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  2. How kind of you to share your mom's experience. It does sound scary when she was hospitalzed, but very encouraging that your mom was at a concert only 6 weeks later. Wow. We asked about flu shot and our onco said that he could get the flu shot a day before his first full chemo. I am not so sure, so we will ask her again about that when we go in Thursday. Maybe she will go ahead and order an extra blood test to make sure? I will let y'all know what happens, just in case it helps someone else. PS: At the advice of his Primary, hubby received a 6 year pneumonia shot when it was suspected to be LC.
  3. Today
  4. Faith&Hope, My mom is currently on immunotherapy. Although her journey is different, her outcome is one you were asking about....she received alimpta/carbo (chemo) + Keytruda (immunotherapy) for the first 6 sessions, then continued with Keytruda only. She had a tough go in the beginning - about halfway through the first 6 sessions, she was hospitalized for 2 weeks, she was full of infection and had pneumonia. It was a scary time. But she survived and 6 weeks later was at a Jimmy Buffett concert with me - she was on steroids, but she was there and having a blast. So, even if the chemo beats down your husband, he can bounce back. It may take some time and it may be very scary, but he will recover. If your husband's experience with immunotherapy is similar to my mom's it will be rather uneventful compared to the time on chemo. Take Care, Steff
  5. Robert Macaulay, thank you for your advice. It will be tough but I agree that he needs to receive two full dose. I just pray that he does not end up in the hospital again with Neutropenic something.
  6. (Oops. Didn't mean to click on quote.) Thank you, LexieCat! Thank you for your encouragement. Most of the time, I feel hope and then I happen to hear other people talking negatively and then get scared. So this is a nice place.
  7. Robert Macaulay

    Husband NSCLC 3a Wife looking for support and Info

    If your husbands blood work is good and the doctors give the go ahead I would take the two full doses. They asked me prior two the second dose if I wanted to continue and I am glad I said yes. Bob
  8. Hi, and welcome! Yeah, Bob and our other Durvalumab member, Kleo, will be your best resources on this. In addition to which, their posts are HIGHLY entertaining! There IS hope--the progress in fighting lung cancer these days is amazing! Glad you found us!
  9. Thank you for your reply, Bob. My husband had a difficult time after the last weekly chemo and ended up in the hospital for 5 days (fever and very low WBC) and before they gave him his last weekly chemo, the doctor gave him 1 unit of blood transfusion. So I am concerned about the 2 full chemo and we have a doctor's appt on Thursday and hope she will go over the details of her plan of attack. (If not, I will ask.) So we are looking forward to being done with chemo and receive Immunotherapy every two weeks. I will go read posts about you and the other and the info on this drug. Thanks again. Signed, Durvalumab member #3's wife.
  10. Robert Macaulay

    Husband NSCLC 3a Wife looking for support and Info

    Just finished very similar treatment this year and now on Durvalumab started late August on now on #5 infusions next week. The two full strength chemo were challenge for me with the side effects but do not last and my hair is now growing back. lol. You can read about this drug and posts on myself and one other on this site getting this drug. There is very good article on this drug and well worth the read on the Durvalumab posts. Welcome # 3 Durvalumab member Bob
  11. Hello, all. Husband was diagnosed back in June/July, went through CTs, 2 Biopsies. There is 1 in lung (about one inch? Not operable), the other between lungs (9mm+/-) Just finished 39 radiation and 8 weekly chemo. Getting ready for 2 full strength chemo 3 weeks apart and then one year of Immunotherapy (Durvalumab sp?) coming up. Sorry if I am not familiar with all the terminology, but maybe I don't want to. (Maybe I am still in partial denial.) My question: Has any one of you survived this? My husband is in his late 60s, but was healthy and working everyday before this. In addition to praying all the time, I would like to talk to people who's been through and maybe support one another. God bless and keep each one of you.
  12. Steff

