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  3. Curt

    Twice A Veteran

    Thank you for your service Tom.
  4. So sorry just me. We went to our primary Dr. Friday for flu shots, husband also got the pneumonia vaccine. I asked, how did we go from pneumonia showing on a scan (August 2019) to SCLC in a little over 8 weeks? Scary indeed!!!!! Is this how fast it's growing and spreading? May I ask how old your husband is? Mine is 60. I feel horrible for our children (33 and 26) this is way too young for them to lose a parent. I am being as positive as I can. I feel there's no use for all doom and gloom right now. Let's get him in the chemo chair and see how these 3 cycles go. He will be getting Tecentriq, Carboplatin, and etoposide. All three on the 1st day and the etoposide for 2 days, then 2 weeks off. We see the MO (medical oncologist) again on Thurs and hope to get started next Monday. We also have PET scan and brain MRI scheduled. I will be crushed if he has brain mets already, but I'll worry about that when the time comes. His physical condition has also changed. Most noticeably is weight loss, constipation, and he is having pain. My very best wishes to you.
  5. I’m an armed forces veteran. Also, a late stage diagnosed lung cancer survivor veteran. A smoker, I once had little doubt that smoking caused my lung cancer. Yet almost everyone in my immediate family smoked and none developed the disease. Could the unique hazards of armed forces training and warfare played a role in my disease? Looking back, early in my career were demolition projects involving World War II era structures that were filled with asbestos. On deployment, burn pits predominated and everything was mixed with diesel fuel and burned in cut-down 55 gallon drums. As an engineer soldier, we trained extensively with demolitions and smoke and dust was a common exposure. I also directed fabrication of aluminum armored vehicles that included fumes and vapor from aluminum welding and superfine dust from machining. Lest I forget, there was the omnipresent smoke filled haze that lingered for months after Saddam decided to burn the Kuwait oil fields. I’ve inhaled a lot of stuff during the course of my Army career and maybe that played a role in the development of my lung cancer. Fortunately, there are new tools and programs for armed forces veterans that might help avoid a late-stage diagnosis. The Veterans Administration has two important programs to early detect lung cancer: VA-PALS, a low dose CT screening program for at risk vets and the Gulf War Registry Health Exam for veterans. LUNGevity is adding its weight to support veterans. We’ve just established a Veterans Forum in the Lung Cancer Support Community that is now open as a support and information resource. A low dose CT scan is a good idea for those who served. Stay the course.
  6. Curt

    Spiculated nodule

    @GiGi71 I did not go home with any tubes. Getting the tubes removed was a requirement of going home for me. I didn’t have any stitches. They use medical grade glue and bandages. I removed the bandages after about a week and was able to shower then. Before that it was sponge baths.
  7. My hubby has done 4 of the Imfinzi treatment as of this past friday. He had CAT SCANS done a week prior to this Dr appt. It appears that there is a little good news. When first Dx of Cancer (April '19) one mass was 5 cm then in Aug it was 5.2 now it is 5 cm. A few of the malignant lymph nodes have shrunk a little bit as well. One .01 another .02 no change in other 3. But hasn't spread any either. So we will stay the course for now.
  8. BridgetO

    Spiculated nodule

    Seems like my tube was in longer than most people's, but I got out of the hospital sooner than most. I can't remember exactly how long before I had a "real" shower. I had a shower bench and took a partial seated shower, with assistance, before that. I needed someone to help change my dressings where the tube came out since it was on my back, toward the side. I was able to walk around my neighborhood with the tube in place. I had a big raincoat that covered the tube and drain.
  9. Thank you both for your replies. I am meeting with the radiation onc tomorrow to discuss and will keep you posted. Jane
  10. Yesterday
  11. GiGi71

    Spiculated nodule

    So I guess more concerned about being in hospital. Curt said they removed tube after 2 days and he went home in a few days. So I guess everyone is different as it sounds like yours was in quite awhile. My son and daughter in law share a double house with me so people are around. How long before you could shower ? Thanks for your help
  12. GiGi71

