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Showing content with the highest reputation since 10/18/2018 in all areas

  1. 4 points

    Introducing myself and needing hope

    Angelica, My mom has advanced stage NCSLC adenocarcinoma too. Health-wise she is not in the prime of her life, but she is here 3 years later. I took the diagnosis harder than she did and took it upon myself to educate myself all that I could so I was the best advocate for her. I too started looking at statistics and felt there was no hope. I allowed myself to get lower than low. It was in one of my 2am "research" sessions that I happened upon LUNGevity and these forums. Things began to change for me and I was finally able to grow into the advocate that my mom needed and I wanted to be. You will get there too, it just takes times and persistence. My mom's docs have never given her a death sentence and are treating her lung cancer as a chronic disease, just like her rheumatoid arthritis. At first this was not acceptable for me. I wanted a cure, I was naive in thinking that her cancer will be cured. She will never be told that her cancer is gone because it's in a spot where it's really tough to see. So we've had to accept that hearing "your cancer is stable". Never in a million years would I have thought I would have accepted hearing anything less than "you are cured". But it's all a part of living with a chronic disease and being in active treatment (my mom is on immunotherapy). So what I am trying to say, Angelica, is that there is hope. I have found it and many of us on here have found it to. I see hope every time I look at my mom or hear her say "what a beautiful day it is today." Stick around here and you will see more hope. As far as your question about immunotherapy, I have heard of people responding well to immunotherapy no matter what the PD-1/L1 levels are. But it seems as though your current treatment is working for you -26% shrinkage is wonderful! Lung cancer is a long-term battle that needs many weapons to be tamed. Immunotherapy may be one of those weapons that is needed down the line. But I am not a doctor. Ask you docs about their thoughts on immunotherapy for you, keep asking until you get an answer that makes sense to you. Take care, Steff
  2. 4 points
    Angelica, The first thing I share with new members is to stop reading statistics and grim news on the internet. We have seen many improvements in the last couple of years and those improvements are not included with any statistics you see now. I will also tell you that a positive attitude will do you as much good, if not more, than the treatments. Trust me - I've had my ups and downs, and things go much better when I focus on the positive. Please keep us posted on your progress.
  3. 2 points
    In answer to your question about the flu shot, take a look at this article: https://www.verywellhealth.com/immunizations-during-cancer-treatment-2248837 It sounds like the injection, which uses killed virus, not live, is safe for cancer patients with compromised immune systems. They also make the very good point that avoiding the flu is especially important when your immune system is weakened. I'd say if the docs are recommending it, he should probably have it.
  4. 1 point
    Thanks for your messages Susan and Steff, they are very helpful and give me confort. You are in my prayers and I'll keep you informed with my progress.
  5. 1 point
    As long as you do not get it on the same day as your chemo and if they were a reaction, The would know which one. My nurse asks me every time did you have a flu shot today prior to my infusion.