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  1. 4 points
    DFK

    Durvalumab

    Good Thursday to All, Crossed the finish line yesterday. Very uneventful #26 infusion. And to be honest, a little bittersweet. I was saying goodbye to the very people that have carried me for the past 17 months. The same staff who: taught me about my cancer as I cried and sniffled, who navigated ALL my appt's in a different city, who taught me about my Durvalumab, who laughed at my comedic antics and stories, who allowed me to slum in a private infusion room for a couple hours with laptop set up while waiting for my drug, who juggled appointment times so I didn't have to fly in an extra day, who held my hand during numerous procedures, who massaged doctors offices so I could see Specialists a little earlier than the usual 4 months waiting time who kept me up to date in copies and DVD's of my medical records, (My Pulmonologist) who gave me his personal cell so I could call him instead of flying in for ONE. MORE. APPOINTMENT, ditto for my PCP, (My Cardiologist) who at first staid and stiff now smiles and gives me a hug when we pass in the hallways. (My ENT) who apologized for the long wait but had me diagnosed and fixed within two weeks of our meeting, and who explained in detail how radiation paralyzed my vocal cords, (And my Oncologist) who though rarely uttered more than a few words, always smiled at me and shook my hand (18 times) as if meeting me for the 1st time and always told me what my next step would be. I learned to trust this quiet and kind man in my journey, and together with the loving help of all, they have brought me fairly unscathed to NED. I am more than appreciative, I am overwhelmed with my good fortune. So for each "today", I will do my best to be mindful of my blessings. I'll be sure to post follow-up progress reports. Take Care, DFK
  2. 3 points
    St Michael

    Possible recurrence

    Hi everyone. Small update - My mother was accepted into an EGFR clinical trial. She starts on Tagrisso this Monday. Here's to hoping it works for a long time.. Have a good weekend.
  3. 3 points
    Tomm

    Durvalumab

    DKF really great news that your NED and treatment is complete, sounds like you had a great team. I want to thank you for posting the good and the not so good of your journey.
  4. 3 points
    Opal

    Durvalumab

    DFK, welcome to Post Durva Club 👏. You did it!! Your updated post gave me goose bumps. So can relate.! Did you ring tge bell? And may I say YOU are a "tough cookie" or wonder woman. Your travels of getting up and going to the airport then same return trip. Yikes, I complained some early mornings walking to the car cause I hated the depressing ride into the city. I stopped complaining after I read your post on your infusion trips. Will be looking for your follow up progress. My progress report on weight gain not great. I only lost 3 pounds since November and I'm not eating ice cream or junk. A ways to go. Also mindful of my blessings, Opal
  5. 2 points
    Your observations are spot on, the early days of this experience is so surreal it’s hard for anyone who is outside of our inner circle to really comprehend. I heard from someone recently that being diagnosed with lung cancer is like being stranded in a foreign county. Not knowing the language and no immediate road map to find your way home. If you’d like to make your insomnia increasingly more productive, you might want to check out the GO2FOUNDATION Lung Cancer Living Room on YouTube. It’s also a wealth of informative from some of the top oncologists. They are two hours with the introduction of group members during the first 40 minutes. The 2019 sessions were very interested. Sleep will happen.....Carry On
  6. 2 points
    I have KP northwest, probably same as you. There are different insurance policies so our coverage might differ. I have had treatment for 3 primary cancers-- 3 surgeries, 2 courses of radiation,one with concurrent chemo, and one additional course of chemo. And LOTS of followup including surveillance CTs and physical therapy. Insurancewise, I've had no problems. it's been hassle-free. I hope your treatment goes as well.
  7. 2 points
    DFK

    Durvalumab

    Thank you everyone for your kind words and induction to the POST Durva Club (PDC). There's not much written about returning to a symptom free pre Durva life so I will do my best to journal my "findings" and share with all. I am still officially, with a BMI of 24.58, within normal weight parameters for my height. Of course 25.0 is considered overweight. "Overweight" is not a label I'm comfortable using but I do understand the stress of our bodies carrying that extra weight. So my 30lb weight gain, fatigue, joint/muscle issues and headaches are annoyances I look forward to looking at in the rear view mirror....adios, au revoir, goodbye and good riddance. We shall see. Barb, Tomm, and Roseann-Opal and I (Official PDC's) are waving you forward......as well as all your faithful Lungevity cheerleaders. Thanks all, Take Care, DFK P.S.-Yes Michelle, my oncologist shaking my hand at every visit was a quirky little deal and I did ponder the whole Ground Hog Day aspect, "Have we met?". But after awhile, I realized that he's just a sweet gentle man as in Gentleman, and it truly was a sweet greeting gesture.
  8. 2 points
    Rower Michelle

