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  2. BridgetO

    Radio or chemoradio

    Yay Nel! You can do this!
  3. Today
  4. Robert Macaulay

    Radio or chemoradio

    I was diagnosed with Stage 3b This time last year 2018 and there plan was chemo and radiation and I have never regretted that plan of attack . Now on Immunotherapy for last six months and half way to completion of the yearly treatment. Que Sera Bob
  5. Road bum

    Disease progression on Keytruda (Immunotherapy) - Options?

    I am sorry that your Dad is going through all of this and I will say a prayer for you and him. I have stage 3A adenocarcinoma. My Doc had me on 4 cycles of Chemo and Keytruda and then 5 cycles of Keytruda. I had two more cycles after a scan showed a progression in the size of my cancer. The Doc has now got me set up for Taxotere starting next Friday. Their are a lot of options and you should talk to your Dad’s doctors and see what you can work out with his care team. Try to stay strong for your Dad. I know it is tough but try to hang in there. My prayers and positive thoughts will continue your way. Ron .
  6. Road bum

    Radio or chemoradio

    Hi Nel. I was diagnosed with Stage 3A mid year of 2016. I went the chemo radiation route after surgery. I was never sorry. I had some days that were not any fun but I did what I had to do. My cancer showed up again in May 2018 and I am once again in the fight. All of us here would agree that if we could chose we would not chose cancer. We would also agree that attitude is everything no matter how it goes. You can do this, whatever decision you make will be right for you. But most of all just believe, you can do this. Ron
  7. Yesterday
  8. Barb1260

    Esophogus problem?

    Radiologist was surprised this week that I have not had any esophogus issues. Well, last night I had a weird feeling when I swallowed, today it’s worse. Feels like something is in my throat at the same spot as the radiation. No pain, just a swollen feeling. Is this just a side effect as I’m assuming?
  9. BridgetO

    Mrs Michelle Holdsworth

    Hi Michell and welcome. I'm sorry to hear about your husband's SCLC. Is he getting Tecentriq (atezolizumab)? It is an immunotherapy drug recently approved in the US for SCLC. I's been found to have a real benefit in survival. I hope you'll hear from some SCLC survivors.
  10. Mshell

    Mrs Michelle Holdsworth

    Hi are there any Sclc survivors on this forum I’m looking for some hope my husband diagnosed July 2017 ! We live in the UK / we are told a 5 year survival rate at best ?
  11. PaulaC

    New member. Third round

    Hello Ron, you’ve got this!
  12. Thank you, Pam and Ron. I'm very fortunate that people like you and others have taken the time to provide such invaluable insight. This really helps us with our decision, and even more importantly, reaffirms that there are such incredible people like you in this great country. I was given my diagnosis on Feb 14, and have to admit that everything the Oncologist said after her "2-4 months without treatment or 12 months with treatment" went over my head. I was numb. Luckily, my wife was there to keep me focused. She tells me they will be including immunotherapy along with my chemo. We are scheduled to meet with a radiation oncologist on 2/18, and will proceed with treatment. My wife and I will now begin the long road living with this diagnosis. I will keep you posted on our journey. There are no MD Anderson facilities nearby, but we will be using Northwestern Medical, which is highly recommended.
  13. Seventhson

    Neuroendocrine lung cancer .

    Just wanted to check in with you and see how everything is going. Hope all is well.
  14. Seventhson

    Pathology Results

    Great news good for you. Very happy for you.
  15. Hello my name is Michelle I am from the United Kingdom, My husband was diagnosed with SCLC July 2017 ! He now has a secondary in glands . Just wondered if there are any survivors beyond 5 years of this horrific disease. Would appreciate any positive stories. Hope is all we have
  16. AnnaTaters

    Throat irritation and involuntary exhaling

    Did you figure out what is was .
  17. Rower Michelle

    Update and 2nd round of chemo

    Hey Moonbeam- Thanks for checking in & giving the update. I’m glad things are going well so far. You made me smile with the buzz cut! About fifteen years ago my husband got tired of paying for haircuts so he went to Walmart & purchased a buzzer. When we head to the clinic- most people think he’s the patient! Anyway buzz cuts are still considered to be quite fashionable & your hubby might want to keep it post chemo as part of his new look! You are locked & loaded for whatever comes your way. I admire your strength. I hope you are taking care of yourself too. Stay strong! Michelle
  18. Tom Galli

    Update and 2nd round of chemo

    Moonbeam, You are doing everything thing possible to mitigate side effects. Recording onset hours after infusion and using prescription meds ahead of onset is the best measure you can take. My side effects were not cumulative. Nausea remained at the same intensity as did joint pain. I hope your husband’s experience parallels mine. Stay the course. Tom
  19. Moonbeam