    Concerned Daughter

    Jeni, I'm so sorry to hear about your mother's (pending) full diagnosis and even sorrier that the doc seems to be taking forever to get things started. 3 1/2 months from initial diagnosis to possible treatment seems like forever. I can tell you that my mom was originally diagnosed around Thanksgiving and did not have surgery until 2 months later. It was another 2.5 months after surgery that she finally started chemo and radiation. The delay wasn't due to testing, but other things, so it wasn't as frustrating as what you are going thru, but still worrisome. I would not take the rescheduling as a sign of good or bad regarding your mom's cancer, but perhaps a lack of good communication from the doc or worse, a lack of competency. The fact that they want to be sure of all test results first is a good thing but the fact that it is taking this long is hard for those who are doing the waiting. I don't know if it's an extreme time to wait, but I do know that treatment doesn't usually begin as quickly as we would like. You have every right to ask what is taking so long and vent your worry about treatment being delayed several times. Make the doc reasonably answer your question. Continue to ask questions until you feel they have answered them. Awhile ago, a fellow forum member reminded me that we are the customers, we have every right to have our questions reasonably answered because we are paying for the service. Take Care, Steff
  13. LexieCat

    Concerned Daughter

    What lab results is the doctor waiting for? What tests has she had--a biopsy? CT? PET-CT? Do you know the size of the nodule/mass and the type of cancer (adenocarcinoma, squamous, small cell, etc.)? You should at least be getting a detailed explanation for the reasons for the delay and the need for the lab results before treatment can begin. If you're not getting that, it might be time to find a different doctor.
  14. Mally

    Mally

    Thankyou to you all and I will post results tomorrow
  15. Yesterday
  16. Jenih702

    Concerned Daughter

    Ro... The doc keeps saying he hasn't received all of the lab results, I can understand that but it has been 3 reschedules already. She was diagnosed the end of July and still nothing has started. I don't know if thats a good sign the doc not getting her immediatly or a really bad thing because she is just waiting amd gettimg worse. Im just lost and unsure. Thank you for responding.
  17. BridgetO

    Mally

    Thinking NED!
  18. Robert Macaulay

    Durvalumab

    This is very intresting recent article on this drug. https://www.astrazeneca.com/media-centre/press-releases/2018/imfinzi-receives-positive-eu-chmp-opinion-for-locally-advanced-unresectable-non-small-cell-lung-cancer-27072018.html
  19. LexieCat

    Concerned Daughter

    Hi, Jeni, and welcome. You've come to the right place--this is a great place for information and support. Can you tell us a bit more about your mom's diagnosis (type of lung cancer, stage, test results, etc.)? That way we can provide the most helpful info. Try not to worry too much about the delays--sometimes they are necessary to ensure the right treatment is given, and in an appropriate way. Usually brief delays in the beginning don't make or break anything. Delay is more likely to be a problem when people avoid going for testing or diagnosis because they are afraid. Those delays can be a lot longer and more problematic.
  20. Roz

    Mally

    Mally, Def know about scanxiety! I hope your results show NED!! Ro
  21. Roz

    Concerned Daughter

    Jeni, What is going on with your mother? Why does the Oncologist keep rescheduling? Are they waiting for prior approval from your mom's insurance? Let us know how we can support you!! Ro
  22. Jenih702

    Concerned Daughter

    Hello, My name is Jennifer (jeni) and I am terrified to lose my mother. The Oncologist keeps rescheduling and still hasn't started mom's chemo and radiation treatments. I am trying my best to cope but I am very scared. Just looking for a little support and maybe some tips as I am the one who is generally with her. I'm lost and angry.
  23. LexieCat

    Opdivo

    Hi, leah, I'm not sure about side effects of Opdivo, but has she been checked for brain mets? What you're talking about sounds somewhat extreme. I'd make sure her doctors know about this development.
  24. Tom Galli

    Mally

    We do indeed. I’m betting NED! Stay the course. Tom
  25. leahf1

    Opdivo

    Hi Everyone, I was wondering if anyone here could help me. My mom was diagonosed with lung cancer in January 2018 than missed by the radiologist she also has liver cancer and bone cancer. After the chemo was not successful due to the fact she was only on it for the lung she was put on opdivo. Lately she has been having some weird side effects and doing weird things. For example she will forget a lot of things, put her clothes on backwards and think somehting happened when it didnt. She also has a thyroid condition which can affect the opdivo. Does anyone have an experience with this .. any information would be helpful. Thank you
  26. Mally

    Mally

    Scan time again already ..gee the 3 months fly by but at least I've only got 2 days till I see the oncologist for the results which is a godsend because you all know about the scanziety waiting for results...
  27. Last week
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  29. Robert Macaulay

    Durvalumab

    Just found out the new drug I will be receiving shortly and wonder if anyone is presently on this type of treatment.
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