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Showing content with the highest reputation on 04/13/2019 in all areas

  1. Ld1978

    Hello

    Hi Lauren Thanks for asking. Recovery is going well apart from he didn’t do as he was told and caught a cold and cough off the kids. I guess mental health is as important and he didn’t want to stay home. It’s made him a little breathless but he has some antibiotics which are helping. he had his follow up and no more cancer and no further treatment needed so that’s really positive and great news for him. im hoping things will just get better and better but for 81 he is doing amazingly
    4 points
  2. Hi Lou,welcome to LCSC,I live in Scotland and had a upper right lobectomy in January 2009,your descriptions of your surgery experience does bring back memories to me.I had a drain port placed in my back post surgery which was removed prior to leaving hospital.I didnt have the benefit of key hole surgery ,which incidentally was pioneered by a surgical team in Scotland.I did have some aches with my scar for some weeks post surgery,pain is too strong a word,this ache disapeared imperceptively over the weeks.In Scotland we dont do post surgery CT scans,just a X-ray and check up every six months for 5 years post surgery.At my last visit 5 years post surgery,my oncologist told me he had every confidence that I was cured,now go away I dont expect to see you again.Now over 10 years later I have a full and active life,I enjoy every minute,now have a grandson someone at one time never thought I would never have met.I have a new partner in my life Liz,we have been together for 5 years,she has two grandchildren,a boy and a girl,all the grandchildren visit regularly with their parents of course,although we are often used as babysitters including the children staying with us overnight.I have bought a holiday home in Albir Spain a couple of years ago,so Liz and I can jet off to the sun whenever to escape the worst of Scotlands weather.We are off shortly to Spain this May/June,granddaughter Alba and parents are coming out with us for a week (Alba means Scotland in Gaelic) Alba is just a lovely person (16months old) the other grandkids are Parker 4 years old and my grandkid Orion 2 and a bit.Yes strange names,seems Scottish parents dont go in for John or Mary anymore.I do hope you forgive my rambling I just wanted to share with you there is life post cancer,I celebrate my 70th birthday this May and have much in life to look forward to.I do wish you a complete recovery from your surgery and can enjoy many years ahead.
    2 points
  3. I had vats February 2018 removing top upper lobe. The surgery itself is amazing....4 small incisions on my back. I had surgery on a Friday and went home on Sunday. They had me up walking the first night. Their goals were no pain...so you can walk and use breath exerciser. I had pain medication and when I moved about too much, I used Salon Pas patches. Since I had stage 3, I went through chemo and radiation. I am 72 and back to walking the dog and line dancing. I still use breath exerciser a few times daily to keep my lungs clear....but I have other issues....like asthma.
    2 points
  4. Hi Stacey and welcome. I had my right lower lobe removed by VATS a couple of years ago when I was 71. I'm not debilitated: far from it. I can walk a couple of miles with no problem. This winter i've been working part time in an emergency shelter for homeless families, which is a pretty active job. I can reassure your husband that the vast majority of people who have lobectomies come out just about as fit as they went in, after a reasonable recovery period. My surgeon said that unless i was planning to run a marathon (which I wasn't! )I probably wouldn't notice a difference in my lung capacity, and that's been true. Bridget O
    2 points
  5. Tom Galli

    New italian caregiver

    Ale, Benvenuto. È possibile una remissione completa con il carcinoma polmonare in stadio IV? Non usiamo il termine di remissione nella comunità del cancro ai polmoni. Speriamo che i risultati del trattamento non presentino evidenza di malattia o NED. Nella malattia di stadio IV, ci sono un certo numero di tumori metastatici. Il trattamento può eliminare questi tumori? Sì. Tuttavia, dovresti tenere presente che tua madre potrebbe aver complicato le condizioni mediche che influenzano il trattamento. Inoltre, il cancro ai polmoni è persistente e spesso si verifica un numero di cicli di trattamento prima di raggiungere il NED. Ciò che è ragionevole e molto possibile è che il trattamento prolungherà la vita di tua madre. Per quanto? Nessuno lo sa, ma il miglior consiglio è godersi l'estensione della vita. Mantenere la rotta. Tom Translation.... Welcome ale, Is a complete remission possible with stage IV lung cancer? We don’t use the term remission in the lung cancer community. We hope treatment results in no evidence of disease or NED. In Stage IV disease, there are a number of metastatic tumors. Can treatment eliminate these tumors? Yes. However, you should be mindful that your mother may have complicating medical conditions that affect treatment. Moreover, lung cancer is persistent and one often experiences a number of treatment cycles before achieving NED. What is reasonable and very possible is that treatment will extend your mother’s life. How long? No one knows but the best suggestion is to enjoy the life extension. Stay the course.
    1 point
  6. eric byrne

