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Murphette214

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  1. Like
    Murphette214 got a reaction from LexieCat in Treatment Update   
    Thanks all! While I am disappointed chemo has not been as helpful in stopping the progression. I'm not throwing in the towel yet. I am lucky to be in Houston where we have some really great cancer programs. I go to the Kelsey seybold cancer center which is part of the Baylor St. Luke's College of Medicine and the MD Anderson radiation cancer center. So, I feel like I have a good team working together to come up with the best plan for me. The good news is that the radiation treatments on the back are helping to keep the pain in my spine at a bearable level. The trade off seems to be sometimes it makes me throw up even though I take the anti nausea meds pretty religiously. Considering how much pain I was in it seems a small price to pay. I can't remember which new drugs the oncologist is going to use during my next infusion. As soon as I get those names I'll post an update and see if anyone has had any experience with them. Fingers crossed that things go better in the future.
  2. Like
    Murphette214 got a reaction from LexieCat in Treatment Update   
    Thanks all! While I am disappointed chemo has not been as helpful in stopping the progression. I'm not throwing in the towel yet. I am lucky to be in Houston where we have some really great cancer programs. I go to the Kelsey seybold cancer center which is part of the Baylor St. Luke's College of Medicine and the MD Anderson radiation cancer center. So, I feel like I have a good team working together to come up with the best plan for me. The good news is that the radiation treatments on the back are helping to keep the pain in my spine at a bearable level. The trade off seems to be sometimes it makes me throw up even though I take the anti nausea meds pretty religiously. Considering how much pain I was in it seems a small price to pay. I can't remember which new drugs the oncologist is going to use during my next infusion. As soon as I get those names I'll post an update and see if anyone has had any experience with them. Fingers crossed that things go better in the future.
  3. Like
    Murphette214 got a reaction from LexieCat in Treatment Update   
    Thanks all! While I am disappointed chemo has not been as helpful in stopping the progression. I'm not throwing in the towel yet. I am lucky to be in Houston where we have some really great cancer programs. I go to the Kelsey seybold cancer center which is part of the Baylor St. Luke's College of Medicine and the MD Anderson radiation cancer center. So, I feel like I have a good team working together to come up with the best plan for me. The good news is that the radiation treatments on the back are helping to keep the pain in my spine at a bearable level. The trade off seems to be sometimes it makes me throw up even though I take the anti nausea meds pretty religiously. Considering how much pain I was in it seems a small price to pay. I can't remember which new drugs the oncologist is going to use during my next infusion. As soon as I get those names I'll post an update and see if anyone has had any experience with them. Fingers crossed that things go better in the future.
  4. Like
    Murphette214 got a reaction from LexieCat in Treatment Update   
    Thanks all! While I am disappointed chemo has not been as helpful in stopping the progression. I'm not throwing in the towel yet. I am lucky to be in Houston where we have some really great cancer programs. I go to the Kelsey seybold cancer center which is part of the Baylor St. Luke's College of Medicine and the MD Anderson radiation cancer center. So, I feel like I have a good team working together to come up with the best plan for me. The good news is that the radiation treatments on the back are helping to keep the pain in my spine at a bearable level. The trade off seems to be sometimes it makes me throw up even though I take the anti nausea meds pretty religiously. Considering how much pain I was in it seems a small price to pay. I can't remember which new drugs the oncologist is going to use during my next infusion. As soon as I get those names I'll post an update and see if anyone has had any experience with them. Fingers crossed that things go better in the future.
  5. Like
    Murphette214 got a reaction from Susan Cornett in Newly diagnosed   
    Thanks everyone! New update. My Oncologist really wants to do another cycle of chemo before starting radiation. She's hopeful that will help arrest the spread of the cancer from my neck to my knees. So, the current plan is that I will do chemo this morning at 8 am as was originally scheduled. I will then go for a radiation consult this afternoon.
    In 7 to 10 days after chemo, they want to do a series of radiation on my lower spine first to alleviate the pain there as it is the major source of breakthrough pain. They believe that should only take a few radiation treatments to accomplish. They will then move on to radiating rhe spots in my brain. They'll do new scans to check on how this is working before determining what course(s) of action to take next.
    Thanks all for your support!
  6. Like
    Murphette214 got a reaction from Susan N. in Newly joined.   
