Mally Posted January 22, 2018 Share Posted January 22, 2018 If i were to be given this type of radiation on my lymph nodes how many and how often is it given ? Ive got 3 weeks from my oncology appointment till my holiday which was planned and paid for last yr to visit new zealand so im worried i wont get enough treatments in before i go and then ill be stressing about it while away ...last time my treatment of chemo was day 1 day 8 and day 22 so i had a 2 week break after the first 2 doses each round so im hoping a similar schedule this time but if i had radiotherepy and chemo can you take a break between doses of the rads ? Sorry to go on but my oncologist app. Is in 2 days so im on high anxiety because i get Pet results and treatment plan then. Link to comment Share on other sites More sharing options...
BridgetO Posted January 22, 2018 Share Posted January 22, 2018 Hi Mally, I hope you're able to take your trip. Having had to cancel a long awaited trip due to late occurring side effects (in 2011) I now always get very good travel insurance. There are some companies that will cover pre-existing conditions provided that you buy the policy within a set number of days (usually 10) after you make the first payment on your trip, and that you're able to travel at the time you buy the policy. You have to read the fine print before you buy to make sure you'll be insured if cancer, or side effect, or the flu even, rears its ugly head. Of course, now that I always have the good insurance, I haven't had to cancel any trips. Best of luck to you. Bridget O Link to comment Share on other sites More sharing options...
Mally Posted January 23, 2018 Author Share Posted January 23, 2018 Thanks Briget and i was only thinking about travel insurance recently but these holiday plans were made last june and mostly paid for then .....i asked the lung specialist about my holiday when i got results from my ct scan showing an increased ln size lymph node and he said then they could work around it but that was on the 21st dec.so oncologist tomorrow to see what treatment ill get .....i feel they wait too long between tests and treatment especially in the lymph nodes Link to comment Share on other sites More sharing options...
Mally Posted January 23, 2018 Author Share Posted January 23, 2018 When i go to general or nsclc groups they are posts from july last year and i dont seem to be getting recent posts but you have seen mine so do you need to refresh the site or what do you think the problem could be ? It took me a long time to get back into these forums and i use Tapatalk but when i tried googleplay for the lungevity app it said not available in this country ( Australia ) so my computer and network skills are limited ... Link to comment Share on other sites More sharing options...
LexieCat Posted January 23, 2018 Share Posted January 23, 2018 I don't use apps to access the site, I just use my regular internet browser and everything works great. Try just going here on your browser: http://forums.lungevity.org. Maybe someone else here knows about the apps, but by just going to the main website on your browser, you should be able to access everything. Link to comment Share on other sites More sharing options...
Mally Posted January 23, 2018 Author Share Posted January 23, 2018 Thankyou LexieCat ill try it that way Link to comment Share on other sites More sharing options...
Judy M. Posted January 23, 2018 Share Posted January 23, 2018 Mally If they can do S. B. R. T. type radiation these are usually just 3-5 treatments with 1 or 2 days between treatments and work quite well. Judy M Link to comment Share on other sites More sharing options...
Mally Posted January 23, 2018 Author Share Posted January 23, 2018 Thankyou Judy thats what im hoping for and my appointment is this morning so ill know my treatment plan then and ive never felt more nervous Link to comment Share on other sites More sharing options...
Mally Posted February 8, 2018 Author Share Posted February 8, 2018 I wish i was offered radiotherepy or chemo along with the immunotherepy im having because ive got a recurrence in lymph nodes and jan last year i was told i was curable and after surgery and chemo i had 6 months worry free and now on an information sheet about opdivo the heading says For Advanced Or Metastic Lung cancer and my oncologist is so quiet spoken and doesnt say much i dont know where i stand and im scared to ask .. Link to comment Share on other sites More sharing options...
Susan Cornett Posted February 8, 2018 Share Posted February 8, 2018 Mally, Don't ever be scared to ask questions. You have to be your own advocate and that means asking until you get answers. If you aren't comfortable with the treatment plan, I suggest getting a second opinion. Different docs have different approaches. With respect to the cancer being curable, I don't know many docs who use that term when it comes to lung cancer; most use the term NED (no evidence of a disease). This crummy cancer is a very persistent cancer and has a high rate of recurrence. Link to comment Share on other sites More sharing options...
BridgetO Posted February 8, 2018 Share Posted February 8, 2018 Hi Mally, Susan is right--don't be scared to ask questions. Here are two things that might make it easier. Take somebody with you who knows your situation and your questions and can jump inif necessary. Or, write down your questions in detail and have the paper in your hand when you go in to be seen. Then say" I have these questions" and read them out. or if you're nervous about reading them out, say " I have these questions" and hand the paper over to the doc. Best of luck! Bridget O Link to comment Share on other sites More sharing options...
Judy M. Posted February 8, 2018 Share Posted February 8, 2018 Mally Different docs do have different approaches. I think I said this before, but I'd consult a Radiology Oncologist. I have both a Medical Oncologist (who is doing the Opdivo) and 2 Radiology Oncologists, one does only standard radiation and the other S. B. R. T. The Radiation Oncologist will know if you can have radiation. I also have a surgeon and if I had it to do over I'd have consulted him on what he thought about removing my left adrenal. Might also have ask about a treatment I've recently learned about where a surgeon can introduce a wire into a bone met and destroy it with heat. Reason being the radiation never totally eliminated my hip pain and swelling, so now I think that tumor may still be there. Hope the Opdivo is gnawing away at it. If you want radiation no reason not to seek some. Judy M. Link to comment Share on other sites More sharing options...
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