Vesuri Posted October 27, 2007 Author Share Posted October 27, 2007 Hi Went to CT on Friday and treatment starts next Tuesday! All the best good people! Jussi Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted October 31, 2007 Share Posted October 31, 2007 Hi Jussi, and welcome. The chem you'll be on +/- Nexavar is pretty tough o n cancer. I had cisplatin with etoposide simultaneously with radiation for my NSCLC - pancoast tumor, and the combination was effective. Good luck with your chemo, it sounds like the oncologist has a nice chemotherapy suite. My oncologist did also, there were recliner chairs that were very comfortable. Keep us posted. XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
fillise Posted October 31, 2007 Share Posted October 31, 2007 Jussi--good luck with your chemo. I'm glad Ernie steered you to us. We hate that you had to find us, but if you need us we are here for you! Susan Quote Link to comment Share on other sites More sharing options...
Vesuri Posted November 8, 2007 Author Share Posted November 8, 2007 Thanks! This is a little bit off-topic but I think it still touches all of us living in a modern world. Finland went to shock yesterday noon. I will pray for all the families... Makes these personal health issues feel pretty small... " HELSINKI, Finland (CNN) -- An 18-year-old authorities say shot eight people inside his high school in southern Finland, before turning the gun on himself, has died, police said. An image from a video posted on YouTube by "Sturmgeist89." more photos » The shooting appeared to have been planned out in graphic videos posted on Internet file-sharing site YouTube. At a news conference this afternoon, police confirmed the dead numbered two girls, five boys and the school's headmistress at Jokela High in Tuusula, a quiet town around 50 kilometers (30 miles) north of Helsinki. Ten other people were taken to a hospital with minor injuries." Quote Link to comment Share on other sites More sharing options...
recce101 Posted November 8, 2007 Share Posted November 8, 2007 "Vesuri" ...The shooting appeared to have been planned out in graphic videos posted on Internet file-sharing site YouTube.... At one time I believed the Internet and globalization would bring more people closer together, reduce prejudice, increase understanding, etc. etc. Obviously a naive view. Any technological advance, no matter how promising and well intentioned, can be misused, sometimes horribly. On a beautiful summer night in 1971, four of us were enjoying a marvelous concert under the stars in Newport, Rhode Island. Dave Brubeck's group had just finished, and now Dionne Warwick was on stage enthralling us with the Hal David/Burt Bacharach classic "What the world needs now is love sweet love..." when a hundred or more kids, who had been listening for two hours from an adjacent hillside free of charge and undisturbed, decided to break down the gates and storm into the fenced area. Dionne kept singing until management cut off the sound system and escorted her to safety. The Newport Jazz Festival moved to New York City and did not return to Newport for 10 years. Aloha, Ned Quote Link to comment Share on other sites More sharing options...
rainbow Posted November 8, 2007 Share Posted November 8, 2007 So sorry about your diagnosis, but you have come to the right place for love, support and some very caring people. We're all in this together. Keep us posted. May God Bless, Denise Quote Link to comment Share on other sites More sharing options...
alexan Posted November 8, 2007 Share Posted November 8, 2007 whugs & prayers welcome!!!!!!! We all will take of you. hugs & prayers bucky Quote Link to comment Share on other sites More sharing options...
Vesuri Posted November 20, 2007 Author Share Posted November 20, 2007 Hi good people! Came to hospital today for 2nd chemo treatment. Also got some nasty rash from the Nexavar, so I guess that puts an end to the speculation of whether its placebo or not =) I wish strength to all you people here!!!! Quote Link to comment Share on other sites More sharing options...
Muriel Posted November 20, 2007 Share Posted November 20, 2007 Hi Jussi, Good to hear from you again. I've been wondering how things were going for you. Glad you finally got started on chemo and now have 2 treatments out of the way. Be sure to drink lots and lots of water the days that they give you cisplatin! Good luck with the rest of your treatments. Check back in with us soon. Muriel Quote Link to comment Share on other sites More sharing options...
never2late Posted November 21, 2007 Share Posted November 21, 2007 Jussi, Your positive attitude will take you far on this journey. Please keep us informed on how things are going with you. Quote Link to comment Share on other sites More sharing options...
Vesuri Posted December 4, 2007 Author Share Posted December 4, 2007 Christmas time is getting closer good people!! I have been back to work for the past week and a half. I don't try to act superman or anything like that, but I thought that since I don't have any bigger issues with my health it would be refreshing to see some people for a while. If I get more tired etc. then I keep out of office again. I have a CT scan scheduled for this friday. It's already after 2 rounds of chemo, but the doctor said they can see something already whether the chemo is working or not. All the best!!! Jussi Quote Link to comment Share on other sites More sharing options...
Muriel Posted December 4, 2007 Share Posted December 4, 2007 Best wishes for a good CT scan on Friday. Let us know the results. Muriel Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 5, 2007 Share Posted December 5, 2007 Jussi, I don't know how I missed your first several posts but I am glad I found you today. Welcome to our group. It sounds like you have already started your treatments and I hope you are still feeling well. I look forward to your updates. Again, I am sorry to be so late to reply. Nina Quote Link to comment Share on other sites More sharing options...
