StrahDawg

Wow it's been a long time since I've been on. I guess that's a good thing. Anyway I've been on crizotinib for about 4 years (maybe a little longer) and it looks like I may be building up the resistance. About 2 years ago I had 5 lesions 1-3mm found in the brain and was treated successfully with gamma knife. Last year in October I had 2 more pop up, again 1-3mm in size and treated with gamma knife. I just had my mri on Monday and they found one lesion about 2 mm in size and planning gamma knife in a few weeks. My question is that my doctor called and wants me to come in and talk about switching to alectinib and I was wondering if anyone else has gone through something similar and how they're tolerating this drug? Also I just want to add that this came as a big surprise to me because of how good I've been doing. I'm 46 years old, very active and go to the gym about 4-5 times a week. I've actually been pressing my doctor about giving me a break from the crizotinib and now this! I know I should be thanking my lucky stars for making it this long and I know they're still very optimistic about the future results but it's just so disappointing some times! PS: To the moderators if this is in the wrong place I apologize and please feel free to move it to where it may get some responses. Thanks!

Sandra, I feel very bad about what your going thru and I just wanted to say I said an extra prayer just for you and your family today, I hope it helps. Steve

I am very sorry to hear of your news and having to go down this road again. It sounds like your husband has a great attitude in taking on this disease. I am a 3 1/2 year survivor and I believe attitude does play a big role in our survival. Tell Tom to keep kicking butt!

Great post when can I start treatments?

When they found my spine met it showed up on the CT and MRI but they said they werent sure so we did the PET and nothing showed up except 1 lymph node that was 2 or 3mm. Not being satisfied they ordered a biopsy in L-2 and it came back positive. So in my case the PET wasn't 100%.

Great great news Patti! Iam so happy for you sorry I didnt respond sooner I was on vacation last week and this week my son's in football camp and has little league games and I'm just playing catch up with everything. Congrat's again and just sit back and enjoy the rest of summer.

Wonderful news! Congratulations!

Great News! Congratulations!

Congrats on the great news and have a wonderful trip!

I guess based on the opinion of the Radiologist to wait a few months I'm ok with but I think 4 months is a little long for me. I would push for the 2 1/2 to 3 months to get re-scanned. I am also a Cleveland Clinic patient and if you have to see a thoracic surgeon (hopefully not) mine was Dr. Mason who I really liked he was very straight forward, aggressive but also very caring.

Welcome glad you joined and shared your story. I know it's not easy some times but try and keep your great attitude.

Hi and welcome glad you joined.

Welcome, glad to hear the alimta is working.

Liza, I know this is a difficult time but I wanted to let you know that you and your father our in my prayers.

Hi and welcome I am also new haven't even done the profile thing yet. Some very friendly and caring people here.

Thanks again everybody for all the kind words, it's nice to know I'm not alone. I will definately post when I can and contribute anyway possible. Wow Patti your right small world, actually I will being see Dr Mekhail today it's my 6mo. check up. That's kind of how I found this place I was feeling a little emotional about check up time. I feel great and dont think I have anything to worry about but I just get so nervous about going. Thanks again everybody talk to you soon.

Thank you all for all the kind words and making me feel welcome. Patti I'm in Broadview Hts and yes I go to the Clinic. Dr Mekhail is my oncologist, Dr Videtic radiation oncologist, Dr Mason cardio/thoracic surgeon.

Just wanted to say hi and introduce myself. I found your site and I think I qualify for joining the club. My name is Steve and I am a 3yr lung cancer survivor (adenocarcinoma 3a at diagnosis). Just a brief history I was 34 at diagnosis did chemo, radiation and tarceva. Surgery right pneumonectomy and 4 nodes. I believe it was about 3 or 4 months recovery from surgery and then another round of chemo, radiation and tarceva. I go every 6 months for my check-up and knock on wood so far so good. I have a beautiful wife, 10 yr old son and recently a beautiful new baby girl that doc gave us his blessing a year and a half ago that it was ok to try. I feel great for the most part but I still get frustated in dealing with the one lung. What I mean is I don't know sometimes when I get winded working out or running if it's do to age and just getting older or if maybe I'm just not in the best shape anymore and just have to deal with it and quit complaining. I'm hoping to find some similar cases to me and hopefully get some pointers on trying to stay healthy and active. Thanks in advance and always keep fighting!