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Budd

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  1. Terry I have to agree with everyone else about Dana Faber. We live 30 minutes from Boston. Our dr's here were all on staff at Dana Faber, had meetings there everyweek, and when Chris was in the hospital, all the 'weekend' dr's were from Dana Faber. I have never heard anyone say anything bad about them. They are certainly more than up to date on the latest treatments and clinical trials. And more, they are a great group of caring, compassionate, and humorous Dr's. I don't think you could gone wrong there at all. Debbie
  2. Budd

    MO_Sugar

    Mo I'm lighting that candle for you! Please know we're all thinking of you Debbie
  3. We did in the beginning. Luckily the case manager from our insurance company got it straightened out in one day. After that everything was fine. Are you having a specific problem that you'd like to share?? Good luck, Debbie
  4. I too was extremely disappointed in her message to us. Jack did an excellant job at descibing how he felt sitting there and listening. CURE should also be aware of the tremendous fight lung cancer paitents have to face. Different because of the stigma attached to it, which also shouldn't be. I often feel the drug companies really don't want to find a cure for it. If they did, they would lose trillions of dollars, and their CEO's wouldn't be able to take those bonus'. Why doesn't the largest group that gets cancer, lung cancer, the biggest killer of them all, get the largest funding. To me that only makes sense. Now please no one get upset with me for this, but, Kathy had breast cancer. From what I remember from the American Cancer Society, they are lucky enough to receive the most funding. What does that tell you!! With all the credentials she listed for Dr Belani, I would bet dollars to doughnuts, he does NOT see paitents. And therefore lacks any and all compassion. We were so lucky to have an onc. that was down to earth, compassionate, funny, and someone who became a friend. Debbie
  5. Ginny My thoughts are with you all. I'll light a candle for all of you. Hang in there! Debbie
  6. Ginny My thoughts are with you all. I'll light a candle for all of you. Hang in there! Debbie
  7. Yes we were able to donate Chris' eyes and some tissue. I never brought it up to the dr's because I thought with the cancer, chemo, etc. he couldn't have done it. Chris passed away at 3 in the afternoon. I received a call from the New England Organ Donor Bank, that the hospital had called them. The hospital had checked and his eyes were transplantable. When that transplant team came, they noticed that there was tissue that was usable. So they called in that transplant team. I had given permission for them to take whatever they could use. We were asked if we wanted to know who Chris' eyes went to and we said no, it was enough to know that those baby blues would be helping someone. Debbie
  8. Angela After they drain Chris' lung he felt so much better and the pneumonia went away in time after the anitbiotics kicked in. So hang in there, I'm thinking of you Debbie
  9. Budd

    Websites for grief

    I just wanted to let everyone know that I found 3 great websites for grief. Although I won't be leaving here, it's still nice and comforting to read other message boards. So if you're interested here they are: www.widownet.org (both widows and widowers, the best info, messages, and resources) www.griefnet.org www.youngwidows.org (again both widows and widowers) Debbie
  10. Budd

    An Update.

    Dean I also have missed you here! But maybe they can change the vicidon. From what they told me that's a short term pain medication. So that's why you'd feel that way in the morning and after it had worn off at night. They gave Chris oxycontin 40mg twice a day. Once in the morning and once at night. It's a longer lasting med, almost like timed release they said. He took hydromorphone for break thru pain if he needed during the day. That combination really worked wonders on his pain. I hope you're still enjoying your scooter now that the weather is getting nicer. You and Gay hang in there, and I'll light a candle for you both Deb
  11. Paddy Chris was the exact same way. I do believe it's a guy thing His onc was great guy and a friend of our family dr's, so I never once had him looke weird at me. I went in with Chris on every visit to every doctor. When we met with the onc. he would shoot the breeze with Chris, ask him how he was doing, then turn to me and say, "OK Deb, how's he really doing?" And I would tell him everything while Chris just smiled. I had a list of questions "every" time we went, sometimes I had even printed info out from here and bring. One day I changed pocketbooks and left the list at home. He was horrified, just kidding, but told me to call him with the questions and I did when we got home, and he anwered everyone. We were blessed to have a wonderful onc. with great compassion and great sense of humor just like Chris. He came to Chris' wake and has called me twice now. But I do think it's a guy thing !! Debbie
  12. Oh Ginny, I'm thinking of the both of you and will light a candle for you Hang in there, it's tough but you can do it! Deb
  13. Budd

    Organ Donations

    Chris and I both had an organ donor sticker on our driver's license's. I never brought this up to the dr's because of the spreading of his cancer. I just wanted to let you know that after he passed the hospital called the Organ Donor bank and they called me. Apparently his cornea's and alot of tissue would be available if we wanted to donate them. Scott our 21 yr old was home and we both agreed to it. Scott was the reciepent of donated tissue when he had his ACL repaired. Also I think it's great that Chris' baby blue eyes will be helping someone to see. They asked us if we wanted to know who would be receiving his cornea's and we decide no, that wasn't important to us. So I just wanted to let any of you know, who had been thinking about this, that it is possible even with cancer. Debbie
  14. Jane I am so sorry for all of you. Please know you are in my thoughts and I will light a candle for both of you Debbie
  15. Budd

    My Beloved

    Peg Sorry I'm late posting this. But my heart truly does go out to you and your family as I lost Chris on 4/17. I am so thankful our 21 yr old son is still at home, and he is always trying to get me to laugh even though he has his own sadness over losing his dad. It does help though. It seems Bill and Chris lived the same with this darn disease. If you ever want to just "talk" you can email me at budd404@aol.com or PM me. I know that you must still be overwhelmed and I will light a candle for you. Debbie
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