Jump to content

All Activity

This stream auto-updates

  1. Past hour
  2. Today
  3. Welcome! I'm sorry to hear of your diagnosis, but so happy you found this group of helpful and supportive people. Here is some information on squamous cell lung cancer: https://lungevity.org/squamous-cell-lung-cancer It has treatment options and other information for someone recently diagnosed. Please keep us updated on how you are doing and feel free to ask any and all questions you may have. We are here for you!
  4. Hello Everyone! I'm not new. In fact, my Adenocarcinoma (Pancoast) lung cancer journey began in October 2004. I was diagnoised at State IV. Mets to chest wall and liver. I was given 2-6 months with treatment and 1 to 2 years with treatment. I've had reocurrences. One time, I was told to get my affairs in order. Yes, I'm still here. Thank God. It started off crazy (as I would imagine, everyone else did too). But, what I am searching for are connections. People like myself. Someone to relate to. Anyone who has the same issues (or close) as mine. I have had my share of issues over the past (soon to be 17 years). The feelings, the thoughts they keep coming back to a word I discovered a few years ago. Guilt. Then there is the treatment. I'm still on Tarceva. I've been on Tarceva since 2005. Sometimes I feel stuck in time. The world moves on. My issues might be unique. I don't know. Sooo.... I have lost so many friends and family members during this 17 year survivorship. I can no longer count them on my fingers. I meet people at my checkups and I want to encourage them. But, I know in my heart they are asking WHY NOT ME??? You see, there is no reason. There is no medicine. No answer. Nothing I've done or didn't do. It was all out of my control. I've got nothing to say. No support. No advice. No secret. Nothing. That leaves me feeling like a failure. Like I'm not doing what was intended for me to do. But, what exactly is it I'm supposed to do? Doctors see me at my checkups. They read the scans. They check out new areas of interest. They say I am a miracle. I go back and forth between 3 month checkups to 6 month checkups and now again I have graduated to a yearly checkup. Please do not misunderstand, I am grateful. I am scared too. I am always scared. When I was diagnosed, my son was 6 years old. I grieved all the things I would miss. I have a 9 month old granddaughter now. Imagine that. I have everything to be grateful for. Yet, this old feeling seeps in. I think it's called Survivor Guilt. And I know it's a lonely place to be because there aren't many. I want more! I want you to know that I cry for you. All of you. I am so sorry that many of you are going through the worst fight of your life. Make everyday count. That's all I can do. That's all I did. I talk to God alot! I no longer take things for granted. I am not a miracle. I am so much less. And Everything and Everyone I see is so very beautiful and so precious. Life has it's share of hard times. This body, this Cancer did not define me! I continue to turn it into a Blessing. Not an End. My body may end one day, but I won't. Since I am always searching for the Why (because I am human) I ran across this and I thought it would be worth sharing... Isaiah 57:1-2 King James Version "The righteous perisheth, and no man layeth it to heart: and merciful men are taken away, none considering that the righteous is taken away from the evil to come. He shall enter into peace: they shall rest in their beds, each one walking in his uprightness."
  5. Hello all, I had a biopsy on Tuesday and the pathology came in with a Squamous cell carcinoma in the lower right lower lobe of the lung. Have appointment with the oncologist on Monday. Don't know anything else. Just found this website and forum so here I am. Hope to learn a lot and get through this with the help of family and friends and good doctors. Thanks Carole
  6. I'm so glad to hear that the celebration of life for your mom brought you closure. Thinking of you and sending a hug.
  7. Blossomsmom

    A year

    Thank you Tom. It doesn’t seem possible that it’s been over a year now since my mom left us. Sometimes it seems like it was yesterday other times it seems like forever. The Celebration of my Moms life was a wonderful evening. My mom would’ve loved the party. It brought me a sense of closure that I wasn’t expecting. It was the last thing I needed to do for her so although the book will never be closed, that chapter is finished.
  8. TJM