Vesuri Posted December 12, 2007 Author Share Posted December 12, 2007 Hi again good people! Little update... Had a doctors appointment on Tuesday and CT results indicated that the lung tumor had gotten smaller, the "pleural thickening" was smaller, and liver mets were smaller! Although the overall status is still very gloomy, I already got the best Christmas present this year!!!!!! If there's anything good about this disease, it's taught me not to stress about everything so much and enjoy the small happy moments in life. Couldn't get 3rd chemo on Tuesday because some blood value was below limit, so new try tomorrow morning! I wish and pray all the best and strength to all of you!!! Jussi Quote Link to comment Share on other sites More sharing options...
Muriel Posted December 12, 2007 Share Posted December 12, 2007 That's good news Jussi! You still have a couple more treatments that can do even more damage to the tumors. There are probably other things that can be tried if this isn't totally effective. How are you feeling after the 2 rounds? Muriel Quote Link to comment Share on other sites More sharing options...
Vesuri Posted December 12, 2007 Author Share Posted December 12, 2007 Hi! I'm feeling very good! I haven't had any major side effects. Well I guess the biggest issue has been the "abnormal functionality of the digestive system", if you know what I mean =)... But now I know more and what to eat before and during the treatment! Take it easy and be nice! Christmas is coming! Don't tell me that you didn't know where Santa comes from!? =) http://en.wikipedia.org/wiki/Santa_Claus http://www.santaclaus.fi Quote Link to comment Share on other sites More sharing options...
recce101 Posted December 12, 2007 Share Posted December 12, 2007 Good for you, Jussi! You have what it takes to come out on the winning side of this -- vigorous general health, great attitude, good response to treatment, minimal side effects. Happy Holidays and Aloha, Ned Quote Link to comment Share on other sites More sharing options...
Max L Posted December 13, 2007 Share Posted December 13, 2007 Welcome Jussi. The bad news is that you are here, but the really great news is that you are now in touch with a very caring and informative support group. I speak from experience as without this group I am not certain that I would be doing as well. Am in 2nd day of recuperation after having left upper lobe removed and so far am doing great. You appear to have a positive attitude which is so so important. Please stay positive,keep fighting, keep informed, be your own advocate and above all never never give up. This advice has helped me and my wife, Inez battle through lung cancer, prostate cancer, heart disease and diabetis with positive results. You will find that the support, love and caring from family, friends and support groups such as this, will keep your spirits lookin upward as it has Inez and I. Life isn't about waiting for the storm to pass... It's about learning to dance in the rain Quote Link to comment Share on other sites More sharing options...
carolhg Posted December 13, 2007 Share Posted December 13, 2007 Welcome Jussi, You have come to a very supportive and understanding site. We are all here for one another. Carol Quote Link to comment Share on other sites More sharing options...
rainbow Posted December 13, 2007 Share Posted December 13, 2007 Your news is wonderful! Looks like we both have alot to be thankful for. Have a wonderful xmas and keep us posted. Blessings, Denise Quote Link to comment Share on other sites More sharing options...
Muriel Posted December 13, 2007 Share Posted December 13, 2007 Jussi, Santa lives at the North Pole. I know that. But that quiz didn't offer the North Pole as one of the options. Had to choose between Turkey (obviously wrong), Finland, Lapland, and Scotland. I tried Lapland and then Finland and then gave up. Muriel Quote Link to comment Share on other sites More sharing options...
Vesuri Posted January 25, 2008 Author Share Posted January 25, 2008 Hello again good people! Haven't written anything in a while... well, here's a short update. Had a 2nd CT scan last week and saw doctor yesterday. She said that mass in lung has shrunk still a bit and pleura has gone thinner as well. Liver remains same from previous scan. So, the treatment continues as planned. Although I couldn't stay at hospital yesterday because some blood value was pretty low still... Another try on Monday. Just crossed some articles in web and seems that the genetherapy treatments are picking up on cancer treatment. Does anybody have some experience / knowledge about them? Good and relaxing weekend to everybody!!! Jussi Quote Link to comment Share on other sites More sharing options...
Muriel Posted January 25, 2008 Share Posted January 25, 2008 Good to hear from you again, Jussi. It's certainly good news that the tumor in your lung is shrinking. Congratulations. Thanks for the update. Muriel Quote Link to comment Share on other sites More sharing options...
Vesuri Posted March 6, 2008 Author Share Posted March 6, 2008 Hi! Thought I post a brief update.... So, today was the last chemo! 6 rounds completed! I'm still continuing with the drug trial (Nexavar). I've had some nausea for a couple of days while having the chemo in hospital, but I've been fine at home. All the best to you people and stay in positive mood! -Jussi Quote Link to comment Share on other sites More sharing options...
recce101 Posted March 6, 2008 Share Posted March 6, 2008 Hi, Jussi, it's good hearing from you. We'd all love to have every one of our anomalies shrink to zero, but "stable" is not too shabby either. Best wishes on your continued success! Aloha, Ned Quote Link to comment Share on other sites More sharing options...
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