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Elise

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  1. Lynn, I believe my mother is in or headed for the final stages on lung cancer. My older sister is taking care of her because she can right now. I travel to Pennsylvania (from New York) when I can to relieve my sister. Whenever we are scared or have a question my mother's Doctor says just make her comfortable. He also told us he would not be our doctor anymore if we called in Hospice (I have no idea why). Anyway, it may be a little early to call Hospice but sometimes we feel like we don't know what we are doing. Would you mind if we e-mailed you from time to time and asked some questions. It sounds like you were in a very similar situation. Thanks, Elise Workman
  2. Hello to All, I have been here before but am more of a reader than a writer. I just can't get to that place yet. As some of you may know my mother (77) has been through the mill like most of you here. She has now started whole brain radiation. She is in to her 8th day out of 15 and she is like a zombie. I really cannot imagine her finishing the 15 days because she cannot even really walk that well anymore and just sleeps. Does anyonw know anything more about this topic. I wish everyone the best and at night I wish all the sick people could be well. (And that is coming from someone who is turning 50 this week). It seems like something a 7 year old would say. Thanks, Elise
  3. As I recently told Casey I don't have an easy time with this webiste because I access it through AOL and think I should be using internet explorer, but I have just read everyone's response to my nueropathy question (a little late I know) and can't thank everyone enough. My mother was diagnosed Nov. 05 with NCSLC 1V. She received taxol, carbo and some avastin but had to stop when blood counts kept dropping. She also have severe shortness of breath after one treatment of gemzar. She is now on tarceva and stable and so we will wait for the next CT scan. February scan showed some shrinkage. My mother has not yet mastered the computer (dial-up is too slow) and my sister just doesn't go on this site, but for me it is a life saver. My mother probably wouldn't have taken avastin or tarceva if it wasn't for this site. One oncologist said she shouldn't waste her time with tarceva because it only works in 10 percent of the people. If I didn't push things (solely based on the info. I received from lchelp) I don't know what I would do. Sorry this was so long but I appreciate everyone on this site. I read the new treatments section every night like it is a nighttime story. I will have to get back to reading everyone's questions and concern. Thank you, Thank you, Thank you. Be well
  4. My mothr is also suffering from sob. The doctor said to see a pulmonogist for a functions test but also said that a cat scan was the best test. I don't beleve that. From my readings, and please excuse the spelling, SOB can be caused from low RED blood count (which my mom doesn't have). Also it can develop 2 to 3 months after chemo. and be pneumoitis sP. Dysnpea SP. Or many other lung problems that do not mean cancer. Demand they find the reason why she is having a porblem breathing with whatever tests they have available. My mother has been calling pulmonogists all day today and she can't get in for weeks. What good is having doctors for lung cancer if they can't tell you why she has SOB. Also, most webistes I have come to including this one say remarkable things about avastin. An oncologist friend of the family said it is a great drug and that if a doctor refuses it it may be because they are afraid they will not get reimbursed for it. However, I do not believe Avastin is recommended if you have brain mets.
  5. My mother has recently completed 3 months of taxol, carbo and avastin. In the middle of the chemo cycle she started to get a numbing in her fingers and toes but the doctor did not think it was anything to worry about. After her last chemo. she could not even walk due to the peripheral neuropathy. She is walking a little now but it is hard and she has trouble picking things up with her hands. The doctors are going to remove her from taxol but has anyone had this and did anything make it better. She is also going to request being taken off the Avastin because when I spoke to doctors I know personally they informed me that Avastin should never be taken when brain mets are involved and her MRI showed 1 brain met. She had gamma knife and everything went well with that. Thanks, Elise Mother dx stage 4 adeno inoperable in November. She has and still continues to have no lung cancer symptons yet
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