Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 06/19/2019 in all areas

  1. Most of the time, I just go with the flow on this whole cancer nonsense. But yesterday aggravated me. I had lab work done last Thursday for yesterday's CT. While I was waiting in the lab, a nurse came to the lab to tell me I was scheduled for a port flush. I said I wasn't because it would be flushed when I had my CT. She insisted so I just let her do it. She went too fast, skipped a step, and bruised my chest. Fast forward to yesterday. I had my port accessed for my scan. Different nurse said that last nurse's actions aren't what made my port area sore. Excuse me? How many thumb-tack size
    5 points
  2. Kleo

    Durvalumab

    Well that 8 hour infusion was fun! Not......🤣 Tomm…..The cannabis route is just not for everyone. All I believe is that it does help with eating and/or nausea if you get it bad. But if anyone wants to try it...go for it I say. Anything that makes ya happy! Tom....Hi! good to "see" ya! I just responded to TWO Tom's in one post. A Tomm-Tom.😎 I'm so talented.
    5 points
  3. Should weigh on same scale, same time of day, wearing same weight of clothing each day. Scale should be on a hard floor and patient bladder empty. With the weight gain, I would look for foot/ankle/lower leg swelling, abdominal swelling - these should be reported to the doc. One other thing, a scale is a machine and machines are not always right. Hoping all is well.
    2 points
  4. 1 point
  5. Thanks Tom, I’m pretty sure her weight gain was run by her oncologist. NP did say her lung sounded clear so I take that as a plus. Just makes me nervous. So many complications to worry probably needlessly over. I wish sometimes I could be one of those people who’s mantra is “what will be will be”. I try but fail miserably at it. And I too over think vacations which is why I usually don’t enjoy myself until at least day 3 of most vacations. But that, I am getting better at!
    1 point
  6. Blossomsmom, You are right about the weigh-in and report routine. During my chemo, my weight varied a lot; mostly down but large upswings when my wife could stuff me with ice cream. When variance was noted, I'd take a seat while the chemo nurse consulted with the on-call oncologist to determine suitability for treatment. It is hard not to overthink; this admission comes from the one who overthinks everything always. And of course, my overthinking always leads to over reaction that leads to panic and et cetera. So I'm guilty but must admit that my overthinking never led to thought
    1 point
  7. Susan, So, you had an encounter with a Carly Simon nurse! (I'll let that percolate to display my advanced age and vast vein puncturing experience). Thankfully and most hopefully, my treatment mayhem is over but not blood donation. At every oncology consultation, job one is drawing blood and I always seem to get the new idiot that doesn't read the memo! The worst is the admonition "don't worry, it's just a little stick." My response is always "want to trade places." Others may read this and therefore I'll link my tome on blood letting for reference. As always... Stay the co
    1 point
  8. Robert Macaulay

    Durvalumab

    Barb1260 Never experienced any dizziness at all
    1 point
  9. Steff

    Durvalumab

    Kleo- Glad to see you have kept your sense of humor through all of this...Tomm-Tom (I truly lol'd over that!)
    1 point
  10. Kleo - ouch! I did my first round of chemo in 2016 without the port and it was miserable. One session took 7 sticks to get started. I added the port in 2017 for that round of chemo. I realize we are not the medical professionals but maybe they should listen to us because we do know what's going on. After one of my surgeries, I had an allergic reaction to betadine and ended up in urgent care getting steroids. When I met with the doctor to place my port, I told him about my reaction and he said it had nothing to do with the betadine and that it was related to that specific surgery. Yeah, I
    1 point
  11. Steff

    Looking for some hope

    I'm so very sorry to hear all of this, especially about your dad being told there is not much hope. With recent advances in treatment, there is HOPE. I'm not familiar with Australia's protocol for treatments, but has your dad had any advanced testing on his cancer, like for various biomarkers/genetic markers? These tests can give docs more info about your dad's cancer to help better prescribe a treatment approach. I am assuming since he was on Keytruda initially, that he at least has a test for PD-1/PD-L1? I know that things may seem very grim right now, especially with your dad hav
    1 point
  12. Hi Susan! Oh I can relate....kinda! I had a guy doing an IV for an MRI. He was just going the vein route as it was quicker. OMG...he WRECKED my arm! He was training a new guy so I think he was showing off a little and tried a hard to get vein in the middle of my arm. Yeah he didn't get it...but the BRUISE...well I took pics. Took a month to clear. so NEXT MRI..only a week or so later.....I said just have a nurse access my port this time. In case that dude was there again...LOL So next one they access the port no prob....then afterward when the nurse was removing it...she was tal
    1 point
  13. Diana, I'm sorry for your news... I can only imagine how upsetting the diagnosis was. That's understandable. I don't have experience in this to share with you (recent lobectomy only) but hope that someone can share info with you. I'd be curious - as I have been curious if this type of situation arises very often. It sounds as if your follow-up care has been thorough which is a good thing, as well as getting immediate treatment to address this. Thinking of you and hope you'll get some answers here...
    1 point
  14. MartinGoh

    Introduction

    Hi, My wife has ALK+ NSCLC with brain metastases. She was diagnosed in 2013 and continues to fight the good fight till this day. The last 2 years have been a real challenge with so many ups and downs. After exhausting all the 'typical' treatment protocols over the years (WBRT, Stereotactic Radiotherapy, Crizotinib, Brigatinib, Alectinib, Immunotherapy, Chemotherapy, Avastin and near surgery), we're now trying different combination of drugs and treatment protocols. She has had NGS done and also tests positive for MTOR, RET, CDKN2A and TP53. I wanted to join the forum to be abl
    1 point
  15. Tom Galli

    Durvalumab

    Tomm, While THC may provide pleasant sensations, I’ve not found scientific evidence that it effects lung cancer tumors. In fact the claim is THC kills all kinds of cancer and that would make it a miracle drug. Sadly there are no miracle cures. Stay the course. Tom
    1 point
  16. Tomm

    Durvalumab

    Kelo, I don't taste it, I put it in capsules and took it every 8 hours. If you keep taking it you will build up a tolerance and can take a larger does. Thc kills tumors too... keep us posted
    1 point
  17. Curt

    Introduction

    Hi Martin. Welcome to this forum. I’m sorry to hear of your wife’s diagnosis. Your post and faith come across strong and optimistic. Two great weapons in this fight. I don’t have any specific experience with your questions but I hope you find some answers here and you both continue the fight.
    1 point
  18. Spanmer

    Looking for some hope

    Also the doctor told him it’s too aggressive and there’s not much hope. That doctor is just an arsehole. Dad was in a good frame of mind until he spoke to that guy. Now he’s told us he’s giving up.
    0 points
  19. Spanmer

    Looking for some hope

    Thank you for the inspiration. He’s just come out of hospital after battling a week of strong pneumonia. He’s in a lot of pain and doesn’t want to take anything other then panadol. He’s having a pet scan tomorrow and starts chemo on Friday. They found cancer in his sacrum that pressing on his nerves and causing his leg to go limp. They plan on targeting that with radiotherapy. Just really hoping this works.
    0 points
×
×
  • Create New...