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Showing content with the highest reputation since 03/19/2019 in all areas

  1. 2 points
    Barb1260

    Durvalumab

    I should be joining you Durva’s a week from today. I’m hoping for no side effects because I feel really good right now. But-just got to go with it.
  2. 2 points
    BridgetO

    Cancer -Scared to Death

    Hi Lucilori, I agree with Curt's suggestion that you ask for an explanation for the recommendation for surgery when your biopsy and PET scan were both inconclusive. My single small nodule was discovered in a routine CT scan that was done to watch for possible metasteses from a prior non-lung cancer. They recommended a re-scan in 3 months and that scan showed slow growth. It did not "light up" on the PET scan. Due to its location, it couldn't be biopsied by needle or bronchoscope. Due to it's spiculated (spiky) appearance, it looked to the various specialists like a primary lung cancer (and not a metastasis from my otheer cancer). I had s VATS lobectomy and my recovery was fairly easy. It turned out to be cancer, adenocarcinoma stage 1a. I was 71 and in pretty good health at the time of my surgery. Now two and a half years later I have No Evidence of Disease (NED). I don't have any remaining effects from the surgery other than my breathing sounds a bit funny at times.. If your doctors aren't clear about why they think your nodule is likely to be cancer, or if you're not convinced, you could get a second opinion. If you have more questions, post them and somebody on these forums will probably have answers. Collectively, we've been through a lot! Bridget O
  3. 2 points
    I have 2 more chemo sessions, and just had my first CT scan to gauge progress. Think there's been some, but haven't met with the Dr yet so don't know for sure. I will be going through brain radiation soon, and hope that works to kill my brain met. It's great that you are your dad's advocate! Keep up that extremely important role. You are, and should continue to be, the one who keeps pressing his medical team for clarification for your dad. My wife does that for me. I'm a very lucky guy! She makes darned sure that we understand all the whys of every single decision made. I know I can't do that effectively. Lots of stuff going on, and she's able to filter through the noise and ask about important stuff. We are, like you guys, new to this sclc thing. All I want is to get. back to golf and my family. Am sure your dad would also like to get back to the old normal too. Keep pressing for answers from his medical team as the advocate for your dad.
  4. 2 points
    BridgetO

    Survivorship Conference: Who's going?

    Hi Forum gang! Who's going to the Lungevity Survivorship Conference in Washington DC on April 26-28? I'll be there, and I think Lexie and Steff (and Steff's mom) will be there, too. Anybody who's going and wants to exchange contact info so we can meet up there, let me know. For private info like phone numbers or where you'll be staying, best to message me rather than posting. If you do message me, let me know if it's OK to share info with others who are going. BridgetO
  5. 1 point
    Rower Michelle

    Durvalumab

    Barb & Tomm- could be a new set of “Durva twins”! Best to both of you trailblazers... Hope Bob and Cleo are doing well!
  6. 1 point
    Tomm

    Durvalumab

    I just got my 1st Duva infusion with no issues or side effects. My doctor does not want me to take the 50 grams of Vit C in an IV..not enough know about interactions of these.
  7. 1 point
    Yes we have changed onco team as previous one was more or less interested in palliative care while his new onco team is going with curative intent..keep up the spirit you will be playing golf very soon. Hoping for speedy recovery for you also Hament
  8. 1 point
    Curt

    Cancer -Scared to Death

    Hi Lucy. Given both tests being inconclusive I understand why you are concerned with both options of treatment. Did the doctor tell you why they felt you should pursue those treatments? Are there other characteristics of the nodule that concern them? Has it grown, is it spiculated, it is located in a concerning location? I had an 8mm nodule that was too small to biopsy. It also did not light up on a PET scan. My nodule was spiculated, in a concerning location and I have a significant family history of lung cancer. Given those reasons my doctor also recommended I do a lobectomy. I had the surgery 2 months ago. My nodule turned out to be lung cancer but the majority of nodules (around 60% are not cancer). I don’t require any follow up treatment. Typically they will do what is called a wedge resection to remove the nodule, test it right then and there and proceed with a full lobectomy if it is cancer. Recovery from a lobectomy is different for everyone. I’m 43 years old and in reasonable health. I have very few residual issues from the surgery. Most are just irritations that I expect to go away as opposed to things I believe will be long term issues. I have a lump/tickle in my throat that makes me cough. I have some never discomfort on my side where the incisions were. I have sole tightness in my chest when I cough or sneeze. My lung capacity is less, but not less enough to stop me from doing my normal activities. My doctor said unless I was planning on running a marathon I wouldn’t notice any lifestyle differences. The recovery from surgery was also not terrible either. A lobectomy is considered a curative treatment for early stage lung cancers. My grandmother was treated with radiation for lung cancer when she was in her 80’s. Her doctors felt it was a better option than surgery given her age. She passed in her 90’s from unrelated causes.
  9. 1 point
    Barb1260

    Durvalumab

    Hopefully it’s unrelated. I don’t know about Florida but Georgia’s pollen counts have been off the charts for weeks. Allergies are a pain. Hope you get over it quickly. Stay strong
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