    Susan,
    At this time I am not aware of any targeted therapy. Still new at all these terms and what is used for the different types of cancer. I have had 2ncycles of chemo -- carboplatin and taxol. I start 10 days radiation in my lower spine tomorrow and 1 day on my brain mets. Then we'll see. As someone else posted a healthy diet is more important. Even after only a month, I find that my appetite is not what it used to be. I went from everyone telling me I was obese to telling me i'm not allowed to lose any more weight. I believe you'll find just as many articles noting that sugar "feeds" cancer is a myth. Lots of our cells need sugar. As Tom says, I wouldn't put much stock in Doctor Google. So, don't be afraid to eat. You won't actually be doing our body any good by that. Get a notebook and write down your questions for your doctor. We also wrote questions about nutrition and diets and restrictions. As I mentioned, most of my doctors were more concerned about bacteria causing problems than whether I ate a popsicle or bread for dinner.
    Good luck on your journey. There's lots of info thrown at you so fast it can seem overwhelming. Just take it one day at a time.
    Hugs and prayers!
  7. Thanks
    Murphette214 got a reaction from Susan N. in Newly joined.   
    Yes Bridget O.,
    It had to do with being on chemo and neutrophils. Forgot about that...so much to absorb.
    Laura
  8. Like
    Murphette214 got a reaction from LexieCat in Newly joined.   
    Welcome to the forum although I'm sorry you had to join. I am also newly diagnosed stage IV adenocarcinoma. I am on no special diet but I have been told I can not eat beef unless it is well cooked..no pink...no food from buffets, no fresh vegetables unless we clean, prepare them ourselves. No fruit already peeled, cut up at a store or restaurant. It seems they are concerned about bacteria with an immune compromised system more than anything else. Hugs and prayers!
  9. Like
    Murphette214 got a reaction from LexieCat in Newly joined.   
    Welcome to the forum although I'm sorry you had to join. I am also newly diagnosed stage IV adenocarcinoma. I am on no special diet but I have been told I can not eat beef unless it is well cooked..no pink...no food from buffets, no fresh vegetables unless we clean, prepare them ourselves. No fruit already peeled, cut up at a store or restaurant. It seems they are concerned about bacteria with an immune compromised system more than anything else. Hugs and prayers!
  10. Like
    Murphette214 got a reaction from LexieCat in New Member   
    Good morning Robin Anne! Welcome to the forum. Although I'm sorry you have to be here. Like you, I am newly diagnosed with Stage IV Adenocarcinima. I know almost nothing about cancer and I'm not going to beat myself up over the fact that I smoked. My whole family also smoked and I'm the first one to get lung cancer. I have gained a lot of valuable information from the various posts here, but the first thing I learned is to take it slow and day by day. There's so much we don't know about our disease, and how our specific bodies will react to it and the meds. Everyone's cancer is different even if it is the same basic type. Don't jump to the end game and thoughts of dying right away. Although those WILL come. Focus on you and your treatment. Hugs and prayers!!
    Laura - Murphette214
  11. Like
    Murphette214 got a reaction from LexieCat in New Member   
    Good morning Robin Anne! Welcome to the forum. Although I'm sorry you have to be here. Like you, I am newly diagnosed with Stage IV Adenocarcinima. I know almost nothing about cancer and I'm not going to beat myself up over the fact that I smoked. My whole family also smoked and I'm the first one to get lung cancer. I have gained a lot of valuable information from the various posts here, but the first thing I learned is to take it slow and day by day. There's so much we don't know about our disease, and how our specific bodies will react to it and the meds. Everyone's cancer is different even if it is the same basic type. Don't jump to the end game and thoughts of dying right away. Although those WILL come. Focus on you and your treatment. Hugs and prayers!!
    Laura - Murphette214
  12. Like
    Murphette214 got a reaction from LexieCat in New Member   
    Good morning Robin Anne! Welcome to the forum. Although I'm sorry you have to be here. Like you, I am newly diagnosed with Stage IV Adenocarcinima. I know almost nothing about cancer and I'm not going to beat myself up over the fact that I smoked. My whole family also smoked and I'm the first one to get lung cancer. I have gained a lot of valuable information from the various posts here, but the first thing I learned is to take it slow and day by day. There's so much we don't know about our disease, and how our specific bodies will react to it and the meds. Everyone's cancer is different even if it is the same basic type. Don't jump to the end game and thoughts of dying right away. Although those WILL come. Focus on you and your treatment. Hugs and prayers!!
