bee.louise

Hello all, I am 25, and had part of my left lower lung removed last year in June. They told me they removed a baseball sized mass from my lung, and I was diagnosed with bronchiectasis. I have reacurrent (multiple times a year) pnemonia which affects my entire left side from the neck/left shoulder down. I know this is a forum for cancer, but finding help for my condition always brings me to lung cancer sites and I don't have anyone to talk to about this around me. I am currently in the military, and my pulmonologist says I am his youngest patient with this issue. I am very active and work almost 12 hour days, and I am an avid runner/hiker. I still have pain in my left side from shoulder down, and I've noticed some changes lately. My sternum is constantly popping, to the point its sharp pain takes my breath away. I started running a lot more and am trying for 100 miles this month. I'm on week two and I can't seem to stay awake. For lack of better description, I feel like I could sleep for weeks. I sleep about 8 hours a night, not on purpose, I try to stay awake but I start getting out of touch with reality a bit. Everything just seems to take a major toll on me. My lung function test recently was taken and I am at 71%. I do breathing exercises and use inhalers every day. No one around me really knows what to do with me since I am being medically separated from the military, so I'm often finding work out plans to do by myself to stay fit and healthy. I have been doing biofeedback and when I am hooked up to the moniters before anything starts, they read that my body is in 'fight' mode every time. The doctors here are always understaffed so they don't have time to sit down and figure everything out with me, so they gave me anxiety meds to help me 'calm down'. To better paint a picture of the medical I have here, when I had my surgery, on morning of day 2 they pulled the chest tube out and because they didn't have enough beds I was checked out and I literally got up from the bed on my own, packed my bags, and walked to the elevators and out to the parking lot until a friend picked me up. I was then on my own for several days and didn't eat for 3 days until someone checked on me and brought me soup. I then got enough strength to drive 5 hours to my mom's place so I had someone to watch me. I ended up in the ER with a high fever because the on base hospital here does not perscribe antibiotics after surgery unless they are needed. Does any one have any pointers that is actively doing fitness? Specifially cardio? I'm scared I'll do something to make myself worse, I'm only 25 and don't want to be hooked up to a breathing machine before I'm out of the military and free to be me again. I don't want to give the impression that I'm an idiot, its hard to explain how much my hands are tied when it comes to military medical. I'm honestly just very lost and alone through all this and want to talk to people who have been through this to see how they are handling it. Google only helps so much.