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S.R.C.

I'm new here. Especially interested in tagrisso

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My son was diagnosed with Adenocarcinoma Egfr mutation stage 4 on 7/8/18. He has had radiation for his brain and spine. He started taking Tagrisso on 7/31/18.

He will turn 28 next month. He has a wonderful wife, 8 year old daughter and a 6 month old baby boy.

He has lost a lot of weight. He was thin to start with. He is now only 110 lbs. Up until now he has always been very healthy. It scares me. We were told the drug wouldn't bring improvement for at least 4 weeks. It will be 2 weeks on Tuesday.

I would be interested in hearing of any experiences with this drug. Any ideas or info that might be helpful.

The cancer seems to be everywhere. It all happened so fast.

I know God is in control. He is with us on this journey. He will see us through. 

38For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, 39nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord. Rom.8:38 & 39

Thank you in advance for any experience, hope, encouragement and knowledge you may have to share. I realise it has been gained at a cost.

SRC

 

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Hi, SRC, 

I don't have any experience personally with Tagrisso, but I wanted to welcome you here.  I'm not sure who on the forums might have experience with Tagrisso, specifically, but we have quite a few long-term survivors who have had advanced-stage NSCLC.  This is a great place for information and support.

Glad you found us!

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Hi SRC and welcome. I don't have any experience of Tagrisso either. I hope some that do will respond to you. This is a good place to find support and hope. I wish the best to you and your son and his family.

Bridget O

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SRC,

I was diagnosed with late stage lung cancer almost 15 years ago and well before the EGFR inhibitor Tagrisso was discovered (here is information about the drug and the new targeted therapies recently approved by the FDA).  Once I was projected to live less than 6 months, but my faith sustained me and a newly emerged treatment resolved my lung cancer.  Mine was an arduous journey. You son's may be also because lung cancer is unusually persistent.  Recurrences after successful treatments are common.  

Faith and hope are vastly important in my life.  My faith sustains me and allows the benefits of hope to work in my life.  Here is a short essay on my views of hope and faith. Your most important takeaway from my experience in treatment is if I can live, so can your son.

Tagrisso is a remarkable drug that is very very successful for some lung cancer patients that display the EGFR genetic marker.  I hope your son is among those it works for.  If not, the Lord will provide other remedies. 

Stay the course.

Tom

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So happy for you. 15 years is huge. Thank you for sharing

It's difficult waiting for the drug to hopefully work for him while he is so sick .I know this isn't the only option for him. We are hoping and praying it yields some good results.

It does help to hear of positive outcomes

SRC

 

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