    Laura - Murphette214
  13. Like
    Murphette214 reacted to LexieCat in Newly diagnosed   
    Hi, Murphette, and welcome.  I'm so sorry you're having to deal with all this.  As Judy mentioned, one of the reasons lung cancer is too often diagnosed at such an advanced stage is that there often are no symptoms until then.  It seems probable your cancer was already well advanced when you went for your physical in April.  Unless the doctors have reason to be looking for lung cancer, the tests and exams performed at regular checkups often aren't sensitive enough to reveal it.  I was fortunate enough to have my cancer discovered at an early stage because I was in a lung cancer screening program due to my smoking history.  If it weren't for that, there's a good chance mine would have been well advanced before I ever knew about it.
    I'm glad you found us.  This is a great bunch of people, and you will find lots of support.  I can't offer much in the way of insight about the treatments you might receive, except to suggest that you connect with a cancer center that specializes in lung cancer and offers clinical trials, etc.  I'm not sure where in Texas you are, but the MD Anderson Cancer Center in Houston is often listed as the number-one hospital for cancer care.  I was treated at a local MD Anderson Center near Philadelphia (Camden, NJ) and I have been VERY impressed with the way I've been treated, including multidisciplinary teams, etc.
  14. Like
    Murphette214 reacted to Judy M. in Newly diagnosed   
    Hello Murphette
    Sorry to hear you are facing this, but glad to have you here. This is a very supportive support group in my experience. I also have stage IV Adenocarcinoma. All of us are pretty much in shock when we get our diagnosis. I think because lung cancer often has so few symptoms. Which is also the reason many of us aren't diagnosed until stage IV. And we all have way too much information thrown at us at once. We're in shock from the diagnosis and trying to absorb that at the same time we're hit with an avalanche of info. There's a place on this site titled 'lung cancer 101' that will help you as far as information goes. I'm sure another member will soon place a link here for you to reach it. I'm not techie enough or I'd do that for you. Plus, if you have any questions you're in the right place to ask them. We aren't doctors, but we have a wealth of first hand experience we' re happy to share. It's good to take someone with you for doctor's visits to help you remember things. And what I found even more helpful early on was having a good recording app on my phone and recording my doctor visits. I could listen later and also send it out to my immediate family who, of course, always want to know what the doctor said. Hang in there. 
    Judy M. 
  15. Like
    Murphette214 reacted to Elke in Newly diagnosed   
    Hi Murphette, welcome to this site.  I'm so sorry to hear about your diagnosis and understand what you and your family must be feeling. We have many similarities - I'm new to the site, 53 and healthy, live in Texas and diagnosed with advanced adenocarcinoma.  I was diagnosed in November 2017 and have been undergoing treatment every 3 weeks since Dec. 7.  I was on Alimta + Carboplatin + Keytruda for 6 cycles.  After that, my oncologist moved me onto Keytruda alone, which I'll get every three weeks until at least til the end of the year.  I share this with you because I feel it's helpful to know what type of treatments others with similar diagnoses are on.  My mid-year scan in May showed some improvement, so I'll take it!  I'll have another one at the end of the year.  As someone else mentioned, there have been many scientific advances made in the treatment of lung cancer which gives me so much hope!
  16. Like
    Murphette214 reacted to Mamma Om in Newly diagnosed   
    Hi Murphette, so glad you reached out to the group. I am sorry about your extensive diagnosis, but do not be discouraged. You are young, otherwise healthy, and you have a husband to help you thru it. Be honest and open with every Dr. you see, keep detailed, written lists of dates, treatments, options. Using the phone to record conversations is a great option. Believe that you can beat this, because you can. I am a 4 times cancer survivor recently diagnosed with stage 2 small cell plus adenocarcinoma. But my tumors were found early due to frequent CT scans for cancer watch as well as COPD and asthma. Surgery in April removed my right lower lobe, but before I started chemo they changed my diagnosis of SCLC to carcinoid, but in fact, they are still testing the tumor and treatment is on hold. The other cancers I had were breast in 2001, other breast in 2012, thyroid in 2015, and now lung in 2018. I'm 74, single, and I'm have rheumatoid arthritis that affects my body many ways. Best wishes to you! 
