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  1. Today
  2. I’ll be surprised if the radiation is tougher. I took it on like nothing other than the esophagus issue. It’s still going to scare me, but getting some reinsurance that it isn’t as bad is somewhat reliving. As well as today as definitely easier with the esophagus and I believe it’s starting to go out. I was able to talk a lot more and eat better today which is progress. I also stated driving again, my neck has definitely felt a lot better since the initial fracture, I just need to get back to working. In due time 💪🏼
  3. I was given the lidocaine cream and put it on at least an hour before the stick. If I forgot, the jab reminded me to do it next time. My port punctures always stang pretty bad....but better than hunting for axvein! Peace Tom
  4. Hmmm...whatever floats the boat I guess. The important thing is to have the port if a person needs it. At first they weren't going to give me one because I was only getting what they call "a short four course total treatment". The chemotherapy RN looked at the oncologist and all she stated was, "He is getting a port." I was surprised when the oncologist said not a word and rather in fact seemed to readily aquiesce to the RN's experience. As it is, shortly down the road I'm very glad of the RN's insistence. Just with the few sticks I had through diagnosis and my surgery I learned quicky t
  5. I found radiation to be more impactful to me than Chemo. I had a crushing fatigue the last two weeks. I managed to get thru chemo with almost no issues (had to skip one treatment hue to blood counts) and few side effects. So...in my book you already have done the hard part! Peace Tom
  6. I am busy getting ready to travel to the Mayo in Phoenix...I will have the surgery Wednesday---Monday and Tuesday I have pre-op apts. Just packing and getting details done. Thank you everyone for your input. You all are so helpful. I'll update on the other side. Noela
  7. It was just automatically prescribed to me. This was just par for the course, I guess. Probably just the way my doc does things. Ah well, I'm good with it and it works. The only thing I get swabbed with is that orange cleaning stuff.
  8. I got the same spray numbing agent as Lexie and Jesse. My chemo nurse was very good at the "stick".
  9. Yesterday
  10. I've never been given anything to relieve a port stick prior either....must be a regional thing. They just spray some numbing agent and stick me. It's kind of weird really because all the while they're apologizing for the pain they're causing me. In reality, I barely feel it at all...it was a whole lot worse when they were sticking the viens in my arms and hands. I shudder when I think of all this without a port... Stay in touch and keep the faith...!!!
  11. Hey...following your threads on here and after getting my first infusion on 4/5, I can say for a fact that the information you've got from everyone is pretty much right on the money. Oh, for sure I had my fears too (still do really) and to be honest the chemotherapy can make you feel like crap at times, but it's a whole lot better than the alternative. OK, I got it...why me but then again why not...there's no guarantees out there and all of us have to take life as it comes. Just be committed and stay in the fight. It definitely makes a difference having this crowd to talk to...you know, t
  12. I've NEVER gotten a prescription for topical anesthesia for my port. Maybe you're especially sensitive to pain? When they access my port, they swab a bit of numbing agent a minute or two before they stick me, and I've never felt more than a twinge. Maybe different procedures different places, or for different patients...
  13. Hi, Sheila! First of all, I understand what you meant about it "selfishly" making you feel better to talk to others who are in the same boat. Not selfish at all! The best support comes from people who can honestly tell you that they KNOW how you feel, instead of someone just sitting there nodding and "understanding" how you feel. While the latter means well, they haven't walked the walk. But any support is always appreciated. About the chemo. Since you are on a triplet, the appointments could take 3-4 hours. They'll do labs on you first, then there's usually a little bit of a wait
  14. Sandy, first off, good news! And I wish you well with your chemo treatments. I hear you about hair loss. It took me a year to get my hair back (after carbo/taxol), but my eyelashes continue to fall out at random times. I have to take a biotin supplement (with onc OK) for my hair and also my nails, which are splitting from Tagrisso. But as you say, I'd rather lose my hair than my life. Best of luck with this next phase.
