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  3. Hi kjaMom, I am so sorry that you have to see your son deal with lung cancer. But I am happy to hear that he has a loving mother like you! I'm a caregiver for my mom who has had NSCLC twice, originally 5 years ago and a recurrence 4 years ago. Watching my mom go thru treatment was tough for me. I'm lucky that she is a good patient and does what she is supposed to. As for what you should do next, I wish I could tell you that. Here's what I did, maybe it will help: I armed myself with as much knowledge as possible about my mom's type of lung cancer and the treatments she was getting.
  4. Hi Valerie, welcome. I'm sorry to hear about your adverse reactions with immunotherapy. My mom was on immunotherapy for 1.5 years for NSCLC and I have an aunt who was on it for 2 years and is back on it, both time for lymphoma. My mom felt some joint pain, but she also has RA, so we did not know if it could be contributed to immunotherapy or RA. My aunt did not report much for pain. It's not unheard of to have aches and pains with immunotherapy, but you should notify your doctor. It may be the sign that the immunotherapy is causing inflammation throughout the body and low dose steroids m
  5. My name is Valerie. I am 28 years old, and I was diagnosed with lung cancer at age 26. I went through chemo no problem. I didn't even get nauseous, and my hair never fell out. The only bad symptoms I had was that it gave me terrible heartburn and fever like symptoms for a few days after. The results were stable. I was then put on Tagrisso. It wasn't bad either but I had occasional nausea. However, my tumors grew, so we switched to Tecentriq, an immunotherapy. Ever since I've been on immunotherapy, after treatment, my anxiety, pain, and depression increases for about a week and
  6. I'm so sorry to hear about your son's diagnosis. We have a Caregiver Meetup on Zoom on Thursdays. https://lungevity.org/for-patients-caregivers/support-services/virtual-meetups-for-lung-cancer-patients-survivors-and z We also have a Facebook Group for Younger Adults if your son would like to connect with other younger lung cancer patients and survivors https://www.facebook.com/groups/YASlung/
  7. Yesterday
  8. That makes sense now. It's stupid how the media and journalism always misinterpret and blow things out of proportion in order to make headlines. Being able to completely cure cancer will take a long time, like with AIDS. The advances in treating AIDS successfully developed over many years. The same is with cancer. Having said that, big advances have been made in treating and curing cancer and I'm hopeful that each year researchers and doctors are getting closer to finding effective treatment that will enable people to be cured from cancer and if not cured to live a long, full and healthy life
  9. LouT

    kjaMom

    kjaMom, Welcome to the forum nobody wants to be a part of. I'm sorry to hear about your son's diagnosis. Most of the cancers found here are either found while looking at something else or overlooked as a symptom of some other sickness. You'll find a supportive and knowledgable group here and people who have had all forms of treatment. In my case the cancer was NSCLC Squamous Stage 1a and was treated with surgery alone. Many others here have had experience with different forms of chemo and immunotherapy and I'm sure you'll be hearing from them shortly. Many are long-term survivors wi
  10. There are two generic types of cancer: the cancer that you have, and the cancer that has you. And the yin and yang is what defines 'canceritis.' The internal struggle between being defined by your disease versus living a life in spite of your disease. The former is easy; you're a victim of an insidious, in some cases, incurable disease that causes myriad problems, shall we say; physically, emotionally and psychologically. The latter is hard. Sometimes, overcoming the former in order to live the latter is much easier said than done. The reason being, primarily, that cancer isn't a killer becaus
  11. Deb W

    Scanziety...

    Gary, I have seen an improvement in most labs and most are in the normal range now- HCT is at 35 now and HG is still low at 10.6, but that's an improvement for me. Platelets are normal now. RBC is going up as well. I'm not sure what ANC means. MCHC (haven't looked that up yet) is still low - not normal yet and MCVB (haven't looked that up yet) is up (higher than it should be.
  12. Hi...I'm new...my son is 41...he was diagnosed February of 2020 with sclc. Its in a bad spot at the top between the lungs. They said he probably had it in January as the Dr. did not see the tumor then and said he had pneumonia. When he returned to E.R. in February, the new Dr. said "hey I see a tumor in the old xray that nobody noticed a month ago. So in March he started chemo. (? platinum) and gave him fasttrack social security thank God. He also had a small tumor on adrenal gland at diagnosis. Otherwise scans were clear. Stage 3 b or c ? He had12 weeks of the platinum and was much impr
  13. GaryG

    A Possible Cure?

    Jack! I am quite familiar with Motley fool. Their reporting mirrors the stock market one day up and one day down. Personally I will never quote a Wall Street or market related entity . We better stick with honest scientists and researchers.
  14. jack14

    A Possible Cure?

