prairiecrow Posted September 17, 2006 Share Posted September 17, 2006 Hello, all. My name is Laurie, and my mother was just diagnosed with extended SCLC this afternoon -- so I'm still in a bit of shock. I'll be passing info about this message board on to her as soon as she gets out of the hospital (where she's been for the last 10 days, but they'll probably send her home middle of next week to take chemo as an outpatient). This looks like a large and lively community. I'm very glad it's here as a resource. Laurie Quote Link to comment Share on other sites More sharing options...
Raindog Posted September 17, 2006 Share Posted September 17, 2006 Hi Laurie and welcome, So sorry to hear of your Moms DX and all the anxiety that goes along with this horrible illness. You will find excellent advice, stories of inspiration and encouragement from MANY survivors and care givers on this Community! Wishing the very best for you and your Mom, Best, -Rod Quote Link to comment Share on other sites More sharing options...
RandyW Posted September 17, 2006 Share Posted September 17, 2006 Survivor Forum and Good news Forums are best to start with. lots of inspiration there. Sclc Is very treatable. We have members here who are over 10 years from their diagnosos. Lots of Hope and Co,passion and Knowledge. Get asmall pocket calendar organizer for apptmnts, tests, Results, questions, and anything else you can think of. Ask lots of questions, here and at Drs Visits. Sclc is treatable. Do not listen or believe teh Onc when or if they give you a time line of "How Long Mom has" Lots of people here have beat those odds. Let us know what happens at next apptmnt if you want. But keep us posted. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 17, 2006 Share Posted September 17, 2006 Welcome, Laurie! Keep us posted. Don Quote Link to comment Share on other sites More sharing options...
Ry Posted September 17, 2006 Share Posted September 17, 2006 I am very sorry to hear about your mom's diagnosis. Welcome. Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted September 17, 2006 Share Posted September 17, 2006 Hello Laurie and welcome Sorry you had reason to find a site like this one but very glad you have posted! As you can see there are a lot of great folks on here and we will do whatever we can to help you and your mom out with this journey. Please let us know how we can help.. Chris Quote Link to comment Share on other sites More sharing options...
patscan Posted September 17, 2006 Share Posted September 17, 2006 I'm with you....on your team. We'll get through this. My prayers go out to you and your mom. God bless oue moms.....they are the best. Keep us posted. Candy Quote Link to comment Share on other sites More sharing options...
Donna G Posted September 17, 2006 Share Posted September 17, 2006 Hi Laurie. Welcome. Prayers going up that your Mom responds well to chemo. SCLC is very sensitive to it! Keep us posted. Donna G Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted September 17, 2006 Share Posted September 17, 2006 Laurie,welcome to our support family.Sorry to hear of your mom's diagnosis. There are lots of good people here that can help you and mom along the way. Quote Link to comment Share on other sites More sharing options...
mitzu Posted September 17, 2006 Share Posted September 17, 2006 Laurie, How "extensive" is her cancer? Your mom should start chemo ASAP. It works very well in SCLC. My dad had a complete response from it, no sign of cancer for 3 years! I'm glad you found us. Keep us posted. Michelle Quote Link to comment Share on other sites More sharing options...
EastCoastLadi Posted September 17, 2006 Share Posted September 17, 2006 Laurie, You mom can definitely benefit from checking us out. You can see the number of people either dealing with or suporting those w/ sclc. As you can see by my husbands' profile all he has been through. I haven't even put in the new things happening in the past month. but I welcome you and your mom here! Grace Quote Link to comment Share on other sites More sharing options...
sharonjo Posted September 17, 2006 Share Posted September 17, 2006 Hi Laurie and welcome! So sorry to hear about your mom's diagnosis. I am praying that she has a good response to the chemo. Keep us posted on her progress. God Bless, Sharon Quote Link to comment Share on other sites More sharing options...
Darrell Posted September 17, 2006 Share Posted September 17, 2006 Hi Laurie! Keep us posted!! Thinking of you! Darrell Quote Link to comment Share on other sites More sharing options...
Kaffie Posted September 17, 2006 Share Posted September 17, 2006 Welcome, So sorry to hear of your mother's diagnosis, sounds like you've done some reading on this board. You and your mother will gain a wealth of knowledge and support here Kathy Quote Link to comment Share on other sites More sharing options...
ma's kid Posted September 18, 2006 Share Posted September 18, 2006 Waving back ~ Hi Laurie, glad you are here but sorry there is a need. Please keep us posted on how your mom is doing and and let us help if we can. Prayers for you all Libby Quote Link to comment Share on other sites More sharing options...
Maryanne Posted September 18, 2006 Share Posted September 18, 2006 Welcome Lori, sorry you had to find us. We are like family here and please if you have any questions please ask as there are so many knowledgable people here. I know you are in shock and are really scared, we have all walked in your shoes. It will get better once you mom starts treatment. LC is not a death senctence there are so many people on here who are stage III or IV who are doing really well. There are so many treatments they just have to find one that will work for her. You are not alone we are always here for you, for questions, support or prayers. Keep us posted. Maryanne Quote Link to comment Share on other sites More sharing options...
angelofcharlie20 Posted September 18, 2006 Share Posted September 18, 2006 Hi Laurie, So sorry that you had to find this board, but you are truly right. This is the best place to be for support and information. Welcome again, Shirley Quote Link to comment Share on other sites More sharing options...
prairiecrow Posted September 18, 2006 Author Share Posted September 18, 2006 Thank you all so much for your kind words of support and advice! As an update: my mom is still in the hospital, but will be going home in the next couple of days (we hope). The oncologist sees no reason why she can't take chemo as an outpatient. They'll be using the drugs VP-16 and Cisplatinum (three days once every three weeks), and will be giving her a small dose of steroids on an ongoing basis to improve her energy and sense of well-being. When asked to give a prognosis, the oncologist simply said: "Talk to me in four months." Chemo will start later this week. Home care is in place for her, as well as Meals on Wheels -- a big relief to myself and my husband, since we run our business from home (we're both freelance commercial artists) but live across town from my mother. Neither of us drive, but we were prepared to knock a couple of hours out of our day several times a week in order to bus it over to her apartment and help her out. With the home care and MoW she will be in a much better position to take care of herself, and she highly values her independence. My mother's attitude is amazing. She's at peace with the idea that this disease may well kill her in as little as a few months, but has clearly stated that all she really wanted was a chance to "go down fighting". She is very happy that she's eligible for chemo, and looking forward to at least one more summer with us. Myself, I'm still struggling with the diagnosis. I have my ups and downs, but I'm sure that with time I will come to terms with it. My husband has lost three family members to cancer, so he's gently and jokingly stated that he'll act as my "tour guide" on this journey that no one really wants to take. I'm very glad to have his support, and very glad to have found this online community. Thanks again for your posts, they mean a lot to me! Laurie Quote Link to comment Share on other sites More sharing options...
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