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  1. 5 points
    DFK

    Durvalumab

    Uneventful #16 infusion yesterday. All labs within normal parameters. Repeat DLCO test at 64% today, up from 44% after pneumonitis in April. Don’t know if time and healing accounted for generous jump in DLCO value but I'd like to attribute it to my tenacity in starting an exercise program. Baby steps to wellness.....I'll take it. Carry on everyone. With Gratitude and Blessings DFK
  2. 4 points
    Hi All, A 202 area code phoned this morning, normally I don’t answer unknown numbers due to robo call overload. Glad I did— it was a legislative staffer from US Senator Jerry Moran’s office phoning to thank me for me the lung cancer funding advocacy letters! This staffer lost her Grandpa to lung cancer last year. So I used the opportunity to advocate for two more issues we all struggle with: the high cost of our various medications & treatment as well as our HEALTH INSURANCE DISEASE. I suggested Senator Moran sponsor new legislation for a Patient Bill of Rights, whereby anyone with advanced cancer would receive the benefit payment for treatment plans recommended by our physicians. We’re all sick and tired of messing with the insurance companies! They are stepping over a dollar to pick up a dime while enjoying record profits! I invited the Senator to be a speaker at our KC Living with Lung Cancer Support Group too. Not sure if anything will come from the call however I will keep writing letters! Michelle
  3. 2 points
    Barb1260

    Durvalumab

    DFK-yes ma’am. One day at a time and enjoy every minute. Sometimes it seems such a long wait but then again it goes pretty quick between scans. Enjoy your crafting.
  4. 2 points
    DFK

    Durvalumab

    Hey Barb, Congrats on #9. I certainly understand #26 seemingly looking like the end of an endless hallway in an Alfred Hitchcock movie. And I also know that time marches on and we all will get to the finish line. So for now, during this surreal cancer life we have been dealt, let’s make the best of our today by focusing on just today. For me, today I will be designing and sewing potato bags and potholders for the Infusion nurses for Christmas with Netflix blasting in the background. Maybe I won’t t get far, but I also know that baby steps will get me closer to my Christmas goal and to my next infusion date......Baby steps Barb, we're doing it everyday. Give yourself a pat on the back for getting this far. A virtual hug from me to you too. With Blessings and Gratitude, DFK
  5. 1 point
    Tomm

    Durvalumab

    Barb one more mission completed. I wondered if your blood work is all good? TSH good? . A really good book from the 70s is Be Here Now by Baba Ram Dass. I know we have 17 more to go in the future but we are here today enjoying the fruits of the season DKF ..it's good to hear someone on #16 can have all blood work in the normal range. Please keep posting if anything changes and let us know how your next scan goes Unknown other Durvas ... Please share how your doing, it helps all of us in this small group
  6. 1 point
    Barb1260

    Durvalumab

    #9 done. Only 17 to go. April seems a long way away.
  7. 0 points
    Blossomsmom

    Lost a friend

    Lost a dear friend of 40 plus years on Monday. Im still a bit stunned and so very sad. She was diagnosed less than a month with cancer. I knew her my entire adult life. We raised our kids together, lost parents together and now she is gone. It’s such a reality check when we start to lose our peers. I know it’s part of life but it’s the part that I truly don’t like. You just never think it will happen....:until it does ☹️
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