Jump to content

All Activity

This stream auto-updates     

  1. Past hour
  2. Love to know what’s in it but I click on the link and it takes me to a page with her name and a family photo and NOTHING ELSE. Nice pic but what’s the News?
  3. Yesterday
  4. I just got my 1st Duva infusion with no issues or side effects. My doctor does not want me to take the 50 grams of Vit C in an IV..not enough know about interactions of these.
  5. what is the difference? then they put a trach down my throat they say will i be awake for that
  6. VATS stands for Video Assisted Thorascopic Surgery. It is a less invasive way to perform a lobectomy. They make three, sometimes four smaller incisions and remove the lung laparoscopically. A VATS surgery has a quicker recovery time and you should have less pain and discomfort. I had a VATS lobectomy. I would do it again without hesitation if I had to.
  7. Has anyone had the VATS Surgery it sounds so scary
  8. He said when they did they could do the surgery or i could go in and see about radiation something about they zap it and i am awake but he acted like it could come back and recommended the vats procedure but then he was telling me all the risks and i thought do i want to do this or not...I know they have to tell you all the risks but i have really high anxiety and it did not helo me at all
  9. Hi Lucilori, I agree with Curt's suggestion that you ask for an explanation for the recommendation for surgery when your biopsy and PET scan were both inconclusive. My single small nodule was discovered in a routine CT scan that was done to watch for possible metasteses from a prior non-lung cancer. They recommended a re-scan in 3 months and that scan showed slow growth. It did not "light up" on the PET scan. Due to its location, it couldn't be biopsied by needle or bronchoscope. Due to it's spiculated (spiky) appearance, it looked to the various specialists like a primary lung cancer (and not a metastasis from my otheer cancer). I had s VATS lobectomy and my recovery was fairly easy. It turned out to be cancer, adenocarcinoma stage 1a. I was 71 and in pretty good health at the time of my surgery. Now two and a half years later I have No Evidence of Disease (NED). I don't have any remaining effects from the surgery other than my breathing sounds a bit funny at times.. If your doctors aren't clear about why they think your nodule is likely to be cancer, or if you're not convinced, you could get a second opinion. If you have more questions, post them and somebody on these forums will probably have answers. Collectively, we've been through a lot! Bridget O
  10. Yes we have changed onco team as previous one was more or less interested in palliative care while his new onco team is going with curative intent..keep up the spirit you will be playing golf very soon. Hoping for speedy recovery for you also Hament
  11. Lucylori, Welcome here. On discovery of a single lung nodule, one is generally left to decide one of three options: biopsy without surgery, do nothing and rescan after a period of time, or surgically resect and biopsy. I'm wondering why your doctors have not suggested a nonsurgical biopsy. Your nodule is certainly large enough to be a good target. There are generally two ways of getting a tissue sample for biopsy short of surgery: performing a needle biopsy or using a bronchoscopy procedure. I'd ask why a non surgical biopsy cannot be performed. Scans, even PET scans, are not a precise way of differentiating a lung nodule from a metastatic lung tumor. Nodules form for many reasons; in fact your recent bout of pneumonia could be the reason for your discovered nodule. Here is some good information on lung nodules and why they form. You could indeed zap the nodule using conventional or precision radiation but assuming a nonsurgical biopsy is not possible, I'd wait a period of time and rescan to see if the nodule displays characteristics of a metastatic tumor (growth and or spiculation). Stay the course. Tom
  12. I have 2 more chemo sessions, and just had my first CT scan to gauge progress. Think there's been some, but haven't met with the Dr yet so don't know for sure. I will be going through brain radiation soon, and hope that works to kill my brain met. It's great that you are your dad's advocate! Keep up that extremely important role. You are, and should continue to be, the one who keeps pressing his medical team for clarification for your dad. My wife does that for me. I'm a very lucky guy! She makes darned sure that we understand all the whys of every single decision made. I know I can't do that effectively. Lots of stuff going on, and she's able to filter through the noise and ask about important stuff. We are, like you guys, new to this sclc thing. All I want is to get. back to golf and my family. Am sure your dad would also like to get back to the old normal too. Keep pressing for answers from his medical team as the advocate for your dad.
  13. Lucylori, I'm sorry to hear about your unanswered questions - sometimes that is worse than knowing for sure you have cancer. There are many people on the site who have had VATS, some were in similar situations as you in that they did not know their nodule(s) were cancerous. They will tell you of similar experiences as Curt has. My mom had an old-fashioned, open lobectomy, which is much more invasive than VATS. She recovered just fine despite all of her other health issues, including COPD, diabetes, rheumatoid arthritis, and chronic back pain. She was 60 years old at the time. Take Care, Steff