    My Introduction

    Hi Lou, Its a pleasure to meet you,I am happy to chat with you anytime it suits you.I did travel around the USA on Amtrak in 2011 for 7 weeks,with the encouragement Of our dear friend Katie here, I kept a daily diary of my adventures,you can still find my diary on my website Travelling Eric.I have also a couple of films in You Tube, one of my LUNGevity charity walk around Lincoln Park Seattle,where at the end of it a microphone was pushed into my hand and asked to give a little talk about myself, it comes under the heading Eric Byrne Lung Cancer Survivor. Another film was Eric Byrne Stop Smoking where some students in the college I taught in were filming something called Healthy Working Lives,they asked me if I would agree to be filmed for the series,well we must support our students,so i guessed it would take the form of a Q&A interview but no,they just set up their camera and a microphone and said,Eric,tell us about your cancer journey.Well,its unprepared,unscripted but I did my best to encourage the viewers who do not smoke not to start and those who do smoke to stop.Its really been my mission as well as speak up where ever I can in appeal for better LC research funding. Best Wishes, Eric
    1 point
  7. eric byrne

    My Introduction

    Thanks for the reply Lou,I would like share with you a experience I had post surgery.Following my surgery in Jan 2009,like you I was still feeling uneasy about my future,will my cancer come back?if so how long would I have left,type of anxieties.One day I picked up a popular Glasgow newspaper called the Evening Times,glancing through it I came across a a feature about a guy called Robert Lowe,he is a lung cancer survivor who was setting up a lung cancer support group with a lung cancer nurse called Penny Downer.I smiled at the irony,imagine two people called Lowe and Downer starting up a lung cancer support group,however I read on.Robert was dxd with SCLC in 1993,which you may appreciate is a particularly nasty type to get.His doctors told Robert that they considered he had only months left to live.Robert pleaded with the doctors to give him a fighting chance,that he would consider any type of treatment that could extend his life.The doctors considered his request and put to him a chemo regime what would be extremely severe on his body and he would have to remain in hospital for the duration of the cycles.Robert agreed,however he was having such a hard time with the treatment,one day the doctors invited his family to visit him as they thought he would not see tomorrow,but Robert recovered much to the amazement of his doctors.Robert made a full recovery and took up a normal life.Then in 2006,he was then dxd with NSCLC,had treatment and made a full recovery.Well you can imagine my amazement in reading this in Feb 2009,I just have to meet this guy,so I joined his lung cancer support group in Glasgows Stobhill Hospital.I was amazed further when I met Robert and exchanged our life stories,he was 10 years my senior,we were both brought up in the same district of Glasgow called Springburn,which at one time was the worlds biggest manufacturers of stream trains exporting them all over the world,sorry I digress,Robert and I went to the same schools,we even shared many of the same teachers.Each time we met up it was all fun and laughter,we shared so many anecdotes of our lives.Through Roberts encouragement I became like him a advocate for the Roy Castle Lung Cancer Foundation and we were very active in supporting fund raising adventures.I enjoyed a certain amount of fame if you like,I was invited to share my story on BBC radio,other radio stations followed.I was invited by Scotlands first minister to share opening a new health centre in my hometown Springburn,gosh it was amazing,all the press were there,i felt like a movie star,nxt day my story and pics were in the newspapers,think I bought a copy of every newspaper in Scotland.Later I was invited to the Scottish Assembly Buildings with Dr Jesme Fox who was presenting a paper about the regional variations of Lung Cancer survivability within Scotland.I was there to appeal to the politicans (MSPs) to focus on giving Lung Cancer Research more funding. Robert and I shared in many adventures,too many to decribe here,however,one day I forget the year, 2012? Robert shared with me that he has now been dxd with stomach and throat cancer.He had already discussed treatment with his docs,he was given a lung function test which was not good,his doctors said to operate on him would entail temporarily deflating his good lung to provide access to the tumour.Well Robert suggested to them going to the Gym,improving his diet,losing some weight,they agreed but were not really convinced.Amazingly Robert retook the lung function test,and the results were 30% improvement,sufficient for the doctors to agree to carry out the surgery,one team would concern themselves with the stomach whilst the other worked on his throat.The surgeries were successful,in fact,Doctors from around different hospital in Glasgow just had to come and visit Robert who by now was christened Lazarus.One day whilst Robert was still in hospital recovering,his son phoned me.He told me he had entered Roberts room in the hospital to see him dressing himself to leave the hospital,turns out it was by only Roberts volution,his son pleaded with Robert to go back to bed until his Doctors gave him permission to go home.Sadly Robert took a serious chest infection which in his weakened state was unable to shake off.Robert passed away,it was my heartfelt pleasure to be invited by his family to give the eulogy at his furneral service.I said Robert died cancer free,he had become the longest surviving dual lung cancer patient in the UK,having surviving both SCLC and NSCLC for almost 20 years. I joined LUNGevity soon after I completed my LC treatments and have enjoyed writing here,although not as often as I once did.You see Lou,lung cancer treatments have advanced so much since I was dxd in 2008 I am now a bit of a dinosaur to supporting new arrivals to LCSC with regards to treatments,but it does give me some pleasure in being able to support people like yourself with some of my experiences.Robert is my hero,by his spirit he lifted me out of my anxieties about my cancer all these years ago and I hope his life with cancer will inspire you.
    1 point
  8. Thanks, Lexie, I read yours message every day...in Italy there are not site like this for Lc... thanks!
    1 point
  9. LouT