    I remain hopefully optimistic though, Catlady.
  15. jack14

    A Possible Cure?

    https://www.wired.com/story/the-complete-cancer-cure-story-is-both-bogus-and-tragic/?fbclid=IwAR38Gehp9RWnCl8yh-LI2xY_Ikexqt_6MWKSLFrbeVuv_s68847pWEBAa9c
  16. jack14

    A Possible Cure?

    https://www.fool.com/investing/2019/01/30/a-cure-for-cancer-next-year-the-stock-market-says.aspx?fbclid=IwAR2jmNlIGN7sndC03tHitMFDuE9dIzPwSG-B-XE5DvtrRASGG-uhf9HCeOc
  17. jack14

    A Possible Cure?

    https://www.forbes.com/sites/victoriaforster/2020/01/20/a-year-ago-an-israeli-research-group-said-they-would-cure-cancer-within-a-year-did-they-do-it/#5c6b3b815e8d
  18. Deb, Nasty stick! I've had a bleed after a stick, just like you described. My nurse said sometimes the vein stays open! Some chemo drugs after a period of time cause various forms of neuropathy. My first six Taxol and Carboplatin infusions didn't cause any neuropathic symptoms but my next six caused a neuropathy in my feet and toes and arms and fingers. My med onc called this symptom Taxol toes and said it would go away over time. Now 16 years later, it is still with me. I'd report the tingling to your doc because it could be a side effect from your chemo and more important, it
  19. Hi everyone, I wanted to see if anyone has had this experience. Three weeks ago at week 7 of treatment I looked down at my arm and the bandage was soaked with blood. It was such an easy blood draw. I didn't even feel a pinch so I hadn't been looking at the bandage. I asked the oncologist what he thought happened and he said it could be due to coagulation, but he didn't really think so...but he can check if I would like...WHAT? I didn't have the test run, but now I'm worried about that happening again tomorrow. I'm going to have them use the other arm. I don't have a port and was n
  20. GaryG

    Scanziety...

    Deb: Some answers do not make sense. My favorite one is when they say "We are busy today" after making you wait over an hour for infusion. Honestly one person told me that and I was the first appointment in the morning. I found out one thing, cancer teach patience. TSH is always tested in my case. Since you are way ahead of me I have a question regarding blood tests. When I look at my record on line, the results are listed chronologically so I can compare the numbers from the first test to the last. Some of them are always red(out of the norm) like ANC, RBC, Hemoglobin, Hematocrit and
  21. Deb W

    Scanziety...

    I experience something similar. When I pull up to the hospital I begin to feel nauseated, but I try to ignore it and march ahead for the labs and treatment. I have my 7th treatment tomorrow at 8am. Will be taking the steroids today so I'll have the whole house cleaned by the end of the day! Has anyone had this happen? I was looking over my labs and noticed there was no result for TSH last time. I wrote a note through the portal and the nurse replied, "We're sorry, but it wasn't done." I said that I thought it was protocol and to please make sure that it was done each and every tim
  22. Why scepticism? Israel is one of the countries with the best medical and technological advances. Obviously the theories need to be further developed and tested, but it looks hopeful.
  23. Tom Galli

    Scanziety...

    Jack, How about immunocrazed? It is a crazy process that leaves one dazed. So it could be immunodazed! Maybe that is better. Immunodazed: the combination of feelings, maladies, and emotions experienced while enduring recurring immunotherapy treatments along with all the nasty accompaniment (blood tests, mouth sores, steroid intervention and so on). Stay the course. Tom
  24. Judy M2

    Scanziety...

    My monthly blood test is tomorrow too! Good luck to us all.
  25. jack14

    Scanziety...

    Yah, they don't do a CBC and a Comp metabolic panel for kicks... Kidney, thyroid, and liver function, blood glucose.... any one could get us out of treatment for awhile or permanently. But, I think one will more than likely have some sign / symptom. like loss of appetite, thirst, malaise, weakness, tender belly, yellow skin etc that would tell us that we might need a break. No point in worrying, we are the warriors who face whatever comes at us with courage and diligence.
  26. jack14

    A Possible Cure?

    There are some rational reasons for guarded skepticism in regards to this Israeli companies claims. But it is still worth watching, and hopefully we will see something enlightening soon from someone.
  27. Last week
  28. We can certainly come up with one! Generally we simply say WAITING SUCKS. So along that line... WUCKS?? Open to suggestions..... I hear you loud and clear. I’m due for labs tomorrow at 1pm... results with doc on Wednesday, never know when something screwy is going to pop up.
  29. jack14

    Scanziety...

    I am familiar, quite familiar in fact, with the term "Scanziety". I have experienced it a few times now, while waiting for the results of CAT, MRI, or PET scans to come back. I am also finding the waiting for my blood labs to clear before getting the go ahead, for my tri-weekly Keytruda infusion to be equally worrisome. Does anyone have a term for that yet?
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