    A year

    Wow. It's been a year already? And sorry I am just now responding. Just saw your post? Hope the celebration of life went well and maybe provided just a little more closure. Peace Tom
  9. So sorry to hear that news. I hope he is comfortable. Actually surprised there is absolutely no treatment...or is he to sick for treatment? In my thoughts Peace Tom
  10. Yesterday
  11. This seems to be such a rare form of cancer it's likely not prioritized for treatment. My prayers for you and your family. I hope they can make your dad as comfortable as possible. Lou
  12. I also was prescribed pantoprazole and took it for several months. You do have to watch your diet. I eliminated dairy products and substituted mango sorbet and coconut ice cream, which were soothing. Obviously no crunchy, salty or spicy foods. Bland is best. But even avocados killed me! The first time I had that heart-attack level pain I thought it was a heart attack, but it was just the acid reflux. I hope both of you get relief. It may not feel possible now, but I assure you it does get better.
  13. Very sorry to hear this, Nav. I hope your dad can be made comfortable.
  14. Last week
  15. Yeah we just got a 2nd opinion and the prognosis of my dad is not good.
  16. They are not suggesting ANY treatment? I would get a second opinion ASAP. Peace Tom
  17. Nav, I wish I had some information or suggestions for you. Unfortunately, all I know about Glomus tumors is what I read on Wikipedia. Stay the course. Tom
  18. Sarah, Welcome here. I've had drains, one for about 3 months, surgically placed for lung drainage. My cause was to drain fluids after surgery. Some have drains for pulmonary effusions related to lung cancer or for other reasons. Is your mom a lung cancer patient? Are her drains (ports) associated with treatment? If you can give us some details about the drains and reason for them, we might be able to provide more a more detailed response. Stay the course. Tom
  19. Hi , I know there is not much knowledge in the group about Glomus tumor. My dad is currently on the ventilator due to respiratory distress due to the 10cm in his left lung. They are trying to wean him off ventilator however it’s looks far fetched. They are wanting to extubating him and since he is alert and cognitive we are scared to extubate him. Anyone in similar situation. He wants to live however we are not given any treatment options. What to do?
  20. Thanks so much Sally! I'm glad you are almost healed. What a thing to go through! I took the carafate yesterday for the first time. It seemed to work, which surprised me. It's a liquid, and I take two teaspoons full on an empty stomach. So far, I've only had one day with a lot of pain and it was after I ate lunch at a restaurant. That was when I kind of freaked out because I'd never felt anything like that before in my life. I called the doctor and he prescribed the carafate and the magic mouthwash (which I haven't tried yet) right away. I'm also taking a prescription antacid, which I think is helping. I'm hoping I can control some of it with diet. Tomorrow I'll be half way through my radiation treatment, which feels good, but I realize that things could get worse.
  21. Hi there, and welcome. I suggest you start a new thread (click here and then click the “start new topic” orange button at top of the page. Tell us about why you’re here and what kind of help you’re looking for. Glad you found us!
  22. I had pleurx catheter placed to drain the fluid from my right lung. I've had it about 5 months. My husband is able to drain it at home. The amount of fluid has finally started to decrease.
  23. Hello I am searching for this information for my mom. She had two ports placed for lung drainage. I need to know if anyone has had this problem?
  24. Yes I am on sucralfate, same as carafate. Started it when esophagitis reared it’s painful head. The GERD was worse for me also, the acid going all the way up my nose is like fire! They started with Sucralfate, which you put in water to dissolve and drink slowly before meals and before bed. Then added Pantoprazole and Famotidine, both twice a day. No magic mouthwash, wish they had. My radiation was also shorter. Do you dissolve Carafate? My esophagitis is almost healed and the GERD is getting better. I feel for you so much! It is sh#**y side effect for sure. Palliative care sounds like a promising option. Either road will be sending positive thoughts.
  25. Hi! There have been quite a few posts about Keytruda. Here is one where people discuss their side effects: Sometimes it helps to start a new post with a new question and you might get more answers on that topic. Hope that helps!
  26. Very true! The hurry and wait is the worst part. I made an appointment at Sloan Kettering for Friday, they will review my scan and x-rays and will do whatever is needed from there. I know something isn't right, cancer or not, so I wanted to be proactive and just go to one of the best in my area. Will keep everyone posted. Gina
  27. Our body needs a small amount of cholesterol to function properly. But we can get a lot of saturated fat and cholesterol from food. Both increase the amount of LDL (bad) cholesterol. LDL cholesterol can cause plaque build-up in arteries, leading to heart disease. HDL (good) cholesterol helps cleanse bad cholesterol from your blood. We need to lower LDL cholesterol and increase HDL cholesterol. Here you need to start by adjusting the diet. Okay?
  28. Gina Your learning one of the worst part of LC. The waiting. We all get it. But the wait will be worth it. Welcome and wishing you well. Peace Tom
  1. Load more activity
  • Create New...