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  2. Isabelle, I'm not sure I have anything to share on telling family and friends about your diagnosis. Lexie makes a good point: you don't have one yet! I'd at least wait till you did because so many other questions become answerable once a diagnosis is determined. A reveal now might needlessly heighten uncertainty and lung cancer is already uncertain enough. I do like your priorities: travel first then complete diagnosis. I wish I held that attitude when I was in the diagnosis and treatment zones. I put my life on hold and ended up wasting 3 years fretting about lung cancer. I'd forgotten the purpose for treatment is extended life and I was wasting my extension! You are not and I say well done! Stay the course. Tom
  3. Me, too. I feel like I SERIOUSLY lucked out in the doctor department--mine were all beyond fantastic.
  4. Oh, and one other thing--you do have US to talk to. No matter what comes your way, chances are that one or more of us have Been There, Done That. We know how anxious it can feel waiting for tests, results, treatment. Family is great, but it's also great to be able to share with people who (a) get it and (b) you don't have to worry about upsetting.
  5. Yea, I’d be looking for another pulmonologist.
  6. I can speak from both sides of the equation. My father was diagnosed with a soft tissue sarcoma when I was around 12. He didn’t tell me until after he had his leg amputated, he knew for about a year. I was pretty upset he didn’t. I told him never to do that again. Fast forward 30 years and he was diagnosed with a stage IV LC. He called me on the way home from the doctor to let me know. He said he remembered how upset I was when he didn’t tell me when I was 12. I was glad he did tell me. It was important to me to be able to help him in any way I could. Now I was just diagnosed with Stage 1 LC 8 weeks ago. I have a 10, 8 and 6 year old. We chose to tell them that I had something in my lung that needed to be removed but not use the word cancer. They haven’t asked for specifics. I struggled a lot with telling friends, extended family, employees, customers and people I interact with through work. I’ve found that it does help to share what you are going through in the appropriate moment. If you choose to share it I’d practice the first few times on close family or friends. I had to get through a few before I was able to do it without getting upset. There is definitely something therapeutic with saying it out loud for me.
  7. Hi, Isabelle, I've got a slightly different take on it. At this point, you haven't been officially diagnosed. Maybe, rather than getting everyone alarmed, you could wait until you've been diagnosed and know for sure what you are dealing with. When you say, "large mass," how large is it? The one nodule in the left lobe might be nothing. The majority of nodules are not cancer. A PET scan should be able to indicate the likelihood of any metastasis. What I'm trying to say is that assuming the "large mass" is cancerous, it might be possible to have a surgical removal that will have little impact on your life--that was the case for me and several others here. Granted, my tumor was not very large, but if yours is confined to the one lobe, surgical removal is not very complicated. I had my upper left lobe removed almost two years ago and I'm fine--I do go for regular scans to be sure it stays that way, but right now it's looking good. When I was told that I had probable lung cancer, I shared the information on sort of a "need-to-know" basis. My close family knew but I didn't tell my elderly dad because he would have worried literally for the rest of his life. He wasn't nearby and I didn't see any point in upsetting him. My kids and a few other close family knew, as well as the people I worked with and a few other colleagues/friends. If I'd had a more serious diagnosis and would be undergoing chemo or radiation treatments, then probably a few other people would have to be told. I think it's a very individual thing. My point is that if you wait till your diagnosis is more certain, you might be able to give your family the news within the context of having some idea about what the game plan will be. If there's no metastasis and you're a candidate for surgery, that is very reassuring news. Even if it has spread, though, or surgery is not an option, there are a lot of people here with positive treatment results, so you can present the news in the context of, "Yes, I have cancer and it's not great news, but there are effective treatments, so there's hope." Bottom line, do whatever feels right to you. Every person, family, and cancer is different. Glad you found us--hope you are able to enjoy your trip!
