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  2. Rower Michelle

    Durvalumab

    Hi Charlie. Sounds like you are making great progress. God is good everyday! So glad you found us. You may also want to check out the breathing excercises by Andrew Weil MD. You can purchase the CD on Amazon or look at some of the YouTube videos. They will help the healing process. I do them everyday & on my last CT scan the “lung junk” was gone. Of course I have my prayer posse too & that works! Michelle
  3. Robert Macaulay

    Durvalumab

    Charles One of the things i found very helpful while on Durvalamb was to monitor my blood work prior to infusions very good indicator as the lab send me the results.
  4. Yesterday
  5. TNChuck

    Mother stage IV Diagnosis

    Thank you both for the info and the words, to be honest I'm probably more nervous about her chemo than she is. Glad I found this place and if/when questions come up I have a place to ask. Thanks again.
  6. Eagle13

    Durvalumab

    Ask for a biomarker test. At a minimum get a PDL-1 test to see if you are a good candidate for the Durvalamb. The biomarker test is really the way to go. I found out after 8 treatments that I was not a good candidate for Durvalamb since there was no PDL-1 test prior to starting treatment. That is when a biomarker test was done. I have been on targeted therapy now for 150 days taking Tagrisso since I am EGFR mutation. I was 3b went to stage 4 while on the Durvalamb. The targeted therapy has stopped the progression of the cancer and reversed it in some of the lymph nodes based on measurements from CT scans. You are spot on about the power of prayer. 🦅
  7. Charles

    Durvalumab

    My name is Charles, I had been diagnosed with stage 3b NSCLC and a brochoscopy w/biopsy confirmed. A pet scan also confirmed a tumor 13 cm x 8cm in my right lung with suspected partial lung collapse. went through 35 radiation treatments and 10 chemo infusions with taxol and carboplatin with relatively no side effects until after treatments were through. lungs continue to make excess mucous and inflammation 1 month and 8 days after treatment stopped. had initial ct scan after treatment and scan showed tumor at least 50% smaller (7cm) but they don't know exactly how much smaller because a lot of what is seen on the scan is suspected to be inflammation and/or dying tissue.so shrinkage could be exceptionally more than 50%. continued to cough up and expel less and less matter and pinkish to red mucus until today. coughing continues to improve slowly and lungs appear to feel like they are healing. I am scheduled to start immunotherapy (durvalumab) tomorrow Jan. 22 and I am very anxious and nervous. The difference between my whirlwind with cancer and others on immunotherapy blogs, mainly durvalumab blogs seems to be that I am trying to be more proactive in my plan than others seem to be in theirs, I could be wrong though. I had to disqualify my first radiation doctor after the consultation because he did not fit the criteria in my treatment expectations. He seemed to be too complacent and non-chalant about my case without even seeing my scans and seemed to want to put the radiation part of my treatment off until after chemo, which research has shown that chemo and radiation concurrently killed tumors better than consecutive treatments in my type of cancer, boy I'm glad I did my research on that one because that part has been a success as far as tumor shrinkage goes. Also, since I am a part of my own treatment, anything I can do to help the treatments, I feel I am doing, like trying to eat more healthy foods like fresh vegetables as close to raw as I can stand them and maintaining my bodily ph levels at 8.0 to 8.5 (due to my research and beliefs) with the help of ph test strips, during chemo and radiation. and will continue to keep ph from 7.5 to 8.0 during immuno. all with the blessings of my onc dr., primary care provider, and radiation dr. So far, by indications and research all has gone very well. I haven't read anywhere that a 13x8 cm tumor was shrunk so much, so I have to believe that my contributions to the medical treatments have worked hand in hand. And one of the biggest factors of it all is GOD! I have prayed for God's help and presence in all this and know at the time of his works that he is here with me and the direct cause of the miracle at hand. I consider my decision to help with my treatments a part of his miracles. I am nervously awaiting the time for my initial pet scan after treatments and hope that my immuno goes well. I know that durvalumab is not given with curative intents but in my eyes it cannot hurt but my goal is curative. I this comment is long winded, which I hope I will be when this whirlwind subsides and I hope this is the correct place to air my comments as I have never had to comment in this way before. I will try to monitor and post as the immuno and pet scans progress and answer ones who reply if any, Thanxm Charlie..
  8. Charles

