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Showing content with the highest reputation since 07/27/2019 in all areas

  1. 3 points


    Good Thursday to All, Crossed the finish line yesterday. Very uneventful #26 infusion. And to be honest, a little bittersweet. I was saying goodbye to the very people that have carried me for the past 17 months. The same staff who: taught me about my cancer as I cried and sniffled, who navigated ALL my appt's in a different city, who taught me about my Durvalumab, who laughed at my comedic antics and stories, who allowed me to slum in a private infusion room for a couple hours with laptop set up while waiting for my drug, who juggled appointment times so I didn't have to fly in an extra day, who held my hand during numerous procedures, who massaged doctors offices so I could see Specialists a little earlier than the usual 4 months waiting time who kept me up to date in copies and DVD's of my medical records, (My Pulmonologist) who gave me his personal cell so I could call him instead of flying in for ONE. MORE. APPOINTMENT, ditto for my PCP, (My Cardiologist) who at first staid and stiff now smiles and gives me a hug when we pass in the hallways. (My ENT) who apologized for the long wait but had me diagnosed and fixed within two weeks of our meeting, and who explained in detail how radiation paralyzed my vocal cords, (And my Oncologist) who though rarely uttered more than a few words, always smiled at me and shook my hand (18 times) as if meeting me for the 1st time and always told me what my next step would be. I learned to trust this quiet and kind man in my journey, and together with the loving help of all, they have brought me fairly unscathed to NED. I am more than appreciative, I am overwhelmed with my good fortune. So for each "today", I will do my best to be mindful of my blessings. I'll be sure to post follow-up progress reports. Take Care, DFK
  2. 3 points
    Tom Galli

    Meet my surgeon tomorrow

    Tom. I'm also an engineer and was the worst kind of patient. Problem solving is my business, but my skills only work when solving problems with things. They have no impact on people and their (my) disease. With the exception of knowledge about statistics, applying engineering skills to surgery, chemotherapy, doctors, nursing and progression produced mayhem. Initial treatment of lung cancer is pretty straightforward. Surgery is the preferred first and best option. If not surgery, then chemoradiation following a well established formula called a national standard of care. But if these treatments do not arrest, treatment transitions from established procedure to medical art. The medical oncologist is the artist and tries to guess which of the available methods might work. It is an educated guess but lung cancer mutates very quickly to combat drugs and that is why it is so dangerous. Reading into our disease is essential knowledge. Here is a good start. Welcome here. You may have a bunch of questions after your surgical consult and this forum is a great place for answers based on actual experience. Stay the course. Tom
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