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A Bone to Pick


LCSC Blog

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Not that I'm the most-stressed about it, but I am at least stressed about a bone scan I'm having this week. The reason being that thyroid cancer that's metastasized - which mine has, sometimes moves to the bones. And since I have some knee-hip discomfort, particularly when I get up from a seated position, my oncologist ordered this two-step diagnostic process: an injection of something followed a few hours later by the actual scan to assess the damage. Not that I want to look for trouble (since it has already found me) but it's important - though scary, to tell your oncologist about any new symptoms, especially, if this new symptom has persisted for more than a few weeks. Rather than be an idiot and not mention the problem, I mentioned it during our last phone call on Thursday, the week before Thanksgiving and tomorrow, Monday, 10 days after the new fact, the bone scan will occur. I imagine I'll receive the results by the end of the week. Waiting for results all the time is another negative aspect of this disease. Very little happens while you wait, if you know what I mean?

I wouldn't say exactly that common sense has prevailed here. It really doesn't take a genius to call a doctor when you're experiencing some new and unusual pain. In fact, the first lesson of oncology 101 is to contact your oncologist if any new symptom presents. It might actually be serious. Moreover, you're never to presume anything. You are to let the doctor know and let him be the judge. Keep the self-diagnosing and self-medicating to a minimum, if at all. You don't know best. In fact, you hardly know at all.

Part of the occasional apprehension I've had in not sharing any new symptoms with my oncologist is fear. If I tell him about a new symptom, it might actually indicate a problem/complication with my disease/treatment. The illogic is: if I don't tell him, my overall medical situation can't get worse - which is obviously stupid, and not true. But since I'll never receive medical confirmation that my health situation has taken a turn, I can continue to delude myself. But my thought process - as a previously diagnosed "terminal" non small cell lung cancer patient stage IV, was just that. What I don't tell him won't hurt me. 'Hurt me' meaning leading to a premature death (I know, any death is premature). I realize even before writing this that it doesn't make any sense. As I have said on many occasions, I'll blame the cancer.

And why I'll blame the cancer is because more than the damage it does to your body, it is the damage (effect really) it has on your brain. In a subconscious kind of way, your brain is totally rewired. After receiving such a life-changing/potentially life-ending diagnosis, you begin to think differently about life. Your obligations change. Your priorities change. Your responsibilities change. Your perspective changes. As such, your answers to questions and preferences no longer seem to be coming from the same place as they were before your diagnosis. It's not so much physically as much as it is emotionally, psychologically, spiritually. You're almost an entirely new person. At a minimum, you definitely become a variation of the previous you. You might look the same, but you don't exactly act - or sound the same.

All your decisions become controlled by your disease, not literally, but made through the prism of your being a cancer patient. It's not that, if you're lucky, you need someone to prepare your meals/assist with your activities of daily living, but you do lose yourself in the disease with all the appointments, scans and treatments. And the worst part of it, none of it guarantees anything other than more appointments, scans and treatment. The bone scan I'm having is a perfect example. And unless I embrace the process, the stress and anxiety is likely to do as much damage as the cancer. Fortunately, I'm up to the challenge. Nevertheless, it's worrisome.

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