    My Introduction

    Eric Thanks for sharing your story. Along with the others I've heard, it gives me hope for the future. I'll admit I'm very concerned about recovery, post-op limitations, and recurrence. I just retired 2 years ago and had an optimistic picture of how my wife and I would spend time in this part of our lives. When I read a story like yours,Lexie and others it brings a spark of that optimism back. I'm working hard on staying positive and do better some days more than others. Finding this forum is a blessing to me at this time. Thanks again for the words of hope. Lou
    1 point
  10. Oh Bridget! Thank you for your reassurance! It means so much to us! I have read each of your posts to my husband and he was so much more at peace - it helps to know what others have experienced. Laurel - thank you for describing your surgery and giving us some details. Very helpful and most appreciated! We of course won't know if he will need chemo and radiation until after we get pathology back on a lymph node biopsy after the surgery. Thankful the MRI of his brain came back clear. Thank you EVERYONE for taking the time to share with us - it means so much ❤️
    1 point
  11. LouT

    My Introduction

    Wow, you folks are great. Hearing your experiences is so much better than just reading a brochure telling me what to expect. I do get that everyone is different, but I must admit that my anxiety level has definitely gone down a bit since reading your experiences and hearing so many hopeful and positive things. I'm also struck by the strength and courage I hear in your stories. I couldn't be happier that I found this forum and I hope one day to pay it forward. LouT
    1 point
  12. We're glad that you found us too, Stacey!
    1 point
  13. Thank you Lauren! I so appreciate the information! I feel like a sponge trying to learn as much as I can. Thankful to have found this forum, because honestly, it has given me the most hope and feeling not so all alone in this. Thank you for your words ❤️
    1 point
  14. Curt - thank you so very much! Your words give us both hope ❤️ I am thankful to hear that you are able to run and play with your kids! I am so happy for you that you did not have to go through radiation and chemo. We will keep both you and Lexie in our prayers for continued clean scans and good health. Scary stuff for sure - I am glad I was able to connect with you via this forum - it helps so very much.
    1 point
  15. Barb1260

    Esophogus problem?

    Thank you both. I had last radiation Friday and the PA reviewed all my minor nagging symptoms and confirmed they are all related and will get better in time. Took 5 weeks to get any side effects so I am grateful. The fatigue is even manageable at this point.
    1 point
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