Let us presume, for the sake of this column, that I only have papillary thyroid cancer stage IV, and that my years as a non-small cell lung cancer patient, also stage IV, are over. If true, it begs the question, which I have been asked twice since this recategorization has become - in my circle anyway, public knowledge: how does it make me feel (to no longer be one scan result away from having months to live to now having years to live)? As obvious an answer as it should be: I can't exactly get my mind around it. I keep hearing that "If it's too good to be true, it is" advisory in my head. I realize medicine is different, and that's what scares me.
Well, I can't really say I feel as if I have my life back because I never really lived like it was gone. I pretty much - treatments and side effects notwithstanding - tried to maintain my normal life and to continue my routine as well. I didn't stray too far from my well-established dos and don'ts. I didn't write down a bucket list and therefore spent no time pursuing long-standing goals. I just did what I have always done. I didn't want to be controlled by my cancer; doing things, taking trips, etc. just because I had a "terminal" diagnosis. To my way of thinking, that would have been akin to reinforcing a negative: a cancer that was likely to kill me sooner rather than later so I better do such and such or else. Instead, I just lived my regular life and felt no pressure to cross off items on a bucket list before I died. In spite of living life not as if I was dying, but as if I was going to be living, (unlike the country music song that expresses a different sentiment) I survived beyond my wildest timeline: so far, 11 years and nine months after initially being given a "13 months to two years" prognosis.
Fast forward to the most recent - and amazing news: I hadn't miraculously survived non-small cell lung cancer after all, I had merely survived a very survivable and slow moving thyroid cancer (that has - or had previously, metastasized to the lung). Though my oncologist still thinks I have two types of cancer, my endocrinologist thinks I only have - and have had - one type: thyroid cancer. The Lombardi Cancer Center head and neck cancer specialist also feels like I have one cancer: thyroid. Her reasoning, after reviewing my medical records, was a bit more direct: "If you had lung cancer diagnosed 12 or so years ago, we wouldn't be here having this discussion. You wouldn't be alive." So being alive is proof, a type of proof I suppose, that I've had thyroid cancer all along and never had lung cancer.
Not that I want to be thick-headed but after nearly 12 years of being told that I had lung cancer and living scan to scan every two to three months and anxiously waiting as well for my lab results every three weeks
I find myself unable to let go of the worst case scenario that has been my life since Feb., 2009, and embrace this amended diagnosis. I can't seem to turn off my internal anxiety/fear clock. In fact, it's still stuck in its original position. I'm like an ocean liner headed out to sea. It can hardly turn on a dime and neither can I. Certainly I want to believe it and I don't really doubt the thyroid cancer opinions I've received, but it just seems that having your wildest dreams come true after almost 12 years of trying to accept the reality of your cancer situation/early death is too much good fortune for anyone to imagine/realize. It's the opposite of normal. As much as one might want it to happen, it's just not the way it generally works. I don't suppose doctors hand out terminal diagnosis before giving it extra ample thought. And yet, I'm about to be living proof.
Nevertheless, every day, the shock of it begins to wear off and I can contemplate my future once again. No more will I count the days between scans. No longer will I dread reading my lab work and wondering what it all means. Oddly enough, what it all means is that I'll probably continue/resume my previous life, boring and mundane as it was because, well, it worked for me then so I imagine it will work for me now.