    Durvalumab

    Rock on Wonder Woman! I chuckled this morning about your oncologist, reminded me of the movie Fifty First Dates. I’m quite sure you left your mark and due to your tenacious spirit you have paved a smoother road for future Durvas. I suspect the team learned more from you given this new world of high tech treatment. Well done! Just like Tom Petty said... “now I’m FREE”. I hope you “fly like an Eagle” into this next NED chapter. Hugs to you. Hooray! Michelle
  9. 2 points
    Barb1260

    Durvalumab

    Congrats to DFK! Enjoy the freedom!
  10. 2 points
    TJM

    Meet my surgeon tomorrow

    Great news in my opinion. Surgery scheduled for next Tuesday. Will be a VAT to remove the lower lobe of my right lung. My lung capacity is excellent now so Surgeon is not concerned about my lung capacity after Surgery. He is confident that this will be curative but will still discuss postoperative Chemo after Surgery. Less stressed now. Probably last a day or two then I'll stress the surgery. Thanks to all for the support. Now I need information on how to quickly repair a torn meniscus on my wife. 👍 Tom
  11. 1 point
    Tom Galli

    Chemo after Vat Lobectomy

    Tom, I was scheduled for post surgical chemo but didn't receive it because of surgical complications. Then after almost a year's worth of addressing the complications, I had the first of 4 recurrences. Post surgical chemo is purposed to reduce the probability of recurrences and lung cancer is notorious for recurrence. Here, you may enjoy this blog on recurrences. The meeting with the medical oncologist is key and essential. Because of the high recurrence probability, you'll have a monitoring program consisting of CT and perhaps PET scans at regular intervals. These are performed on order by your medical oncologist. Moreover, after surgery, a pathologist will identify the type of lung cancer you have you should ask the surgeon to have the sample subjected to further laboratory tests to determine if there are bio markers for suitability for targeted therapy and or immunotherapy treatment. It is a good idea to learn this information because if a recurrence happens, the medical oncologist can attack it with the most effective chemicals. I'd also recommend you get acquainted with a radiation oncologist. If there is a recurrence and if the tumor cooperates in terms of suitable location, then a radiation oncologist can use very effective stereotactic body radiation therapy (SBRT) to fry the beast. After three chemotherapy failures to address my recurrences, SBRT finally produced lasting results. I do hope your surgery is one and done but suggest you prepare in advance for the long game. Stay the course. Tom
  12. 1 point
    Hi Cherilyn, If you find you would like additional support, LUNGevity also has peer-to-peer mentoring and the HELPLine. For the LifeLine program, you would be matched with another caregiver who has a loved one with a similar type and stage of lung cancer. The HELPLine will connect you with a oncology social worker who can help with emotional stress. Both programs are at no cost. If you have any questions, please let me know. You and your husband are in my thoughts!
  13. 1 point
    BridgetO

    Durvalumab

    Wow DKF, you're a Durva graduate! Congrats to you and to your great team.
  14. 1 point
    TJM

    Meet my surgeon tomorrow

    Counting on it. I'm sure I'll have questions going forward after I get an actual stage of the Tumor and the question of Chemo comes up after the procedure. Will sleep well tonight. I'll stress about the actual Surgery starting.....tomorrow night? Thanks all. This is a very helpful and informative board. Best of luck and health to everyone. Tom
  15. 1 point
    BridgetO

    Meet my surgeon tomorrow

    Glad to hear you're all set!
  16. 1 point
    marinisa

    3mm bottom right lobe

    Thanks everyone. This is reassuring and I hope I only have one nodule. I will update once I visit the pulmonologist. I was insurance approved so I go for my lung scan tomorrow and the pulmonologist next Thursday. Will a regular pulmonologist be a good 1st start? Or do I need to see an oncologist Pulmonologist?
  17. 1 point
    Rower Michelle

    Meet my surgeon tomorrow

    Rockin great news!
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