  15. Chemo can be daunting and terrifying at first. But it really isn't that bad. They will shoot you up with anti-nausea meds prior to beginning the drugs. It's not a bad idea to have prescription anti-nausea meds as well but try to go easy on those if you can. They cause constipation which in and of itself can create nausea. Some chemos do, too, so that's something to keep in mind. You should get "chemo ed" by one of the nurses or your onc prior to your first infusion and they will let you know what you might expect. Not everyone experiences all of the side effects. Some do but I'm going
  16. My last treatment regiment prior to this one was carbo, alimta and mvasi. So I totally get what you are going through. I had a tinge of nausea but really fought taking any of the anti-nausea pills they prescribed to me as they caused constipation. I've probably only taken 2-3 of those things since I was first diagnosed and started treatments in Fall 2019. So far the anti-nausea drugs they shoot me up with prior to my treatments are doing the trick. I found that the nausea related to constipation was just awful. I have used Milk of Magnesia and that really helped. If you can, get the che
  17. I just tried to send you a message, Bridget, but your mailbox seems to be full. The link is still there.
  18. Hi, Steph, I've been in your shoes, only my second cancer was discovered three years, almost exactly, from my lobectomy. If it turns out to be cancer, the diagnostic drill will most likely be similar to what you went through before. There will more than likely be a PET-CT, biopsy (if possible), and testing for biomarkers. The treatment will depend, again, on the stage. I wasn't excited about having more lung removed, and my oncologist said if it came to that, I might be a candidate for Cyberknife (precision radiation). Unfortunately, in my case, I not only had a few lymph nodes that
  19. Hi Alex. Yes, please do tell us about yourself and your connection to lung cancer. I have deleted your signature line since it had a reference and link to a commercial site.
  20. Hi...today was my 6 months scan. It’s my 3rd scan since my RLL lobectomy in Sept. 2019. I had stage 1a adenocarcinoma. Today they told me there is a small spot on my right upper lung and they want me back in 4 months instead of 6 months. I’m a little scared. I just read the report and it says: “Status post right lower lobectomy and mediastinal lymph node dissection with stable postsurgical changes. Mildly increased 1.3 x 0.9 cm, previously 1.0 x 0.8 cm right upper lobe subpleural irregular nodular opacity was not clearly identified on CT from April 9, 2020.” This is the size o
  21. Hi Lexie, Thanks for your heartfelt message. I will keep you and everyone posted of my Tuesday appointment. Meanwhile, let me sincerely wish the best for everyone here.
  22. Ale, that esophagitis is enough to get anyone down. It's awful but it does get better. You'll be surprised that you feel good on chemo days because of all the drugs (and possibly hydration) they give you at each infusion. I used to stop at Wendy's on the way home from chemo as a treat until my esophagitis got too bad. Make sure you have anti-nausea meds (from the oncologist) and also OTC meds for constipation. When you get fatigued, rest. Any changes in taste are temporary. Everything will settle and you'll eventually know what to expect after each infusion. You've got this.
  23. You're a ways off, remember, from having to make that decision. Participating in a clinical trial is a very personal decision. First, there might not be any that are appropriate for you or more promising than the treatments already available. Second, when it comes to cancer treatment, it's truly a matter of self-preservation first and foremost. You don't "owe" anyone and there's no obligation, EVER, to participate. I would never sign on for a trial I didn't think would benefit me. I think that's true for most people--they don't participate out of a sense of altruism. And I seriously doub
  24. Hi, Alex, and welcome! You might want to start your own thread--just scroll up to where the orange "reply" button is and NEXT to that is a link that says "start a new topic." Feel free to tell us a little about yourself and why you're here.
  25. Hang in there, Ale. I had a lot of trepidation when I first started chemo (having escaped the experience the first time around), but it was WAY less unpleasant than I feared, and when I went for that first scan and saw that my tumors had shrunk WAY down and my lymph nodes normal-sized, that made it even more tolerable. Vent away anytime, though--we all need to now and then, and you've had an awful lot of stuff going on.
  26. Dear friends on the forum, A wave of mixed feelings has suddenly taken over me. With all your encouraging messages, I feel glimpses of hope to live on. On the other side, I feel like I’m coming towards the end; the idea of buying a one way ticket to Oregon has come back... I should go on a clinical trial to benefit possibly myself and others, but I had spent a life time preparing chemo meds for other patients. I’m totally insignificant in that sense when I see so many front line health care works sacrifice their lives for the covid crisis. I see myself as a covid statistic since because o
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