Leaderboard

Just got a call from the radiation doc...she's scheduled a biopsy for me of the new nodule for Dec. 27.. Kinda weird my radiation doc did that and not my oncologist.... I haven't even seen my onc yet! 🤨

Hi Susan Thanks for the update. Sounds like a good plan. This will give us a reason to celebrate when your port can come out! Michelle

Hi Michelle - I've decided to keep it for now. When I can go 6 months between scans, I'll get it removed. But I'm still on the 90 day protocol and finding a vein for CT contrast is no picnic.

Kleo, Conventional Radiation then precision radiation to the same tumor, yes. The reason is the precision radiation can be precisely administered in both area and duration. Stay the course. Tom

Will definetly keep you guys updated. Currently my husband is under no treatment. His chemo got over in the last week of October. Hence we started this herbal treatment.

Hi, Chris, Welcome to LCSC. I'm glad you've already connected with a few members. There are definitely people on this site who have experience with Tagrisso. I will reach out and encourage them to respond in this thread. You may also want to explore the EGFR forum in this site: https://forums.lungevity.org/forum/54-egfr/ If you are on Facebook, here is a link to the EGFR group that BridgetO mentioned: https://www.facebook.com/groups/EGFRlung/ We are here for you! Please feel free to ask questions, share updates, and join the conversations that resonate with you. With gratit

Hi, Frank, We hope your recovery is going well! Just wanted to check in and see how you're doing? We're here for you, Lauren -- Digital Community Manager LUNGevity Foundation

Hi, Tristyn, We're sorry that you and your mom are going through a difficult time, but we're glad that you found us. This community is made up of experienced, empowered people living with lung cancer, caregivers, and advocates who are here to help. Please feel free to explore the forums, ask questions, and join the conversations. Exploring the Lung Cancer 101 site is a very good idea and we're happy to provide clarification. If you'd like, I can also send you information about LUNGevity's patient and caregiver support programs. We hope that your mom's surgery went well today! Please

Hi, Lisa, We're thinking of you this week and hoping for good news! We're here for you. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation

What a stressful day yesterday was! By the time I got home from a 2 hour drive from Philly in rush hour traffic I needed to eat and crawl into PJs. The official reading of the PET/CT will be available today from the radiologist. A PA is supposed to call me with the those final results. However, the lung surgeon I saw yesterday did his own preliminary reading on the PET/CT though. He isn't convinced that it is actually malignant due to the borders of the 5cm mass (lobulated, not spiculated) and the way it "lit" up (weakly, not bright). He also sees a calcification within the mass. So instead

So happy to hear that you are home and on the mend! Take it slow, and be patient with yourself as you heal!! Ro

Glad you are home Frank! Now onto the healing!

Sounds like everything went great! Keep us posted when you get the pathology results. Hopefully this will be "one and done" for you.

Hi Frank, sounds like pretty good news. Of course, would have been better if non-malignant, but I hope it will be stage 1a and you won't need more treatment.

Frank, Hope your surgery went well!!! Best, Ro