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Showing content with the highest reputation since 06/18/2020 in all areas

  1. 4 points
    Lindsay

    Durvalumab

    Good morning! I wanted to share my CT results with you guys. This was my first scan since starting treatment in April (I'm getting treatment monthly, so this was #4 for me, which I guess would be #8 if I was going biweekly) and my tumor is down to 1.3 cm. I started at 5 cm back in December 2019 when they found it, chemo and radiation took it down to 3.8 cm, and now I'm down even more. I'm so happy with these results! I had hypothyroidism before starting any of this journey and my levels were jumping all over the place, but seem to be leveling out now which is good. No other side effects to really report aside from a sour stomach in the mornings which my onc is not too concerned with. Treatment #5 is on Thursday, then more waiting!
  2. 2 points
    It's very sad when people loose their battle. I believe it's so important to stay strong and not give up, even when the situation looks bleak. I'm not a religious person. I'm Jewish and I believe in God but I'm not religious. I don't believe that God performs miracles as such, but gives people power and strength to beat their illness. I feel that action and faith go hand in hand. No one gets cured from cancer by sitting around and waiting for God or Jesus to cure them. Faith for me is believing in the doctors and scientists who work so hard to treat and cure people and faith is strength of mind and not giving up. Some of the greatest things that have been achieved weren't thought possible. Some of the greatest people were expected to amount to anything yet they went on to do remarkable things. It's hard to be positive all the time, we're all human but I believe that positive energy is important. If you're surrounded by negativity then that doesn't exactly inspire someone to get better or to have a zest for life. Obviously it's not that simple as there are people who were positive who still lost their battle. Every case is different and every person, their body and cancer is different. However I think it's important to keep the mind and body strong.
  3. 2 points
    Hey Ladies, I was thinking the same thing this morning then I went out for a walk and came back with a very different perspective. I am still standing! Even with a Stage IV lung cancer, I’ve now survived longer than some with other “treatable” diseases. My heart did break when the media reported the Travolta family elected to keep the fight private, I can only imagine the love and support would have poured out. Lin’s got it right. Faith over fear.
  4. 2 points
    Lisa Haines

    Husband restarting Chemo

    Tracy, This is very interesting and I'm so surprised to read that a Stage IV patent was able to have surgery. I've always been under the impression that Stage IV was "NOT" considered operable. This is the first time I recall anyone having surgery at Stage IV! WOW!! I was Stage IV myself and went for three different opinion as was told by everyone that I was not a surgical candidate and I always thought it was because of my Stage. Maybe it's was more to do with the location of my tumors and the fact that I also had a brain met? Thanks for sharing, I'm totally shocked!
  5. 1 point
    Grahame Jelley

    Durvalumab

    New article just out on Pacific trial https://www.jto.org/article/S1556-0864(19)33529-4/fulltext
  6. 1 point
    Sillycat1957

    Durvalumab

    Just had #23 today, getting there! TSH levels are climbing, Onc going to do a more in depth work up, Ugh! Always something huh 😃 Michelle, SSDI is a long drawn out process, good news is it's retroactive, I really don't understand the hold up Stage 4 should be automatic. My original diagnosis of Epilepy is on the list of automatic qualifications, but it still took me 3 yrs to get approved! But I still had to get an attorney, then I had to agree to only 1-1/2 yr of retro pay go figure on that one too. He of course got his 1/3. My approval was very quick when he got involved! Also before my cancer diagnosis, when we are on SSDI we are able to work and make up to $1,280. p/mo I went over a few months by approx $50. and $80, and a few small amounts, due to my commissions, I had to pay back my full months benefits! Just a heads up if you decide to get a PT job out of sheer boredom. Needless to say, after my cancer diagnosis, I was reinstated to my full benefit rate. Cancer is also an automatic qualification, I think these people reviewing SSDI claims are clueless, sometimes I think they feel like they are doing the government some sort of services by denying claims when actually, it is money we and our employers have paid into the system burns my butt! Barb, Like Michelle said, I too, only listen to my Oncologist when it comes to my cancer, she says I'm ok, so I must be right? Everyone enjoy your week, New England is being a little touchy right now, doesn't know if it wants to be sunny, rainy or what 😃 Take care, Roseann
  7. 1 point
    Barb1260

    Durvalumab

    Michelle-sound like you are doing well. Paperwork stinks on every level and is ridiculous. Don’t even get me started about insurance. Speaking of trips, I was supposed to go to NJ next month for Music Fest in PA -of course that’s cancelled. Still might go somewhere within driving distance but gotta wait and see.
  8. 1 point
    Rower Michelle

    Durvalumab

    Hey Barb, Well that is good news. It’s never a real victory lap for us as there always seems to be something. Generally, I’m doing fine. Scans are scheduled for August 5th, until then it’s business as usual. I’m recovering from an overuse knee injury (thank you COVID Stay at Home Order), age and inhibitors don’t mix. My last set of labs turned up a little bit of anemia. Not sure if it’s a long term side effect of the targeted therapy or the massive Advil to treat the knee??? Hoping it resolves with the iron supplements (another pill!!). Today the dreaded disability insurance paperwork arrived. I knew it would be coming as I’m coming up on two years this September. There’s a medical records request and functional assessment due in 60 days. I despise insurance companies. I would expect having a Stage IV diagnosis should be hassle free but who knows. I’m really grateful that I’m doing very well. Can’t wait to get through this pandemic and back to leisure travel! Michelle
  9. 1 point
    APT

    Husband restarting Chemo

    Thank you all for the clarification. This whole process has left me with so many questions, and above all tremendous anxiety. I want my mom to have the best outcome. So far she's doing okay almost 4 months into diagnosis and chemo. Her oncologist has her only on a chemo regimen. Radiation therapy and or surgery hasn't even been introduced whatsoever. So I'm hoping and praying that her oncologist is keeping her on the right path of treatment.
  10. 1 point
    Rower Michelle

    Durvalumab

    Hi Barb, I hope this didn’t interrupt your weekend. I stopped looking things up from the CT report about 6-8 months ago. I go by the rule if the onc isn’t worried than I won’t worry. Easier said than done. For about a year the onc disagreed with the radiologist over a need for radiation, onc was right. He had more experience with my “rare” cancer. I had cancer on my spine and similar words appear in my CT scan which doc attributes to a combination of genetics and age. Here’s to growing old. Keep us posted! Michelle
  11. 0 points
    Lin wilki

    Broken ribs?

    I have bilateral rib fractures. I believe my osteoporosis got worse from steroids from chemo They aren’t healing since I keep coughing! Not fun
  12. 0 points
    Curt

    LC Mistaken for COVID

    I spoke to one of my long time clients a couple of months ago during the peak of the COVID pandemic in NY. She was having an issue in her home that I helped her with it via Facetime. At the time she said that she believed that both her and her husband had COVID. They were both in their 70's and I was concerned for them. She said they were not feeling well, had symptoms of COVID but hadn't been tested. At the time in NY the common practice was if you exhibited symptoms you were assumed to be positive (testing was hard to come by) and asked to quarantine. Her symptoms didn't improve for over a month. She finally convinced her doctor to see her. It turned out the symptoms were from very advanced lung cancer. She passed this past Sunday. She was a really kind and generous person. I was not terribly close to her but her passing really hit me kind of hard. I really hate this disease. I also hate how difficult COVID is making getting treatment for it for some.
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