uplifting. You wouldn't have to believe their way to get comfort from the call and their prayer which is more like an affirmation. It is called Silent Unity. Call: 1-800-NOW-PRAY (669-7729) I don't know if it helps but you could be feeling something very normal there. I would think that depression makes a person feel that way and it would be normal to feel depressed with everything you have on your plate. Try to find 5 things you are thankful for everyday. I also had not heard of stage 5
  2. My husband was getting Carboplatin once every 21 days and nab-paxalataxil every week for 4 cycles at 21 days per cycle. He ended up with something in a kidney but not sure what. They wanted to wait until the chemo was over to check it out. Thanks for the reminder because he has been off chemo for over a month. I hope your Dad gets better soon. Check around and see what may help him support his kidneys getting better like whether or not to drink lots of water or if anything might have a cleansing effect... I just don't know but thinking out of the box so your not just in the waiting game without feeling like something is being done. He is lucky to have you looking out for him.
  3. Marc, In the support group that we went to once the results were very good. Our Dr. who is supposed to be really good and up on everything explained to us that it is best. It targets a specific type of cancer mutation rather than using a general chemo. I wish I could think of the analogy he gave us. It was like lights on in a building and the targeted therapy goes in and just turns them off. The lights were the cancer or the cancer mutations.
  4. Hi Christina, I feel you were very fortunate to find your cancer at the stage you did. Our Dr. told us that it is rare to find it at a stage 1 or 2 which is ideal. He said most people don't have symptoms until stage IV. Do find out about where your Dr. stands on getting molecular testing and how you may fit into the mix. At the lung cancer support group - the most successful ones there were on drugs for the 3 main mutations. I believe they are EFGR, KRAS and ALK. The ones at the group that had been on targeted therapy have been doing well for 10 years. On a side note, my husband has been on a clinical trial using immunotherapy combined with chemo. He has been on MPDL3280A. It now has a name is getting ready to go on the market ahead of time due to the success rate it has had. it is by Roche. His was in combination with chemo. He has 2 more weeks to go. On that he gets Carboplatin, Abraxine (nab-pacelataxel/generic name) and the study drug... named Atezolizumab aka coded MPDL3280A. So far so good. Looking forward to the CAT SCAN results after the 5th. Keep us posted. : )
  5. FLgirl

    Vitamin D3

    Hi Marc, I am not an expert and I am not the one with cancer but I have been taking vitamin D3. My heart Dr. discovered through blood work that I was critically low. It takes about 6mos. to a year to get it built up and I started like anyone...one day at a time with 5000mgs. The Dr. again told me the amount to take. So when it comes to supplements check out what needs to go with it. The D3 I buy comes from Life Extension. That is the company that the Dr. said for me to try. I take mine with K2, and the Omega 3's. The Dr. didn't tell me to do that but in reading about it I learned that it could be helpful in many ways. Just this morning on an ad on the radio I heard it needs to be taken with boron and zinc. So you can google around. I found Amazon reviews to be helpful and then I research what they say. It takes time. I do believe research has shown that the daily amounts recommended for individuals may not be enough. You may want to request blood work to see where your blood levels are on vitamin D. If you are not getting much sun as in my case... working during the day inside then you may need to get more. I can say that my mood has lifted greatly with the supplements and that I no longer need drugs to keep me upbeat. If you look on the internet and really check things out you can find all kinds of things people are doing. Trying to decide what is right for you is the main thing. We are all different in our needs and what works for us. : )
  6. Hello Christina, I'm sorry to hear you have to deal with a second kind of cancer. I went to a lung support group and many of the people there who have been on chemotherapy or certain drugs are getting secondary cancers. I worry about that with my husband who I am helping now with stage IV adenocarcinoma. It seems the big thing now is molecular testing where they check to see if you match up with mutations for which they have targeted drugs which is much easier. I didn't know if they are doing this for you or if it applies. My husband is on a clinical trial and there was no hope of surgery for him so you are in better shape so far that way. I know it's hard reading everything out there on the web. Our Dr. said that most of what we read about is old and doesn't compare to what they are doing within the past 2 years. He told us not to pay attention to the statistics. Anyone treated in the last couple of years remember has not lived long enough yet to have a 5 year survival rate. Most of that information is old out there and dates way back.
  7. Slippery Elm, Thick it, and Manuka honey. It helped my dh. who suffered from throat problems but not due to radiation. He couldn't swallow without choking and couldn't speak without coughing. One of the things that got him was the life support breathing tube. Hugs to you
  8. We were told that immunotherapy drugs were very expensive and that insurance dictated we try chemo as a first line an if that stops working then they would look at immunotherapy. We are waiting now to see if my husband qualifies for a trial where they use a immunotherapy drug (doesn't have a name yet) along with a milder dose of chemo. From what our Dr. seemed to present, it may be the preference to jump to the immunotherapy. That is just my impression on what we heard.
  9. Early Feb. my DH went into the emergency room with SOB and cough. He could barely eat due to the cough. They kept him and the next day pulled 3.5 liters out of his pleura. Whirlwind here at FL hospital, multiple Doctors and many days later still no treatment. Time has been taken for molecular testing and now they have sent a tissue sample to Germany so see if he will qualify for a trial where they try immuno-therapy along with lighter dose chemo. We wait to see if he qualifies. Anyone out there have any experience with this? He is stage IV NSCC.
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