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Showing content with the highest reputation since 06/18/2019 in all areas

  1. 4 points
    Kleo

    Durvalumab

    Well that 8 hour infusion was fun! Not......🤣 Tomm…..The cannabis route is just not for everyone. All I believe is that it does help with eating and/or nausea if you get it bad. But if anyone wants to try it...go for it I say. Anything that makes ya happy! Tom....Hi! good to "see" ya! I just responded to TWO Tom's in one post. A Tomm-Tom.😎 I'm so talented.
  2. 3 points
    Most of the time, I just go with the flow on this whole cancer nonsense. But yesterday aggravated me. I had lab work done last Thursday for yesterday's CT. While I was waiting in the lab, a nurse came to the lab to tell me I was scheduled for a port flush. I said I wasn't because it would be flushed when I had my CT. She insisted so I just let her do it. She went too fast, skipped a step, and bruised my chest. Fast forward to yesterday. I had my port accessed for my scan. Different nurse said that last nurse's actions aren't what made my port area sore. Excuse me? How many thumb-tack sized needles have you had pushed into your chest in the last week? None? Then you don't know! Rant over. Just figure some of you can probably relate. Have a good day, friends. Remember - forward is forward; speed doesn't matter.
  3. 1 point
    Robert Macaulay

    Durvalumab

    Barb1260 Never experienced any dizziness at all
  4. 1 point
    Steff

    Durvalumab

    Kleo- Glad to see you have kept your sense of humor through all of this...Tomm-Tom (I truly lol'd over that!)
  5. 1 point
    Kleo - ouch! I did my first round of chemo in 2016 without the port and it was miserable. One session took 7 sticks to get started. I added the port in 2017 for that round of chemo. I realize we are not the medical professionals but maybe they should listen to us because we do know what's going on. After one of my surgeries, I had an allergic reaction to betadine and ended up in urgent care getting steroids. When I met with the doctor to place my port, I told him about my reaction and he said it had nothing to do with the betadine and that it was related to that specific surgery. Yeah, I ended up in urgent care two days later with another reaction to the betadine. Argh!
  6. 1 point
    Steff

    Looking for some hope

    I'm so very sorry to hear all of this, especially about your dad being told there is not much hope. With recent advances in treatment, there is HOPE. I'm not familiar with Australia's protocol for treatments, but has your dad had any advanced testing on his cancer, like for various biomarkers/genetic markers? These tests can give docs more info about your dad's cancer to help better prescribe a treatment approach. I am assuming since he was on Keytruda initially, that he at least has a test for PD-1/PD-L1? I know that things may seem very grim right now, especially with your dad having been in the hospital and struggling with the idea of continuing treatment. I was at a very grim point with my mom 2 years ago...she was in and out of the hospital, the last time she spent 2 weeks in the hospital for large amounts of fluid on her lung. She was weak and defeated. And although she never said she was giving up, I was worried that her body would give up on her. But here we are nearly 2 years later and she has no evidence of disease - she was an advanced stage diagnosis too and the same type of cancer as your dad. No part of this journey has been easy and she still suffers from the side effects of treatment, but she lives her life every day. I guess I am telling you this to show that there is hope. Every warrior here is the epitome of hope. Your dad is too. I don't know if any of this helps, but please know that we are here for you. Take care, Steff
  7. 1 point
    Hi Susan! Oh I can relate....kinda! I had a guy doing an IV for an MRI. He was just going the vein route as it was quicker. OMG...he WRECKED my arm! He was training a new guy so I think he was showing off a little and tried a hard to get vein in the middle of my arm. Yeah he didn't get it...but the BRUISE...well I took pics. Took a month to clear. so NEXT MRI..only a week or so later.....I said just have a nurse access my port this time. In case that dude was there again...LOL So next one they access the port no prob....then afterward when the nurse was removing it...she was talking and may be a lil distracted......and oops she removed it but forgot to flush first. I get to do it again now 2 minutes later just for a flush!🤣 I'm not bashing the port....I like it mostly. Yesterday I had 7 hours of infusions and that port is wonderful for that. But there are always those lil moments!!
  8. 0 points
    Spanmer

    Looking for some hope

    Also the doctor told him it’s too aggressive and there’s not much hope. That doctor is just an arsehole. Dad was in a good frame of mind until he spoke to that guy. Now he’s told us he’s giving up.
  9. 0 points
    Spanmer

    Looking for some hope

    Thank you for the inspiration. He’s just come out of hospital after battling a week of strong pneumonia. He’s in a lot of pain and doesn’t want to take anything other then panadol. He’s having a pet scan tomorrow and starts chemo on Friday. They found cancer in his sacrum that pressing on his nerves and causing his leg to go limp. They plan on targeting that with radiotherapy. Just really hoping this works.
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