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elnodel

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    cello, reading, gardening
  1. elnodel

    bronchitis

    Echoing every one else's advise, go to the doctor and get it taken care of. Len hasn't had bronchitis but he HAS had pneumonia which occurred after radiation and chemo. Antibiotics did the trick. He was told to see the onc FAST when he felt like that...and did! Ellen
  2. elnodel

    My Dad :(

    Dear Tina, Add me to the long list of friends who are shaking their fists at fate AND praying for you and your family. As others have said, it's SO unfair, but that's the nature of this particular beast. Know that we're all pulling for you at this awful time. Keep in touch. Ellen
  3. elnodel

    My friend Tina

    You will be missed! Think of us and check back from time to time just to let us know how you are doing! Ellen
  4. elnodel

    Roll Call...

    Len and I are here and doing just fine. Len passed the three year mark in April and will be going for his checkup with the onc a little after the three year anniversary of his FIRST consultation with the onc and shortly before the anniversary of his first chemo treatment (June 14 and June 28, respectively). Boy, do those dates get burned into your memory. I've been lurking from time to time but have been so busy with work, music and life in general that I've truly been AWOL most of the time. Will do better in the future, I promise! Ellen
  5. elnodel

    The Struggle

    Dear, dear Don, Like everyone else, I regret your moving on but know that you're just moving on to a larger venue and that you will be as wonderful as a Stephen minister as you have been a LCSC mentor -- which you were to everyone. We will miss you, your comfort and wisdom, but we have all benefited from and grown stronger because of your presence here. Thank you from the bottom of my heart for everything you have done and been. Ellen
  6. elnodel

    Welcome back...

    A wee bit late but welcome home, Rich! Ellen
  7. So glad he's home, the mystery solved and he's back on the road to recovery. Will keep thinking of you both! Ellen
  8. We've passed the three year mark -- coughing up blood on April 13, 2004, xray same day, ct scan the next confirming mass on upper right lobe...and the rest is history. Let's hope it STAYS history! So far so good.... Ellen
  9. So glad to hear it! You ARE indispensable, Don, so make sure the heart tests are also perfect! Ellen
  10. So glad to hear it! Ellen
  11. Congratulations! That IS terrific news. You might want to check with someone to make sure that there is no need for chemo -- which might just make the 80% chance 99%. Have an easy recovery and enjoy good health! Ellen
  12. Dear Nova. Those horrible opportunistic infections...the antibiotics will do the job, eventually, so you just have to hang in there. The radiation has probably not helped the swallowing any...I know Len had a tough time at the end of his radiation cycle and suffered a bout with pneumonia at the same time. Eventually things worked their way through, as they will for y our husband, I'm sure. In the meantime, hang in there and know we're all plugging for you both! Ellen
  13. Thanks, everyone, for your informative replies, thoughts and prayers. Although the a-fib continues (started again after surgery) and the heart rate is still too high, the fluid is gone, thanks to the surgery. Just like Geri's, the pericardial window seems to have done the trick. And, again as in her case, the cause does seem, thank heavens, to have been some viral infection. Nothing nasty was brewing in the fluid when they cultured it. The recovery was relatively minimal (in comparison to the lobectomy, what isn't?), but the virus, the pressure of the fluid and the sob all combined to make Len very weak, so he's still not up to snuff. He got home yesterday and made noticeable improvement immediately. Nothing like leaving the hospital, however good it may be, behind you. His anxiety levels became much more manageable (he cut down on his xanax immediately) and his legs seemed much stronger and steadier. I had been really worried in the hospital when he could barely make it from the bed to the bathroom WITH my help...he's been walking around the house without any support whatsoever. Yes, he gets tired almost immediately, but still, he's a different man from the one two days ago who couldn't do anything. They're hoping that the meds will eventually lower his heart rate (it is happening gradually; we'll know more after the next visiting nurse examination) and perhaps, just maybe, the a-fib will right itself once everything else clicks into place. After all, it did happen after the last hospitalisation. But in the meantime, he's on coumadin, since the a-fib can generate blood clots, and now has to shave with an electric razor, something about which he complains bitterly. I notice that he's NOT complaining about being taken off all the leafy green vegetables (Vitamin K factors) that he loathes -- and I love. So I'll eat the spinach and broccoli and give him petit peas. Not that he's eating much of anything either. But as his strength returns, I hope so will his appetite. Just in case I've stocked the fridge with Ensure...a sad replacement for pinot grigio which is also off limits when on coumadin. So things are progressing. He goes to the cardiologist in 10 days for another echocardiogram and consultation. Then in March meets with the onc for his three month check up...lots to talk about this time! Thanks again for the encouragement and support! Ellen
  14. Hi, everyone, I've been pretty quiet for some time now, with things going pretty much in the right direction. But Len was hospitalized last week with atrial fibrillation, on top of which an echocardiogram indicated that there was a considerable amount of fluid around his heart. This is the first time that this has happened and we're not sure what is causing it. He may have had another virus (which is why he went to the doctor in the first place, because he was feeling so crummy) and the fluid may have caused the a-fib or...well, we just don't know. They couldn't get the heart back into a regular rhythm but did reduce the heart rate and released him on Monday. He's been feeling really rotten, coughing terribly, a unproductive, wheezy cough, and he's as wobbly as he can be. When we went back to the cardiologist for a follow up visit yesterday, we discovered that the heart had somehow gotten back into its regular (sinus) rhythm but the fluid has increased considerably. So he's going in for surgery tomorrow to drain the fluid. As luck would have it, it's mostly in the back of the heart so the surgeon can't go through the front and will have to a pericardial window, inserting a catheter to remove the fluid. Then, I guess, we'll find out what it is. Hoping against hope that it was just the virus that somehow attacked the pericardium, but, of course, the fear of the cancer returning is very much on our minds. Has anyone else had a similar experience? Keeping fingers, toes, eyes and everything else crossed, Ellen
  15. Add me to the list. I copied mine and sent it along to Rick. Ellen
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