    Update and 2nd round of chemo

    2nd round of chemo finished. All went well. The last few days his hair was coming out a lot - so he took the plunge and got a buzz cut. We talked about it and felt it would be best to buzz it so the shock of bare head would be easier in increments. He looks amazing. Such an adjustment for him. However, it was time. I’m amazed by his positivity and applaud it! Applaud everyone who goes through this. Not sure I would have the strength. Hoping all stays the “course” as Tom says. Ready for the nausea and fatigue. Will be on top of it as I’ve taken all advice and wrote everything down day by day. Tomorrow afternoon, my husband get the Neulasta shot and hoping he handles just like 3 weeks ago. 🙏🏻 I know what symptom (s) hits on what day and how long it lasts, but I am still waiting for something to rear it’s ugly head. Not my personality, but cancer and chemo seem so unpredictable. 😩 I read it’s cumulative so I just wonder... I loathe the unknown and want to be prepared. I believe I am ?!?! Just feel at times, the nurses and dctrs are too positive and it’s those that have been thru it know what it’s like each time. Hope everyone is doing well and thank you as always for being there for me!!! ❌❌
  20. Road bum

    2nd opinion?

    I did not get a second opinion but then it seems like my situation is different than others. My primary doctor sent me to the Montgomery Cancer Center 2 days after my cancer was found and biopsied. The center recommend surgery first and then chemo and radiation. A week later I was in Birmingham at UAB medical center being prepped for surgery by one of leading Thoracic surgeons in the US. 3 weeks after that I went in for my radiation treatment which was every day for 33 days with chemo on Friday every week. I was extremely pleased with my care but I wouldn’t have hesitated on a second opinion for a minute if I wasn’t. We are all dealing with something that we want to get right the first time. You have to feel good about your care and caregivers or you are one strike down before you start.
  21. Road bum

    Pathology Results

    Best news in the world.
  22. Last week
  23. Pam Vandeberghe

    small cell lung cancer and moved to brain as well

    My husband was diagnosed with sclc in February of 2018 (almost a year ago). He had a couple of pretty large tumors in his right lung (inoperable) and lymph node involvement as well. He began chemo treatments a week after diagnosis and they used carboplatin and etoposide. He had 4 cycles that were 3 days each. Starting with his second cycle he also began radiation on his tumors. 30 treatments, 2 a day for15 straight days. Then had 10 low dose brain radiation treatments (PCI). It all lasted from February to July of 2018. You are correct about the tethering statement as we have practically lived at the cancer center. The cancer has now metastasized to his liver and he has undergone two more cycles of chemo now along with one of the new immunotherapy drugs, TECENTRIQ. He had 6 liver tumors which 4 are gone now and the remaining 2 are 50% smaller. He has had TECENTRIQ 3 times and is tolerating it fairly well. They have now found a spot on his rib bone so have stopped chemo but are continuing Tesentriq and adding a drug called zometa for bone strength. He will get scans every 2 months now instead of every 3 like he had in the beginning. The decision is ultimately yours and your family’s, of course, but we both would recommend you do treatments. Our family has had the blessing of him still being with us for almost a year now, when it appeared to be a very grim situation in the beginning as I’m sure it is for you right now. It has been VERY hard on him (and me too) but would we take the same course again, knowing and going through what we have? He and I both say yes!!! I will tell you the honest truth. He was hospitalized 3 times, low sodium, needing blood transfusions, and got sepsis on top of all that! He’s always been a very strong man. A brick mason. A weaker person may not have been able to endure all that he’s had to endure and I really believe strength is important for these types of treatments. But, for any side effect, they usually have something that will help too though. It’s a very hard road to go down but I would recommend that you do it. Any extra time you get is a blessing and every day they are finding new immunotherapy drugs to help sclc. Despite the extremely rough journey there is always hope. Everyone responds differently too so you could have an easier time of it than my husband has. Take care and the very best of luck to you. If you are near an MD Anderson facility, my husband and I would strongly recommend them too. I hope sharing his story has helped you. Keep us updated.
  24. Road bum

    Good CT scan results

    Best news ever. Keep it up!
  25. Road bum

    New member. Third round

    Hello all, I just copied this from the intro topics because I didn’t figure I would get it all typed again. So you will have to excuse me. As the title says I will be starting my third round of chemo Friday the 22nd. My diagnosis was NSCLC adenocarcenoma. I had a wedge resection then Chemo and radiation in Sept. 2016. I was NED until May 2018 then my CT scan showed some uptake in the area where the first problem started. The new mass was small so my Onc started me on 4 cycles of Carbo, Alimta, and Keytruda with a unspecified continuation of the Keytruda. 8 months later CT, PET scan and a bronchoscopy with biopsy indicated the mass had grown almost 3 times the size it was in May. It was cancer but not conclusive about the adjoining lymph nodes but “it could be cancer”.So bottom line is the third round will start Friday the 22nd with Taxotere. Radiation can’t be used on my lungs because of the amount I received the first time around. Nothing has been said about more surgery. My attitude is good and I am anxious to get started and see if this round is mine. Ron
  26. Barb1260

    Good CT scan results

    Congrats! Have a good weekend.
  27. Barb1260

    Third round

    Stay positive-it really does help!! Best wishes
  28. Barb1260

    Radio or chemoradio

    Hi Nel-glad you have a plan set. Stay strong.
  29. Road bum

    Good CT scan results

    Beautiful!!
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