  14. Hi Lucy. Given both tests being inconclusive I understand why you are concerned with both options of treatment. Did the doctor tell you why they felt you should pursue those treatments? Are there other characteristics of the nodule that concern them? Has it grown, is it spiculated, it is located in a concerning location? I had an 8mm nodule that was too small to biopsy. It also did not light up on a PET scan. My nodule was spiculated, in a concerning location and I have a significant family history of lung cancer. Given those reasons my doctor also recommended I do a lobectomy. I had the surgery 2 months ago. My nodule turned out to be lung cancer but the majority of nodules (around 60% are not cancer). I don’t require any follow up treatment. Typically they will do what is called a wedge resection to remove the nodule, test it right then and there and proceed with a full lobectomy if it is cancer. Recovery from a lobectomy is different for everyone. I’m 43 years old and in reasonable health. I have very few residual issues from the surgery. Most are just irritations that I expect to go away as opposed to things I believe will be long term issues. I have a lump/tickle in my throat that makes me cough. I have some never discomfort on my side where the incisions were. I have sole tightness in my chest when I cough or sneeze. My lung capacity is less, but not less enough to stop me from doing my normal activities. My doctor said unless I was planning on running a marathon I wouldn’t notice any lifestyle differences. The recovery from surgery was also not terrible either. A lobectomy is considered a curative treatment for early stage lung cancers. My grandmother was treated with radiation for lung cancer when she was in her 80’s. Her doctors felt it was a better option than surgery given her age. She passed in her 90’s from unrelated causes.
  15. Hello I went to the hospital because i had a bad cold found out it was pneumonia so they did CT scan and found a nodule on my right lung they said it was 2 centimeters so they did a biopsy and it came out inconclusive had a PET scan same thing so now the doctor wants me to have the VATS surgery and I was all for it till he told me all the risks and now he just scared the heck out of me and I am not sure I want it now...Has anyone had this procedure done before? I have bad anxiety so it is worse for me . Or they told me I could have Radiation and they would zap it and i would not need surgery but that it could come back well they said the VATS procedure it could come back later also so not sure whats the best option yet
  16. Barb, I hope unrelated too, thanx
  17. That's what we were told when there were no plan of Radiation. Since his radiation onco said that they can cover the zone with radiation now.. hence this question arises.. Although we were also told that tecentriq would continue for rest of life How many cycles of chemo they planned for you? Your is limited or extensive? As in my father case there were some degenerative changes in his spine and they took it as extensive.. Hence we started tecentriq initially
  18. Hament, Welcome here. Although a lung cancer survivor, I do not have immunotherapy experience and I'm not a doctor so I wouldn't have an answer about the toxicity of tecentriq with conventional chemotherapy and radiation. Many here have immunotherapy experience and I'm sure will provide an answer. Stay the course. Tom
  19. Last week
  20. Hopefully it’s unrelated. I don’t know about Florida but Georgia’s pollen counts have been off the charts for weeks. Allergies are a pain. Hope you get over it quickly. Stay strong
  21. My diagnosis was in Feb and I started carboplatin+ etoposide with tecentriq right away. They said that when I'm done with chemo, I'd continue tecentriq for the rest of my life. No mention of radiation for my lung anyway, but I'll undergo it for my brain met later. Wondering why the issue with tecentriq? I've had no issues with it. I did, however, have sever allergic reactions to etoposide. Maybe it's true when they say each patient is unique. Apparently my allergic reaction was very rare. Could your father be allergic to tecentriq?
  22. Barb, Couldn't say for sure, isn't one of those well known side effects of imfinzi as far as I can tell. Ibuprofen brings the swelling down a lot so this denotes Inflammation of the eyelids that resembles an allergy. I will probably set an eye appt. to get looked at to find out if there is an effusion or anything serious going on. No pain though and appears to be only eyelid and not eyeball protrusion but I guess better safe than sorry........Charles
  23. I’d love to go but have a Little League tournament with the kids that weekend. Hopefully next year.
  24. Hi, my father had been dx with SCLC in January and underwent the cycles of carboplatin+ etoposide + tecentriq (immunotherapy) with fairly good response. Now his onco team are planning to do radiation (IGRT) along with carbo+ etoposide. They are saying adding tecentriq to the regime will be too toxic. Has anyone undergone/going through chemo+immunotherapy+ radiation simultaneously ? Prompt response would be of great help
  25. Hi, my father had been dx with SCLC in January and underwent the cycles of carboplatin+ etoposide + tecentriq (immunotherapy) with fairly good response. Now his onco team are planning to do radiation (IGRT) along with carbo+ etoposide. They are saying adding tecentriq to the regime will be too toxic. Has anyone undergone/going through chemo+immunotherapy+ radiation simultaneously ? Prompt response would be of great help
  26. Hi Charles. Sorry about your eyes. Is this a side effect of the Durvalumab?
  27. Great news on the scans! Sorry about the side effects.
  1. Load more activity
×
×
  • Create New...