Jg_miller Posted April 5, 2017 Share Posted April 5, 2017 Any body on Alimta? Side effects, success stories, etc. I start next Monday on alimta. First chemo platinum, then opdivo. Link to comment Share on other sites More sharing options...
Susan Cornett Posted April 6, 2017 Share Posted April 6, 2017 Hi. I'm stage IV NSCLC and I had four courses of cisplatin and alimta last spring. My side effects were fatigue, nausea, neuropathy, and ringing in the ears. My nausea was well managed with Prilosec and two prescription meds (Zofran, Compazine). The fatigue hit me around the end of April and stuck with me into June. The neuropathy finally subsided in the fall and the ringing in the ears is the gift that continues to give. I did not lose my hair but it is my understanding that many people lose their hair with that combo. My chemo also lasted nearly 8 hours each session due to the combination of drugs and fluids. I was NED until the end of February this year when we found a recurrence in a lymph node in my chest, so I'd say that almost a year of NED is pretty good for stage IV. I start 6 weeks of radiation and chemo (carboplatin and taxol) next week. I'm sure your team has provided you with information about the drugs and side effects, but I also recommend chemocare.com. I have found that site to be very useful. I hope I answered your question, but if not, please let me know. Good luck to you! Link to comment Share on other sites More sharing options...
Jg_miller Posted April 6, 2017 Author Share Posted April 6, 2017 Thank you and good luck with your next round. Prayers are with you. Susan Cornett 1 Link to comment Share on other sites More sharing options...
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