  17. Like
    Murphette214 reacted to CIndy0121 in Newly diagnosed   
    Murphette,  Don’t talk about diagnosis in one sentence and facing death in the next. Yes, your cancer has spread to several distant sites. When you receive a systemic treatment, a drug that directly enters your system, it goes everywhere. I would not let the oncologist discourage you from deciding you want every possible option presented to you. What are your tumor markers?  Is there a spot that can be radiated? If you don’t have a mutation that has a targeted therapy, you should consider one of the most recently studied combinations of chemotherapy, immunotherapy, biological agents that are available, even if you have to enter a clinical trial. You would probably qualify because you have had no treatment yet and are young and in otherwise good health. Please don’t just assume a lot of these chemicals will be too toxic. Yes, they can cause slight to severe side effects, but they can also shrink tumors and kill cancer cells. If a treatment becomes too uncomfortable you always are the ultimate decision-maker and can always request trying something else. Take it one day at a time. Keep checking in here on the site with any new information you get or questions or concerns you have. We have all been through this and understand how especially overwhelming these early stages of diagnosis, staging and deciding on treatment are. Wishing you all the very best as you embark on what is honestly an unexpected and difficult disruption to everything and everyone in your life. 
    Cindy
  18. Like
    Murphette214 reacted to BridgetO in Newly diagnosed   
    Hello Murphette and welcome. You're really dealing with a lot! I'm so sorry you're going through this. . Like LexieCat, I was fortunate to be diagnosed early. My lung nodule was found in a routine CT scan to surveille for metastasis from a different earlier cancer. Because lung cancer typically has no symptoms until it is fairly advanced, diagnosis at state 4 is, unfortunately, all too common. There are a lot of new treatments available as well as clinical trials that are helping people live longer and better. I hope you're connected with a major cancer center and a lung cancer specialist. 
    Here's a link to Lung Cancer 101 that Judy referred to. https://lungevity.org/for-patients-caregivers/lung-cancer-101.
    Please let us know if you have specific questions and also how else we can support you.
    I see that Tom Galli has just nowreplied to your post. I haven't read Tom's post yet, but I think you will find a source of hope in whatever he has to say. He's a long term survivor of Stage 4. 
    Hang in there.
    Bridget O
  19. Like
    Murphette214 reacted to Tom Galli in Newly diagnosed   
    Murphette,
    Welcome here.
    Obviously, your diagnosis is a tough one to swallow.
    Are you in treatment? You've had a biopsy because your report adenocarcinoma but has your biopsy been tested for tumor markers? If so, what tumor markers are present? Has your oncologist mentioned targeted therapy or immunotherapy?
    Answers to these questions may help those of us who are in the same diagnostic boat as you provide information on their treatment experience.  Also Terry's suggestion of seeking treatment at a cancer research establishment is a good one.
    Stay the course.
    Tom
  20. Like
    Murphette214 reacted to Laurel in Newly diagnosed   
    Murphette,
    You are going through an ugly time. I am sending you soft hugs and fervent prayers.
  21. Like
    Murphette214 reacted to LexieCat in Newly diagnosed   
    Sounds like you're learning to do "the flex"!  And it sounds like your docs are working hard to come up with the best strategy.
    Best of luck--we'll be thinking of you!
  22. Like
    Murphette214 reacted to BridgetO in Newly diagnosed   
    Hi Murphette, 
    My mom had metastatic breast cancer and radiation to her lower spine was very effective in relieving her pain. I hope the radiation works as well for you.
    Bridget O
  23. Like
    Murphette214 got a reaction from Tom Galli in SCLC to Hospice   
    So sorry for all your Sepmother, and you, are going through. It's so hard to understand what is the correct treatment course and to determine when enough is enough. Hugs and prayers that the pain eases for her.
  24. Like
    Murphette214 got a reaction from LexieCat in Cancerversary   
    Congratulations on your Cancerversary!
  25. Like
    Murphette214 got a reaction from Susan Cornett in Newly diagnosed   
    Thanks everyone! New update. My Oncologist really wants to do another cycle of chemo before starting radiation. She's hopeful that will help arrest the spread of the cancer from my neck to my knees. So, the current plan is that I will do chemo this morning at 8 am as was originally scheduled. I will then go for a radiation consult this afternoon.
    In 7 to 10 days after chemo, they want to do a series of radiation on my lower spine first to alleviate the pain there as it is the major source of breakthrough pain. They believe that should only take a few radiation treatments to accomplish. They will then move on to radiating rhe spots in my brain. They'll do new scans to check on how this is working before determining what course(s) of action to take next.
    Thanks all for your support!
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