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First off, I am a stage 3 NSCLC patient who was first diagnosed January of 2015. I underwent surgery (thoroscopic wedge resection) to remove a lime size tumor from my right lung. Everything seemed to be going good until a year later when a recurrence occurred in both lungs and the lymph nodes in my chest. More surgery was not an option so I was scheduled to begin radiation therapy and chemo. the radiation had some unpleasant side effects but resolved the issue with my lymph nodes. The chemo had very limited success so after a few months off to recover I started my second round of platinum based chemo and one other drug. I guess I was lucky since the side effects of the chemo were not that severe. I lost all of my hair of course and had a lot of fatigue and loss of appetite, but that was about it. Once again the chemo had limited success although it helped to keep the cancer from spreading to other organs. Last March my oncologist suggested Immunotherapy, so I began Opdivo infusion once every two weeks. Two great things about this. 1) I can tolerate the Opdivo a lot better with no side effects to speak of. And 2) My last CT scan showed some incredible results. the tumors in my right lung were stable (no growth) and the tumor in my left lung was gone ! I realize this is not a cure, but as they say it is a chance to live a little longer. 

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What great news!  I am hearing so many wonderful things about immunotherapy!  My mom just started immunotherapy for a recurrence.  We were a bit hesitant at first because it wasn't the normal mode of treatment we were accustomed to.  Now that I've done research into immunotherapy a bit more, I am so hopeful for the future for this option of treatment.  I am very happy to hear that your tumors are stable or gone, with no side effects from treatment! I hope all continues to go well for you, take care!

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Zaphobd,

How about that!  Thanks for sharing good news about your immunotherapy treatment.  

Most of us go down the path of conventional radiation and chemo but now targeted therapy and immunotherapy have become effective weapons to control and hopefully eliminate lung cancer.  I really appreciate you sharing your first hand experience with Opdivo.  There are many who look to this forum for hope and you've just shined a beacon.  

Stay the course.

Tom

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I have stage 3 sclc & I too, am on Opdivo. I did 15, 3 day sessions of chemo every 21 days, then radiation. The Opdivo is wonderful! I had my second PET scan on December 27 & the results showed no tumor & no cancer anywhere! I think this is a great course of treatment. I'm infused every 2 weeks. Only side effect is being lazy the next day!😀

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Wow, thanks so much for the uplifting info regarding Opdivo.  To give you a little background on my adventure, I was first diagnosed with Stage 2 NSCLC in January of 2017. I went through radiation (36 treatments) and chemotherapy (6 treatments); and was cleared and active treatment was ended.  At the time of completing treatment, it was decided that I would have a CT scan after 6 weeks to ensure that all remained clear. The first CT scan remained clear; then it came time for CT #2.  CT#2 indicated some fluid showing up in the right lung, which is the lung which had the cancer. My Oncologist contacted my Pulmonologist to perform a bronchoscopy to ffing out what was going on. Well, the bronchoscopy indicated some moisture and the pulmonologist's took several tissue samples which came back okay.  Then after my most recent CT scan, it was detected that the NSCLC had come back and was now at Stage 4. It was determined at that time that, we would initiate immunotherapy using Opdivo, since on the last CT they were able to identify some PL-D1 markers.  So beginning tomorrow (06/18/2018), I will be undergoing training on the Opdivo program, and hope to start with the infusion process on Thursday (06/19/2018).

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That is great news and similar to my situation that jan last year had a lobectomy and a wedge resection followed by 6 rounds of chemo ( gen / carbo )and next scan was all clear then next scan at 12 month showed lymph nodes enlarged and biopsy confirmed to be recurrence anyway 3 months with opdivo and nodes all shrunk and nothing new to see and best of all no side affects so im very happy for now ..

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bigheart,

Great news about being a candidate for immunotherapy! It is doing so many great things.  My mom has been on Keytruda for nearly a year and things are going well for her cancer-wise.  Hope things go well for you too!

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My opdivo is still going very well except one little side effect of some little itchy bumps on my forearms and legs and apparently its quite common but some moisturiser or if really itchy a little steroid cream and the itch goes so im not complaining and no comparison to chemo so i feel blessed to be able to have the opdivo and 3 weeks till next scan but im not rushing to that date ...

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Thankyou Tom i hope your right and i keep thinking if all my blood tests are Very good every fortnight then things should be going well ....keeps me optimistic so thats good for the body lol

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