  8. Hi Isabelle- When I was diagnosed, a nurse strongly recommended sharing my diagnosis with people as soon as possible as there will never be a “good time”to share this news. Yes my friends and family were totally devastated by the surprise diagnosis however we’re adapting to the new normal. We received support from the least expected places. This is a marathon you will need a strong support system in place to carry you through the rough patches, uncertainty, & celebrations. Keep us posted, Michelle
  9. Yep, you need a new pulmonlogist. That doctor's behavior is not acceptable.
  10. I have two daughters as well and I wondered about telling them about my situation, but my wife told me that they'd be pretty angry to have to hear about it later so I did share with them. In my case, while it was a shock to them, they're very supportive and I find that very comforting. Each family is different, so you need to decide for yours, but their strength may surprised you. Lou
  11. Isabelle that’s a terrible way to treat any patient and yes I would push for another doctor. I’m not a doctor but have to wonder way she was so upset you were waiting a couple of weeks. Did she say? It all seems so harsh. Enjoy your trip and based on my experience nothing moves quick when it comes to testing, results and treatment.
  12. My first interaction with the pulmonologist did not go well at all. She was very aggressive, kept referring to “your cancer”. I have only had one CT and no biopsy yet. She was very annoyed that I wanted to put off the biopsy for a week or two for a trip to Europe, told me I would probably be dead by November (granddaughter’s wedding), if I don’t die on the trip from a blood clot. As an RN, I felt she was completely off the wall and disrespectful. I have asked to be assigned to another pulmonologist. I never have and would never address a patient as she has addressed me. Thanks.
  13. My husband and I fellow cruisers and for us it’s just being on the ship. I’d love to to a transatlantic cruise one day. We missed cruising last year with the cancer stuff but won’t miss again. Have fun and enjoy!!🛳
  14. Thanks all, Lou T prayers most welcome. Wondering if anyone here chose to keep this information very private, not shared with children. One of my daughters has been through so much in her life, Katrina took her home, multiple near death accidents. This has been a time of joy, as her daughter is getting married in November. I don’t want this health information out there, because I know she will be devastated. I know my older daughter will be hurt by this also. This is the hard part, not having anyone to talk to, except God. Thanks
  15. Green Tea.....I don't know how it works...but, nothing works better for the lungs after a lobectomy...I've had two...and each time...it was Green Tea that was my miracle...The real stuff … if you have an Asian Store close by....can't hurt to try it. Cheers ! …..and just to let you know...it does get better !
  16. Thinking about you....you can private message if you like....xo

  17. Hooray Renee! Thanks for advocating with our lawmakers and thanks for being a thriving cancer warrior! Glad to hear Keytruda has kept your lung cancer at bay, it has helped so many people, including my mom. Happy you have found us! Take Care, Steff
  18. Thank you for the advice @Rower Michelle My mother is a fellow tree hugger. I’m all set up with oils and spraying Thieves in the back of my throat.
  19. Hi Curt- Wow- given the odds I’m surprised you made it this far without the creeping crud. At the risk of sounding like a tree hugging hippie- you might want to consider diffusing essential oils at night. DoTerra makes something called On Guard. We added some Frankensence with orange oil in the evening. My cousin also uses this with reported good results. We have a nurse at the clinic that runs classes which she believes is vital for the immune system. Either that or a simple humidifier will help plus lots of green tea. Get well soon!! Michelle
  20. Hi Isabelle. Welcome to the group. Like you, I I'm just beginning my journey with LC and I can tell you that you'll find super support, knowledge and experience here from a great group of folks. I'll keep an eye out for your results and my prayers are with you. Lou
  21. What a story Renee. Welcome to the group. Great folks here.
  22. Hi Isabelle 49 and welcome. Keep us posted and let us know how we can support you. BridgetO
  23. Yay Tom, I’m with you sweets I am a traveling fool and nothing is going to stop that. This is an exciting trip. Hope you have a blast and keep us posted.
  24. It sure isn't offensive to me, thanks. I pray for the folks I've met here as well. Lou
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