    Trying immunotherapy now

    My name is Charles, I had been diagnosed with stage 3b NSCLC and a brochoscopy w/biopsy confirmed. A pet scan also confirmed a tumor 13 cm x 8cm in my right lung with suspected partial lung collapse. went through 35 radiation treatments and 10 chemo infusions with taxol and carboplatin with relatively no side effects until after treatments were through. lungs continue to make excess mucous and inflammation 1 month and 8 days after treatment stopped. had initial ct scan after treatment and scan showed tumor at least 50% smaller (7cm) but they don't know exactly how much smaller because a lot of what is seen on the scan is suspected to be inflammation and/or dying tissue.so shrinkage could be exceptionally more than 50%. continued to cough up and expel less and less matter and pinkish to red mucus until today. coughing continues to improve slowly and lungs appear to feel like they are healing. I am scheduled to start immunotherapy (durvalumab) tomorrow Jan. 22 and I am very anxious and nervous. The difference between my whirlwind with cancer and others on immunotherapy blogs, mainly durvalumab blogs seems to be that I am trying to be more proactive in my plan than others seem to be in theirs, I could be wrong though. I had to disqualify my first radiation doctor after the consultation because he did not fit the criteria in my treatment expectations. He seemed to be too complacent and non-chalant about my case without even seeing my scans and seemed to want to put the radiation part of my treatment off until after chemo, which research has shown that chemo and radiation concurrently killed tumors better than consecutive treatments in my type of cancer, boy I'm glad I did my research on that one because that part has been a success as far as tumor shrinkage goes. Also, since I am a part of my own treatment, anything I can do to help the treatments, I feel I am doing, like trying to eat more healthy foods like fresh vegetables as close to raw as I can stand them and maintaining my bodily ph levels at 8.0 to 8.5 (due to my research and beliefs) with the help of ph test strips, during chemo and radiation. and will continue to keep ph from 7.5 to 8.0 during immuno. all with the blessings of my onc dr., primary care provider, and radiation dr. So far, by indications and research all has gone very well. I haven't read anywhere that a 13x8 cm tumor was shrunk so much, so I have to believe that my contributions to the medical treatments have worked hand in hand. And one of the biggest factors of it all is GOD! I have prayed for God's help and presence in all this and know at the time of his works that he is here with me and the direct cause of the miracle at hand. I consider my decision to help with my treatments a part of his miracles. I am nervously awaiting the time for my initial pet scan after treatments and hope that my immuno goes well. I know that durvalumab is not given with curative intents but in my eyes it cannot hurt but my goal is curative. I this comment is long winded, which I hope I will be when this whirlwind subsides and I hope this is the correct place to air my comments as I have never had to comment in this way before. I will try to monitor and post as the immuno and pet scans progress and answer ones who reply if any, Thanxm Charlie....
  9. LexieCat

    Mother stage IV Diagnosis

    Just adding my own welcome. I don't have any experience, personally, with chemo or immunotherapy, but I do know we have lots of folks here with advanced cancer who are doing very well on similar treatment protocols. Sounds like your mom's doctors have a good plan for her. And once they assess her response, it's always possible to tweak the treatments to achieve a better response if that becomes necessary. There are more tools in the toolbox for lung cancer every day. Glad you found us.
  10. Tom Galli

    Mother stage IV Diagnosis

    Carlos, Welcome here. Sorry to learn of your mom's diagnosis but as you've reported, she had a treatment plan and a good one -- immunotherapy. Here is information you may find useful about immunotherapy. Your mom is having conventional chemotherapy (like two drugs) in combination with immunotherapy. That treatment is now a standard of care for some Stage IV NSCLC and can be very effective. The conventional chemo will be infused. Here are some tips on infusion (I note she's got a port, a very good idea). I would follow her doctor's suggestions on food to avoid, if any. She'll likely find food unappetizing after infusion and indeed, my wife needed to "encourage" me to eat during my chemo! Which way is up? With advances in immunotherapy, there is far more than hope for a good treatment outcome. There is actually a chance the treatment will cause NED -- no evidence of disease, our very desirable treatment objective. You'll likely have questions and this is a good place to ask. Stay the course. Tom
  11. Hey everyone my name is Carlos and my mother was recently diagnosed with Stage IV NSCLC lung cancer. She got checked because there was fluid in the space between her lungs and she told us in the last couple of weeks. She's getting her port in today and tomorrow she starts chemo and something called keytruda and two other drugs she didn't tell me about. I've read up on the cancer itself but honestly I'm all over the place with the news so I don't know which way is up right now. Any help about helping her through chemo or diet would be appeciated. Thanks.
  12. Rower Michelle

    I guess it's my turn

    Hi Richard Hoping the MRI goes well for you today & the start of your treatment this week is uneventful. Hang in there. Michelle
  13. Last week
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  15. My name is Richard. I was diagnosed with SCLC on Dec 21st that was found after my second hospital visit since Aug 10th with a pneumothorax of the left lung, Aug, upper lobe, Dec 11th, lower lobe. Went for a CT scan the 12th in which they found a 3cm mass on the back of my left lung. A biopsy was done on the 19th, I was released on the 20th, had another pneumothorax less than 12 hrs later. Back in the ER the morning of the 21st it was confirmed the mass was small cell lung cancer. They did another CT scan and a bone scan which both came back clear so at least I'm in the "Limited" stage for now. I have my first appt with the Oncologist on Thursday. The reason I joined this forum is for support but honestly it hasn't really registered yet, I just feel kinda numb.
  16. Robert Macaulay

    Durvalumab

    Just found out the new drug I will be receiving shortly and wonder if anyone is presently on this type of treatment.
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