    Spiculated nodule

    Thanks Curt. So you didn't go home with any tubes ? When did they remove stiches or were they self dissolving ? No one gave me a spirometer to use so maybe I can buy one from a medical store to use now.
  13. Curt

    Spiculated nodule

    @GiGi71 removing the entire lobe is standard protocol if your lung capacity is good. They would only remove less if they felt that your lung capacity would be too far diminished by removing the entire lobe. The chest tube is uncomfortable but not painful. I was pretty scared of getting it removed. The doctors assured me it wouldn’t hurt and it didn’t. It was more a relief to have it out. I had the surgery on a Tuesday night, the chest tube was removed Friday morning and I was discharged Friday afternoon. The chest tube is remove once there is no more air pockets. Walking and the spirometer will help clear the air pockets out. Do plenty of it now and after surgery. I scheduled my surgery on December 24 and for a few different reasons didn’t have the surgery until the end of February. It is nerve racking. I promise it is not as bad as you are imagining. You will get through it. Hang in there.
  14. BridgetO

    Spiculated nodule

    Are you more concerned about the tube or being in the hospital.? I was discharged the day after surgery with the chest tube still in due to an air leak. It needed to be in for 10 days and it was very manageable at home. If your overall health is OK and you have support at home, you could ask your surgeon if an early discharge would be possible if you need the tube to stay in place.
  15. GiGi71

    Spiculated nodule

    So my surgery is set for December 9th and I learned that they are in fact going to take the whole upper right lobe. I have been a little calmer but nerves are acting up again and feeling overwhelmed. I guess I am most worried about the chest tube and how long I will have to stay in hospital. I have a terrible aversion to hospitals from childhood. Five hospital stays by the age of 10 and they weren't good. You try to tell yourself that you are grown now but it doesn't help. I'm praying for this to be over soon.
  16. My suggestion is the same as Curt's-- another opinion.
  17. Last week
  18. Hello. I am new to this forum. I don't know if I placed this question in the appropriate location. I have a dear friend who was recently diagnosed with stage 3 lung cancer that was also found in his lymph nodes. He is unable to receive chemotherapy, radiation therapy or other drugs because he has liver issues. Apparently, when he was young, antibiotics caused serious liver damage. His options are limited. Naturally, he & his wife are afraid. He is trying to be positive & eating healthy. He's also receiving vitamin C shots. He's never smoked, married with a young daughter. Any advice would be greatly appreciated. Thank you.
  19. Earlier
  20. Hi. My husband was just diagnosed last week. We knew only 1 person with this type of cancer and he lived for 8 months from diagnosis to death. Needless to say, we are devastated. It's extensive stage. Mets on his liver, adrenal glands. Nodule on his kidney was indeterminate. Still waiting for MRI of head to be scheduled. He did have a ct of his head in July for a head injury and nothing of significance was found at that time. We're praying no brain mets. PET scan scheduled end of week. Chemo should begin next week regardless of these test results. We have radiation consult tomorrow. No clue how long the set up will take to get the concurrent treatment going. I believe the 1st line treatment will be carboplatin + etoposide + tecentriq. I was recently reading combining the 3 drugs is showing a little promise in longer survival. I hope he does well. One can only hope for the best and that he doesn't get too sick from the treatment. I don't want to be here, not sure if I'll be back----Just looking for any sort of hope and if anyone would be familiar with a clinical trail should he not respond to treatment. He said he would be open to it, but wants to go conventional route first. We are located near Philadelphia PA.
  21. How long does it take the esophagus and lung tissues to heal following radiation? Has anyone found that they cough deeply after eating, feel swollen in middle of chest where food passes and is still having swallowing type issues several months after radiation? I would be grateful to hear the experiences of others and how long coughing lasted, digestive issues, etc and if this has been permanent for anyone? And if you have tips to pass on when eating and coughing issues persist for several months?
  22. Just curious what the outcome was after completion.
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