FightingMay2014

Thank you to each & everyone of you for your beautiful & helpful responses. I'm hoping I can give back to people on this forum by giving helpful information. I believe even if one person is helped, that's better than none. I'm learning too with all of this stuff and it's very overwhelming & seems there is always something new to learn about & research.

Thank you so much to everyone. I can't even begin to say how thankful I am to come here & have this support for her. I do do know they gave her 2 Rimicade treatments while she's been here to help reverse the side effects, but it's too soon to know if they have worked in full. On another better note, she got off her ventilator this morning and is on high flow oxygen at 10LPM & her O2 saturations are great so far! Her left lung completely re-inflated.....I am in awwhhh and this is truly a miracle I believe.... if if I can help anyone about Opdivo, due to my mom having 47 treatments of it; I would be more than happy to. I do know she had two small tumors on her right lung that had no radiation and one large tumor on her left lung that was radiated. Then she had 47 fusions of Opdivo. After Opdivo, her large tumor "turned into scar tissue" & shrunk the two smaller ones some.

Thank you so much. That gives me much hope & inspiration.

Congratulations Susan! How in the world did you do it? You are truly an amazing inspiration.....I'm trying to help my mom fight it however possible. She is stage 4 too and I out her story up on introductions.

Hello to Everyone, I do not have lung cancer myself, but am joining as an advocate for my mother. She was diagnosed with Stage 3AB Lung Cancer in May 2014 & now considered stage 4. I joined to be able to research information and help others with information I am equipped with, due to me following her hard journey through this terrible disease. I hope all of you don't mind. I am trying my hardest to help her fight the fight & today she has been in the hospital for 31 days straight & is currently in ICU on a ventillator after undergoing a Bronchoscopy yesterday. My mom started immunotherapy with Opdivo after t was approved in March 2015 & has had lots of success. We are trying to figure out the culprit that caused her to enter the hospital because initially her oncologist thought it was related to the Opdivo but after much research & being by her side for 31 days in the hospital, we aren't too sure the Opdivo is the culprit. It all started with her high blood pressure & kidney problems when she first entered. It appears she had Pancreatitis that went unknown for some time & im thinking that's what caused the domino effect on the other things that occurred after that. She had almost every "Itis" there was. Oncologist said her "Itis's" were immune mediated related. She had Pneumonitis, Paracarditis, Hepatitis, Pancreatitis, & Nephritis. That led to her having issues with her kidneys & she ended up having bilateral Nephrostomy tubes put into her kidneys for them to drain externally & that was after failed attempts by stents being put in her ureter. She then started having problems with her gallbladder and doctors attempted a ERCP to remove gallstones but her bowels were too swollen for them to proceed & they then put in an External Biliary Drain. She had the Bronchoscopy after that, but that was related to her lungs because they found her left lung was collapsed & appeared she had a blockage. They did find a lot of mucus plugs that was blocking her airway & she also had lots of fluid around her lungs. They put in a drain to drain the liquid too. She's currently still intubated & im very hopeful she will overcome this too. She is much stronger than I am, that's for sure. She has gone through so much. She has fought so hard and I envy her for that. Thats the the basis of her situation but I have a lot more details. I have been watching her heart rate, O2 saturations, ABG results, Creatine & Bilirubin results, & other blood test results; as well as the medications she has been on while in hospital since she was admitted.