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About this blog

 I am a survivor, caregiver, writer, patient navigator, founder of Lung Cancer Support Community (LCSC), Breathe Deep DFW, Dallas Fort Worth's first 5K walk/run benefiting lung cancer research and the Vice President of Support and Survivorship Programs for LUNGevity Foundation. 
**The thoughts expressed on this blog are my own and do not reflect those of the Foundation.

Entries in this blog

 

You are not always your own best advocate

Last week I took a local lung cancer patient and long time friend "J" to get his scans. This will be a very abbreviated account of what happened. Even though we are only an hour apart, I haven't seen "J" in a couple of years.  He has an incredible story of being dx in his 30s and some amazing heroic efforts when into saving his life.  He's even been in the news and media.  Since that time 10 or more years ago, he's struggled to live and battled a few recurrences.   They "think" he had

KatieB

KatieB

 

Don't Help Me. Please Help Me.

Don't help me. I am a fiercely independant woman.  i am a survivor.  I am strong.  I will beat this (insert cancer type/condition here) and my life will inspire others. If I show weakness then it wins.  I will get up everyday and tackle the world.  I will do my hair and put on lipstick and look as amazing as I can so no one will know that I am "sick". I will not ask anyone for help.  I will carry all of the groceries into the house.  I will change the water bottle on the water cooler.  I wi

KatieB

KatieB

 

Reality vs Fears

I am a two year survivor of a stage 4 gentic autoimmune liver disease.  Although I am stable and in "good" health. I suffer from abdominal and muscular pain- rhumatoid arthritis and side effects from diabetes and Hashimotos thyroid disease.  It's a lot- but it's manageable and I'm living very well with chronic disease. Before I was diagnosed- I was a high energy non-stop person.  I didn't stop working until I had finished every last "to-do" on my list.  I didn't have unfinished projects in

KatieB

KatieB

 

Permission to Feel

I noticed something recently at the in-person support group I facilitate.   Caregivers in my group didn't speak up about issues or feelings unless the facilitator or group leader mentioned them first. "Like Jan said, I have feelings of ____  too." After the third time, it occured to me that caregivers are either waiting to have their feelings validated by someone else or didn't realize they had been feeling those feelings. I remember being a caregiver for my father and how al

KatieB

KatieB

 

Grief is a Part of Advocacy

Advocates are courageous and brave as they raise awareness or work tirelessly to change injustices and create a better world. Most people become advocates because they were personally affected by the cause they are fighting for. While they have smiles on their faces and work to inspire...there's a part of their hearts that are always grieving for the love they lost or the life that once was. At least thats true for me- even after 15 years. While our personal experience fuels us during a

KatieB

KatieB

 

Depression in Lung Cancer Patients

It’s normal for someone diagnosed with cancer to experience feelings of sadness, fear, anger and grief.  It’s when those feelings prevent you from functioning in your everyday life and you feel emotionally paralyzed in your situation for an extended period of time that you need to seek help. Cancer patients experience depression two times more than the general population and studies have shown that mental health and social well-being can affect the success of treatment.  Those diagnosed wit

KatieB

KatieB

 

Connecting People to Hope

I recently read a quote from a cancer survivor about online support.  "When I stumble, there are so many virtual hands to catch me.”  This is the same sentiment that has been expressed about LUNGevity’s Lung Cancer Support Community and the many support groups on Facebook.  People impacted by lung cancer can come online and be embraced by others who have walked the same journey and who understand what they may be going thru. There is power in the written word and from receiving support from a gr

KatieB

KatieB

 

Where Did Everyone Go? When People Disappear From Your Life

Where Did Everyone Go? When people disappear (physically or emotionally) after a cancer diagnosis. I have experienced being someone with cancer and being someone who cared for someone with a terminal cancer diagnosis and neither side is a cakewalk. At LUNGevity HOPE Summit s, we talk a lot about survivorship and family relationships in the Caregivers session and I’ve decided that being the caregiver and managing those relationships can be stress-filled and sometimes heartbreaking.

KatieB

KatieB

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